ID

43916

Description

NHL-BFM 2012 Registry. Principal Investigators: Birgit Burkhardt and Wilhelm Woessmann. NHL study group

Keywords

Versions (3)
  1. 5/15/14 5/15/14 - Martin Dugas
  2. 7/1/16 7/1/16 -
  3. 9/20/21 9/20/21 -
Uploaded on

September 20, 2021

DOI

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License

Creative Commons BY-NC 3.0 Legacy
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NHL-BFM Registry 2012 Signed Informed Consent

German English

Signed Informed Consent

1 forms  
Signed informed consent available for participation in the registry and consultation
Description

Signed informed consent available for participation in the registry and consultation

Participation in the NHL-BFM Registry 2012 (and treatment according to the included treatment recommendations)
Description

Participation in the NHL-BFM Registry 2012 (and treatment according to the included treatment recommendations)

Data type

integer

Alias
UMLS CUI [1,1]
C0679823
UMLS CUI [1,2]
C0034975
Consultation of the NHL-BFM center with regard to medical problems / questions
Description

Consultation of the NHL-BFM center with regard to medical problems / questions

Data type

integer

Alias
UMLS CUI [1,1]
C0009818
UMLS CUI [1,2]
C1446390
Signed informed consent available for data transfer, data storage, and data handling ...
Description

Signed informed consent available for data transfer, data storage, and data handling ...

... in the NHL-BFM Registry 2012
Description

... in the NHL-BFM Registry 2012

Data type

integer

Alias
UMLS CUI [1]
C0034975
... at the reference institutes
Description

... at the reference institutes

Data type

integer

Alias
UMLS CUI [1]
C0035172
... at the German Children's Cancer Registry (Deutsches Kinderkrebsregister)
Description

... at the German Children's Cancer Registry (Deutsches Kinderkrebsregister)

Data type

integer

Alias
UMLS CUI [1]
C4053734
... pseudonymized for research projects (see also below)
Description

... pseudonymized for research projects (see also below)

Data type

integer

Alias
UMLS CUI [1,1]
C0033824
UMLS CUI [1,2]
C0700032
Storage of remaining bio material with contact for each scientific usage
Description

Storage of remaining bio material with contact for each scientific usage

The patient wants to be contacted and asked for informed consent for each scientific usage
Description

The patient wants to be contacted and asked for informed consent for each scientific usage

Data type

integer

Alias
UMLS CUI [1,1]
C2051501
UMLS CUI [1,2]
C0021430
Please give patient's e-mail-address and / or phone number for contact
Description

Please give patient's e-mail-address and / or phone number for contact

Data type

text

Alias
UMLS CUI [1]
C1880174
Storage and use of remaining bio material for the following research projects (pseudonymized) for all NHL
Description

Storage and use of remaining bio material for the following research projects (pseudonymized) for all NHL

* genetic aberrations in lymphoma cells and their prognostic impact
Description

* genetic aberrations in lymphoma cells and their prognostic impact

Data type

integer

Alias
UMLS CUI [1,1]
C0017399
UMLS CUI [1,2]
C1514474
UMLS CUI [1,3]
C0883208
* genetic aberrations and polymorhisms in lymphoma cells and their impact on treatment response
Description

* genetic aberrations and polymorhisms in lymphoma cells and their impact on treatment response

Data type

integer

Alias
UMLS CUI [1,1]
C0017399
UMLS CUI [1,2]
C0883208
UMLS CUI [1,3]
C0521982
Storage and use of remaining bio material for the following research projects (pseudonymized) FOR LYMPHOBLASTIC LYMPHOMA
Description

Storage and use of remaining bio material for the following research projects (pseudonymized) FOR LYMPHOBLASTIC LYMPHOMA

* examination of chromosome 6 deletions with two methods
Description

* examination of chromosome 6 deletions with two methods

Data type

integer

Alias
UMLS CUI [1,1]
C0019637
UMLS CUI [1,2]
C0265410
* frequency and impact of mutations of the genes NOTCH and FBXW7
Description

* frequency and impact of mutations of the genes NOTCH and FBXW7

Data type

integer

Alias
UMLS CUI [1,1]
C0596611
UMLS CUI [1,2]
C0812223
UMLS CUI [1,3]
C1333533
* prognostic impact of the immunophenotype of the lymphoma cells
Description

* prognostic impact of the immunophenotype of the lymphoma cells

Data type

integer

Alias
UMLS CUI [1,1]
C1514474
UMLS CUI [1,2]
C0079611
UMLS CUI [1,3]
C0883208
Storage and use of remaining bio material for the following research projects (pseudonymized) FOR MATURE B-CELL LYMPHOMA
Description

Storage and use of remaining bio material for the following research projects (pseudonymized) FOR MATURE B-CELL LYMPHOMA

* impact of gene ploymorphisms on treatment response and outcome
Description

* impact of gene polymorphisms on treatment response and outcome

Data type

integer

Alias
UMLS CUI [1,1]
C0032529
UMLS CUI [1,2]
C0521982
UMLS CUI [1,3]
C0679250
Storage and use of remaining bio material for the following research projects (pseudonymized) FOR LARGE CELL ANAPLASTIC LYMPHOMA (ALCL)
Description

Storage and use of remaining bio material for the following research projects (pseudonymized) FOR LARGE CELL ANAPLASTIC LYMPHOMA (ALCL)

* quantification of minimal disseminated disease (MDD) with three different methods
Description

* quantification of minimal disseminated disease (MDD) with three different methods

Data type

integer

Alias
UMLS CUI [1,1]
C1709793
UMLS CUI [1,2]
C3812244
* prognostic impact of minimal residual disease (MRD)
Description

* prognostic impact of minimal residual disease (MRD)

Data type

integer

Alias
UMLS CUI [1,1]
C1514474
UMLS CUI [1,2]
C0242596
* course of anti-ALK-antibody-titers during treatment
Description

* course of anti-ALK-antibody-titers during treatment

Data type

integer

Alias
UMLS CUI [1,1]
C0474643
UMLS CUI [1,2]
C0252409
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Similar models

Signed Informed Consent

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item
Participation in the NHL-BFM Registry 2012 (and treatment according to the included treatment recommendations)
integer
C0679823 (UMLS CUI [1,1])
C0034975 (UMLS CUI [1,2])
NOYES
Code List
Participation in the NHL-BFM Registry 2012 (and treatment according to the included treatment recommendations)
CL Item
no (1)
CL Item
yes (2)
Item
Consultation of the NHL-BFM center with regard to medical problems / questions
integer
C0009818 (UMLS CUI [1,1])
C1446390 (UMLS CUI [1,2])
NOYES
Code List
Consultation of the NHL-BFM center with regard to medical problems / questions
CL Item
no (1)
CL Item
yes (2)
Item
... in the NHL-BFM Registry 2012
integer
C0034975 (UMLS CUI [1])
NOYES
Code List
... in the NHL-BFM Registry 2012
CL Item
no (1)
CL Item
yes (2)
Item
... at the reference institutes
integer
C0035172 (UMLS CUI [1])
NOYES
Code List
... at the reference institutes
CL Item
no (1)
CL Item
yes (2)
Item
... at the German Children's Cancer Registry (Deutsches Kinderkrebsregister)
integer
C4053734 (UMLS CUI [1])
NOYES
Code List
... at the German Children's Cancer Registry (Deutsches Kinderkrebsregister)
CL Item
no (1)
CL Item
yes (2)
Item
... pseudonymized for research projects (see also below)
integer
C0033824 (UMLS CUI [1,1])
C0700032 (UMLS CUI [1,2])
NOYES
Code List
... pseudonymized for research projects (see also below)
CL Item
no (1)
CL Item
yes (2)
Item
The patient wants to be contacted and asked for informed consent for each scientific usage
integer
C2051501 (UMLS CUI [1,1])
C0021430 (UMLS CUI [1,2])
NOYES
Code List
The patient wants to be contacted and asked for informed consent for each scientific usage
CL Item
no (1)
CL Item
yes (2)
Please give patient's e-mail-address and / or phone number for contact
Item
Please give patient's e-mail-address and / or phone number for contact
text
C1880174 (UMLS CUI [1])
Item
* genetic aberrations in lymphoma cells and their prognostic impact
integer
C0017399 (UMLS CUI [1,1])
C1514474 (UMLS CUI [1,2])
C0883208 (UMLS CUI [1,3])
NOYES
Code List
* genetic aberrations in lymphoma cells and their prognostic impact
CL Item
no (1)
CL Item
yes (2)
Item
* genetic aberrations and polymorhisms in lymphoma cells and their impact on treatment response
integer
C0017399 (UMLS CUI [1,1])
C0883208 (UMLS CUI [1,2])
C0521982 (UMLS CUI [1,3])
NOYES
Code List
* genetic aberrations and polymorhisms in lymphoma cells and their impact on treatment response
CL Item
no (1)
CL Item
yes (2)
Item
* examination of chromosome 6 deletions with two methods
integer
C0019637 (UMLS CUI [1,1])
C0265410 (UMLS CUI [1,2])
NOYES
Code List
* examination of chromosome 6 deletions with two methods
CL Item
no (1)
CL Item
yes (2)
Item
* frequency and impact of mutations of the genes NOTCH and FBXW7
integer
C0596611 (UMLS CUI [1,1])
C0812223 (UMLS CUI [1,2])
C1333533 (UMLS CUI [1,3])
NOYES
Code List
* frequency and impact of mutations of the genes NOTCH and FBXW7
CL Item
no (1)
CL Item
yes (2)
Item
* prognostic impact of the immunophenotype of the lymphoma cells
integer
C1514474 (UMLS CUI [1,1])
C0079611 (UMLS CUI [1,2])
C0883208 (UMLS CUI [1,3])
NOYES
Code List
* prognostic impact of the immunophenotype of the lymphoma cells
CL Item
no (1)
CL Item
yes (2)
Item
* impact of gene ploymorphisms on treatment response and outcome
integer
C0032529 (UMLS CUI [1,1])
C0521982 (UMLS CUI [1,2])
C0679250 (UMLS CUI [1,3])
NOYES
Code List
* impact of gene ploymorphisms on treatment response and outcome
CL Item
no (1)
CL Item
yes (2)
Item
* quantification of minimal disseminated disease (MDD) with three different methods
integer
C1709793 (UMLS CUI [1,1])
C3812244 (UMLS CUI [1,2])
NOYES
Code List
* quantification of minimal disseminated disease (MDD) with three different methods
CL Item
no (1)
CL Item
yes (2)
Item
* prognostic impact of minimal residual disease (MRD)
integer
C1514474 (UMLS CUI [1,1])
C0242596 (UMLS CUI [1,2])
NOYES
Code List
* prognostic impact of minimal residual disease (MRD)
CL Item
no (1)
CL Item
yes (2)
Item
* course of anti-ALK-antibody-titers during treatment
integer
C0474643 (UMLS CUI [1,1])
C0252409 (UMLS CUI [1,2])
NOYES
Code List
* course of anti-ALK-antibody-titers during treatment
CL Item
no (1)
CL Item
yes (2)
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