ID

30534

Description

Items planned for use in a (future) Registry of Glaucoma in Adults by Department of Ophthalmology, University Medical Center Mainz, for Medical History Taking. Status of the form: preliminary, needs revision Aims: Good phenotyping with exactly defined criteria for clinical trials. Collection of pre- and postoperative morphological and functional parameters, intraocular pressure as well as conservative and surgical treatments. Health Services Research Description of the situation of the medical care for outpatients. It is assumed that 95% of glaucoma patients are treated conservatively. It is unclear how often the patients are controlled ophthalmologically in everyday medical care, including visual field controls, tolerability of medication and its side effects. * Description of findings that lead to first treatment of glaucoma * Description of frequency of ophthalmological controls in glaucoma patients (quarterly, biannual, etc.) including further diagnostics (IOP: measurement and diurnal profile, visual field determination, morphometric diagnostics of the optic disc) * Description of the first treatment and its influence on IOP and visual field defects under everyday conditions * Evaluation of criteria that lead to a switch or addition of treatment * Evaluation of criteria that lead to discontinuation of a treatment

Keywords

Versions (1)
  1. 6/12/18 6/12/18 - Sarah Riepenhausen
Copyright Holder

Department of Ophthalmology, University Medical Center Mainz

Uploaded on

June 12, 2018

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License

Creative Commons BY-NC 3.0
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Registry of Glaucoma in Adults (planned), Department of Ophthalmology, University Medical Center Mainz

German

Medical History / Anamnese (preliminary)

1 forms  
Adminstrative Angaben
Description

Adminstrative Angaben

Alias
UMLS CUI-1
C1320722
Datum der Anamnese
Description

Date of Medical history taking

Data type

date

Alias
UMLS CUI [1,1]
C0025084
UMLS CUI [1,2]
C0011008
Glaukomscreening (IGeL)
Description

Glaukomscreening (IGeL)

Alias
UMLS CUI-1
C0702254
Datum des Glaukomscreenings
Description

Date of Glaucoma Screening

Data type

date

Alias
UMLS CUI [1,1]
C0702254
UMLS CUI [1,2]
C0011008
Papillenbefund
Description

Optic Disc Findings

Data type

text

Alias
UMLS CUI [1]
C0423451
IOD
Description

Intraocular Pressure Findings

Data type

text

Alias
UMLS CUI [1]
C0578862
Familienanamnese
Description

Familienanamnese

Alias
UMLS CUI-1
C0241889
Glaukom in der 1. Generation bekannt?
Description

Glaucoma in first generation

Data type

text

Alias
UMLS CUI [1,1]
C0017601
UMLS CUI [1,2]
C1517194
Glaukom in der 2. Generation bekannt?
Description

Glaucoma in second generation

Data type

text

Alias
UMLS CUI [1,1]
C0017601
UMLS CUI [1,2]
C1519210
Anamnese bezüglich Glaukom
Description

Anamnese bezüglich Glaukom

Alias
UMLS CUI-1
C0017601
UMLS CUI-2
C0262926
Datum der Erstdiagnose Glaukom
Description

Date of diagnosis of Glaucoma

Data type

date

Alias
UMLS CUI [1,1]
C4019001
UMLS CUI [1,2]
C0017601
Höchster bisher gemessener Augeninnendruck am rechten Auge
Description

Highest measured intraocular pressure right eye

Data type

text

Alias
UMLS CUI [1,1]
C1563105
UMLS CUI [1,2]
C1522410
Höchster bisher gemessener Augeninnendruck am linken Auge
Description

Highest measured intraocular pressure left eye

Data type

text

Alias
UMLS CUI [1,1]
C1562592
UMLS CUI [1,2]
C1522410
Art der Augeninnendruckmessung
Description

Methode der Augeninnendruckmessung, die für die Bestimmung der höchsten Werte (siehe vorherige Fragen) verwendet wurde

Data type

text

Alias
UMLS CUI [1,1]
C0430888
UMLS CUI [1,2]
C0871511
Lokaltherapie
Description

Lokaltherapie

Alias
UMLS CUI-1
C1517925
Lokaltherapie?
Description

Falls ja, füllen Sie bitte die übrigen Fragen zur Lokaltherapie so oft wie nötig aus.

Data type

boolean

Alias
UMLS CUI [1]
C1517925
Auge
Description

Side of Eye

Data type

text

Alias
UMLS CUI [1,1]
C1517925
UMLS CUI [1,2]
C0015392
UMLS CUI [1,3]
C0441987
Wirkstoff
Description

Active Ingredient

Data type

text

Alias
UMLS CUI [1,1]
C1517925
UMLS CUI [1,2]
C1372955
Seit wann?
Description

Since when?

Data type

date

Alias
UMLS CUI [1,1]
C0808070
UMLS CUI [1,2]
C1517925
Wie oft?
Description

Frequency

Data type

text

Alias
UMLS CUI [1,1]
C3476109
UMLS CUI [1,2]
C1517925
Verträglichkeit der Lokaltherapie
Description

Tolerability of local therapy

Data type

text

bisherige Glaukomoperationen
Description

bisherige Glaukomoperationen

Alias
UMLS CUI-1
C0017601
UMLS CUI-2
C0744961
Bisherige Glaukomoperationen?
Description

Previous glaucoma surgeries

Data type

boolean

Alias
UMLS CUI [1,1]
C0744961
UMLS CUI [1,2]
C0017601
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Similar models

Medical History / Anamnese (preliminary)

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Adminstrative Angaben
C1320722 (UMLS CUI-1)
Date of Medical history taking
Item
Datum der Anamnese
date
C0025084 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item Group
Glaukomscreening (IGeL)
C0702254 (UMLS CUI-1)
Date of Glaucoma Screening
Item
Datum des Glaukomscreenings
date
C0702254 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Optic Disc Findings
Item
Papillenbefund
text
C0423451 (UMLS CUI [1])
Intraocular Pressure Findings
Item
IOD
text
C0578862 (UMLS CUI [1])
Item Group
Familienanamnese
C0241889 (UMLS CUI-1)
Glaucoma in first generation
Item
Glaukom in der 1. Generation bekannt?
text
C0017601 (UMLS CUI [1,1])
C1517194 (UMLS CUI [1,2])
Glaucoma in second generation
Item
Glaukom in der 2. Generation bekannt?
text
C0017601 (UMLS CUI [1,1])
C1519210 (UMLS CUI [1,2])
Item Group
Anamnese bezüglich Glaukom
C0017601 (UMLS CUI-1)
C0262926 (UMLS CUI-2)
Date of diagnosis of Glaucoma
Item
Datum der Erstdiagnose Glaukom
date
C4019001 (UMLS CUI [1,1])
C0017601 (UMLS CUI [1,2])
Highest measured intraocular pressure right eye
Item
Höchster bisher gemessener Augeninnendruck am rechten Auge
text
C1563105 (UMLS CUI [1,1])
C1522410 (UMLS CUI [1,2])
Highest measured intraocular pressure left eye
Item
Höchster bisher gemessener Augeninnendruck am linken Auge
text
C1562592 (UMLS CUI [1,1])
C1522410 (UMLS CUI [1,2])
Method of intraocular pressure measurement
Item
Art der Augeninnendruckmessung
text
C0430888 (UMLS CUI [1,1])
C0871511 (UMLS CUI [1,2])
Item Group
Lokaltherapie
C1517925 (UMLS CUI-1)
Local Therapy
Item
Lokaltherapie?
boolean
C1517925 (UMLS CUI [1])
Item
Auge
text
C1517925 (UMLS CUI [1,1])
C0015392 (UMLS CUI [1,2])
C0441987 (UMLS CUI [1,3])
Local therapy: Side of Eye
Code List
Auge
CL Item
Rechtes Auge (Rechtes Auge)
CL Item
Linkes Auge (Linkes Auge)
CL Item
Beide Augen (Beide Augen)
Item
Wirkstoff
text
C1517925 (UMLS CUI [1,1])
C1372955 (UMLS CUI [1,2])
Local Therapy: Active Ingredient
Code List
Wirkstoff
CL Item
Carboanhydrase-Hemmer (Carboanhydrase-Hemmer)
(Comment:de)
CL Item
Prostglandin-Analoga (Prostglandin-Analoga)
(Comment:de)
CL Item
Alpha-Agonisten (Alpha-Agonisten)
(Comment:de)
CL Item
Beta-Blocker (Beta-Blocker)
(Comment:de)
CL Item
Kombinationspräparat (Kombinationspräparat)
(Comment:de)
Since when?
Item
Seit wann?
date
C0808070 (UMLS CUI [1,1])
C1517925 (UMLS CUI [1,2])
Frequency
Item
Wie oft?
text
C3476109 (UMLS CUI [1,1])
C1517925 (UMLS CUI [1,2])
Tolerability of local therapy
Item
Verträglichkeit der Lokaltherapie
text
Item Group
bisherige Glaukomoperationen
C0017601 (UMLS CUI-1)
C0744961 (UMLS CUI-2)
Previous glaucoma surgeries
Item
Bisherige Glaukomoperationen?
boolean
C0744961 (UMLS CUI [1,1])
C0017601 (UMLS CUI [1,2])
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