ID

16032

Description

NINDS Common Data Elements, Multiple Sclerosis Pediatric Developmental History Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

Link

https://www.commondataelements.ninds.nih.gov/

Keywords

  1. 6/26/16 6/26/16 -
Uploaded on

June 26, 2016

DOI

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License

Creative Commons BY-NC 3.0

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NINDS CDE Pediatric Developmental History Multiple Sclerosis

Pediatric Developmental History

Early Life Nutrition
Description

Early Life Nutrition

Alias
UMLS CUI-1
C0021279
Study ID
Description

Study ID

Data type

integer

Alias
UMLS CUI [1]
C2826693
Study site name
Description

Study site name

Data type

text

Alias
UMLS CUI [1]
C2825164
Subject ID
Description

Subject ID

Data type

integer

Alias
UMLS CUI [1]
C2348585
Breast fed?
Description

Breast fed

Data type

text

Alias
UMLS CUI [1]
C0438100
If Yes, indicate duration in months
Description

Breast fed

Data type

integer

Alias
UMLS CUI [1]
C0438100
Formula fed?
Description

Formula fed

Data type

text

Alias
UMLS CUI [1]
C4062867
If Yes, indicate duration: months and formula type:
Description

Formula fed

Data type

text

Alias
UMLS CUI [1]
C4062867
Early Development
Description

Early Development

Alias
UMLS CUI-1
C0870455
Did patient walk by 17 months old?
Description

walking

Data type

text

Alias
UMLS CUI [1]
C0080331
Did patient speak his/her first words by 12 months?
Description

speaking

Data type

text

Alias
UMLS CUI [1]
C0234856
Did patient speak in two word combinations by 2 years?
Description

two word combination

Data type

text

Did patient speak in completed sentences by 3 years?
Description

complete sentence

Data type

text

Alias
UMLS CUI [1]
C0871341
Did patient have a cognitive/learning ?
Description

cognitive disability

Data type

text

Alias
UMLS CUI [1]
C0009241
Did patient attend a day care group (with > 5 other children)?
Description

child day care

Data type

text

Alias
UMLS CUI [1]
C0237555
Has participant/subject ever had a menstrual period?
Description

menstruation

Data type

text

Alias
UMLS CUI [1]
C0025344
If so, youngest age the female participant/subject had a menstrual period? years
Description

menstrual period

Data type

integer

Alias
UMLS CUI [1]
C0025329
Educational History
Description

Educational History

Alias
UMLS CUI-1
C0679831
UMLS CUI-2
C0013622
Type of educational services received:
Description

Educational status

Data type

text

Alias
UMLS CUI [1]
C0013658
Has the participant/subject ever repeated a grade in school?
Description

school performance

Data type

text

Alias
UMLS CUI [1]
C0036373
Cognitive
Description

Cognitive

Alias
UMLS CUI-1
C1516691
Above average (receives mostly As in school)
Description

school grade

Data type

boolean

Alias
UMLS CUI [1]
C3244287
Normal (functions well in school, receives mostly Bs, Cs)
Description

school grade

Data type

boolean

Alias
UMLS CUI [1]
C3244287
Minimal difficulty (struggling but obtains passing grades)
Description

school performance

Data type

boolean

Alias
UMLS CUI [1]
C0036373
Moderate difficulty (needs assistance with school work such as an Educational Assistant)
Description

school performance

Data type

boolean

Alias
UMLS CUI [1]
C0036373
Special needs class setting, actively participating in learning
Description

school performance

Data type

boolean

Alias
UMLS CUI [1]
C0036373
Severe (unable to function in regular classroom even in special class setting, not an active participant in learning activities)
Description

school performance

Data type

boolean

Alias
UMLS CUI [1]
C0036373
Limited cognition (unrelated to demyelination or predates demyelination)
Description

school performance

Data type

boolean

Alias
UMLS CUI [1]
C0036373
N/A (patient is too young for school)
Description

school performance

Data type

boolean

Alias
UMLS CUI [1]
C0036373
Unknown
Description

school performance

Data type

boolean

Alias
UMLS CUI [1]
C0036373
Vaccinations
Description

Vaccinations

Alias
UMLS CUI-1
C0042196
Routine: Measles, mumps, rubella
Description

Measles Mumps Rubella Vaccine

Data type

text

Alias
UMLS CUI [1]
C0065828
Hospitalized?
Description

Hospitalization

Data type

text

Alias
UMLS CUI [1]
C0019993
Specify
Description

Specify

Data type

text

Alias
UMLS CUI [1]
C1521902
Routine: Tetanus, pertussis, diptheria, polio
Description

Tetanus pertussis diptheria polio vaccine

Data type

text

Alias
UMLS CUI [1]
C0260392
Hospitalized?
Description

Hospitalization

Data type

text

Alias
UMLS CUI [1]
C0019993
Specify
Description

Specify

Data type

text

Alias
UMLS CUI [1]
C1521902
Hepatitis B
Description

Hepatitis B vaccine

Data type

text

Alias
UMLS CUI [1]
C0474232
Hospitalized?
Description

Hospitalization

Data type

text

Alias
UMLS CUI [1]
C0019993
Specify
Description

Specify

Data type

text

Alias
UMLS CUI [1]
C1521902
Haemophilus Influenza Type B
Description

Haemophilus Influenza Type B vaccine

Data type

text

Alias
UMLS CUI [1]
C0062082
Hospitalized?
Description

Hospitalization

Data type

text

Alias
UMLS CUI [1]
C0019993
Specify
Description

Specify

Data type

text

Alias
UMLS CUI [1]
C1521902
Chicken Pox Vaccine
Description

Chicken Pox Vaccine

Data type

text

Alias
UMLS CUI [1]
C3703980
Specify age in years
Description

Chicken Pox

Data type

integer

Alias
UMLS CUI [1]
C0008049
Hospitalized?
Description

Hospitalization

Data type

text

Alias
UMLS CUI [1]
C0019993
Specify
Description

Specify

Data type

text

Alias
UMLS CUI [1]
C1521902
Vaccination within one month of 1 st demyelinating attack
Description

Vaccination

Data type

text

Alias
UMLS CUI [1]
C0042196
Specify vaccine
Description

Vaccination

Data type

text

Alias
UMLS CUI [1]
C0042196
Hospitalized?
Description

Hospitalization

Data type

text

Alias
UMLS CUI [1]
C0019993
Specify
Description

Specify

Data type

text

Alias
UMLS CUI [1]
C1521902

Similar models

Pediatric Developmental History

Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Early Life Nutrition
C0021279 (UMLS CUI-1)
Study ID
Item
Study ID
integer
C2826693 (UMLS CUI [1])
Study site name
Item
Study site name
text
C2825164 (UMLS CUI [1])
Subject ID
Item
Subject ID
integer
C2348585 (UMLS CUI [1])
Item
Breast fed?
text
C0438100 (UMLS CUI [1])
Code List
Breast fed?
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
Breast fed
Item
If Yes, indicate duration in months
integer
C0438100 (UMLS CUI [1])
Item
Formula fed?
text
C4062867 (UMLS CUI [1])
Code List
Formula fed?
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
Item
If Yes, indicate duration: months and formula type:
text
C4062867 (UMLS CUI [1])
Code List
If Yes, indicate duration: months and formula type:
Item Group
Early Development
C0870455 (UMLS CUI-1)
Item
Did patient walk by 17 months old?
text
C0080331 (UMLS CUI [1])
Code List
Did patient walk by 17 months old?
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
Item
Did patient speak his/her first words by 12 months?
text
C0234856 (UMLS CUI [1])
Code List
Did patient speak his/her first words by 12 months?
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
Item
Did patient speak in two word combinations by 2 years?
text
Code List
Did patient speak in two word combinations by 2 years?
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
Item
Did patient speak in completed sentences by 3 years?
text
C0871341 (UMLS CUI [1])
Code List
Did patient speak in completed sentences by 3 years?
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
Item
Did patient have a cognitive/learning ?
text
C0009241 (UMLS CUI [1])
Code List
Did patient have a cognitive/learning ?
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
Item
Did patient attend a day care group (with > 5 other children)?
text
C0237555 (UMLS CUI [1])
Code List
Did patient attend a day care group (with > 5 other children)?
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
Item
Has participant/subject ever had a menstrual period?
text
C0025344 (UMLS CUI [1])
Code List
Has participant/subject ever had a menstrual period?
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
menstrual period
Item
If so, youngest age the female participant/subject had a menstrual period? years
integer
C0025329 (UMLS CUI [1])
Item Group
Educational History
C0679831 (UMLS CUI-1)
C0013622 (UMLS CUI-2)
Item
Type of educational services received:
text
C0013658 (UMLS CUI [1])
Code List
Type of educational services received:
CL Item
Special education (1)
CL Item
Regular education  (2)
CL Item
Early intervention  (3)
CL Item
None  (4)
CL Item
Unknown (5)
Item
Has the participant/subject ever repeated a grade in school?
text
C0036373 (UMLS CUI [1])
Code List
Has the participant/subject ever repeated a grade in school?
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
Item Group
Cognitive
C1516691 (UMLS CUI-1)
school grade
Item
Above average (receives mostly As in school)
boolean
C3244287 (UMLS CUI [1])
school grade
Item
Normal (functions well in school, receives mostly Bs, Cs)
boolean
C3244287 (UMLS CUI [1])
school performance
Item
Minimal difficulty (struggling but obtains passing grades)
boolean
C0036373 (UMLS CUI [1])
school performance
Item
Moderate difficulty (needs assistance with school work such as an Educational Assistant)
boolean
C0036373 (UMLS CUI [1])
school performance
Item
Special needs class setting, actively participating in learning
boolean
C0036373 (UMLS CUI [1])
school performance
Item
Severe (unable to function in regular classroom even in special class setting, not an active participant in learning activities)
boolean
C0036373 (UMLS CUI [1])
school performance
Item
Limited cognition (unrelated to demyelination or predates demyelination)
boolean
C0036373 (UMLS CUI [1])
school performance
Item
N/A (patient is too young for school)
boolean
C0036373 (UMLS CUI [1])
school performance
Item
Unknown
boolean
C0036373 (UMLS CUI [1])
Item Group
Vaccinations
C0042196 (UMLS CUI-1)
Item
Routine: Measles, mumps, rubella
text
C0065828 (UMLS CUI [1])
Code List
Routine: Measles, mumps, rubella
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
CL Item
not asked (4)
Item
Hospitalized?
text
C0019993 (UMLS CUI [1])
Code List
Hospitalized?
CL Item
yes, specify (1)
CL Item
no (2)
Specify
Item
Specify
text
C1521902 (UMLS CUI [1])
Item
Routine: Tetanus, pertussis, diptheria, polio
text
C0260392 (UMLS CUI [1])
Code List
Routine: Tetanus, pertussis, diptheria, polio
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
CL Item
not asked (4)
Item
Hospitalized?
text
C0019993 (UMLS CUI [1])
Code List
Hospitalized?
CL Item
yes, specify (1)
CL Item
no (2)
Specify
Item
Specify
text
C1521902 (UMLS CUI [1])
Item
Hepatitis B
text
C0474232 (UMLS CUI [1])
Code List
Hepatitis B
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
CL Item
not asked (4)
Item
Hospitalized?
text
C0019993 (UMLS CUI [1])
Code List
Hospitalized?
CL Item
yes, specify (1)
CL Item
no (2)
Specify
Item
Specify
text
C1521902 (UMLS CUI [1])
Item
Haemophilus Influenza Type B
text
C0062082 (UMLS CUI [1])
Code List
Haemophilus Influenza Type B
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
CL Item
not asked (4)
Item
Hospitalized?
text
C0019993 (UMLS CUI [1])
Code List
Hospitalized?
CL Item
yes, specify (1)
CL Item
no (2)
Specify
Item
Specify
text
C1521902 (UMLS CUI [1])
Item
Chicken Pox Vaccine
text
C3703980 (UMLS CUI [1])
Code List
Chicken Pox Vaccine
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
CL Item
not asked (4)
CL Item
natural infection, specify age: yrs (5)
Chicken Pox
Item
Specify age in years
integer
C0008049 (UMLS CUI [1])
Item
Hospitalized?
text
C0019993 (UMLS CUI [1])
Code List
Hospitalized?
CL Item
yes, specify (1)
CL Item
no (2)
Specify
Item
Specify
text
C1521902 (UMLS CUI [1])
Item
Vaccination within one month of 1 st demyelinating attack
text
C0042196 (UMLS CUI [1])
Code List
Vaccination within one month of 1 st demyelinating attack
CL Item
yes, specify (1)
CL Item
no (2)
CL Item
unknown (3)
CL Item
not asked (4)
Vaccination
Item
Specify vaccine
text
C0042196 (UMLS CUI [1])
Item
Hospitalized?
text
C0019993 (UMLS CUI [1])
Code List
Hospitalized?
CL Item
yes, specify (1)
CL Item
no (2)
Specify
Item
Specify
text
C1521902 (UMLS CUI [1])

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