ID

38440

Description

With permission from the DZHK administrative office. http://dzhk.de The DZHK (Deutsches Zentrum für Herz-Kreislauf-Forschung e.V.; German Center for Cardiovascular Research) is a joint cooperation of twenty-eight institutions in seven locations throughout Germany to develop a common research strategy. They developed a data catalogue with metadata and data as well as information about available biological materials from all their studies. For more information on the data catalogue and access to actual data and biosamples please visit https://dzhk.de/en/resources/data-manual/ . This version contains the metadata part only. This form contains the mandatory basic data set with 42 items, which are recorded in all of the DZHK's studies, as well as other items related to Anamnesis and Clinical Diagnosis. This form is used to accurately record known cardiovascular risk factors, previous diagnoses and interventions, enabling a detailed assessment of a patient’s cardiovascular risk. The 42 basic items are marked as mandatory. The examination is to be performed according to the DZHK's SOPs, which can be accessed at https://dzhk.de/en/resources/sops/ (or https://dzhk.de/ressourcen/sops/ for the German language versions). The SOPs for this form are "Basic data - Anamnesis/Clinical Diagnoses/physical examination" (version 1.0, valid as of 01/09/2014) and "Anamnesis/Clinical Diagnoses" (version 1.0, valid as of 01/09/2014) for the English language version, and "Basisdatensatz – Anamnese/Klinische Diagnosen/Körperliche Untersuchung" (version 1.1, valid as of June 2019) and "Anamnese/Klinische Diagnosen" (version 1.0, valid as of 01/09/2014) for the German language version.

Link

http://dzhk.de

Keywords

Versions (2)
  1. 10/1/19 10/1/19 -
  2. 10/17/19 10/17/19 - Sarah Riepenhausen
Copyright Holder

DZHK

Uploaded on

October 17, 2019

DOI

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License

Creative Commons BY-NC 3.0
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DZHK Data Catalogue

German English

Anamnesis and Clinical Diagnoses (incl. Basic Data Set)

1 forms  
General information relating to the anamnesis
Description

General information relating to the anamnesis

Alias
UMLS CUI-1
C1508263
UMLS CUI-2
C0262926
Date of examination
Description

Defined as the date on which the examination takes place.

Data type

date

Alias
UMLS CUI [1]
C2826643
Quality level
Description

Examination quality

Data type

integer

Alias
UMLS CUI [1,1]
C0332306
UMLS CUI [1,2]
C0031809
Physical Examination and Sociodemographic Data
Description

Physical Examination and Sociodemographic Data

Alias
UMLS CUI-1
C0031809
UMLS CUI-2
C0011298
Sex
Description

Defined as the data which appears on the person’s identity card

Data type

text

Alias
UMLS CUI [1]
C0079399
Date of Birth
Description

Defined as the data which appears on the person’s identity card. Timestamp with month and year.

Data type

partialDate

Alias
UMLS CUI [1]
C0421451
Height
Description

Height is measured in the standing position, without shoes and without head covering. Preferentially, measured data should be collected; only when this is not possible (e.g. in the case of bed-ridden patients) should one estimate the values or resort to information provided by the proband.

Data type

integer

Measurement units
  • cm
Alias
UMLS CUI [1]
C0005890
cm
Weight
Description

Weight is measured in normal street clothing, without a jacket and without shoes. Preferentially, measured data should be collected; only when this is not possible (e.g. in the case of bed-ridden patients) should one estimate the values or resort to information provided by the proband.

Data type

integer

Measurement units
  • kg
Alias
UMLS CUI [1]
C0005910
kg
Ethnicity: Caucasian
Description

A person’s ethnic origin is defined by their ancestry in relation to a specific ethnic group. This can be determined biologically and/or geographically on the basis of membership of a certain settlement group.

Data type

text

Alias
UMLS CUI [1]
C0043157
Black skin colour
Description

Accordingly, a person’s skin colour can also be broadly defined. The colour spectrum can be differentiated from light to dark skin colour.

Data type

text

Alias
UMLS CUI [1]
C1275449
Family history of myocardial infarction or stroke in parents, siblings or children under the age of 65 for women or under 55 for men
Description

Defined as a medically diagnosed myocardial infarction or stroke in one or both biological parents, biological siblings (including half-siblings) or biological children, provided the female relative was under age 65, or the male relative under age 55 (when the myocardial infarction/stroke occurred).

Data type

text

Alias
UMLS CUI [1,1]
C0241889
UMLS CUI [1,2]
C1279919
UMLS CUI [1,3]
C0027051
UMLS CUI [2,1]
C0241889
UMLS CUI [2,2]
C1279919
UMLS CUI [2,3]
C0038454
Cardiovascular risk factors
Description

Cardiovascular risk factors

Alias
UMLS CUI-1
C0850624
Diabetes mellitus
Description

Defined as diabetes which has been diagnosed and/or treated by a doctor. The American Diabetes Association criteria are: - haemoglobin A1c ≥ 6.5 % or a fasting blood glucose level of ≥ 126 mg/dl or a - 2-hour blood glucose level of ≥ 200 mg/dl in the oral glucose tolerance test.

Data type

text

Alias
UMLS CUI [1]
C0011849
Arterial hypertension
Description

Defined as a current or previous diagnosis of arterial hypertension which was diagnosed and/or is being treated by a doctor. Treatment can consist of e.g. dietary changes, physical activity and/or medication. Systolic blood pressure values ≥ 140 mmHg and/or diastolic blood pressure values ≥ 90mmHg measured by a doctor on at least two separate days after a 5-minute resting phase qualify for a diagnosis of arterial hypertension

Data type

text

Alias
UMLS CUI [1]
C0020538
Dyslipidaemia
Description

Defined as a current or previous diagnosis of dyslipidaemia which was diagnosed and/or is being treated by a doctor. One or more of the following criteria: - total cholesterol ≥ 200 mg/dl, - LDL cholesterol ≥ 130 mg/dl, - HDL cholesterol < 40 mg/dl (men) and < 50 mg/dl (women).

Data type

text

Alias
UMLS CUI [1]
C0242339
Smoker
Description

Defined as current or previous use of cigarettes, cigars, pipes or smokeless tobacco. “Yes” for daily or occasional smoking (≥ 1x/month); “Ex-smoker“ for abstinence of more than 6 months; ex-smoker since …; “No“ for “never smoked“.

Data type

text

Alias
UMLS CUI [1]
C1519386
Ex-smoker since
Description

Timestamp with year

Data type

partialDate

Alias
UMLS CUI [1,1]
C0085134
UMLS CUI [1,2]
C0011008
Pack years
Description

It is the product of the number of years of cigarette smoking multiplied by the average number of packs smoked per day. Example: A patient who has smoked 2 packets of cigarettes per day for 20 years has 40 pack years.

Data type

integer

Alias
UMLS CUI [1]
C1277691
Drinks per week
Description

This is the number of alcoholic drinks consumed per week. One drink is defined as e.g. 0.25 l of beer, 0.1 l of wine or 0.02 l of spirits. Example: A patient who drinks 0.5 l beer on average two times every week has 4 drinks per week.

Data type

integer

Alias
UMLS CUI [1]
C0560579
Medically diagnosed alcoholism
Description

Defined as a current or previous diagnosis of alcoholism which was diagnosed and/or is being treated by a doctor.

Data type

text

Alias
UMLS CUI [1]
C0001973
Renal failure
Description

This includes all patients who exhibit reduced renal function.

Data type

text

Alias
UMLS CUI [1]
C1565489
Degree of renal dysfunction
Description

If known, the degree of renal dysfunction should be quantified by the estimated Glomerular Filtration Rate (eGFR). Different estimation methods exist; if available, the formula that follows the MDRD formula should be used.

Data type

text

Alias
UMLS CUI [1,1]
C1565489
UMLS CUI [1,2]
C0008902
UMLS CUI [2]
C3811844
Current dialysis dependency
Description

Defined as current regular, at least weekly, renal replacement therapy (including haemodialysis and peritoneal dialysis) within the last 30 days.

Data type

text

Alias
UMLS CUI [1,1]
C0524376
UMLS CUI [1,2]
C0521116
Cardiac Diagnoses (Anamnesis and Previous Findings)
Description

Cardiac Diagnoses (Anamnesis and Previous Findings)

Alias
UMLS CUI-1
C0018799
UMLS CUI-2
C0262926
UMLS CUI-3
C0243095
UMLS CUI-4
C0205156
Coronary heart disease
Description

Defined as a current or previous diagnosis by a doctor with one or more of the following criteria: - coronary artery stenosis of ≥ 50 per cent (diagnosed by cardiac catheterization or another direct coronary artery imaging method), - prior coronary artery bypass operation, - prior percutaneous coronary intervention, - arteriosclerosis-induced myocardial infarction.

Data type

text

Alias
UMLS CUI [1]
C0010068
Status post myocardial infarction
Description

Defined as a diagnosis of the disease by a doctor. Explanation: Acute myocardial infarction is defined as demonstrated evidence of myocardial necrosis in a clinical setting which is consistent with myocardial infarction. One or more of the following criteria must apply: Evidence of an increase or decrease of a cardiac biomarker (preferably troponin) with at least one value above the 99 % percentile of the upper reference limit and, additionally, at least one of the following factors: - symptoms of ischaemia, angina pectoris, - ECG changes indicative of new ischaemia, e.g. ST segment elevations or a new left bundle branch block, development of pathological Q waves in the ECG, - imaging studies show a loss of viable myocardial tissue or new regional wall motion abnormalities - angiographic evidence of stenosis/blood vessel blockage.

Data type

text

Alias
UMLS CUI [1,1]
C0231290
UMLS CUI [1,2]
C0027051
Cardiomyopathy
Description

Defined as a diagnosis by a doctor of a primary heart muscle disease. If the question is answered with “yes”, please complete the Cardiomyopathy Diagnostics form.

Data type

text

Alias
UMLS CUI [1]
C0878544
Heart failure
Description

Defined as a current or previous diagnosis and documentation by a doctor of heart failure, based on the following symptoms: shortness of breath with mild exertion, recurrent shortness of breath when sitting, fluid overload or pulmonary rales, distention of the neck veins, pulmonary oedema on physical examination or pulmonary oedema on chest x-rays. Documentation of reduced left ventricular function alone in the absence of clinical signs of heart failure does not meet the criteria for heart failure

Data type

text

Alias
UMLS CUI [1]
C0018801
Status post decompensation
Description

Status post decompensation is defined as any previous admission to a hospital with symptoms of heart failure (see above).

Data type

text

Alias
UMLS CUI [1,1]
C0231187
UMLS CUI [1,2]
C0018801
UMLS CUI [1,3]
C0231290
Initial diagnosis of heart failure
Description

Initial diagnosis of heart failure is defined as the time point when heart failure was diagnosed for the first time by a doctor. Hence it does not refer to the time point of first onset of symptoms, which is often much earlier. Timestamp with year.

Data type

partialDate

Alias
UMLS CUI [1,1]
C0018801
UMLS CUI [1,2]
C2316983
Current NYHA class
Description

NYHA class

Data type

text

Alias
UMLS CUI [1]
C1275491
Atrial fibrillation/flutter
Description

Defined as a current or previous diagnosis by a doctor of atrial fibrillation or atrial flutter. It is defined as an episode of atrial fibrillation or atrial flutter lasting at least 30 seconds or atrial fibrillation with evidence on the surface ECG or during pacemaker interrogation.

Data type

text

Alias
UMLS CUI [1]
C0004238
UMLS CUI [2]
C0004239
Current or previous medical diagnosis of heart valve disease
Description

Defined as heart valve disease (incompetence or stenosis), which has been diagnosed and/or treated by a doctor.

Data type

text

Alias
UMLS CUI [1]
C0018824
Diagnosis by a doctor of endocarditis
Description

If at any time, currently or in their previous medical history, a patient has been diagnosed by a doctor with endocarditis (heart valve inflammation), it will be documented here.

Data type

text

Alias
UMLS CUI [1]
C0014118
Diagnosis by a doctor of a congenital heart defect
Description

If a patient has a known congenital heart defect, it will be coded here. Congenital heart defects include shunt defects (e.g. ASD, VSD), congenital valvular heart diseases (e.g. pulmonary stenosis) and cardiomyopathies diagnosed in the first five years of life.

Data type

text

Alias
UMLS CUI [1]
C0018798
Previous cardiovascular interventions
Description

Previous cardiovascular interventions

Alias
UMLS CUI-1
C0205156
UMLS CUI-2
C0189573
UMLS CUI-3
C0184661
Interventional coronary revascularization
Description

Defined as a percutaneously performed intervention on a coronary artery, e.g. PTCA, stent implantation, rotablation et cetera.

Data type

text

Alias
UMLS CUI [1,1]
C0877341
UMLS CUI [1,2]
C0522523
If yes, date of last intervention
Description

Where applicable, the date of the last intervention should be entered. Timestamp with month and year.

Data type

partialDate

Alias
UMLS CUI [1,1]
C1517741
UMLS CUI [1,2]
C2584899
UMLS CUI [1,3]
C0877341
UMLS CUI [1,4]
C0522523
Peripheral revascularization
Description

Defined as a percutaneously performed intervention on a peripheral artery (not including coronary arteries or bypass grafts) e.g. PTA, stent implantation, rotablation et cetera.

Data type

text

Alias
UMLS CUI [1,1]
C1096418
UMLS CUI [1,2]
C0522523
If yes, date of last intervention
Description

Where applicable, the date of the last intervention should be entered. Timestamp with month and year.

Data type

partialDate

Alias
UMLS CUI [1,1]
C1517741
UMLS CUI [1,2]
C2584899
UMLS CUI [1,3]
C1096418
UMLS CUI [1,4]
C0522523
Coronary bypass operation
Description

Defined as operative myocardial revascularization by means of a bypass graft (e.g. from the internal thoracic artery or using arterial/venous grafts). Where applicable, the date of the most recent operation should be entered.

Data type

text

Alias
UMLS CUI [1]
C0010055
If yes, date of last intervention
Description

Where applicable, the date of the most recent operation should be entered. Timestamp with month and year.

Data type

partialDate

Alias
UMLS CUI [1,1]
C1517741
UMLS CUI [1,2]
C2584899
UMLS CUI [1,3]
C0010055
Other vascular operation
Description

Defined as an operation of any kind on non-coronary blood vessels.

Data type

text

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C0042381
If yes, date of last intervention
Description

Where applicable, the date of the most recent operation should be entered. Timestamp with month and year.

Data type

partialDate

Alias
UMLS CUI [1,1]
C1517741
UMLS CUI [1,2]
C2584899
UMLS CUI [1,3]
C0205394
UMLS CUI [1,4]
C0042381
Heart valve operation
Description

Defined as a minimally invasive percutaneous (catheter-based) or open surgical procedure on a heart valve.

Data type

text

Alias
UMLS CUI [1]
C0190065
If yes, date of last intervention
Description

Where applicable, the date of the most recent operation should be entered. Timestamp with month and year.

Data type

partialDate

Alias
UMLS CUI [1,1]
C1517741
UMLS CUI [1,2]
C2584899
UMLS CUI [1,3]
C0190065
Type of last intervention
Description

The most recent event is to be coded according to type, whereby any transapical aortic valve replacements are to be coded as “catheter-based“.

Data type

text

Alias
UMLS CUI [1,1]
C1517741
UMLS CUI [1,2]
C0190065
UMLS CUI [1,3]
C0332307
If open surgery
Description

In addition, details of the surgical procedure should be given.

Data type

text

Alias
UMLS CUI [1,1]
C1522508
UMLS CUI [1,2]
C1517741
UMLS CUI [1,3]
C0189745
UMLS CUI [1,4]
C0018826
Aortic valve: Last operation
Description

If more than one procedure on one valve was performed, please provide details of the last Op (= current state)

Data type

text

Alias
UMLS CUI [1,1]
C1517741
UMLS CUI [1,2]
C0190065
UMLS CUI [1,3]
C0003501
TAVI details
Description

If more than one procedure on one valve was performed, please provide details of the last Op (= current state)

Data type

text

Alias
UMLS CUI [1,1]
C1522508
UMLS CUI [1,2]
C3509486
Pulmonic valve: Last operation
Description

If more than one procedure on one valve was performed, please provide details of the last Op (= current state)

Data type

text

Alias
UMLS CUI [1,1]
C1517741
UMLS CUI [1,2]
C0190065
UMLS CUI [1,3]
C0034086
Mitral valve: Last operation
Description

If more than one procedure on one valve was performed, please provide details of the last Op (= current state)

Data type

text

Alias
UMLS CUI [1,1]
C1517741
UMLS CUI [1,2]
C0190065
UMLS CUI [1,3]
C0026264
Tricuspid valve: Last operation
Description

If more than one procedure on one valve was performed, please provide details of the last Op (= current state)

Data type

text

Alias
UMLS CUI [1,1]
C1517741
UMLS CUI [1,2]
C0190065
UMLS CUI [1,3]
C0040960
Implantable cardiac pacemaker or defibrillator
Description

Defined as status post implantation of a cardiac pacemaker or intracardiac defibrillator.

Data type

text

Alias
UMLS CUI [1]
C0030163
UMLS CUI [2]
C0162589
If yes, what was implanted?
Description

Type of cardiac implant

Data type

text

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0581396
If yes, date of last event (implantation/exchange)
Description

Where applicable, the date of the most recent operation (implantation/exchange) is to be entered. Timestamp with month and year.

Data type

partialDate

Alias
UMLS CUI [1,1]
C2584899
UMLS CUI [1,2]
C1517741
UMLS CUI [1,3]
C2216241
UMLS CUI [2,1]
C2584899
UMLS CUI [2,2]
C1517741
UMLS CUI [2,3]
C2216242
If pacemaker, please give pacemaker type
Description

In addition, the number of leads currently connected to the pacemaker power supply should be coded. A device with only one lead should be coded as a 1-chamber pacemaker, a device with an atrial and a ventricular lead should be coded as a 2-chamber pacemaker. Devices for cardiac resynchronization therapy, with 2 ventricular leads, should be coded as biventricular (CRT) pacemakers.

Data type

text

Alias
UMLS CUI [1,1]
C0030163
UMLS CUI [1,2]
C0332307
Other devices
Description

Defined as other implantable devices for cardiac/vascular support. This includes devices for cardiac contractility modulation, for neuromodulation (e.g. vagus nerve stimulator, baroreceptor stimulator), intra-aortic balloon pumps and left ventricular cardiac assist devices.

Data type

text

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C0581396
UMLS CUI [2,1]
C0205394
UMLS CUI [2,2]
C0581203
UMLS CUI [2,3]
C0699733
Cardiac contractility modulation (CCM)
Description

Cardiac contractility modulation

Data type

text

Alias
UMLS CUI [1]
C3879822
Intra-aortic balloon pump (IABP)
Description

Intra-aortic balloon pump

Data type

text

Alias
UMLS CUI [1]
C0702122
Other devices
Description

Other implantable cardiac/cardiovascular devices

Data type

text

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C0581396
UMLS CUI [2,1]
C0205394
UMLS CUI [2,2]
C0581203
UMLS CUI [2,3]
C0699733
S.p. myocardial biopsy
Description

Defined as status post bioptic removal of tissue from the heart muscle (e.g. during a right/left catheter examination or operation).

Data type

text

Alias
UMLS CUI [1,1]
C0231290
UMLS CUI [1,2]
C1304881
Date of myocardial biopsy
Description

Where applicable, the date of the most recent myocardial biopsy should be coded. Timestamp with month and year.

Data type

partialDate

Alias
UMLS CUI [1,1]
C1304881
UMLS CUI [1,2]
C2584899
Biopsy sites
Description

Where applicable, the sampling site should be coded.

Data type

text

Alias
UMLS CUI [1,1]
C1304881
UMLS CUI [1,2]
C1515974
Current secondary diagnoses
Description

Current secondary diagnoses

Alias
UMLS CUI-1
C0332138
UMLS CUI-2
C0521116
PAOD
Description

Defined as a current or previous diagnosis by a doctor of peripheral arterial occlusive disease (in the blood vessels of the pelvis and legs, or from the upper extremity of the subclavian artery to the distal extremity). Renal, coronary, cerebral and mesenteric blood vessels and aneurysms are excluded. Possible symptoms are: - intermittent claudication, - amputation due to severe arterial vascular insufficiency, - vascular reconstruction, bypass operation or percutaneous revascularization, - a positive non-invasive test (e.g. ankle-brachial index of ≤ 0.9, pathological TCPO2 measurement, evidence of 50 per cent or greater stenosis of a peripheral artery by Doppler/duplex sonography, CT, MRT, or angiography).

Data type

text

Alias
UMLS CUI [1]
C1306889
Fontaine stage
Description

Classification of the degree of severity is done according to the Fontaine classification: Stage I: Asymptomatic PAOD Stage II: Intermittent claudication with walking distances > 200 metres (Stage IIa) with walking distances < 200 metres (Stage IIb) Stage III: Pain at rest Stage IV: Necrosis, gangrene trophic disorder, dry necroses (Stage IVa) bacterial infection of the necrosis, wet gangrene (Stage IVb)

Data type

text

Alias
UMLS CUI [1,1]
C1306889
UMLS CUI [1,2]
C1306673
Acute ischaemic occlusion
Description

Acute ischaemic occlusion describes a recent (in the last 30 days) occurrence of demonstrated acute ischaemic occlusion of a peripheral arterial vessel.

Data type

text

Alias
UMLS CUI [1,1]
C2062866
UMLS CUI [1,2]
C0475224
Stroke/TIA
Description

Defined as a current or previous diagnosis by a doctor.

Data type

text

Alias
UMLS CUI [1]
C0038454
UMLS CUI [2]
C0007787
Date
Description

Timestamp with month and year.

Data type

partialDate

Alias
UMLS CUI [1,1]
C0011008
UMLS CUI [1,2]
C0038454
UMLS CUI [2,1]
C0011008
UMLS CUI [2,2]
C0007787
Aetiology
Description

Ischaemic stroke: Infarction of tissue of the central nervous system, either symptomatic or silent (asymptomatic). Transient ischaemic attack (TIA): A transient episode of neurological dysfunction caused by focal brain, spinal cord or retinal ischaemia without acute infarction which resolves completely within 24 hours. This definition is not met by chronic (non-vascular) neurological diseases or other acute neurological diseases such as metabolic or ischaemic encephalopathy resulting from general hypoxia (e.g. in the case of respiratory insufficiency, following a cardiac/circulatory arrest). Haemorrhagic stroke: Neurological dysfunction caused by intra-cranial bleeding. Stroke where there is uncertainty as to whether the cause was haemorrhagic or ischaemic.

Data type

text

Alias
UMLS CUI [1,1]
C0038454
UMLS CUI [1,2]
C1314792
UMLS CUI [2,1]
C0007787
UMLS CUI [2,2]
C1314792
Diagnosis
Description

Ischaemic stroke: Infarction of tissue of the central nervous system, either symptomatic or silent (asymptomatic). Transient ischaemic attack (TIA): A transient episode of neurological dysfunction caused by focal brain, spinal cord or retinal ischaemia without acute infarction which resolves completely within 24 hours. This definition is not met by chronic (non-vascular) neurological diseases or other acute neurological diseases such as metabolic or ischaemic encephalopathy resulting from general hypoxia (e.g. in the case of respiratory insufficiency, following a cardiac/circulatory arrest). Haemorrhagic stroke: Neurological dysfunction caused by intra-cranial bleeding. Stroke where there is uncertainty as to whether the cause was haemorrhagic or ischaemic.

Data type

text

Alias
UMLS CUI [1,1]
C0038454
UMLS CUI [1,2]
C0011900
UMLS CUI [2,1]
C0007787
UMLS CUI [2,2]
C0011900
Stroke severity
Description

A stroke is described as “minor“ when the neurological symptoms can be completely reversed within 30 days or the change in the NIH Stroke Scale (see Appendix 7.3 NIH Stroke Scale) amounts to less than 3 points in comparison with the NIH Stroke Scale before the stroke. A stroke is described as “major” when a neurological deficit can still be demonstrated 30 days after the event or the NIH Stroke Scale is at least 3 points higher than prior to the stroke.

Data type

text

Alias
UMLS CUI [1,1]
C0038454
UMLS CUI [1,2]
C0521117
UMLS CUI [1,3]
C1697238
UMLS CUI [2,1]
C0038454
UMLS CUI [2,2]
C0521117
UMLS CUI [2,3]
C0205210
Consequences of the stroke
Description

A stroke is described as “disabling” when more than 2 points are scored on modified Rankin Scale 90 days after the stroke. If the modified Rankin Scale score is 2 points or less 90 days after the stroke, the stroke is described as “non-disabling”. The modified Rankin Scale from 0 to 6 describes states from full health to death. 0 - No symptoms. 1 - No significant disability. Can perform day-to-day activities despite some symptoms. 2 - Slight disability. Is able to care for him or herself without assistance, but is restricted in day-to-day activities. 3 - Moderate disability. Requires assistance in daily life, but is able to walk without assistance. 4 - High level of disability. Requires assistance with personal hygiene; is not able to walk without assistance. 5 - Severe disability. Confined to bed, incontinent, requires constant nursing care. 6 – Death caused by apoplexy.

Data type

text

Alias
UMLS CUI [1,1]
C0038454
UMLS CUI [1,2]
C2984908
UMLS CUI [1,3]
C1547647
Chronic lung disease
Description

Defined as a diagnosis by a doctor of a chronic lung disease (e.g. COPD, chronic bronchitis, pulmonary fibrosis) and/or their pharmacological treatment, for example, with inhalable or oral pharmaceuticals.

Data type

text

Alias
UMLS CUI [1]
C0746102
Primary pulmonary hypertension
Description

Defined as a diagnosis and/or treatment by a doctor of primary pulmonary hypertension.

Data type

text

Alias
UMLS CUI [1]
C0152171
Depression
Description

defined as a current or previous diagnosis by a doctor. The administration of antidepressants alone does not qualify for a diagnosis of depression. If the response to this question is “yes”, please complete the “Depression” form.

Data type

text

Alias
UMLS CUI [1]
C0011581
Cancer more than 5 years ago
Description

Defined as a current or previous diagnosis of a malignant cancer. Basal cell carcinoma does not belong to malignancy.

Data type

text

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C0006826
UMLS CUI [1,3]
C1705847
UMLS CUI [1,4]
C0007117
Cancer within the last 5 years
Description

Defined as malignant cancer diagnosed by a doctor less than 5 years ago. Basal cell carcinoma is not counted as a malignancy.

Data type

text

Alias
UMLS CUI [1,1]
C0332185
UMLS CUI [1,2]
C0006826
UMLS CUI [1,3]
C1705847
UMLS CUI [1,4]
C0007117
Anamnestic questions for women only
Description

Anamnestic questions for women only

Alias
UMLS CUI-1
C0262926
UMLS CUI-2
C0079399
Menopause
Description

Menopause is defined as the time point of the last spontaneous menstrual period in the life of a woman after which no further bleeding from the uterus induced by the ovaries occurs for at least 12 months. The year in which the menopause began is to be coded.

Data type

text

Alias
UMLS CUI [1]
C0025320
Year of Menopause
Description

Timestamp with year

Data type

partialDate

Alias
UMLS CUI [1,1]
C0025320
UMLS CUI [1,2]
C0011008
Day last menstrual period began
Description

The day on which the last menstrual period began is required only for perimenopausal women. Timestamp with year, month and day.

Data type

datetime

Alias
UMLS CUI [1,1]
C0425932
UMLS CUI [1,2]
C0439659
Blood pressure after 5 minutes at rest
Description

Blood pressure after 5 minutes at rest

Alias
UMLS CUI-1
C0005823
UMLS CUI-2
C0443144
Systolic
Description

The systolic blood pressure should be measured using a blood pressure monitor that is serviced and calibrated on a regular basis. Where possible, tested devices (e.g. Omron 705 IT) should be used for epidemiological trials. Blood pressure measurement begins after the patient has been at rest for at least 5 minutes. Three readings are taken at intervals of 2 minutes; the average values of the second and third readings are entered.

Data type

integer

Measurement units
  • mm Hg
Alias
UMLS CUI [1,1]
C0871470
UMLS CUI [1,2]
C0443144
mm Hg
Diastolic
Description

Blood pressure measurement begins after the patient has been at rest for at least 5 minutes. Three readings are taken at intervals of 2 minutes; the average values of the second and third readings are entered.

Data type

integer

Measurement units
  • mm Hg
Alias
UMLS CUI [1,1]
C0428883
UMLS CUI [1,2]
C0443144
mm Hg
Heart rate after sitting down for 5 minutes
Description

Heart rate after sitting down for 5 minutes

Alias
UMLS CUI-1
C1821417
Heart rate
Description

Measurement of the heart rate begins after the patient has been sitting down for at least 5 minutes. This should take place after measuring the blood pressure. This should be done manually by counting the radial pulse for 30 seconds; that value multiplied by two should be entered.

Data type

integer

Measurement units
  • beats/minute
Alias
UMLS CUI [1]
C1821417
beats/minute
Further diagnoses
Description

Further diagnoses

Alias
UMLS CUI-1
C0011900
UMLS CUI-2
C1517331
Dyspnoea on exertion
Description

A patient who complains of shortness of breath with physical exertion within the last 14 days and/or at present. In cases of known heart failure, for patients in NYHA stages II-IV, dyspnoea on exertion should be coded.

Data type

text

Alias
UMLS CUI [1]
C0231807
Dyspnoea at rest
Description

A patient who complains of shortness of breath even when at rest (e.g. when talking) within the last 14 days and/or at present. In cases of known heart failure, for patients in NYHA stage IV, dyspnoea at rest should be coded.

Data type

text

Alias
UMLS CUI [1]
C0743330
Peripheral oedema
Description

A patient who complains of bilateral accumulation of fluid in the extremities within the last 14 days and/or at present, whether clinically observed or perceived by the patient

Data type

text

Alias
UMLS CUI [1]
C0085649
Jugular venous distention
Description

The diagnostic test for jugular venous distention is conducted with the upper body of the patient positioned at a 45° angle. The level at which the jugular vein collapses is then determined. A non-pathological finding is if the vein collapses at latest at the level of the supra-sternal notch, which normally corresponds to an 8 cm water column or 5-6 mmHg before the right atrium. If the jugular vein collapses above the supra-sternal notch, jugular venous distention must be coded.

Data type

text

Alias
UMLS CUI [1]
C0425687
Pulmonary rales
Description

Defined as sounds heard over the lung during auscultation which are created by the movement of fluids and/or secretions during inspiration and expiration. They belong to the category of adventitious breath sounds overlying normal breath sounds and indicate a pathological change in the lung.

Data type

text

Alias
UMLS CUI [1,1]
C0034642
UMLS CUI [1,2]
C0004339
Laboratory diagnostics (blood)
Description

Laboratory diagnostics (blood)

Alias
UMLS CUI-1
C0022885
UMLS CUI-2
C0178913
Date of blood sample was taken
Description

Where applicable, give date for the oldest value. Timestamp with year, month and day.

Data type

date

Alias
UMLS CUI [1,1]
C1277698
UMLS CUI [1,2]
C0011008
Haemoglobin
Description

Haemoglobin

Data type

float

Alias
UMLS CUI [1]
C0518015
Haemoglobin Unit
Description

Haemoglobin Unit

Data type

text

Alias
UMLS CUI [1,1]
C0518015
UMLS CUI [1,2]
C1519795
Creatinine (serum, heparin plasma)
Description

Creatinine (serum, heparin plasma)

Data type

float

Alias
UMLS CUI [1]
C0201976
UMLS CUI [2,1]
C1278055
UMLS CUI [2,2]
C0878667
Creatinine Unit
Description

Creatinine Unit

Data type

text

Alias
UMLS CUI [1,1]
C1519795
UMLS CUI [1,2]
C0201975
Total cholesterol
Description

The original data type for this item is a four-digit integer.

Data type

float

Alias
UMLS CUI [1]
C0543421
Total cholesterol Unit
Description

Total cholesterol Unit

Data type

text

Alias
UMLS CUI [1,1]
C1519795
UMLS CUI [1,2]
C0543421
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Similar models

Anamnesis and Clinical Diagnoses (incl. Basic Data Set)

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
General information relating to the anamnesis
C1508263 (UMLS CUI-1)
C0262926 (UMLS CUI-2)
Date of examination
Item
Date of examination
date
C2826643 (UMLS CUI [1])
Item
Quality level
integer
C0332306 (UMLS CUI [1,1])
C0031809 (UMLS CUI [1,2])
Examination quality
Code List
Quality level
CL Item
Level 1: The examination is performed in accordance with the guidelines of the medical associations. (1)
(Comment:de)
CL Item
Level 2: The examination is performed in accordance with the specifications of the DZHK SOP. Minimum requirements to ensure the quality of the implementation and the examiners are defined in the SOP. (2)
(Comment:de)
CL Item
Level 3: The examination is performed in accordance with the specifications of the DZHK SOP and certification of the examiners: Definition of intr-observer and interobserver-variability (standard of epidemiological studies). (3)
(Comment:de)
Item Group
Physical Examination and Sociodemographic Data
C0031809 (UMLS CUI-1)
C0011298 (UMLS CUI-2)
Item
Sex
text
C0079399 (UMLS CUI [1])
Sex
Code List
Sex
CL Item
male (male)
CL Item
female (female)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Date of Birth
Item
Date of Birth
partialDate
C0421451 (UMLS CUI [1])
Height
Item
Height
integer
C0005890 (UMLS CUI [1])
Weight
Item
Weight
integer
C0005910 (UMLS CUI [1])
Item
Ethnicity: Caucasian
text
C0043157 (UMLS CUI [1])
Caucasian ethnicity
Code List
Ethnicity: Caucasian
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
Black skin colour
text
C1275449 (UMLS CUI [1])
Caucasian ethnicity
Code List
Black skin colour
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
Family history of myocardial infarction or stroke in parents, siblings or children under the age of 65 for women or under 55 for men
text
C0241889 (UMLS CUI [1,1])
C1279919 (UMLS CUI [1,2])
C0027051 (UMLS CUI [1,3])
C0241889 (UMLS CUI [2,1])
C1279919 (UMLS CUI [2,2])
C0038454 (UMLS CUI [2,3])
Caucasian ethnicity
Code List
Family history of myocardial infarction or stroke in parents, siblings or children under the age of 65 for women or under 55 for men
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item Group
Cardiovascular risk factors
C0850624 (UMLS CUI-1)
Item
Diabetes mellitus
text
C0011849 (UMLS CUI [1])
Caucasian ethnicity
Code List
Diabetes mellitus
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
Arterial hypertension
text
C0020538 (UMLS CUI [1])
Caucasian ethnicity
Code List
Arterial hypertension
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
Dyslipidaemia
text
C0242339 (UMLS CUI [1])
Caucasian ethnicity
Code List
Dyslipidaemia
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
Smoker
text
C1519386 (UMLS CUI [1])
Smoker
Code List
Smoker
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
CL Item
 (ex-smoker (stopped ≥ 6 mth. ago))
Ex-smoker since
Item
Ex-smoker since
partialDate
C0085134 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Pack years
Item
Pack years
integer
C1277691 (UMLS CUI [1])
Drinks per week
Item
Drinks per week
integer
C0560579 (UMLS CUI [1])
Item
Medically diagnosed alcoholism
text
C0001973 (UMLS CUI [1])
Caucasian ethnicity
Code List
Medically diagnosed alcoholism
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
Renal failure
text
C1565489 (UMLS CUI [1])
Caucasian ethnicity
Code List
Renal failure
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
Degree of renal dysfunction
text
C1565489 (UMLS CUI [1,1])
C0008902 (UMLS CUI [1,2])
C3811844 (UMLS CUI [2])
Degree of renal dysfunction
Code List
Degree of renal dysfunction
CL Item
1 - GFR 90ml/min or higher (1 - GFR 90ml/min or higher)
CL Item
2 - GFR 60-89ml/min (2 - GFR 60-89ml/min)
CL Item
3 - GFR 30-59ml/min (3 - GFR 30-59ml/min)
CL Item
4 - GFR 15-29ml/min (4 - GFR 15-29ml/min)
CL Item
5 GFR < 15ml/min or current dialysis dependency (5 GFR < 15ml/min or current dialysis dependency)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
Current dialysis dependency
text
C0524376 (UMLS CUI [1,1])
C0521116 (UMLS CUI [1,2])
Caucasian ethnicity
Code List
Current dialysis dependency
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item Group
Cardiac Diagnoses (Anamnesis and Previous Findings)
C0018799 (UMLS CUI-1)
C0262926 (UMLS CUI-2)
C0243095 (UMLS CUI-3)
C0205156 (UMLS CUI-4)
Item
Coronary heart disease
text
C0010068 (UMLS CUI [1])
Caucasian ethnicity
Code List
Coronary heart disease
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
Status post myocardial infarction
text
C0231290 (UMLS CUI [1,1])
C0027051 (UMLS CUI [1,2])
Caucasian ethnicity
Code List
Status post myocardial infarction
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
Cardiomyopathy
text
C0878544 (UMLS CUI [1])
Caucasian ethnicity
Code List
Cardiomyopathy
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
Heart failure
text
C0018801 (UMLS CUI [1])
Caucasian ethnicity
Code List
Heart failure
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
Status post decompensation
text
C0231187 (UMLS CUI [1,1])
C0018801 (UMLS CUI [1,2])
C0231290 (UMLS CUI [1,3])
Caucasian ethnicity
Code List
Status post decompensation
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Initial diagnosis of heart failure
Item
Initial diagnosis of heart failure
partialDate
C0018801 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
Current NYHA class
text
C1275491 (UMLS CUI [1])
NYHA class
Code List
Current NYHA class
CL Item
No symptoms (I)
CL Item
Symptoms with heavy physical exertion (II)
CL Item
Symptoms with light physical exertion (III)
CL Item
Symptoms while at rest (IV)
CL Item
unknown (unkown)
CL Item
not assessed (not assessed)
Item
Atrial fibrillation/flutter
text
C0004238 (UMLS CUI [1])
C0004239 (UMLS CUI [2])
Caucasian ethnicity
Code List
Atrial fibrillation/flutter
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
Current or previous medical diagnosis of heart valve disease
text
C0018824 (UMLS CUI [1])
Caucasian ethnicity
Code List
Current or previous medical diagnosis of heart valve disease
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
Diagnosis by a doctor of endocarditis
text
C0014118 (UMLS CUI [1])
Caucasian ethnicity
Code List
Diagnosis by a doctor of endocarditis
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
Diagnosis by a doctor of a congenital heart defect
text
C0018798 (UMLS CUI [1])
Caucasian ethnicity
Code List
Diagnosis by a doctor of a congenital heart defect
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item Group
Previous cardiovascular interventions
C0205156 (UMLS CUI-1)
C0189573 (UMLS CUI-2)
C0184661 (UMLS CUI-3)
Item
Interventional coronary revascularization
text
C0877341 (UMLS CUI [1,1])
C0522523 (UMLS CUI [1,2])
Caucasian ethnicity
Code List
Interventional coronary revascularization
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Date of last coronary revascularization
Item
If yes, date of last intervention
partialDate
C1517741 (UMLS CUI [1,1])
C2584899 (UMLS CUI [1,2])
C0877341 (UMLS CUI [1,3])
C0522523 (UMLS CUI [1,4])
Item
Peripheral revascularization
text
C1096418 (UMLS CUI [1,1])
C0522523 (UMLS CUI [1,2])
Caucasian ethnicity
Code List
Peripheral revascularization
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Date of last peripheral revascularization
Item
If yes, date of last intervention
partialDate
C1517741 (UMLS CUI [1,1])
C2584899 (UMLS CUI [1,2])
C1096418 (UMLS CUI [1,3])
C0522523 (UMLS CUI [1,4])
Item
Coronary bypass operation
text
C0010055 (UMLS CUI [1])
Caucasian ethnicity
Code List
Coronary bypass operation
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Date of last coronary bypass operation
Item
If yes, date of last intervention
partialDate
C1517741 (UMLS CUI [1,1])
C2584899 (UMLS CUI [1,2])
C0010055 (UMLS CUI [1,3])
Item
Other vascular operation
text
C0205394 (UMLS CUI [1,1])
C0042381 (UMLS CUI [1,2])
Caucasian ethnicity
Code List
Other vascular operation
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Date of last other vascular surgery
Item
If yes, date of last intervention
partialDate
C1517741 (UMLS CUI [1,1])
C2584899 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
C0042381 (UMLS CUI [1,4])
Item
Heart valve operation
text
C0190065 (UMLS CUI [1])
Caucasian ethnicity
Code List
Heart valve operation
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Date of last heart valve operation
Item
If yes, date of last intervention
partialDate
C1517741 (UMLS CUI [1,1])
C2584899 (UMLS CUI [1,2])
C0190065 (UMLS CUI [1,3])
Item
Type of last intervention
text
C1517741 (UMLS CUI [1,1])
C0190065 (UMLS CUI [1,2])
C0332307 (UMLS CUI [1,3])
Type of last heart valve operation
Code List
Type of last intervention
CL Item
open surgery (open surgery)
CL Item
catheterbased (catheterbased)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
If open surgery
text
C1522508 (UMLS CUI [1,1])
C1517741 (UMLS CUI [1,2])
C0189745 (UMLS CUI [1,3])
C0018826 (UMLS CUI [1,4])
Type of last heart valve operation
Code List
If open surgery
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
CL Item
replacement (replacement)
CL Item
reconstruction (reconstruction)
Item
Aortic valve: Last operation
text
C1517741 (UMLS CUI [1,1])
C0190065 (UMLS CUI [1,2])
C0003501 (UMLS CUI [1,3])
Aortic valve: Last operation
Code List
Aortic valve: Last operation
CL Item
native (native)
CL Item
reconstruction (reconstruction)
CL Item
mechanical prosthesis (mechanical prosthesis)
CL Item
bioprosthesis (open) (bioprosthesis (open))
CL Item
TAVI (TAVI)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
TAVI details
text
C1522508 (UMLS CUI [1,1])
C3509486 (UMLS CUI [1,2])
Aortic valve: Last operation
Code List
TAVI details
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
CL Item
transfemoral (transfemoral)
CL Item
transapical (transapical)
CL Item
transaortal (transaortal)
Item
Pulmonic valve: Last operation
text
C1517741 (UMLS CUI [1,1])
C0190065 (UMLS CUI [1,2])
C0034086 (UMLS CUI [1,3])
Aortic valve: Last operation
Code List
Pulmonic valve: Last operation
CL Item
native (native)
CL Item
reconstruction (reconstruction)
CL Item
mechanical prosthesis (mechanical prosthesis)
CL Item
bioprosthesis (open) (bioprosthesis (open))
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
Mitral valve: Last operation
text
C1517741 (UMLS CUI [1,1])
C0190065 (UMLS CUI [1,2])
C0026264 (UMLS CUI [1,3])
Aortic valve: Last operation
Code List
Mitral valve: Last operation
CL Item
native (native)
CL Item
reconstruction (reconstruction)
CL Item
mechanical prosthesis (mechanical prosthesis)
CL Item
bioprosthesis (open) (bioprosthesis (open))
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
CL Item
clipping (clipping)
Item
Tricuspid valve: Last operation
text
C1517741 (UMLS CUI [1,1])
C0190065 (UMLS CUI [1,2])
C0040960 (UMLS CUI [1,3])
Aortic valve: Last operation
Code List
Tricuspid valve: Last operation
CL Item
native (native)
CL Item
reconstruction (reconstruction)
CL Item
mechanical prosthesis (mechanical prosthesis)
CL Item
bioprosthesis (open) (bioprosthesis (open))
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
Implantable cardiac pacemaker or defibrillator
text
C0030163 (UMLS CUI [1])
C0162589 (UMLS CUI [2])
Caucasian ethnicity
Code List
Implantable cardiac pacemaker or defibrillator
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
If yes, what was implanted?
text
C0332307 (UMLS CUI [1,1])
C0581396 (UMLS CUI [1,2])
Type of Pacemaker/Defibrillator
Code List
If yes, what was implanted?
CL Item
pacemaker (pacemaker)
CL Item
defibrillator (defibrillator)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Date of last cardiac device implantation/exchange
Item
If yes, date of last event (implantation/exchange)
partialDate
C2584899 (UMLS CUI [1,1])
C1517741 (UMLS CUI [1,2])
C2216241 (UMLS CUI [1,3])
C2584899 (UMLS CUI [2,1])
C1517741 (UMLS CUI [2,2])
C2216242 (UMLS CUI [2,3])
Item
If pacemaker, please give pacemaker type
text
C0030163 (UMLS CUI [1,1])
C0332307 (UMLS CUI [1,2])
Pacemaker type
Code List
If pacemaker, please give pacemaker type
CL Item
1-chamber-pacemaker (e.g. VVI) (1-chamber-pacemaker (e.g. VVI))
CL Item
2-chamber-pacemaker (e.g. DDD) (2-chamber-pacemaker (e.g. DDD))
CL Item
biventricular pacemaker (CRT) (biventricular pacemaker (CRT))
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
Other devices
text
C0205394 (UMLS CUI [1,1])
C0581396 (UMLS CUI [1,2])
C0205394 (UMLS CUI [2,1])
C0581203 (UMLS CUI [2,2])
C0699733 (UMLS CUI [2,3])
Caucasian ethnicity
Code List
Other devices
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
Cardiac contractility modulation (CCM)
text
C3879822 (UMLS CUI [1])
Caucasian ethnicity
Code List
Cardiac contractility modulation (CCM)
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
Intra-aortic balloon pump (IABP)
text
C0702122 (UMLS CUI [1])
Caucasian ethnicity
Code List
Intra-aortic balloon pump (IABP)
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Other implantable cardiac/cardiovascular devices
Item
Other devices
text
C0205394 (UMLS CUI [1,1])
C0581396 (UMLS CUI [1,2])
C0205394 (UMLS CUI [2,1])
C0581203 (UMLS CUI [2,2])
C0699733 (UMLS CUI [2,3])
Item
S.p. myocardial biopsy
text
C0231290 (UMLS CUI [1,1])
C1304881 (UMLS CUI [1,2])
Caucasian ethnicity
Code List
S.p. myocardial biopsy
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Date of myocardial biopsy
Item
Date of myocardial biopsy
partialDate
C1304881 (UMLS CUI [1,1])
C2584899 (UMLS CUI [1,2])
Item
Biopsy sites
text
C1304881 (UMLS CUI [1,1])
C1515974 (UMLS CUI [1,2])
Myocardial biopsy sites
Code List
Biopsy sites
CL Item
left ventricle (left ventricle)
CL Item
right ventricle (right ventricle)
CL Item
left and right ventricle (left and right ventricle)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item Group
Current secondary diagnoses
C0332138 (UMLS CUI-1)
C0521116 (UMLS CUI-2)
Item
PAOD
text
C1306889 (UMLS CUI [1])
Caucasian ethnicity
Code List
PAOD
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
Fontaine stage
text
C1306889 (UMLS CUI [1,1])
C1306673 (UMLS CUI [1,2])
Fontaine stage
Code List
Fontaine stage
CL Item
Asymptomatic PAOD (I)
CL Item
Intermittent claudication with walking distances > 200 metres  (IIa)
CL Item
Intermittent claudication with walking distances < 200 metres  (IIb)
CL Item
Pain at rest (III)
CL Item
Necrosis, gangrene (IV)
CL Item
unknown (unkown)
CL Item
not assessed (not assessed)
Item
Acute ischaemic occlusion
text
C2062866 (UMLS CUI [1,1])
C0475224 (UMLS CUI [1,2])
Caucasian ethnicity
Code List
Acute ischaemic occlusion
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
Stroke/TIA
text
C0038454 (UMLS CUI [1])
C0007787 (UMLS CUI [2])
Caucasian ethnicity
Code List
Stroke/TIA
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Date of stroke/TIA
Item
Date
partialDate
C0011008 (UMLS CUI [1,1])
C0038454 (UMLS CUI [1,2])
C0011008 (UMLS CUI [2,1])
C0007787 (UMLS CUI [2,2])
Item
Aetiology
text
C0038454 (UMLS CUI [1,1])
C1314792 (UMLS CUI [1,2])
C0007787 (UMLS CUI [2,1])
C1314792 (UMLS CUI [2,2])
Stroke aetiology
Code List
Aetiology
CL Item
ischaemic (ischaemic)
CL Item
haemorrhagic (haemorrhagic)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
Diagnosis
text
C0038454 (UMLS CUI [1,1])
C0011900 (UMLS CUI [1,2])
C0007787 (UMLS CUI [2,1])
C0011900 (UMLS CUI [2,2])
Stroke diagnosis
Code List
Diagnosis
CL Item
TIA (TIA)
CL Item
stroke (stroke)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
Stroke severity
text
C0038454 (UMLS CUI [1,1])
C0521117 (UMLS CUI [1,2])
C1697238 (UMLS CUI [1,3])
C0038454 (UMLS CUI [2,1])
C0521117 (UMLS CUI [2,2])
C0205210 (UMLS CUI [2,3])
Stroke severity (clinical or NIH scale)
Code List
Stroke severity
CL Item
minor (minor)
CL Item
major (major)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
Consequences of the stroke
text
C0038454 (UMLS CUI [1,1])
C2984908 (UMLS CUI [1,2])
C1547647 (UMLS CUI [1,3])
Consequences of stroke (by modified Rankin Scale)
Code List
Consequences of the stroke
CL Item
disabling (disabling)
CL Item
non-disabling (non-disabling)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
Chronic lung disease
text
C0746102 (UMLS CUI [1])
Caucasian ethnicity
Code List
Chronic lung disease
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
Primary pulmonary hypertension
text
C0152171 (UMLS CUI [1])
Caucasian ethnicity
Code List
Primary pulmonary hypertension
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
Depression
text
C0011581 (UMLS CUI [1])
Caucasian ethnicity
Code List
Depression
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
Cancer more than 5 years ago
text
C0205156 (UMLS CUI [1,1])
C0006826 (UMLS CUI [1,2])
C1705847 (UMLS CUI [1,3])
C0007117 (UMLS CUI [1,4])
Caucasian ethnicity
Code List
Cancer more than 5 years ago
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
Cancer within the last 5 years
text
C0332185 (UMLS CUI [1,1])
C0006826 (UMLS CUI [1,2])
C1705847 (UMLS CUI [1,3])
C0007117 (UMLS CUI [1,4])
Caucasian ethnicity
Code List
Cancer within the last 5 years
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item Group
Anamnestic questions for women only
C0262926 (UMLS CUI-1)
C0079399 (UMLS CUI-2)
Item
Menopause
text
C0025320 (UMLS CUI [1])
Caucasian ethnicity
Code List
Menopause
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Year of Menopause
Item
Year of Menopause
partialDate
C0025320 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Day last menstrual period began
Item
Day last menstrual period began
datetime
C0425932 (UMLS CUI [1,1])
C0439659 (UMLS CUI [1,2])
Item Group
Blood pressure after 5 minutes at rest
C0005823 (UMLS CUI-1)
C0443144 (UMLS CUI-2)
Resting systolic BP
Item
Systolic
integer
C0871470 (UMLS CUI [1,1])
C0443144 (UMLS CUI [1,2])
Resting diastolic BP
Item
Diastolic
integer
C0428883 (UMLS CUI [1,1])
C0443144 (UMLS CUI [1,2])
Item Group
Heart rate after sitting down for 5 minutes
C1821417 (UMLS CUI-1)
Resting heart rate
Item
Heart rate
integer
C1821417 (UMLS CUI [1])
Item Group
Further diagnoses
C0011900 (UMLS CUI-1)
C1517331 (UMLS CUI-2)
Item
Dyspnoea on exertion
text
C0231807 (UMLS CUI [1])
Caucasian ethnicity
Code List
Dyspnoea on exertion
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
Dyspnoea at rest
text
C0743330 (UMLS CUI [1])
Caucasian ethnicity
Code List
Dyspnoea at rest
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
Peripheral oedema
text
C0085649 (UMLS CUI [1])
Caucasian ethnicity
Code List
Peripheral oedema
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
Jugular venous distention
text
C0425687 (UMLS CUI [1])
Caucasian ethnicity
Code List
Jugular venous distention
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item
Pulmonary rales
text
C0034642 (UMLS CUI [1,1])
C0004339 (UMLS CUI [1,2])
Caucasian ethnicity
Code List
Pulmonary rales
CL Item
yes (yes)
CL Item
no (no)
CL Item
unkown (unkown)
CL Item
not assessed (not assessed)
Item Group
Laboratory diagnostics (blood)
C0022885 (UMLS CUI-1)
C0178913 (UMLS CUI-2)
Date blood sample taken
Item
Date of blood sample was taken
date
C1277698 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Haemoglobin
Item
Haemoglobin
float
C0518015 (UMLS CUI [1])
Item
Haemoglobin Unit
text
C0518015 (UMLS CUI [1,1])
C1519795 (UMLS CUI [1,2])
Haemoglobin Unit
Code List
Haemoglobin Unit
CL Item
mmol/l (mmol/l)
CL Item
g/dl (g/dl)
Creatinine (serum, heparin plasma)
Item
Creatinine (serum, heparin plasma)
float
C0201976 (UMLS CUI [1])
C1278055 (UMLS CUI [2,1])
C0878667 (UMLS CUI [2,2])
Item
Creatinine Unit
text
C1519795 (UMLS CUI [1,1])
C0201975 (UMLS CUI [1,2])
Creatinine Unit
Code List
Creatinine Unit
CL Item
mg/dl (mg/dl)
CL Item
µmol/l equals nmol/ml (µmol/l)
Total cholesterol
Item
Total cholesterol
float
C0543421 (UMLS CUI [1])
Item
Total cholesterol Unit
text
C1519795 (UMLS CUI [1,1])
C0543421 (UMLS CUI [1,2])
Total cholesterol unit
Code List
Total cholesterol Unit
CL Item
mg/dl (mg/dl)
CL Item
mmol/dl (mmol/dl)
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