ID

40567

Description

HEART FAILURE DATA COLLECTION Version 1.1.4 Revised October 31st, 2017 www.ichom.org Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. Conditions: Heart Failure Treatment Approaches: Pharmacotherapy | Invasive Therapy | Rehabilitation This ODM-file contains baseline characteristics. It should be filled in at the time of the index event. The index event represents the entry into the set. This could either be after diagnosis/first encounter in an outpatient setting, or at discharge from hospital if the initial presentation was severe enough to require admission. Use of the following Scores for this standard set: KCCQ-12: Kansas City Cardiomyopathy Questionnaire-Short Version: You can obtain a license to use this instrument at your institution by visiting http://cvoutcomes.org/licenses NYHA – New York Heart Association Functional Classification: The NYHA is free for all health care organizations, and a license is not needed. PROMIS Physical Function Short Form 4a – Patient-Reported Outcome Measurement Information System: PROMIS Physical Function is free for all health care organizations, and a license is not needed. For more information, please visit http://www.healthmeasures.net/explore-measurement-systems/promis/obtain-administer-measures . As http://www.nihpromis.org/ is the official distribution site for PROMIS questionnaires and translations, only the total score will be included in this version of the standard set. Patient Health Questionnaire (PHQ-2): Copyright by Pfizer: "content found on the PHQ Screeners site is free for download and use as stated within the PHQ Screeners site, please visit http://www.phqscreeners.com/ for more information. ICHOM was supported for the Heart Failure Standard Set by GIG Cymru NHS Wales, American Heart Association, British Heart Foundation, Heart Failure Association of the ESC and European Society of Cardiology. Publication: Burns DJP, Arora J, Okunade O, Beltrame JF, Bernardez-Pereira S, Crespo-Leiro MG, et al. International Consortium for Health Outcomes Measurement (ICHOM): Standardized Patient-Centered Outcomes Measurement Set for Heart Failure Patients. JACC: Heart Failure. 2020 Mar 1;8(3):212–22. For this version of the standard set, semantic annotation with UMLS CUIs has been added.

Link

www.ichom.org

Keywords

Versions (2)
  1. 11/16/18 11/16/18 - Sarah Riepenhausen
  2. 4/30/20 4/30/20 - Sarah Riepenhausen
Copyright Holder

ICHOM

Uploaded on

April 30, 2020

DOI

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License

Creative Commons BY-NC 4.0
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ICHOM Heart Failure

English

Baseline Characteristics, at time of index event

1 forms  
Patient ID
Description

Patient ID

Alias
UMLS CUI-1
C1269815
Indicate the patient's medical record number.
Description

This number will not be shared with ICHOM. In the case patient-level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution. INCLUSION CRITERIA: All patients TIMING: On all forms REPORTING SOURCE: Administrative or clinical RESPONSE OPTIONS: According to institution

Data type

integer

Alias
UMLS CUI [1]
C1269815
Demographic Factors
Description

Demographic Factors

Alias
UMLS CUI-1
C1704791
Please provide the patient's date of birth
Description

INCLUSION CRITERIA: All patients TIMING: At index event for HF REPORTING SOURCE: Administrative data TYPE: Date by DD/MM/YYYY

Data type

date

Measurement units
  • DD/MM/YYYY
Alias
UMLS CUI [1]
C0001779
UMLS CUI [2]
C0421451
DD/MM/YYYY
Please provide the patient's sex at birth
Description

INCLUSION CRITERIA: All patients TIMING: At index event for HF REPORTING SOURCE: Administrative data TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1]
C0079399
What is your ethnicity (Select all that apply) 0 = American Indian or Alaska Native
Description

This is based upon the U.S. Standards for the Classification of Federal Data on Race and Ethnicity, and reflects standards in the U.S. Please adapt questions according to your country’s guidelines. Varies by country and should be determined by country (not for cross country comparison) INCLUSION CRITERIA: All patients TIMING: At index event for HF REPORTING SOURCE: Clinician-reported TYPE: Single Answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0015031
UMLS CUI [1,2]
C1515945
What is your ethnicity (Select all that apply) 1 = Asian
Description

This is based upon the U.S. Standards for the Classification of Federal Data on Race and Ethnicity, and reflects standards in the U.S. Please adapt questions according to your country’s guidelines. Varies by country and should be determined by country (not for cross country comparison) INCLUSION CRITERIA: All patients TIMING: At index event for HF REPORTING SOURCE: Clinician-reported TYPE: Single Answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0015031
UMLS CUI [1,2]
C0078988
What is your ethnicity (Select all that apply) 2 = Black or African American
Description

This is based upon the U.S. Standards for the Classification of Federal Data on Race and Ethnicity, and reflects standards in the U.S. Please adapt questions according to your country’s guidelines. Varies by country and should be determined by country (not for cross country comparison) INCLUSION CRITERIA: All patients TIMING: At index event for HF REPORTING SOURCE: Clinician-reported TYPE: Single Answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0015031
UMLS CUI [1,2]
C0005680
UMLS CUI [2,1]
C0015031
UMLS CUI [2,2]
C0085756
What is your ethnicity (Select all that apply) 3 = Hispanic or Latino
Description

This is based upon the U.S. Standards for the Classification of Federal Data on Race and Ethnicity, and reflects standards in the U.S. Please adapt questions according to your country’s guidelines. Varies by country and should be determined by country (not for cross country comparison) INCLUSION CRITERIA: All patients TIMING: At index event for HF REPORTING SOURCE: Clinician-reported TYPE: Single Answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0015031
UMLS CUI [1,2]
C0086409
UMLS CUI [2,1]
C0015031
UMLS CUI [2,2]
C0086528
What is your ethnicity (Select all that apply) 4 = Native Hawaiian or Other Pacific Islander
Description

This is based upon the U.S. Standards for the Classification of Federal Data on Race and Ethnicity, and reflects standards in the U.S. Please adapt questions according to your country’s guidelines. Varies by country and should be determined by country (not for cross country comparison) INCLUSION CRITERIA: All patients TIMING: At index event for HF REPORTING SOURCE: Clinician-reported TYPE: Single Answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0015031
UMLS CUI [1,2]
C1513907
What is your ethnicity (Select all that apply) 5 = White
Description

This is based upon the U.S. Standards for the Classification of Federal Data on Race and Ethnicity, and reflects standards in the U.S. Please adapt questions according to your country’s guidelines. Varies by country and should be determined by country (not for cross country comparison) INCLUSION CRITERIA: All patients TIMING: At index event for HF REPORTING SOURCE: Clinician-reported TYPE: Single Answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0015031
UMLS CUI [1,2]
C0007457
What is your ethnicity (Select all that apply) 6 = other or 999=unknown (only fill out, if none of the above)
Description

This is based upon the U.S. Standards for the Classification of Federal Data on Race and Ethnicity, and reflects standards in the U.S. Please adapt questions according to your country’s guidelines. Varies by country and should be determined by country (not for cross country comparison) INCLUSION CRITERIA: All patients TIMING: At index event for HF REPORTING SOURCE: Clinician-reported TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1,1]
C0015031
UMLS CUI [1,2]
C0439673
UMLS CUI [2,1]
C0015031
UMLS CUI [2,2]
C0205394
Baseline health status
Description

Baseline health status

Alias
UMLS CUI-1
C1442488
UMLS CUI-2
C0449440
Please indicate the height of the patient
Description

Height and weight are used to calculate BMI INCLUSION CRITERIA: All patients TIMING: At index event for HF REPORTING SOURCE: Clinician-reported or administrative RESPONSE OPTIONS: Numeric value of height in metric or imperial system

Data type

float

Alias
UMLS CUI [1]
C0005890
Indicate units of height
Description

INCLUSION CRITERIA: All patients TIMING: At index event for HF REPORTING SOURCE: Clinician-reported or administrative TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0005890
UMLS CUI [1,2]
C1519795
Please indicate the weight of the patient
Description

Height and weight are used to calculate BMI INCLUSION CRITERIA: All patients TIMING: At index event for HF and tracked ongoing REPORTING SOURCE: Clinician-reported or administrative RESPONSE OPTIONS: Numeric value of weight in metric or imperial system

Data type

float

Alias
UMLS CUI [1]
C0005910
Indicate units of weight
Description

INCLUSION CRITERIA: All patients TIMING: At index event for HF and tracked ongoing REPORTING SOURCE: Clinician-reported or administrative TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1,1]
C0005910
UMLS CUI [1,2]
C1519795
Have you ever been told by your doctor that you have atrial fibrillation?
Description

Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. INCLUSION CRITERIA: All patients TIMING: At index event for HF and if "0 = No" or "999 = Unknown" to AFIB, tracked ongoing REPORTING SOURCE: Clinician-reported, patient-reported, or administrative TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1]
C0004238
Have you ever been told by your doctor that you've had a heart attack (this is sometimes called a myocardial infarction, or MI)?
Description

Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. INCLUSION CRITERIA: All patients TIMING: At index event for HF and if "0 = No" or "999 = Unknown" to PRIORMI, tracked ongoing REPORTING SOURCE: Clinician-reported, patient-reported, or administrative TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1]
C1275835
Do you currently smoke, or have you smoked cigarettes or tobacco over the past year?
Description

Smoking status (of cigarettes or tobacco). Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. INCLUSION CRITERIA: All patients TIMING: At index event for HF and tracked ongoing REPORTING SOURCE: Clinician-reported, patient-reported, or administrative TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1]
C1519386
Do you drink more than one alcoholic drink a day?
Description

One standard alcoholic drink is: 12 ounces of regular beer (about 5 percent alcohol) 5 ounces of wine (about 12 percent alcohol) 1.5 ounces of distilled spirits (about 40 percent alcohol) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. INCLUSION CRITERIA: All patients TIMING: At index event for HF and tracked ongoing REPORTING SOURCE: Clinician-reported, patient-reported, or administrative TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1]
C0001948
Indicate whether the patient has a documented history of hypertension, diagnosed and treated with medication and/or diet and/or exercise
Description

INCLUSION CRITERIA: All patients TIMING: At index event for HF and if "0 = No" or "999 = Unknown" to HYPERTEN, tracked ongoing REPORTING SOURCE: Clinician-reported, patient-reported, or administrative TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1,1]
C0262926
UMLS CUI [1,2]
C0020538
Have you ever been told by your doctor that you have diabetes?
Description

Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. INCLUSION CRITERIA: All patients TIMING: At index event for HF and if "0 = No" or "999 = Unknown" to DIAB, tracked ongoing REPORTING SOURCE: Clinician-reported, patient-reported, or administrative TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1]
C0011849
Indicate whether the patient has a chronic lung disease
Description

Including but not limited to COPD and asthma INCLUSION CRITERIA: All patients TIMING: At index event for HF and if "0 = No" or "999 = Unknown" to CHRONLD, tracked ongoing REPORTING SOURCE: Clinician-reported, patient-reported, or administrative TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1]
C1533075
Indicate whether the patient has a diagnosis of renal dysfunction
Description

Renal dysfunction is the documented history of AKI or Increase in serum creatinine by ≥ 0.3 mg/dl (≥ 26.5 l mol/l) within 48 hours; or increase in serum creatinine to ≥ 1.5 times baseline, which is known or presumed to have occurred within the prior 7 days; or urine volume < 0.5 ml/kg/h for 6 hours; or new requirement for dialysis INCLUSION CRITERIA: All patients TIMING: At index event for HF and tracked ongoing REPORTING SOURCE: Clinician-reported, patient-reported, or administrative TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1]
C3279454
Indicate whether an echocardiogram was performed to assess ejection fraction
Description

INCLUSION CRITERIA: All patients TIMING: At index event for HF REPORTING SOURCE: Clinician-reported TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1]
C0013516
If "1 = yes" to ECHOPERF, please state range of patient’s ejection fraction:
Description

INCLUSION CRITERIA: If "1 = Yes" to ECHOPERF TIMING: At index event for HF REPORTING SOURCE: Clinician-reported TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1]
C0232174
Please indicate diagnostic categories: 1 = Ischaemic
Description

INCLUSION CRITERIA: All patients TIMING: At index event for HF REPORTING SOURCE: Clinician-reported TYPE: Multiple Answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0018801
UMLS CUI [1,2]
C0475224
Please indicate diagnostic categories: 2 = Hypertensive
Description

INCLUSION CRITERIA: All patients TIMING: At index event for HF REPORTING SOURCE: Clinician-reported TYPE: Multiple Answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0018801
UMLS CUI [1,2]
C0020538
Please indicate diagnostic categories: 3 = Valvular
Description

INCLUSION CRITERIA: All patients TIMING: At index event for HF REPORTING SOURCE: Clinician-reported TYPE: Multiple Answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0018801
UMLS CUI [1,2]
C0018824
Please indicate diagnostic categories: 4 = Familial
Description

INCLUSION CRITERIA: All patients TIMING: At index event for HF REPORTING SOURCE: Clinician-reported TYPE: Multiple Answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0018801
UMLS CUI [1,2]
C0277558
Please indicate diagnostic categories: 5 = Peripartum
Description

INCLUSION CRITERIA: All patients TIMING: At index event for HF REPORTING SOURCE: Clinician-reported TYPE: Multiple Answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0018801
UMLS CUI [1,2]
C2053583
Please indicate diagnostic categories: 6 = Myocarditis/Inflammatory
Description

INCLUSION CRITERIA: All patients TIMING: At index event for HF REPORTING SOURCE: Clinician-reported TYPE: Multiple Answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0018801
UMLS CUI [1,2]
C0027059
UMLS CUI [2,1]
C0018801
UMLS CUI [2,2]
C0333348
Please indicate diagnostic categories: 7 = Infiltrative
Description

INCLUSION CRITERIA: All patients TIMING: At index event for HF REPORTING SOURCE: Clinician-reported TYPE: Multiple Answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0018801
UMLS CUI [1,2]
C0332448
Please indicate diagnostic categories: 8 = Stress/Takotsubo
Description

INCLUSION CRITERIA: All patients TIMING: At index event for HF REPORTING SOURCE: Clinician-reported TYPE: Multiple Answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0018801
UMLS CUI [1,2]
C0038435
UMLS CUI [2,1]
C0018801
UMLS CUI [2,2]
C1739395
Please indicate diagnostic categories: 9 = Chagas Disease
Description

INCLUSION CRITERIA: All patients TIMING: At index event for HF REPORTING SOURCE: Clinician-reported TYPE: Multiple Answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0018801
UMLS CUI [1,2]
C0041234
Please indicate diagnostic categories: 10 = Idiopathic/Other
Description

INCLUSION CRITERIA: All patients TIMING: At index event for HF REPORTING SOURCE: Clinician-reported TYPE: Multiple Answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0018801
UMLS CUI [1,2]
C0332240
UMLS CUI [2,1]
C0018801
UMLS CUI [2,2]
C0205394
Please indicate diagnostic categories: 999 = Unknown
Description

INCLUSION CRITERIA: All patients TIMING: At index event for HF REPORTING SOURCE: Clinician-reported TYPE: Multiple Answer

Data type

boolean

Alias
UMLS CUI [1,1]
C0018801
UMLS CUI [1,2]
C0439673
UMLS CUI [1,3]
C0683312
Treatment variables
Description

Treatment variables

Alias
UMLS CUI-1
C0087111
Indicate whether the patient is currently being prescribed medication for heart failure
Description

INCLUSION CRITERIA: All patients TIMING: At index event for HF and tracked ongoing REPORTING SOURCE: Clinician-reported TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1,1]
C0013227
UMLS CUI [1,2]
C0018801
Indicate whether ACE inhibitors are currently prescribed for heart failure
Description

INCLUSION CRITERIA: If "1 = Yes" to PHARMACOTHERAPY TIMING: At index event for HF and if "0 = No" or "999 = Unknown" to AFIB, tracked ongoing REPORTING SOURCE: Clinician-reported, patient-reported, or administrative TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1]
C0003015
Indicate whether Angiotensin Receptor II Blockers are currently prescribed for heart failure
Description

INCLUSION CRITERIA: If "1 = Yes" to PHARMACOTHERAPY TIMING: At index event for HF and tracked ongoing REPORTING SOURCE: Clinician-reported TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1]
C0521942
Indicate whether an Angiotensin Receptor Blocker/Neprilysin Inhibitor combination is currently prescribed for heart failure
Description

INCLUSION CRITERIA: If "1 = Yes" to PHARMACOTHERAPY TIMING: At index event for HF and tracked ongoing REPORTING SOURCE: Clinician-reported TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1,1]
C0521942
UMLS CUI [1,2]
C4051513
UMLS CUI [1,3]
C0205195
Indicate whether Beta Blockers are currently prescribed for heart failure
Description

INCLUSION CRITERIA: If "1 = Yes" to PHARMACOTHERAPY TIMING: At index event for HF and tracked ongoing REPORTING SOURCE: Clinician-reported TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1]
C0001645
Indicate whether Calcium Channel Blockers are currently prescribed for heart failure
Description

INCLUSION CRITERIA: If "1 = Yes" to PHARMACOTHERAPY TIMING: At index event for HF and tracked ongoing REPORTING SOURCE: Clinician-reported TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1]
C0006684
Indicate whether Digoxin is currently prescribed for heart failure
Description

INCLUSION CRITERIA: If "1 = Yes" to PHARMACOTHERAPY TIMING: At index event for HF and tracked ongoing REPORTING SOURCE: Clinician-reported TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1]
C0012265
Indicate whether Diuretics are currently prescribed for heart failure
Description

INCLUSION CRITERIA: If "1 = Yes" to PHARMACOTHERAPY TIMING: At index event for HF and tracked ongoing REPORTING SOURCE: Clinician-reported TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1]
C0012798
Indicate whether Hydralazine and Isosorbide Dinitrate are currently prescribed for heart failure
Description

INCLUSION CRITERIA: If "1 = Yes" to PHARMACOTHERAPY TIMING: At index event for HF and tracked ongoing REPORTING SOURCE: Clinician-reported TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1]
C0020223
UMLS CUI [2]
C0022252
Indicate whether Ivabradine is currently prescribed for heart failure
Description

INCLUSION CRITERIA: If "1 = Yes" to PHARMACOTHERAPY TIMING: At index event for HF and tracked ongoing REPORTING SOURCE: Clinician-reported TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1]
C0257190
Indicate whether Mineralocorticoid Receptor Antagonists are currently prescribed for heart failure
Description

INCLUSION CRITERIA: If "1 = Yes" to PHARMACOTHERAPY TIMING: At index event for HF and tracked ongoing REPORTING SOURCE: Clinician-reported TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1]
C1579268
Indicate whether other medications are currently prescribed for heart failure
Description

INCLUSION CRITERIA: If "1 = Yes" to PHARMACOTHERAPY TIMING: At index event for HF and tracked ongoing REPORTING SOURCE: Clinician-reported TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1,1]
C0013227
UMLS CUI [1,2]
C0205394
Did the patient receive a cardiac device to treat heart failure?
Description

INCLUSION CRITERIA: All patients TIMING: At index event for HF and tracked ongoing REPORTING SOURCE: Clinician-reported TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1,1]
C2735362
UMLS CUI [1,2]
C0018787
Indicate the device type
Description

ICD = Implantable Cardioverter Defibrillator CRT = Cardiac Resynchronisation Therapy INCLUSION CRITERIA: If "1 = Yes" to DEVPROCEDURE TIMING: At index event for HF and tracked ongoing REPORTING SOURCE: Clinician-reported TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1]
C3177146
Indicate the date of DEVPROCEDURE
Description

INCLUSION CRITERIA: If "1 = Yes" to DEVPROCEDURE TIMING: At index event for HF and tracked ongoing REPORTING SOURCE: Clinician-reported TYPE: Date by DD/MM/YYYY

Data type

date

Measurement units
  • DD/MM/YYYY
Alias
UMLS CUI [1,1]
C2584899
UMLS CUI [1,2]
C2828363
DD/MM/YYYY
Did the patient undergo cardiac surgery?
Description

INCLUSION CRITERIA: All patients TIMING: At index event for HF and tracked ongoing REPORTING SOURCE: Clinician-reported TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1]
C0018821
Indicate the cardiac surgery type
Description

CABG = Cardiac surgery for heart failure INCLUSION CRITERIA: if "1 = Yes" to CARDSURG TIMING: At index event for HF and tracked ongoing REPORTING SOURCE: Clinician-reported TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1,1]
C0018821
UMLS CUI [1,2]
C0332307
Indicate the date of CARDSURG
Description

INCLUSION CRITERIA: If "1 = Yes" to CARDSURG TIMING: At index event for HF and tracked ongoing REPORTING SOURCE: Clinician-reported TYPE: Date by DD/MM/YYYY

Data type

date

Measurement units
  • DD/MM/YYYY
Alias
UMLS CUI [1,1]
C0018821
UMLS CUI [1,2]
C0011008
DD/MM/YYYY
Has cardiac rehabilitation been initiated?
Description

Cardiac rehabilitation is a medically-supervised programme that involves adopting heart-healthy lifestyle changes to address risk factors for cardiovascular disease. This programme includes exercise training, education on heart-healthy living, and counseling to reduce stress and helps patients return to an active life. INCLUSION CRITERIA: All patients TIMING: At index event for HF and tracked ongoing REPORTING SOURCE: Clinician-reported TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1]
C0700431
Burden of Care
Description

Burden of Care

Alias
UMLS CUI-1
C0087111
UMLS CUI-2
C2828008
Did the patient’s appointment or admission have any complications which were related to a device for Heart Failure including, but not exclusively: active bleeding requiring exploration and/or transfusion, abscess related to the device, minor infection (localized, treated with antibiotics and surgical drainage) related to the device, major infection (systemic, requiring device explant) related to the device, minor malfunction (requiring follow-up appointment/reprogramming), and/or major malfunction (requiring explant or revision)?
Description

INCLUSION CRITERIA: All patients TIMING: At index event for HF and tracked ongoing REPORTING SOURCE: Clinician-reported TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1,1]
C0009566
UMLS CUI [1,2]
C2828363
Indicate the date of COMPLDEVICE
Description

INCLUSION CRITERIA: if "1 = Yes" to COMPLDEVICE TIMING: At index event for HF and tracked ongoing REPORTING SOURCE: Clinician-reported TYPE: Date by DD/MM/YYYY RESPONSE OPTIONS: DD/MM/YYYY or 999 = Unknown

Data type

date

Measurement units
  • DD/MM/YYYY
Alias
UMLS CUI [1,1]
C0009566
UMLS CUI [1,2]
C2828363
DD/MM/YYYY
Did the patient have a major healthcare-associated infection (requiring IV antibiotics and/or prolonged hospital stay – 14 days or more) during this admission?
Description

INCLUSION CRITERIA: All patients TIMING: Tracked at index event & acute admissions due to heart failure REPORTING SOURCE: Clinician-reported TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1]
C0205721
Indicate the date of COMPLHOSP
Description

INCLUSION CRITERIA: If "1 = Yes" to COMPLHOSP TIMING: Tracked at index event & acute admissions due to heart failure REPORTING SOURCE: Clinician-reported TYPE: Date by DD/MM/YYYY RESPONSE OPTIONS: DD/MM/YYYY or 999 = Unknown

Data type

date

Measurement units
  • DD/MM/YYYY
Alias
UMLS CUI [1,1]
C0205721
UMLS CUI [1,2]
C0011008
DD/MM/YYYY
Did the patient have a major adverse event related to Heart Failure medication during this admission, and/or as a cause of this admission?
Description

A major adverse event is a response to a drug which is noxious and unintended, and which occurs at doses normally used in a person for the prophylaxis, diagnosis, or therapy of disease, or for the modifications of physiological function. INCLUSION CRITERIA: All patients TIMING: Tracked at index event & acute admissions due to heart failure REPORTING SOURCE: Clinician-reported TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1,1]
C0009566
UMLS CUI [1,2]
C0013227
Indicate the date of COMPLMED
Description

INCLUSION CRITERIA: If "1 = Yes" to COMPLMED TIMING: Tracked at index event & acute admissions due to heart failure REPORTING SOURCE: Clinician-reported TYPE: Date by DD/MM/YYYY RESPONSE OPTIONS: DD/MM/YYYY or 999 = Unknown

Data type

date

Measurement units
  • DD/MM/YYYY
Alias
UMLS CUI [1,1]
C0009566
UMLS CUI [1,2]
C0013227
UMLS CUI [1,3]
C0011008
DD/MM/YYYY
How many times has the patient been hospitalised in the last 12 months due to heart failure?
Description

This variable is acollected every 12 months from date of entry into the set. INCLUSION CRITERIA: All patients TIMING: Baseline and 12-monthly REPORTING SOURCE: Adminstrative or patient/caregiver reported TYPE: Numerical RESPONSE OPTIONS: Numerical value or 999 = Unknown

Data type

integer

Alias
UMLS CUI [1,1]
C0184666
UMLS CUI [1,2]
C4086728
UMLS CUI [1,3]
C0018801
How many hospital appointments has the patient had in the last 12 months due to heart failure?
Description

This variable is acollected every 12 months from date of entry into the set. INCLUSION CRITERIA: All patients TIMING: Baseline and 12-monthly REPORTING SOURCE: Adminstrative or patient/caregiver reported TYPE: Numerical RESPONSE OPTIONS: Numerical value or 999 = Unknown

Data type

integer

Alias
UMLS CUI [1,1]
C0030675
UMLS CUI [1,2]
C4086728
UMLS CUI [1,3]
C0018801
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Similar models

Baseline Characteristics, at time of index event

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Patient ID
C1269815 (UMLS CUI-1)
Patient ID
Item
Indicate the patient's medical record number.
integer
C1269815 (UMLS CUI [1])
Item Group
Demographic Factors
C1704791 (UMLS CUI-1)
Age
Item
Please provide the patient's date of birth
date
C0001779 (UMLS CUI [1])
C0421451 (UMLS CUI [2])
Item
Please provide the patient's sex at birth
integer
C0079399 (UMLS CUI [1])
Sex
Code List
Please provide the patient's sex at birth
CL Item
Male (1)
CL Item
Female (2)
Ethnicity: American Indian or Alaska Native
Item
What is your ethnicity (Select all that apply) 0 = American Indian or Alaska Native
boolean
C0015031 (UMLS CUI [1,1])
C1515945 (UMLS CUI [1,2])
Ethnicity: Asian
Item
What is your ethnicity (Select all that apply) 1 = Asian
boolean
C0015031 (UMLS CUI [1,1])
C0078988 (UMLS CUI [1,2])
Ethnicity: Black or African American
Item
What is your ethnicity (Select all that apply) 2 = Black or African American
boolean
C0015031 (UMLS CUI [1,1])
C0005680 (UMLS CUI [1,2])
C0015031 (UMLS CUI [2,1])
C0085756 (UMLS CUI [2,2])
Ethnicity: Hispanic or Latino
Item
What is your ethnicity (Select all that apply) 3 = Hispanic or Latino
boolean
C0015031 (UMLS CUI [1,1])
C0086409 (UMLS CUI [1,2])
C0015031 (UMLS CUI [2,1])
C0086528 (UMLS CUI [2,2])
Ethnicity: Native Hawaiian or Other Pacific Islander
Item
What is your ethnicity (Select all that apply) 4 = Native Hawaiian or Other Pacific Islander
boolean
C0015031 (UMLS CUI [1,1])
C1513907 (UMLS CUI [1,2])
Ethnicity: White
Item
What is your ethnicity (Select all that apply) 5 = White
boolean
C0015031 (UMLS CUI [1,1])
C0007457 (UMLS CUI [1,2])
Item
What is your ethnicity (Select all that apply) 6 = other or 999=unknown (only fill out, if none of the above)
integer
C0015031 (UMLS CUI [1,1])
C0439673 (UMLS CUI [1,2])
C0015031 (UMLS CUI [2,1])
C0205394 (UMLS CUI [2,2])
Ethnicity: other or unknown
Code List
What is your ethnicity (Select all that apply) 6 = other or 999=unknown (only fill out, if none of the above)
CL Item
other (6)
CL Item
unknown (999)
Item Group
Baseline health status
C1442488 (UMLS CUI-1)
C0449440 (UMLS CUI-2)
Height
Item
Please indicate the height of the patient
float
C0005890 (UMLS CUI [1])
Item
Indicate units of height
integer
C0005890 (UMLS CUI [1,1])
C1519795 (UMLS CUI [1,2])
Past medical history: Previous AMI
Code List
Indicate units of height
CL Item
cm (1)
C0475210 (UMLS CUI-1)
(Comment:en)
CL Item
in (2)
C0439204 (UMLS CUI-1)
(Comment:en)
Weight
Item
Please indicate the weight of the patient
float
C0005910 (UMLS CUI [1])
Item
Indicate units of weight
integer
C0005910 (UMLS CUI [1,1])
C1519795 (UMLS CUI [1,2])
Weight units
Code List
Indicate units of weight
CL Item
kg (1)
C0439209 (UMLS CUI-1)
(Comment:en)
CL Item
lbs (2)
C0439219 (UMLS CUI-1)
(Comment:en)
Item
Have you ever been told by your doctor that you have atrial fibrillation?
integer
C0004238 (UMLS CUI [1])
Atrial fibrillation
Code List
Have you ever been told by your doctor that you have atrial fibrillation?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Have you ever been told by your doctor that you've had a heart attack (this is sometimes called a myocardial infarction, or MI)?
integer
C1275835 (UMLS CUI [1])
Atrial fibrillation
Code List
Have you ever been told by your doctor that you've had a heart attack (this is sometimes called a myocardial infarction, or MI)?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Do you currently smoke, or have you smoked cigarettes or tobacco over the past year?
integer
C1519386 (UMLS CUI [1])
Atrial fibrillation
Code List
Do you currently smoke, or have you smoked cigarettes or tobacco over the past year?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Do you drink more than one alcoholic drink a day?
integer
C0001948 (UMLS CUI [1])
Atrial fibrillation
Code List
Do you drink more than one alcoholic drink a day?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether the patient has a documented history of hypertension, diagnosed and treated with medication and/or diet and/or exercise
integer
C0262926 (UMLS CUI [1,1])
C0020538 (UMLS CUI [1,2])
Atrial fibrillation
Code List
Indicate whether the patient has a documented history of hypertension, diagnosed and treated with medication and/or diet and/or exercise
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Have you ever been told by your doctor that you have diabetes?
integer
C0011849 (UMLS CUI [1])
Atrial fibrillation
Code List
Have you ever been told by your doctor that you have diabetes?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether the patient has a chronic lung disease
integer
C1533075 (UMLS CUI [1])
Atrial fibrillation
Code List
Indicate whether the patient has a chronic lung disease
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether the patient has a diagnosis of renal dysfunction
integer
C3279454 (UMLS CUI [1])
Atrial fibrillation
Code List
Indicate whether the patient has a diagnosis of renal dysfunction
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether an echocardiogram was performed to assess ejection fraction
integer
C0013516 (UMLS CUI [1])
Atrial fibrillation
Code List
Indicate whether an echocardiogram was performed to assess ejection fraction
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
If "1 = yes" to ECHOPERF, please state range of patient’s ejection fraction:
integer
C0232174 (UMLS CUI [1])
Ejection Fraction
Code List
If "1 = yes" to ECHOPERF, please state range of patient’s ejection fraction:
CL Item
<30%  (1)
CL Item
30-39%  (2)
CL Item
40-50% (3)
CL Item
>50% (4)
Diagnostic categories: Ischemic Heart Failure
Item
Please indicate diagnostic categories: 1 = Ischaemic
boolean
C0018801 (UMLS CUI [1,1])
C0475224 (UMLS CUI [1,2])
Diagnostic categories: Hypertensive Heart Failure
Item
Please indicate diagnostic categories: 2 = Hypertensive
boolean
C0018801 (UMLS CUI [1,1])
C0020538 (UMLS CUI [1,2])
Diagnostic categories: Valvular Heart Failure
Item
Please indicate diagnostic categories: 3 = Valvular
boolean
C0018801 (UMLS CUI [1,1])
C0018824 (UMLS CUI [1,2])
Diagnostic categories: Familial Heart Failure
Item
Please indicate diagnostic categories: 4 = Familial
boolean
C0018801 (UMLS CUI [1,1])
C0277558 (UMLS CUI [1,2])
Diagnostic categories: Peripartal Heart Failure
Item
Please indicate diagnostic categories: 5 = Peripartum
boolean
C0018801 (UMLS CUI [1,1])
C2053583 (UMLS CUI [1,2])
Diagnostic categories: Myocarditis/Inflammatory Heart Failure
Item
Please indicate diagnostic categories: 6 = Myocarditis/Inflammatory
boolean
C0018801 (UMLS CUI [1,1])
C0027059 (UMLS CUI [1,2])
C0018801 (UMLS CUI [2,1])
C0333348 (UMLS CUI [2,2])
Diagnostic categories: Infiltrative Heart Failure
Item
Please indicate diagnostic categories: 7 = Infiltrative
boolean
C0018801 (UMLS CUI [1,1])
C0332448 (UMLS CUI [1,2])
Diagnostic categories: Stress/Takotsubo Heart Failure
Item
Please indicate diagnostic categories: 8 = Stress/Takotsubo
boolean
C0018801 (UMLS CUI [1,1])
C0038435 (UMLS CUI [1,2])
C0018801 (UMLS CUI [2,1])
C1739395 (UMLS CUI [2,2])
Diagnostic categories: Chagas Disease Heart Failure
Item
Please indicate diagnostic categories: 9 = Chagas Disease
boolean
C0018801 (UMLS CUI [1,1])
C0041234 (UMLS CUI [1,2])
Diagnostic categories: Idiopathic/other Heart Failure
Item
Please indicate diagnostic categories: 10 = Idiopathic/Other
boolean
C0018801 (UMLS CUI [1,1])
C0332240 (UMLS CUI [1,2])
C0018801 (UMLS CUI [2,1])
C0205394 (UMLS CUI [2,2])
Diagnostic categories: Heart Failure, category unknown
Item
Please indicate diagnostic categories: 999 = Unknown
boolean
C0018801 (UMLS CUI [1,1])
C0439673 (UMLS CUI [1,2])
C0683312 (UMLS CUI [1,3])
Item Group
Treatment variables
C0087111 (UMLS CUI-1)
Item
Indicate whether the patient is currently being prescribed medication for heart failure
integer
C0013227 (UMLS CUI [1,1])
C0018801 (UMLS CUI [1,2])
Atrial fibrillation
Code List
Indicate whether the patient is currently being prescribed medication for heart failure
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether ACE inhibitors are currently prescribed for heart failure
integer
C0003015 (UMLS CUI [1])
Atrial fibrillation
Code List
Indicate whether ACE inhibitors are currently prescribed for heart failure
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether Angiotensin Receptor II Blockers are currently prescribed for heart failure
integer
C0521942 (UMLS CUI [1])
Atrial fibrillation
Code List
Indicate whether Angiotensin Receptor II Blockers are currently prescribed for heart failure
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether an Angiotensin Receptor Blocker/Neprilysin Inhibitor combination is currently prescribed for heart failure
integer
C0521942 (UMLS CUI [1,1])
C4051513 (UMLS CUI [1,2])
C0205195 (UMLS CUI [1,3])
Atrial fibrillation
Code List
Indicate whether an Angiotensin Receptor Blocker/Neprilysin Inhibitor combination is currently prescribed for heart failure
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether Beta Blockers are currently prescribed for heart failure
integer
C0001645 (UMLS CUI [1])
Atrial fibrillation
Code List
Indicate whether Beta Blockers are currently prescribed for heart failure
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether Calcium Channel Blockers are currently prescribed for heart failure
integer
C0006684 (UMLS CUI [1])
Atrial fibrillation
Code List
Indicate whether Calcium Channel Blockers are currently prescribed for heart failure
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether Digoxin is currently prescribed for heart failure
integer
C0012265 (UMLS CUI [1])
Atrial fibrillation
Code List
Indicate whether Digoxin is currently prescribed for heart failure
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether Diuretics are currently prescribed for heart failure
integer
C0012798 (UMLS CUI [1])
Atrial fibrillation
Code List
Indicate whether Diuretics are currently prescribed for heart failure
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether Hydralazine and Isosorbide Dinitrate are currently prescribed for heart failure
integer
C0020223 (UMLS CUI [1])
C0022252 (UMLS CUI [2])
Atrial fibrillation
Code List
Indicate whether Hydralazine and Isosorbide Dinitrate are currently prescribed for heart failure
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether Ivabradine is currently prescribed for heart failure
integer
C0257190 (UMLS CUI [1])
Atrial fibrillation
Code List
Indicate whether Ivabradine is currently prescribed for heart failure
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether Mineralocorticoid Receptor Antagonists are currently prescribed for heart failure
integer
C1579268 (UMLS CUI [1])
Atrial fibrillation
Code List
Indicate whether Mineralocorticoid Receptor Antagonists are currently prescribed for heart failure
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate whether other medications are currently prescribed for heart failure
integer
C0013227 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Atrial fibrillation
Code List
Indicate whether other medications are currently prescribed for heart failure
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Did the patient receive a cardiac device to treat heart failure?
integer
C2735362 (UMLS CUI [1,1])
C0018787 (UMLS CUI [1,2])
Atrial fibrillation
Code List
Did the patient receive a cardiac device to treat heart failure?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate the device type
integer
C3177146 (UMLS CUI [1])
Device procedure type
Code List
Indicate the device type
CL Item
ICD (1)
C0162589 (UMLS CUI-1)
(Comment:en)
CL Item
CRT (2)
C2936377 (UMLS CUI-1)
(Comment:en)
CL Item
ICD + CRT (3)
C0162589 (UMLS CUI-1)
C2936377 (UMLS CUI-2)
C0205195 (UMLS CUI-3)
(Comment:en)
CL Item
Other (4)
C2735362 (UMLS CUI-1)
C0018787 (UMLS CUI-2)
C0205394 (UMLS CUI-3)
(Comment:en)
CL Item
Unknown (999)
C2735362 (UMLS CUI-1)
C0018787 (UMLS CUI-2)
C0439673 (UMLS CUI-3)
(Comment:en)
Date of device procedure
Item
Indicate the date of DEVPROCEDURE
date
C2584899 (UMLS CUI [1,1])
C2828363 (UMLS CUI [1,2])
Item
Did the patient undergo cardiac surgery?
integer
C0018821 (UMLS CUI [1])
Atrial fibrillation
Code List
Did the patient undergo cardiac surgery?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Indicate the cardiac surgery type
integer
C0018821 (UMLS CUI [1,1])
C0332307 (UMLS CUI [1,2])
Cardiac surgery type
Code List
Indicate the cardiac surgery type
CL Item
CABG only (1)
C0010055 (UMLS CUI-1)
(Comment:en)
CL Item
Valve (2)
C1292963 (UMLS CUI-1)
(Comment:en)
CL Item
CABG + valve (3)
C0010055 (UMLS CUI-1)
C1292963 (UMLS CUI-2)
C0205195 (UMLS CUI-3)
(Comment:en)
CL Item
Other (4)
C0205394 (UMLS CUI-1)
C0018821 (UMLS CUI-2)
(Comment:en)
CL Item
Unknown (999)
C0018821 (UMLS CUI-1)
C0439673 (UMLS CUI-2)
(Comment:en)
Date of cardiac surgery
Item
Indicate the date of CARDSURG
date
C0018821 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
Has cardiac rehabilitation been initiated?
integer
C0700431 (UMLS CUI [1])
Atrial fibrillation
Code List
Has cardiac rehabilitation been initiated?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item Group
Burden of Care
C0087111 (UMLS CUI-1)
C2828008 (UMLS CUI-2)
Item
Did the patient’s appointment or admission have any complications which were related to a device for Heart Failure including, but not exclusively: active bleeding requiring exploration and/or transfusion, abscess related to the device, minor infection (localized, treated with antibiotics and surgical drainage) related to the device, major infection (systemic, requiring device explant) related to the device, minor malfunction (requiring follow-up appointment/reprogramming), and/or major malfunction (requiring explant or revision)?
integer
C0009566 (UMLS CUI [1,1])
C2828363 (UMLS CUI [1,2])
Atrial fibrillation
Code List
Did the patient’s appointment or admission have any complications which were related to a device for Heart Failure including, but not exclusively: active bleeding requiring exploration and/or transfusion, abscess related to the device, minor infection (localized, treated with antibiotics and surgical drainage) related to the device, major infection (systemic, requiring device explant) related to the device, minor malfunction (requiring follow-up appointment/reprogramming), and/or major malfunction (requiring explant or revision)?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Date of complication due to device
Item
Indicate the date of COMPLDEVICE
date
C0009566 (UMLS CUI [1,1])
C2828363 (UMLS CUI [1,2])
Item
Did the patient have a major healthcare-associated infection (requiring IV antibiotics and/or prolonged hospital stay – 14 days or more) during this admission?
integer
C0205721 (UMLS CUI [1])
Atrial fibrillation
Code List
Did the patient have a major healthcare-associated infection (requiring IV antibiotics and/or prolonged hospital stay – 14 days or more) during this admission?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Date of diagnosis of healthcare-associated infection
Item
Indicate the date of COMPLHOSP
date
C0205721 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
Did the patient have a major adverse event related to Heart Failure medication during this admission, and/or as a cause of this admission?
integer
C0009566 (UMLS CUI [1,1])
C0013227 (UMLS CUI [1,2])
Atrial fibrillation
Code List
Did the patient have a major adverse event related to Heart Failure medication during this admission, and/or as a cause of this admission?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Date of diagnosis of complication due to medication
Item
Indicate the date of COMPLMED
date
C0009566 (UMLS CUI [1,1])
C0013227 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,3])
Hospital admissions
Item
How many times has the patient been hospitalised in the last 12 months due to heart failure?
integer
C0184666 (UMLS CUI [1,1])
C4086728 (UMLS CUI [1,2])
C0018801 (UMLS CUI [1,3])
Hospital appointments
Item
How many hospital appointments has the patient had in the last 12 months due to heart failure?
integer
C0030675 (UMLS CUI [1,1])
C4086728 (UMLS CUI [1,2])
C0018801 (UMLS CUI [1,3])
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