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EUMDS registry DRKS00003844 NCT00600860 - Patient registration

- 2021-09-20 - 9 Formulär, 1 Item-grupp, 12 Dataelement, 1 Språk
Item-grupp: Patient registration
Further Information: http://www.eumds.org/

Eligibility

1 Item-grupp 5 Dataelement

Visit details

6 Item-grupper 29 Dataelement

Bone marrow assessment

3 Item-grupper 13 Dataelement

Concomitant treatment

1 Item-grupp 5 Dataelement

Withdrawal

2 Item-grupper 7 Dataelement

General medical history

1 Item-grupp 5 Dataelement

NHL-BFM Registry 2012 Signed Informed Consent - Signed Informed Consent

- 2021-09-20 - 1 Formulär, 7 Item-grupper, 17 Dataelement, 2 Språk
Item-grupper: Signed informed consent available for participation in the registry and consultation, Signed informed consent available for data transfer, data storage, and data handling ..., Storage of remaining bio material with contact for each scientific usage, Storage and use of remaining bio material for the following research projects (pseudonymized) for all NHL, Storage and use of remaining bio material for the following research projects (pseudonymized) FOR LYMPHOBLASTIC LYMPHOMA, Storage and use of remaining bio material for the following research projects (pseudonymized) FOR MATURE B-CELL LYMPHOMA, Storage and use of remaining bio material for the following research projects (pseudonymized) FOR LARGE CELL ANAPLASTIC LYMPHOMA (ALCL)
NHL-BFM 2012 Registry. Principal Investigators: Birgit Burkhardt and Wilhelm Woessmann. NHL study group

Thrombosis Registry Oncology Thromboses UK Essen - Thrombosis

- 2021-09-20 - 1 Formulär, 1 Item-grupp, 23 Dataelement, 1 Språk
Item-grupp: Thrombosis
Study part: Thrombosis Registry for oncologic patients with thromboses. The aim of the study was to determine the incidence of thrombosis in oncology patients. A register study of University Clinic Essen (UK Essen), permission granted by Claudia Ose from the Center for Clinical Studies Essen (Zentrums für Klinische Studien Essen, ZKSE).

Hematopoietic Stem Cell Transplantation - Post-HSCT Data (100 Days) 2100 Revision 2

- 2021-09-20 - 1 Formulär, 24 Item-grupper, 397 Dataelement, 1 Språk
Item-grupper: Registry Use Only, Identification Data, HSCT Type, Vital Status, Hematopoietic Reconstitution, Granulopoiesis / Neutrophil Recovery, Megakaryopoiesis / Platelet Recovery, Hematology findings, Immune Reconstitution, Chimerism analysis post transplantation, Chimerism Studies - Single Donor, Chimerism Studies - Multiple Donors, Engraftment Syndrome, Acute GVHD, Chronic GVHD, Infection, Pulmonary Function, Liver, Other Organ Impairment, New malignancy, Functional Status, Subsequent HSCT, Donor Cellular Infusion, Author Information
2100 Revision 2 - 100 Days Post-HSCT Data Source Form: NCI FormBuilder: https://formbuilder.nci.nih.gov/FormBuilder/formDetailsAction.do?method=getFormDetails&formIdSeq=9FB3D5BF-EA64-EEEB-E040-BB89AD4331BD

100 days past HSCT EBMT

- 2021-09-20 - 1 Formulär, 20 Item-grupper, 200 Dataelement, 1 Språk
Item-grupper: CENTRE IDENTIFICATION, PATIENT DATA, DISEASE, HSCT, STEM CELLS (autograft or allograft), HSCT, AFTER HSCT, ADDITIONAL TREATMENT INCLUDING CELL THERAPY, DISEASE STATUS, Date of last follow up or death, DISEASE PRESENCE/DETECTION AT LAST CONTACT, PATIENT STATUS AT LAST CONTACT, COVER PAGE FOR HISTOCOMPATIBILITY REPORTS, HSCT - Minimum Essential Data - A First report - 100 days after HSCT - APPENDIX, DISEASE OF SECONDARY ORIGIN, THERAPY GIVEN PRIOR TO THIS HSCT, Comorbidity, HSCT - Minimum Essential Data - A First report - 100 days after HSCT - APPENDIX, HSCT - Minimum Essential Data - A First report - 100 days after HSCT - APPENDIX, HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 1
ODM form derived from 100days past HSCT EBMT. please refer to: http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Pages/MED-AB-data-collection-forms.aspx HLA typing results of patient and donor should be attached and sent: - to your NATIONAL REGISTRY if - you normally report to your National Registry and - you are based in the Netherlands, Switzerland, Turkey or the UK - to the EBMT REGISTRY OFFICE in London for any other centre Contact: Shelley Hewerdine EBMT Registry Office 4th Floor, Tabard House Guy's Hospital Great Maze Pond London SE1 9RT United Kingdom Phone: 00 44-207-188-8409 Fax: 00 44-207-188-8411 Email: shelley.hewerdine@ebmt.org

AML- Register_Registration form_SAL_University hospital dresden

- 2021-09-20 - 1 Formulär, 2 Item-grupper, 14 Dataelement, 1 Språk
Item-grupper: Clinic information, Patient information
Items used as routine documentation for the SAL (Studienallianz Leukämie) study centre of university hospital dresden. ODM derived from original form "AML-Register Meldebogen - A", converted to ODM format.

Acute Leukaemia AML EBMT HSCT Registry MED-B Disease Specific Form

- 2021-09-20 - 1 Formulär, 13 Item-grupper, 68 Dataelement, 1 Språk
Item-grupper: Hospital Team, Patient, Disease, Initial Diagnosis, Cytgenetics, Molecular Biology, Involvement at Diagnosis, Type of HSCT, Treatment and Status of Disease at Stem Cell Collection, Status of Disease at HSCT, Additional Treatment Post-HSCT, Best disease response at 100 days post-HSCT, Forms to be filled in
The European Society for Blood and Marrow Transplantation maintains a huge registry and delivers data collection forms. The original forms for submitting data to the EBMT can be found under: http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Pages/MED-AB-data-collection-forms.aspx#HSCTMedB This ODM form is derived from the AML-disease specific form of the section MED-B. http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Documents/05AL.pdf

AML- Register_Accompanying Material Form_SAL_University hospital dresden

- 2021-09-20 - 1 Formulär, 3 Item-grupper, 14 Dataelement, 1 Språk
Item-grupper: Patient information, Material, Sender information
Items used as routine documentation for the SAL (Studienallianz Leukmie) study centre of university hospital dresden. ODM derived from original form "AML-Register Materialbegleitbogen für Biomaterialbank", converted to ODM format.

AML- Register_Progress sheet_SAL_University hospital dresden

- 2021-09-20 - 1 Formulär, 4 Item-grupper, 21 Dataelement, 1 Språk
Item-grupper: Patient information, Patient alive, death, recurrence
Items used as routine documentation for the SAL (Studienallianz Leukämie) study centre of university hospital dresden. ODM derived from original form "AML-Register Verlaufsbogen - C", converted to ODM format.

NSCH 2016 Children Ages 6-11 - F. Providing for This Child’s Health

- 2021-09-20 - 11 Formulär, 1 Item-grupp, 8 Dataelement, 1 Språk
Item-grupp: Health Care Costs; health care financing
Study part: Children Ages 6-11 National Survey of Childrens Health, NSCH, 2016. A study by the U.S. Department of Health and Human Services to better understand the health issues faced by children in the United States today. Child and Adolescent Health Measurement Initiative, Data Resource Center on Child and Adolescent Health website. Retrieved on 07/12/2016 from http://childhealthdata.org/learn/NSCH/resources/survey-instruments. OMB No. 0607-0990: Approval Expires 04/30/2019.

E. This Child’s Health Insurance Coverage

1 Item-grupp 18 Dataelement

I. About Your Family and Household

1 Item-grupp 34 Dataelement

K. Household Information

1 Item-grupp 15 Dataelement

G. This Child’s Learning

1 Item-grupp 11 Dataelement

H. About You and This Child

1 Item-grupp 21 Dataelement

J. About You

2 Item-grupper 20 Dataelement

NSCH 2016 Children Ages 12-17 - A. This Child’s Health

- 2021-09-20 - 11 Formulär, 1 Item-grupp, 108 Dataelement, 1 Språk
Item-grupp: health Child
Study part: Children Ages 12-17 National Survey of Childrens Health, NSCH, 2016. A study by the U.S. Department of Health and Human Services to better understand the health issues faced by children in the United States today. Child and Adolescent Health Measurement Initiative, Data Resource Center on Child and Adolescent Health website. Retrieved on 07/12/2016 from http://childhealthdata.org/learn/NSCH/resources/survey-instruments. OMB No. 0607-0990: Approval Expires 04/30/2019.

B. This Child as an Infant

1 Item-grupp 3 Dataelement

D. Experience with This Child’s Health Care Providers

1 Item-grupp 30 Dataelement

E. This Child’s Health Insurance Coverage

1 Item-grupp 18 Dataelement

F. Providing for This Child’s Health

1 Item-grupp 8 Dataelement

I. About Your Family and Household

1 Item-grupp 34 Dataelement

K. Household Information

1 Item-grupp 15 Dataelement

NSCH 2016 Children Ages 0-5 - D. Experience with This Child’s Health Care Providers

- 2021-09-20 - 11 Formulär, 1 Item-grupp, 18 Dataelement, 1 Språk
Item-grupp: Experience; Health Personnel
Study part: Children Ages 0-5 National Survey of Childrens Health, NSCH, 2016. A study by the U.S. Department of Health and Human Services to better understand the health issues faced by children in the United States today. Child and Adolescent Health Measurement Initiative, Data Resource Center on Child and Adolescent Health website. Retrieved on 07/12/2016 from http://childhealthdata.org/learn/NSCH/resources/survey-instruments. OMB No. 0607-0990: Approval Expires 04/30/2019.

F. Providing for This Child’s Health

1 Item-grupp 8 Dataelement

E. This Child’s Health Insurance Coverage

1 Item-grupp 18 Dataelement

C. Health Care Services

1 Item-grupp 49 Dataelement

B. This Child as an Infant

1 Item-grupp 10 Dataelement

A. This Child’s Health

1 Item-grupp 99 Dataelement

I. About Your Family and Household

1 Item-grupp 32 Dataelement

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