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30534

Description

Items planned for use in a (future) Registry of Glaucoma in Adults by Department of Ophthalmology, University Medical Center Mainz, for Medical History Taking. Status of the form: preliminary, needs revision Aims: Good phenotyping with exactly defined criteria for clinical trials. Collection of pre- and postoperative morphological and functional parameters, intraocular pressure as well as conservative and surgical treatments. Health Services Research Description of the situation of the medical care for outpatients. It is assumed that 95% of glaucoma patients are treated conservatively. It is unclear how often the patients are controlled ophthalmologically in everyday medical care, including visual field controls, tolerability of medication and its side effects. * Description of findings that lead to first treatment of glaucoma * Description of frequency of ophthalmological controls in glaucoma patients (quarterly, biannual, etc.) including further diagnostics (IOP: measurement and diurnal profile, visual field determination, morphometric diagnostics of the optic disc) * Description of the first treatment and its influence on IOP and visual field defects under everyday conditions * Evaluation of criteria that lead to a switch or addition of treatment * Evaluation of criteria that lead to discontinuation of a treatment

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Versions (1)
  1. 6/12/18 6/12/18 - Sarah Riepenhausen
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Department of Ophthalmology, University Medical Center Mainz

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June 12, 2018

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Creative Commons BY-NC 3.0
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    Registry of Glaucoma in Adults (planned), Department of Ophthalmology, University Medical Center Mainz

    German

    Medical History / Anamnese (preliminary)

    1 forms  
    Adminstrative Angaben
    Description

    Adminstrative Angaben

    Alias
    UMLS CUI-1
    C1320722
    Datum der Anamnese
    Description

    Date of Medical history taking

    Data type

    date

    Alias
    UMLS CUI [1,1]
    C0025084
    UMLS CUI [1,2]
    C0011008
    Glaukomscreening (IGeL)
    Description

    Glaukomscreening (IGeL)

    Alias
    UMLS CUI-1
    C0702254
    Datum des Glaukomscreenings
    Description

    Date of Glaucoma Screening

    Data type

    date

    Alias
    UMLS CUI [1,1]
    C0702254
    UMLS CUI [1,2]
    C0011008
    Papillenbefund
    Description

    Optic Disc Findings

    Data type

    text

    Alias
    UMLS CUI [1]
    C0423451
    IOD
    Description

    Intraocular Pressure Findings

    Data type

    text

    Alias
    UMLS CUI [1]
    C0578862
    Familienanamnese
    Description

    Familienanamnese

    Alias
    UMLS CUI-1
    C0241889
    Glaukom in der 1. Generation bekannt?
    Description

    Glaucoma in first generation

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C0017601
    UMLS CUI [1,2]
    C1517194
    Glaukom in der 2. Generation bekannt?
    Description

    Glaucoma in second generation

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C0017601
    UMLS CUI [1,2]
    C1519210
    Anamnese bezüglich Glaukom
    Description

    Anamnese bezüglich Glaukom

    Alias
    UMLS CUI-1
    C0017601
    UMLS CUI-2
    C0262926
    Datum der Erstdiagnose Glaukom
    Description

    Date of diagnosis of Glaucoma

    Data type

    date

    Alias
    UMLS CUI [1,1]
    C4019001
    UMLS CUI [1,2]
    C0017601
    Höchster bisher gemessener Augeninnendruck am rechten Auge
    Description

    Highest measured intraocular pressure right eye

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C1563105
    UMLS CUI [1,2]
    C1522410
    Höchster bisher gemessener Augeninnendruck am linken Auge
    Description

    Highest measured intraocular pressure left eye

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C1562592
    UMLS CUI [1,2]
    C1522410
    Art der Augeninnendruckmessung
    Description

    Methode der Augeninnendruckmessung, die für die Bestimmung der höchsten Werte (siehe vorherige Fragen) verwendet wurde

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C0430888
    UMLS CUI [1,2]
    C0871511
    Lokaltherapie
    Description

    Lokaltherapie

    Alias
    UMLS CUI-1
    C1517925
    Lokaltherapie?
    Description

    Falls ja, füllen Sie bitte die übrigen Fragen zur Lokaltherapie so oft wie nötig aus.

    Data type

    boolean

    Alias
    UMLS CUI [1]
    C1517925
    Auge
    Description

    Side of Eye

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C1517925
    UMLS CUI [1,2]
    C0015392
    UMLS CUI [1,3]
    C0441987
    Wirkstoff
    Description

    Active Ingredient

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C1517925
    UMLS CUI [1,2]
    C1372955
    Seit wann?
    Description

    Since when?

    Data type

    date

    Alias
    UMLS CUI [1,1]
    C0808070
    UMLS CUI [1,2]
    C1517925
    Wie oft?
    Description

    Frequency

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C3476109
    UMLS CUI [1,2]
    C1517925
    Verträglichkeit der Lokaltherapie
    Description

    Tolerability of local therapy

    Data type

    text

    bisherige Glaukomoperationen
    Description

    bisherige Glaukomoperationen

    Alias
    UMLS CUI-1
    C0017601
    UMLS CUI-2
    C0744961
    Bisherige Glaukomoperationen?
    Description

    Previous glaucoma surgeries

    Data type

    boolean

    Alias
    UMLS CUI [1,1]
    C0744961
    UMLS CUI [1,2]
    C0017601
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    Similar models

    Medical History / Anamnese (preliminary)

    1 forms
    Name
    Type
    Description | Question | Decode (Coded Value)
    Data type
    Alias
    Item Group
    Adminstrative Angaben
    C1320722 (UMLS CUI-1)
    Date of Medical history taking
    Item
    Datum der Anamnese
    date
    C0025084 (UMLS CUI [1,1])
    C0011008 (UMLS CUI [1,2])
    Item Group
    Glaukomscreening (IGeL)
    C0702254 (UMLS CUI-1)
    Date of Glaucoma Screening
    Item
    Datum des Glaukomscreenings
    date
    C0702254 (UMLS CUI [1,1])
    C0011008 (UMLS CUI [1,2])
    Optic Disc Findings
    Item
    Papillenbefund
    text
    C0423451 (UMLS CUI [1])
    Intraocular Pressure Findings
    Item
    IOD
    text
    C0578862 (UMLS CUI [1])
    Item Group
    Familienanamnese
    C0241889 (UMLS CUI-1)
    Glaucoma in first generation
    Item
    Glaukom in der 1. Generation bekannt?
    text
    C0017601 (UMLS CUI [1,1])
    C1517194 (UMLS CUI [1,2])
    Glaucoma in second generation
    Item
    Glaukom in der 2. Generation bekannt?
    text
    C0017601 (UMLS CUI [1,1])
    C1519210 (UMLS CUI [1,2])
    Item Group
    Anamnese bezüglich Glaukom
    C0017601 (UMLS CUI-1)
    C0262926 (UMLS CUI-2)
    Date of diagnosis of Glaucoma
    Item
    Datum der Erstdiagnose Glaukom
    date
    C4019001 (UMLS CUI [1,1])
    C0017601 (UMLS CUI [1,2])
    Highest measured intraocular pressure right eye
    Item
    Höchster bisher gemessener Augeninnendruck am rechten Auge
    text
    C1563105 (UMLS CUI [1,1])
    C1522410 (UMLS CUI [1,2])
    Highest measured intraocular pressure left eye
    Item
    Höchster bisher gemessener Augeninnendruck am linken Auge
    text
    C1562592 (UMLS CUI [1,1])
    C1522410 (UMLS CUI [1,2])
    Method of intraocular pressure measurement
    Item
    Art der Augeninnendruckmessung
    text
    C0430888 (UMLS CUI [1,1])
    C0871511 (UMLS CUI [1,2])
    Item Group
    Lokaltherapie
    C1517925 (UMLS CUI-1)
    Local Therapy
    Item
    Lokaltherapie?
    boolean
    C1517925 (UMLS CUI [1])
    Item
    Auge
    text
    C1517925 (UMLS CUI [1,1])
    C0015392 (UMLS CUI [1,2])
    C0441987 (UMLS CUI [1,3])
    Local therapy: Side of Eye
    Code List
    Auge
    CL Item
    Rechtes Auge (Rechtes Auge)
    CL Item
    Linkes Auge (Linkes Auge)
    CL Item
    Beide Augen (Beide Augen)
    Item
    Wirkstoff
    text
    C1517925 (UMLS CUI [1,1])
    C1372955 (UMLS CUI [1,2])
    Local Therapy: Active Ingredient
    Code List
    Wirkstoff
    CL Item
    Carboanhydrase-Hemmer (Carboanhydrase-Hemmer)
    (Comment:de)
    CL Item
    Prostglandin-Analoga (Prostglandin-Analoga)
    (Comment:de)
    CL Item
    Alpha-Agonisten (Alpha-Agonisten)
    (Comment:de)
    CL Item
    Beta-Blocker (Beta-Blocker)
    (Comment:de)
    CL Item
    Kombinationspräparat (Kombinationspräparat)
    (Comment:de)
    Since when?
    Item
    Seit wann?
    date
    C0808070 (UMLS CUI [1,1])
    C1517925 (UMLS CUI [1,2])
    Frequency
    Item
    Wie oft?
    text
    C3476109 (UMLS CUI [1,1])
    C1517925 (UMLS CUI [1,2])
    Tolerability of local therapy
    Item
    Verträglichkeit der Lokaltherapie
    text
    Item Group
    bisherige Glaukomoperationen
    C0017601 (UMLS CUI-1)
    C0744961 (UMLS CUI-2)
    Previous glaucoma surgeries
    Item
    Bisherige Glaukomoperationen?
    boolean
    C0744961 (UMLS CUI [1,1])
    C0017601 (UMLS CUI [1,2])
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