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Table of contents
  1. 1. Clinical Trial
  2. 2. Routine Documentation
  3. 3. Registry/Cohort Study
  4. 4. Quality Assurance
  5. 5. Data Standard
  6. 6. Patient-Reported Outcome
  7. 7. Medical Specialty
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- 4/30/20 - 1 form, 8 itemgroups, 46 items, 1 language
Itemgroups: Administrative Data, Demographic factors, Baseline health status, Prior Treatments, TREATMENT VARIABLES, Acute complications of treatment, Major surgery complications, Major interventional cardiology complications
CORONARY ARTERY DISEASE DATA COLLECTION Version 2.0.3 Revised: April 5th, 2017 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. Conditions: Asymptomatic Coronary Artery Disease | Stable Angina | Acute Coronary Syndrome (Includes AMI) Treatment Approaches: Lifestyle Modification | Drug Therapy | Percutaneous Coronary Intervention (PCI) | Coronary Artery Bypass Grafting (CABG) This form contains peri-interventional clinical items. The items cover a timespan from prior to the intervention (e.g. PCI or CABG) until 30 days after it. They should be assessed at the entry event and at any new index event (e.g. new revascularization procedure or new diagnosis of ACS). Questionnaires used in this standard set: Rose Dyspnea Scale: The Rose Dyspnea Scale is free for all health care organizations, and a license is not needed. More information may be found at http://www.ahjonline.com/article/S0002-8703(09)00266-X/abstract Patient Health Questionnaire (PHQ-2): The PHQ-2 is free for all health care organizations, and a license is not needed. Copyright Pfizer, more Information on http://www.phqscreeners.com/ Seattle Angina Questionnaire (SAQ-7): Due to the need for a license for use of the SAQ-7 the actual questions of SAQ-7 will not be part of this version of the standard set. Publication: McNamara RL, Spatz ES, Kelley TA, et al. Standardized Outcome Measurement for Patients With Coronary Artery Disease: Consensus From the International Consortium for Health Outcomes Measurement (ICHOM). J Am Heart Assoc. 2015;4(5):e001767. Published 2015 May 19. doi:10.1161/JAHA.115.001767 For this version of the standard set, semantic annotation with UMLS CUIs has been added.
- 11/28/17 - 1 form, 10 itemgroups, 30 items, 7 languages
Itemgroups: Alternating Trail Making, Visuoconstructional Skills, Naming, Memory, Attention, Language, Abstraction, Delayed Recall, Orientation, MoCA
- 7/10/17 - 1 form, 1 itemgroup, 16 items, 2 languages
Itemgroup: openEHR-EHR-OBSERVATION.paced_auditory_serial_addition_test.v1.xml
- 1/13/21 - 1 form, 7 itemgroups, 138 items, 1 language
Itemgroups: Pain, Psychosocial assessment, Pain, Psychosocial assessment, Rating scale, Pain, Psychosocial assessment, Economic, Pain, Psychosocial assessment, Social support, Pain, Psychosocial assessment, Activities of Daily Living, Pain, Psychosocial assessment, Emotional support, Pain, Psychosocial assessment, Coping Behavior
Otis-Green, S., & The City of Hope Pain/Palliative Resource Center. (2012) . The Psychosocial Pain Assessment Form (PPAF). Measurement Instrument Database for the Social Science. Retrieved 12.01.2021, from www.midss.ie. Key references: Otis-Green, S. (2006). Psychosocial Pain Assessment Form. In Dow (Ed.), Nursing Care of Women with Cancer. St. Louis, MO: Elsevier Mosby, 556-561. Otis-Green, S. (2005). Psychosocial Pain Assessment Form. In Kuebler, Davis, Moore (Eds.), Palliative Practices: An Interdisciplinary Approach. St. Louis, MO: Elsevier Mosby, 462-467. Primary use / Purpose: The Psychosocial Pain Assessment Form (PPAF) is a comprehensive assessment form for measuring psychosocial pain. It does so under five domains: economic, social support, activities of daily living, emotional impact, and coping style. Additionally, an assessment of prior history is included to help clinicians focus interventions where sexual abuse or other traumatic memories are present. Background: The psychosocial model of pain is now widely accepted. Pain is no longer treated, or thought of, as a purely physiological condition, but instead, one that is the product of a myriad of both psychological and physiological factors. For this reason, there is a need for instruments which measure the full range of outcomes and causes associated with chronic pain, whether they be psychological, economic, or physiological. The Psychosocial Pain Assessment Form (PPAF) was developed to be used in this capacity. Digital Object Identifier (DOI): http://dx.doi.org/10.13072/midss.344
- 1/12/21 - 1 form, 4 itemgroups, 39 items, 1 language
Itemgroups: Pain, Health Surveys, Pain, Health Surveys, Pain, Case, Pain, Case
Ferrell, B. & McCaffery, M. (2012). The Knowledge and Attitudes Survey Regarding Pain (KASRP). Measurement Instrument Database for the Social Science. Retrieved 12.01.2021, from www.midss.ie. Key references: “Knowledge and Attitudes Survey Regarding Pain” developed by Betty Ferrell, RN, PhD, FAAN and Margo McCaffery, RN, MS, FAAN, (http://prc.coh.org), revised 2012. Ferrell, B. R. (2007). Reducing barriers to pain assessment and management: An institutional perspective. Journal of Palliative Medicine, 10(1S), S15-S18. DOI: 10.1089/jpm.2007.9828. McCaffery, M., Ferrell, B. R., Pasero, C. (2000). Nurses' personal opinions about patients' pain and their effect on recorded assessments and titration of opioid doses. Pain Management Nursing, 1(3): 79-87 Primary use / Purpose: The Knowledge and Attitudes Survey Regarding Pain (KASRP) is a 37-item questionnaire. It contains 21 true or false questions and 16 multiple choice ones. Its purpose is to measure the attitudes and knowledge of caregivers on the subject of pain. It is particularly useful as a pre/post test measure and can be used to rate learning outcomes following educational programs on pain. Background: Chronic pain is a debilitating and often incurable problem for many. Palliative care-givers also routinely meet the need for effective treatment of pain in terminally ill patients. Effective care-giving is important in ensuring the wellbeing of these patients. Without sufficient training caregivers will struggle to meet the demands of dealing with chronic pain patients. The Knowledge and Attitudes Survey Regarding Pain (KASRP) is therefore a useful tool for specifically evaluating the knowledge of caregivers on the subject of pain. Psychometrics: The psychometric properties of the Knowledge and Attitudes Survey Regarding Pain (KASRP) are discussed in the introduction to the scale which is attached below. Digital Object Identifier (DOI): http://dx.doi.org/10.13072/midss.341
- 1/12/21 - 1 form, 3 itemgroups, 16 items, 1 language
Itemgroups: Instructions, Knowledge, Experience
The City of Hope Pain & Palliative Care Resource Center. (2012) . The Patient Pain Questionnaire (PPQ) . Measurement Instrument Database for the Social Science. Retrieved 12.01.2021, from www.midss.ie Key references: Ferrell, B. R., Ferrell, B., Rhiner, M., Grant, M. (1991). Family Factors Influencing Cancer Pain. Post Graduate Medical Journal, 67 (Suppl 2), 64-69. Ferrell, B. R., Rhiner, M., Cohen, M., Grant, M. (1991). Pain as a Metaphor for Illness. Part I: Impact of Cancer Pain on Family Caregivers. Oncology Nursing Forum, 18(8), 1303-1309. Ferrell, B. R., Cohen, M., Rhiner, M., Rozak, A. (1991). Pain as a Metaphor for Illness. Part II: Family Caregivers' Management of Pain. Oncology Nursing Forum,18(8), 1315-1321. Ferrell, B. R., Rhiner, M., Ferrell, B. (1993). Development and Implementation of a Pain Education Program. Cancer, 72(11), 3426-3432. Primary use / Purpose: The Patient Pain Questionnaire (PPQ) is a 16-item ordinal inventory. Its purpose is to measure the knowledge and experience of a cancer patient in managing chronic pain. Background: Cancer pain is recognised as a serious barrier to mental wellbeing in cancer patients. One of the main aims of palliative care is to buffer patients against pain, both mental and physical. By using the Patient Pain Questionnaire (PPQ) and also the related family pain questionnaire (FPQ) clinicians and researchers can gain a clearer understanding of the patient/caregiver perspective and how this might interact with or even predict wellbeing or adjustment to pain. The PPQ can be used by either clinicans or researchers. Psychometrics: The psychometric properties of the Patient Pain Questionnaire (PPQ) are discussed in the introduction to the instrument itself which is attached below. Digital Object Identifier (DOI): http://dx.doi.org/10.13072/midss.332