ID

16032

Beschreibung

NINDS Common Data Elements, Multiple Sclerosis Pediatric Developmental History Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

Link

https://www.commondataelements.ninds.nih.gov/

Stichworte

Versionen (1)
  1. 26.06.16 26.06.16 -
Hochgeladen am

26. Juni 2016

DOI

Für eine Beantragung loggen Sie sich ein.

Lizenz

Creative Commons BY-NC 3.0
Modell Kommentare :

Hier können Sie das Modell kommentieren. Über die Sprechblasen an den Itemgruppen und Items können Sie diese spezifisch kommentieren.

Zurück zu Modell Kommentaren
Itemgroup Kommentare für :

Item Kommentare für :

Um Formulare herunterzuladen müssen Sie angemeldet sein. Bitte loggen Sie sich ein oder registrieren Sie sich kostenlos.

NINDS CDE Pediatric Developmental History Multiple Sclerosis

Englisch

Pediatric Developmental History

1 Formulare  
Early Life Nutrition
Beschreibung

Early Life Nutrition

Alias
UMLS CUI-1
C0021279
Study ID
Beschreibung

Study ID

Datentyp

integer

Alias
UMLS CUI [1]
C2826693
Study site name
Beschreibung

Study site name

Datentyp

text

Alias
UMLS CUI [1]
C2825164
Subject ID
Beschreibung

Subject ID

Datentyp

integer

Alias
UMLS CUI [1]
C2348585
Breast fed?
Beschreibung

Breast fed

Datentyp

text

Alias
UMLS CUI [1]
C0438100
If Yes, indicate duration in months
Beschreibung

Breast fed

Datentyp

integer

Alias
UMLS CUI [1]
C0438100
Formula fed?
Beschreibung

Formula fed

Datentyp

text

Alias
UMLS CUI [1]
C4062867
If Yes, indicate duration: months and formula type:
Beschreibung

Formula fed

Datentyp

text

Alias
UMLS CUI [1]
C4062867
Early Development
Beschreibung

Early Development

Alias
UMLS CUI-1
C0870455
Did patient walk by 17 months old?
Beschreibung

walking

Datentyp

text

Alias
UMLS CUI [1]
C0080331
Did patient speak his/her first words by 12 months?
Beschreibung

speaking

Datentyp

text

Alias
UMLS CUI [1]
C0234856
Did patient speak in two word combinations by 2 years?
Beschreibung

two word combination

Datentyp

text

Did patient speak in completed sentences by 3 years?
Beschreibung

complete sentence

Datentyp

text

Alias
UMLS CUI [1]
C0871341
Did patient have a cognitive/learning ?
Beschreibung

cognitive disability

Datentyp

text

Alias
UMLS CUI [1]
C0009241
Did patient attend a day care group (with > 5 other children)?
Beschreibung

child day care

Datentyp

text

Alias
UMLS CUI [1]
C0237555
Has participant/subject ever had a menstrual period?
Beschreibung

menstruation

Datentyp

text

Alias
UMLS CUI [1]
C0025344
If so, youngest age the female participant/subject had a menstrual period? years
Beschreibung

menstrual period

Datentyp

integer

Alias
UMLS CUI [1]
C0025329
Educational History
Beschreibung

Educational History

Alias
UMLS CUI-1
C0679831
UMLS CUI-2
C0013622
Type of educational services received:
Beschreibung

Educational status

Datentyp

text

Alias
UMLS CUI [1]
C0013658
Has the participant/subject ever repeated a grade in school?
Beschreibung

school performance

Datentyp

text

Alias
UMLS CUI [1]
C0036373
Cognitive
Beschreibung

Cognitive

Alias
UMLS CUI-1
C1516691
Above average (receives mostly As in school)
Beschreibung

school grade

Datentyp

boolean

Alias
UMLS CUI [1]
C3244287
Normal (functions well in school, receives mostly Bs, Cs)
Beschreibung

school grade

Datentyp

boolean

Alias
UMLS CUI [1]
C3244287
Minimal difficulty (struggling but obtains passing grades)
Beschreibung

school performance

Datentyp

boolean

Alias
UMLS CUI [1]
C0036373
Moderate difficulty (needs assistance with school work such as an Educational Assistant)
Beschreibung

school performance

Datentyp

boolean

Alias
UMLS CUI [1]
C0036373
Special needs class setting, actively participating in learning
Beschreibung

school performance

Datentyp

boolean

Alias
UMLS CUI [1]
C0036373
Severe (unable to function in regular classroom even in special class setting, not an active participant in learning activities)
Beschreibung

school performance

Datentyp

boolean

Alias
UMLS CUI [1]
C0036373
Limited cognition (unrelated to demyelination or predates demyelination)
Beschreibung

school performance

Datentyp

boolean

Alias
UMLS CUI [1]
C0036373
N/A (patient is too young for school)
Beschreibung

school performance

Datentyp

boolean

Alias
UMLS CUI [1]
C0036373
Unknown
Beschreibung

school performance

Datentyp

boolean

Alias
UMLS CUI [1]
C0036373
Vaccinations
Beschreibung

Vaccinations

Alias
UMLS CUI-1
C0042196
Routine: Measles, mumps, rubella
Beschreibung

Measles Mumps Rubella Vaccine

Datentyp

text

Alias
UMLS CUI [1]
C0065828
Hospitalized?
Beschreibung

Hospitalization

Datentyp

text

Alias
UMLS CUI [1]
C0019993
Specify
Beschreibung

Specify

Datentyp

text

Alias
UMLS CUI [1]
C1521902
Routine: Tetanus, pertussis, diptheria, polio
Beschreibung

Tetanus pertussis diptheria polio vaccine

Datentyp

text

Alias
UMLS CUI [1]
C0260392
Hospitalized?
Beschreibung

Hospitalization

Datentyp

text

Alias
UMLS CUI [1]
C0019993
Specify
Beschreibung

Specify

Datentyp

text

Alias
UMLS CUI [1]
C1521902
Hepatitis B
Beschreibung

Hepatitis B vaccine

Datentyp

text

Alias
UMLS CUI [1]
C0474232
Hospitalized?
Beschreibung

Hospitalization

Datentyp

text

Alias
UMLS CUI [1]
C0019993
Specify
Beschreibung

Specify

Datentyp

text

Alias
UMLS CUI [1]
C1521902
Haemophilus Influenza Type B
Beschreibung

Haemophilus Influenza Type B vaccine

Datentyp

text

Alias
UMLS CUI [1]
C0062082
Hospitalized?
Beschreibung

Hospitalization

Datentyp

text

Alias
UMLS CUI [1]
C0019993
Specify
Beschreibung

Specify

Datentyp

text

Alias
UMLS CUI [1]
C1521902
Chicken Pox Vaccine
Beschreibung

Chicken Pox Vaccine

Datentyp

text

Alias
UMLS CUI [1]
C3703980
Specify age in years
Beschreibung

Chicken Pox

Datentyp

integer

Alias
UMLS CUI [1]
C0008049
Hospitalized?
Beschreibung

Hospitalization

Datentyp

text

Alias
UMLS CUI [1]
C0019993
Specify
Beschreibung

Specify

Datentyp

text

Alias
UMLS CUI [1]
C1521902
Vaccination within one month of 1 st demyelinating attack
Beschreibung

Vaccination

Datentyp

text

Alias
UMLS CUI [1]
C0042196
Specify vaccine
Beschreibung

Vaccination

Datentyp

text

Alias
UMLS CUI [1]
C0042196
Hospitalized?
Beschreibung

Hospitalization

Datentyp

text

Alias
UMLS CUI [1]
C0019993
Specify
Beschreibung

Specify

Datentyp

text

Alias
UMLS CUI [1]
C1521902
Zum Seitenanfang zurückkehren

Ähnliche Modelle

Pediatric Developmental History

1 Formulare
Name
Typ
Description | Question | Decode (Coded Value)
Datentyp
Alias
Item Group
Early Life Nutrition
C0021279 (UMLS CUI-1)
Study ID
Item
Study ID
integer
C2826693 (UMLS CUI [1])
Study site name
Item
Study site name
text
C2825164 (UMLS CUI [1])
Subject ID
Item
Subject ID
integer
C2348585 (UMLS CUI [1])
Item
Breast fed?
text
C0438100 (UMLS CUI [1])
Breast fed
Code List
Breast fed?
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
Breast fed
Item
If Yes, indicate duration in months
integer
C0438100 (UMLS CUI [1])
Item
Formula fed?
text
C4062867 (UMLS CUI [1])
Breast fed
Code List
Formula fed?
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
Item
If Yes, indicate duration: months and formula type:
text
C4062867 (UMLS CUI [1])
Breast fed
Code List
If Yes, indicate duration: months and formula type:
Item Group
Early Development
C0870455 (UMLS CUI-1)
Item
Did patient walk by 17 months old?
text
C0080331 (UMLS CUI [1])
Breast fed
Code List
Did patient walk by 17 months old?
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
Item
Did patient speak his/her first words by 12 months?
text
C0234856 (UMLS CUI [1])
Breast fed
Code List
Did patient speak his/her first words by 12 months?
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
Item
Did patient speak in two word combinations by 2 years?
text
Breast fed
Code List
Did patient speak in two word combinations by 2 years?
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
Item
Did patient speak in completed sentences by 3 years?
text
C0871341 (UMLS CUI [1])
Breast fed
Code List
Did patient speak in completed sentences by 3 years?
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
Item
Did patient have a cognitive/learning ?
text
C0009241 (UMLS CUI [1])
Breast fed
Code List
Did patient have a cognitive/learning ?
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
Item
Did patient attend a day care group (with > 5 other children)?
text
C0237555 (UMLS CUI [1])
Breast fed
Code List
Did patient attend a day care group (with > 5 other children)?
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
Item
Has participant/subject ever had a menstrual period?
text
C0025344 (UMLS CUI [1])
Breast fed
Code List
Has participant/subject ever had a menstrual period?
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
menstrual period
Item
If so, youngest age the female participant/subject had a menstrual period? years
integer
C0025329 (UMLS CUI [1])
Item Group
Educational History
C0679831 (UMLS CUI-1)
C0013622 (UMLS CUI-2)
Item
Type of educational services received:
text
C0013658 (UMLS CUI [1])
Educational status
Code List
Type of educational services received:
CL Item
Special education (1)
CL Item
Regular education  (2)
CL Item
Early intervention  (3)
CL Item
None  (4)
CL Item
Unknown (5)
Item
Has the participant/subject ever repeated a grade in school?
text
C0036373 (UMLS CUI [1])
Breast fed
Code List
Has the participant/subject ever repeated a grade in school?
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
Item Group
Cognitive
C1516691 (UMLS CUI-1)
school grade
Item
Above average (receives mostly As in school)
boolean
C3244287 (UMLS CUI [1])
school grade
Item
Normal (functions well in school, receives mostly Bs, Cs)
boolean
C3244287 (UMLS CUI [1])
school performance
Item
Minimal difficulty (struggling but obtains passing grades)
boolean
C0036373 (UMLS CUI [1])
school performance
Item
Moderate difficulty (needs assistance with school work such as an Educational Assistant)
boolean
C0036373 (UMLS CUI [1])
school performance
Item
Special needs class setting, actively participating in learning
boolean
C0036373 (UMLS CUI [1])
school performance
Item
Severe (unable to function in regular classroom even in special class setting, not an active participant in learning activities)
boolean
C0036373 (UMLS CUI [1])
school performance
Item
Limited cognition (unrelated to demyelination or predates demyelination)
boolean
C0036373 (UMLS CUI [1])
school performance
Item
N/A (patient is too young for school)
boolean
C0036373 (UMLS CUI [1])
school performance
Item
Unknown
boolean
C0036373 (UMLS CUI [1])
Item Group
Vaccinations
C0042196 (UMLS CUI-1)
Item
Routine: Measles, mumps, rubella
text
C0065828 (UMLS CUI [1])
Measles Mumps Rubella Vaccine
Code List
Routine: Measles, mumps, rubella
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
CL Item
not asked (4)
Item
Hospitalized?
text
C0019993 (UMLS CUI [1])
Hospitalization
Code List
Hospitalized?
CL Item
yes, specify (1)
CL Item
no (2)
Specify
Item
Specify
text
C1521902 (UMLS CUI [1])
Item
Routine: Tetanus, pertussis, diptheria, polio
text
C0260392 (UMLS CUI [1])
Measles Mumps Rubella Vaccine
Code List
Routine: Tetanus, pertussis, diptheria, polio
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
CL Item
not asked (4)
Item
Hospitalized?
text
C0019993 (UMLS CUI [1])
Hospitalization
Code List
Hospitalized?
CL Item
yes, specify (1)
CL Item
no (2)
Specify
Item
Specify
text
C1521902 (UMLS CUI [1])
Item
Hepatitis B
text
C0474232 (UMLS CUI [1])
Measles Mumps Rubella Vaccine
Code List
Hepatitis B
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
CL Item
not asked (4)
Item
Hospitalized?
text
C0019993 (UMLS CUI [1])
Hospitalization
Code List
Hospitalized?
CL Item
yes, specify (1)
CL Item
no (2)
Specify
Item
Specify
text
C1521902 (UMLS CUI [1])
Item
Haemophilus Influenza Type B
text
C0062082 (UMLS CUI [1])
Measles Mumps Rubella Vaccine
Code List
Haemophilus Influenza Type B
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
CL Item
not asked (4)
Item
Hospitalized?
text
C0019993 (UMLS CUI [1])
Hospitalization
Code List
Hospitalized?
CL Item
yes, specify (1)
CL Item
no (2)
Specify
Item
Specify
text
C1521902 (UMLS CUI [1])
Item
Chicken Pox Vaccine
text
C3703980 (UMLS CUI [1])
Chicken Pox Vaccine
Code List
Chicken Pox Vaccine
CL Item
yes (1)
CL Item
no (2)
CL Item
unknown (3)
CL Item
not asked (4)
CL Item
natural infection, specify age: yrs (5)
Chicken Pox
Item
Specify age in years
integer
C0008049 (UMLS CUI [1])
Item
Hospitalized?
text
C0019993 (UMLS CUI [1])
Hospitalization
Code List
Hospitalized?
CL Item
yes, specify (1)
CL Item
no (2)
Specify
Item
Specify
text
C1521902 (UMLS CUI [1])
Item
Vaccination within one month of 1 st demyelinating attack
text
C0042196 (UMLS CUI [1])
Vaccination
Code List
Vaccination within one month of 1 st demyelinating attack
CL Item
yes, specify (1)
CL Item
no (2)
CL Item
unknown (3)
CL Item
not asked (4)
Vaccination
Item
Specify vaccine
text
C0042196 (UMLS CUI [1])
Item
Hospitalized?
text
C0019993 (UMLS CUI [1])
Hospitalization
Code List
Hospitalized?
CL Item
yes, specify (1)
CL Item
no (2)
Specify
Item
Specify
text
C1521902 (UMLS CUI [1])
Zum Seitenanfang zurückkehren 

Kontakt

Benutzen Sie dieses Formular für Rückmeldungen, Fragen und Verbesserungsvorschläge.

Mit * gekennzeichnete Felder sind notwendig.

Hilfe

Benötigen Sie Hilfe bei der Suche? Um mehr Details zu erfahren und die Suche effektiver nutzen zu können schauen Sie sich doch das entsprechende Video auf unserer Tutorial Seite an.

Zum Video