Informatie:
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ID
16032
Beschrijving
NINDS Common Data Elements, Multiple Sclerosis Pediatric Developmental History Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.
Link
https://www.commondataelements.ninds.nih.gov/
Trefwoorden
Versies (1)
- 26-06-16 26-06-16 -
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26 juni 2016
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Creative Commons BY-NC 3.0
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NINDS CDE Pediatric Developmental History Multiple Sclerosis
Pediatric Developmental History
- StudyEvent: ODM
Similar models
Pediatric Developmental History
- StudyEvent: ODM
Name
Type
Description | Question | Decode (Coded Value)
Datatype
Alias
Study ID
Item
Study ID
integer
C2826693 (UMLS CUI [1])
Study site name
Item
Study site name
text
C2825164 (UMLS CUI [1])
Subject ID
Item
Subject ID
integer
C2348585 (UMLS CUI [1])
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
Breast fed
Item
If Yes, indicate duration in months
integer
C0438100 (UMLS CUI [1])
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
Item
Did patient speak in completed sentences by 3 years?
text
C0871341 (UMLS CUI [1])
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
Item
Did patient attend a day care group (with > 5 other children)?
text
C0237555 (UMLS CUI [1])
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
menstrual period
Item
If so, youngest age the female participant/subject had a menstrual period? years
integer
C0025329 (UMLS CUI [1])
CL Item
Special education (1)
CL Item
Regular education (2)
CL Item
Early intervention (3)
CL Item
None (4)
CL Item
Unknown (5)
Item
Has the participant/subject ever repeated a grade in school?
text
C0036373 (UMLS CUI [1])
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
school grade
Item
Above average (receives mostly As in school)
boolean
C3244287 (UMLS CUI [1])
school grade
Item
Normal (functions well in school, receives mostly Bs, Cs)
boolean
C3244287 (UMLS CUI [1])
school performance
Item
Minimal difficulty (struggling but obtains passing grades)
boolean
C0036373 (UMLS CUI [1])
school performance
Item
Moderate difficulty (needs assistance with school work such as an Educational Assistant)
boolean
C0036373 (UMLS CUI [1])
school performance
Item
Special needs class setting, actively participating in learning
boolean
C0036373 (UMLS CUI [1])
school performance
Item
Severe (unable to function in regular classroom even in special class setting, not an active participant in learning activities)
boolean
C0036373 (UMLS CUI [1])
school performance
Item
Limited cognition (unrelated to demyelination or predates demyelination)
boolean
C0036373 (UMLS CUI [1])
school performance
Item
N/A (patient is too young for school)
boolean
C0036373 (UMLS CUI [1])
school performance
Item
Unknown
boolean
C0036373 (UMLS CUI [1])
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
CL Item
not asked (4)
CL Item
yes, specify (1)
CL Item
no (2)
Specify
Item
Specify
text
C1521902 (UMLS CUI [1])
Item
Routine: Tetanus, pertussis, diptheria, polio
text
C0260392 (UMLS CUI [1])
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
CL Item
not asked (4)
CL Item
yes, specify (1)
CL Item
no (2)
Specify
Item
Specify
text
C1521902 (UMLS CUI [1])
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
CL Item
not asked (4)
CL Item
yes, specify (1)
CL Item
no (2)
Specify
Item
Specify
text
C1521902 (UMLS CUI [1])
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
CL Item
not asked (4)
CL Item
yes, specify (1)
CL Item
no (2)
Specify
Item
Specify
text
C1521902 (UMLS CUI [1])
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
CL Item
not asked (4)
CL Item
natural infection, specify age: yrs (5)
Chicken Pox
Item
Specify age in years
integer
C0008049 (UMLS CUI [1])
CL Item
yes, specify (1)
CL Item
no (2)
Specify
Item
Specify
text
C1521902 (UMLS CUI [1])
Item
Vaccination within one month of 1 st demyelinating attack
text
C0042196 (UMLS CUI [1])
CL Item
yes, specify (1)
CL Item
no (2)
CL Item
unknown (3)
CL Item
not asked (4)
Vaccination
Item
Specify vaccine
text
C0042196 (UMLS CUI [1])
CL Item
yes, specify (1)
CL Item
no (2)
Specify
Item
Specify
text
C1521902 (UMLS CUI [1])