CDEGenerator: an online platform to learn from existing data models to build model registries. Varghese, Julian; Fujarski, Michael; Hegselmann, Stefan; Neuhaus, Philipp; Dugas, Martin (2018). In Clinical Epidemiology Volume 10, pp. 961–970. DOI:10.2147/CLEP.S170075
Design of case report forms based on a public metadata registry: re-use of data elements to improve compatibility of data. Dugas M., Trials. 2016;17:566.
ODMedit: uniform semantic annotation for data integration in medicine based on a public metadata repository. Dugas M., Meidt A., Neuhaus P., Storck M., Varghese J., BMC Med Res Methodol. 2016; 16: 65.
Portal of medical data models: information infrastructure for medical research and healthcare. Dugas M., Neuhaus P., Meidt A., Doods J., Storck M., Bruland P., Varghese J., Database (Oxford). 2016 Feb 11;2016.
Memorandum Open Metadata. Dugas M., Jöckel K.-H., Friede T., Gefeller O., Kieser M., Marschollek M., Ammenwerth E., Röhrig R., Knaup-Gregori P., Prokosch H.-U., Methods Inf Med. 2015;54(4):376-8.
Anyone can acccess the contents of the portal. In order to create, adapt, analyse or re-use the contents, the user has to register free of charge.
Enter your query into the above search bar and click the search button on the right. In the search results list there are further filters that you can apply. You can either select keywords or choose a categorie in the table of contents on the left-hand side (under "Filter search results"). Furthermore, there exists and extended query language. You can use it, for instance, to search through sepcific fields of a model or combine different search queries. To get an overview of the extended query language along with examples click the info button next to the search bar.
Data models may be uploaded under four different Creatice Commons Licenses. Please click to see the terms and conditions:
We encourage researchers to create, analyze, share and reuse medical data models. This includes, for example, developing new data standards and common data elements or setting up and reusing case report forms for clinical trials and cohort study documentation.
For every use of a medical data model from our portal, please check, if the description field contains a reference to the original source. In this case, cite the original source. If you used a specific data model, you may indicate the URL to the model (e.g. WHO-5 use https://medical-data-models.org/19088). We also offer the registration of a Digital Object Identifier (DOI) for a data model. You can request a DOI on the left-hand side of the model view and after review we will provide you with a DOI within a few days.
Additionally the following citation guidelines apply:
If you want to download more than 50 models per week, a limit gets actived. Please send us a message with the contact form on the right-hand side, we are able to deactivate the limit for you.
This feature is only available for logged-in users. Each data model within the search results list can be added to a list of selected data models (click the plus-sign right-next to each listed data model). The list of user-selected models will be provided under “Selected data models” in the bottom part of the navigation bar. There, the user has the option to
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