Informações:
Falhas:
ID
43995
Descrição
Further Information: http://www.eumds.org/
Link
Palavras-chave
Versões (3)
- 28/05/2015 28/05/2015 - Martin Dugas
- 18/10/2017 18/10/2017 - Martin Dugas
- 20/09/2021 20/09/2021 -
Titular dos direitos
EUMDS consortium
Transferido a
20 de setembro de 2021
DOI
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Licença
Creative Commons BY-NC 3.0
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EUMDS registry DRKS00003844 NCT00600860
Similar models
Visit details
Name
Tipo
Description | Question | Decode (Coded Value)
Tipo de dados
Alias
Visit date
Item
Visit date
date
C1320303 (UMLS CUI-1)
Height
Item
Height
float
C0005890 (UMLS CUI-1)
Weight
Item
Weight
float
C0005910 (UMLS CUI-1)
CL Item
Normal - no complaints; no evidence of disease. (100)
C3829431 (UMLS CUI-1)
CL Item
Able to carry on normal activity; minor sign or symptoms of disease. (90)
C3829422 (UMLS CUI-1)
CL Item
Normal activity; minor sign of symptoms of disease. (80)
C3829423 (UMLS CUI-1)
CL Item
Care for self; unable to carry on normal activity or to do active work. (70)
C3829424 (UMLS CUI-1)
CL Item
Requires occasional assistance, but is able to care for most personal needs. (60)
C3829425 (UMLS CUI-1)
CL Item
Requires considerable assistance and frequent medical care. (50)
C3829426 (UMLS CUI-1)
CL Item
Disabled; requires special care and assistance. (40)
C3829427 (UMLS CUI-1)
CL Item
Severely disabled; hospital admission is indicated although death not imminent. (30)
C3829428 (UMLS CUI-1)
CL Item
Very sick; hospital admission is necessary; active supportive treament necessary. (20)
C3829429 (UMLS CUI-1)
CL Item
Moribund; fatal processes progressing rapidly. (10)
C3829430 (UMLS CUI-1)
CL Item
Dead. (0)
C3829432 (UMLS CUI-1)
No previous treatment
Item
No previous treatment
boolean
Clinical trial
Item
Clinical trial
boolean
C0008976 (UMLS CUI-1)
Clinical trial start date
Item
Clinical trial start date
date
Clinical trial stop date
Item
Clinical trial stop date
date
CL Item
Hydroxyurea (1)
C0020402 (UMLS CUI-1)
CL Item
Erythropoietin (2)
C0014822 (UMLS CUI-1)
CL Item
Demethylating (3)
C2613367 (UMLS CUI-1)
CL Item
Immunosuppressive agent (4)
C0021081 (UMLS CUI-1)
CL Item
G-CSF (5)
C0079459 (UMLS CUI-1)
CL Item
Prednisolone (6)
CL Item
Other Agent (7)
Medication start date
Item
Medication start date
date
C3173309 (UMLS CUI-1)
Medication ongoing
Item
Medication ongoing
boolean
C2826666 (UMLS CUI-1)
Medication end date
Item
Medication stop date
date
C3483769 (UMLS CUI-1)
Medication comment
Item
Medication comment
text
Never treated with iron chelator
Item
Never treated with iron chelator
boolean
CL Item
Deferoxamine (1)
C0011145 (UMLS CUI-1)
CL Item
Deferiprone (2)
C0043832 (UMLS CUI-1)
CL Item
Deferasirox (3)
C1619629 (UMLS CUI-1)
CL Item
Ferritin (4)
C0015879 (UMLS CUI-1)
Daily dose
Item
Daily dose
text
C2348070 (UMLS CUI-1)
Schedule
Item
Schedule
text
C3476109 (UMLS CUI-1)
Medication start date
Item
Start Date
date
C3173309 (UMLS CUI-1)
Medication stop date
Item
Stop Date/Ongoing
date
C3483769 (UMLS CUI-1)
Number of courses
Item
Number of courses
text
CL Item
IV (1)
C0348016 (UMLS CUI-1)
CL Item
SC (2)
C1522438 (UMLS CUI-1)
No transfusions
Item
No transfusions
boolean
C0005841 (UMLS CUI-1)
C3640974 (UMLS CUI-2)
C3640974 (UMLS CUI-2)
Date of first transfusion
Item
Date of first transfusion
date
C1264703 (UMLS CUI-1)
C0205435 (UMLS CUI-2)
C0205435 (UMLS CUI-2)
Number of RBC units
Item
Number of RBC units transfused
integer
C1976527 (UMLS CUI-1)
Date of last transfusion
Item
Date of last transfusion
date
C1264703 (UMLS CUI-1)
C1517741 (UMLS CUI-2)
C1517741 (UMLS CUI-2)
Number of units transfused
Item
Number of units transfused
integer
Date of blood sample for Hb
Item
Date of blood sample for Hb
date
Pre-transfusion Hb
Item
Pre-transfusion Hb
float
Pre-transfusion Hb unit
Item
Pre-transfusion Hb unit
text
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