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WHO-5 - WHO (Five) Well-Being Index

- 13-12-24 - 1 Formulier, 1 Itemgroep, 5 Data-elementen, 30 Talen
Itemgroep: Over the last two weeks
WHO (Five) Well-Being Index (1998 version) Also called : WHO Five, WHO 5 [Topp CW, Østergaard SD, Søndergaard S, Bech P. The WHO-5 Well-Being Index: a systematic review of the literature. Psychother Psychosom. 2015;84(3):167-76. doi: 10.1159/000376585]

ECOG

- 07-08-23 - 1 Formulier, 1 Itemgroep, 1 Data-element, 2 Talen
Itemgroep: ECOG
ECOG - WHO - Zubrod Performance Status Scale

NINDS CDE Demographics Multiple Sclerosis - Demographics

- 15-03-21 - 1 Formulier, 1 Itemgroep, 8 Data-elementen, 1 Taal
Itemgroep: Demographics
NINDS Common Data Elements, Multiple Sclerosis Demographics Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

ICHOM Heart Failure - Baseline Characteristics, at time of index event

- 30-04-20 - 1 Formulier, 5 Itemgroepen, 62 Data-elementen, 1 Taal
Itemgroepen: Patient ID, Demographic Factors, Baseline health status, Treatment variables, Burden of Care
HEART FAILURE DATA COLLECTION Version 1.1.4 Revised October 31st, 2017 www.ichom.org Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. Conditions: Heart Failure Treatment Approaches: Pharmacotherapy | Invasive Therapy | Rehabilitation This ODM-file contains baseline characteristics. It should be filled in at the time of the index event. The index event represents the entry into the set. This could either be after diagnosis/first encounter in an outpatient setting, or at discharge from hospital if the initial presentation was severe enough to require admission. Use of the following Scores for this standard set: KCCQ-12: Kansas City Cardiomyopathy Questionnaire-Short Version: You can obtain a license to use this instrument at your institution by visiting http://cvoutcomes.org/licenses NYHA – New York Heart Association Functional Classification: The NYHA is free for all health care organizations, and a license is not needed. PROMIS Physical Function Short Form 4a – Patient-Reported Outcome Measurement Information System: PROMIS Physical Function is free for all health care organizations, and a license is not needed. For more information, please visit http://www.healthmeasures.net/explore-measurement-systems/promis/obtain-administer-measures . As http://www.nihpromis.org/ is the official distribution site for PROMIS questionnaires and translations, only the total score will be included in this version of the standard set. Patient Health Questionnaire (PHQ-2): Copyright by Pfizer: "content found on the PHQ Screeners site is free for download and use as stated within the PHQ Screeners site, please visit http://www.phqscreeners.com/ for more information. ICHOM was supported for the Heart Failure Standard Set by GIG Cymru NHS Wales, American Heart Association, British Heart Foundation, Heart Failure Association of the ESC and European Society of Cardiology. Publication: Burns DJP, Arora J, Okunade O, Beltrame JF, Bernardez-Pereira S, Crespo-Leiro MG, et al. International Consortium for Health Outcomes Measurement (ICHOM): Standardized Patient-Centered Outcomes Measurement Set for Heart Failure Patients. JACC: Heart Failure. 2020 Mar 1;8(3):212–22. For this version of the standard set, semantic annotation with UMLS CUIs has been added.

DIVI Kerndatensatz Intensivmedizin 2010 - Entlassung von der Intensivtherapiestation

- 19-03-20 - 5 Formulieren, 2 Itemgroepen, 16 Data-elementen, 1 Taal
Itemgroepen: DNR (do not resuscitate) / AND (allowed natural death), Procedures and complications
Kerndatensatz Intensivmedizin 2010 der DIVI und DGAI (nur patientenbezogene Daten, ohne Strukturdaten der Intensivtherapiestation und der Klinik ). Deutsche interdisziplinaere Vereinigung fuer Intensiv und Notfallmedizin DIVI (German interdisciplinary association for intensive and emergeny medical care), http://www.divi.de/images/Dokumente/Empfehlungen/Strukturempfehlungen/2010_KerndatensatzIntensivmedizin.pdf

Strukturdaten

1 Itemgroep 28 Data-elementen

Aufnahmestatus

2 Itemgroepen 37 Data-elementen

Entlassung aus dem Krankenhaus

1 Itemgroep 2 Data-elementen

Tägliche Datenerhebung

2 Itemgroepen 25 Data-elementen

Quality assurance Follow-up Heart Transplant (AQUA) - Quality assurance Follow-up Liver Transplant (AQUA)

- 27-09-19 - 1 Formulier, 2 Itemgroepen, 16 Data-elementen, 2 Talen
Itemgroepen: Follow-up(auszufüllen nach 1, 2 und 3 Jahren), Überlebensstatus des Empfängers
Documentation form for quality assurance in German Health Care by the Institute for Applied Quality Improvement and Research in Health Care (Aqua), https://www.aqua-institut.de/en/home. Internal Aqua form version: HTXFU Specification 2015 V02

Quality assurance Heart Transplant Heart Assist Devices Artificial Heart - Transplant (AQUA)

- 17-03-16 - 1 Formulier, 8 Itemgroepen, 49 Data-elementen, 2 Talen
Itemgroepen: Heart Transplant Heart Assis Devices Artificial Heart - Transplant, Empfängerdaten, Risikoprofil, Immunsuppression initial, Spenderdaten, Befunde Spender, Operation, Postoperativer Verlauf
Documentation form for quality assurance in German Health Care by the Institute for Applied Quality Improvement and Research in Health Care (Aqua), https://www.aqua-institut.de/en/home. Internal Aqua form version: HTXM-T Specification 2015 V02

CDASH Lab Result Assessment (Scenario 3, Part 2) - CDASH LAB Result Assessment (Scenario 3, Part 2)

- 20-09-21 - 1 Formulier, 1 Itemgroep, 2 Data-elementen, 2 Talen
Itemgroep: LAB Abnormal result
modified from http://www.cdisc.org

ICHOM Coronary Artery Disease - Peri-Inverventional Clinical Form

- 30-04-20 - 1 Formulier, 8 Itemgroepen, 46 Data-elementen, 1 Taal
Itemgroepen: Administrative Data, Demographic factors, Baseline health status, Prior Treatments, TREATMENT VARIABLES, Acute complications of treatment, Major surgery complications, Major interventional cardiology complications
CORONARY ARTERY DISEASE DATA COLLECTION Version 2.0.3 Revised: April 5th, 2017 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. Conditions: Asymptomatic Coronary Artery Disease | Stable Angina | Acute Coronary Syndrome (Includes AMI) Treatment Approaches: Lifestyle Modification | Drug Therapy | Percutaneous Coronary Intervention (PCI) | Coronary Artery Bypass Grafting (CABG) This form contains peri-interventional clinical items. The items cover a timespan from prior to the intervention (e.g. PCI or CABG) until 30 days after it. They should be assessed at the entry event and at any new index event (e.g. new revascularization procedure or new diagnosis of ACS). Questionnaires used in this standard set: Rose Dyspnea Scale: The Rose Dyspnea Scale is free for all health care organizations, and a license is not needed. More information may be found at http://www.ahjonline.com/article/S0002-8703(09)00266-X/abstract Patient Health Questionnaire (PHQ-2): The PHQ-2 is free for all health care organizations, and a license is not needed. Copyright Pfizer, more Information on http://www.phqscreeners.com/ Seattle Angina Questionnaire (SAQ-7): Due to the need for a license for use of the SAQ-7 the actual questions of SAQ-7 will not be part of this version of the standard set. Publication: McNamara RL, Spatz ES, Kelley TA, et al. Standardized Outcome Measurement for Patients With Coronary Artery Disease: Consensus From the International Consortium for Health Outcomes Measurement (ICHOM). J Am Heart Assoc. 2015;4(5):e001767. Published 2015 May 19. doi:10.1161/JAHA.115.001767 For this version of the standard set, semantic annotation with UMLS CUIs has been added.

CDASH ECG – Scenario 2 (local processing) - ECG – Scenario 2 (local processing)

- 20-06-18 - 1 Formulier, 3 Itemgroepen, 16 Data-elementen, 2 Talen
Itemgroepen: General information, ECG Information (Local processing), ECG Results
modified from http://www.cdisc.org

NIHSS - NIH Stroke Scale

- 20-09-21 - 1 Formulier, 1 Itemgroep, 16 Data-elementen, 9 Talen
Itemgroep: NIHSS
https://en.wikipedia.org/wiki/National_Institutes_of_Health_Stroke_Scale

ADT and Gekid shared uniform oncological basic data set - Uniform oncological basic data set

- 20-09-21 - 1 Formulier, 19 Itemgroepen, 123 Data-elementen, 2 Talen
Itemgroepen: Reason for report, Administrative Data, Reporting institution, Diagnosis, Histology, TNM Classification, Other classifications, Residual status, Distant metastases, Surgery, Complications, Radiotherapy, Radiotherapy Side effects, Systemic therapy, Systemic or expectant treatment, Systemic therapy side effects, Follow-Up, Tumor conference, Death
The uniform oncological basic data set of ADT and GEKID was adopted in March 2008 and updated in February, 2014. It applies to all types of cancer and is continuously supplemented by tumor-specific modules. By harmonizing Oncology base record, an instrument has been created which provides a harmonized oncological standard , prevents multiple documentaries and allows comparable acquisition and evaluation of cancer treatments in all clinical structures and federal states . Source: http://www.tumorzentren.de/onkol-basisdatensatz.html

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