ID

15499

Descrição

The CoDe (”Coding of Death in HIV”) Project A significant proportion of deaths in HIV-1 infected persons are now caused by non-AIDS events. It is important to closely monitor the causes of death in this population in order to target interventions appropriately, should specific causes of death emerge or become predominant. It is possible that deaths from diseases related to an accelerated aging process will become more frequent. The same applies for causes of death related to co-infections (e.g. hepatitis) or other co-morbidities (e.g. sequelae of intravenous drug use). Furthermore, it is important to be able to evaluate the risk factors for such emerging diseases, including their possible relationship with immunodeficiency. Until now there has not been a uniform classification system for causes of death in HIV patients. Studies have either created their own coding systems based o­n frequent and/or ‘important’ causes (e.g. rare but important adverse events such as lactic acidosis and pancreatitis), or have used ICD9 or ICD10 codes from death certificates. In many cases, the ICD system cannot be directly adapted to HIV infected persons. Many AIDS defining illnesses are poorly identified in the ICD system, and some diseases (e.g. CNS diseases) have a different aetiology in HIV patients and are therefore not covered by the ICD system, or at great risk of mis-classification. In July 2004, a meeting was held in Copenhagen with the participation from executive committees of a large number of pivotal observational studies and clinical trials that routinely collect data o­n causes of death. At this meeting, it became clear that there was a need for a harmonization and standardization of the approach taken when collecting data o­n cause of death and when reviewing these deaths. As a result, the CoDe Project was initiated. The CoDe Project is a uniform coding system that can be applied to studies of individuals with HIV infection, including a detailed data collection o­n the causes of death and contributing factors, as well as a centralised review process of the data collected. http://www.cphiv.dk/Tools-Standards/CoDe/About Contains: Study and Patient ID, Date of Death, Data Source, Demographics

Link

http://www.cphiv.dk/Tools-Standards/CoDe/About

Palavras-chave

  1. 19/05/2016 19/05/2016 -
  2. 23/05/2016 23/05/2016 -
  3. 23/05/2016 23/05/2016 -
  4. 01/06/2016 01/06/2016 -
Transferido a

1 de junho de 2016

DOI

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Licença

Creative Commons BY-NC 3.0

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Administrative Data The CoDe (”Coding of Death in HIV”) Project

Administrative Data

  1. StudyEvent: ODM
    1. Administrative Data
Administrative Data
Descrição

Administrative Data

Specify Name of study/ trial
Descrição

Study Name

Tipo de dados

text

Alias
UMLS CUI [1]
C2348560
Patient ID code:
Descrição

Complete the specific Patient ID code

Tipo de dados

text

Alias
UMLS CUI [1]
C1269815
Date of death
Descrição

The patient’s date of death should be recorded

Tipo de dados

date

Alias
UMLS CUI [1]
C1148348
Section 1 Background demographics
Descrição

Section 1 Background demographics

A. Year of birth:
Descrição

Year of birth

Tipo de dados

integer

Alias
UMLS CUI [1]
C2826771
B. Gender:
Descrição

Gender

Tipo de dados

text

Alias
UMLS CUI [1]
C0079399
C. Height (cm):
Descrição

Height

Tipo de dados

integer

Unidades de medida
  • cm
Alias
UMLS CUI [1]
C0005890
cm
D. Weight:
Descrição

Body weight (most recent before death)

Tipo de dados

float

Unidades de medida
  • kg
Alias
UMLS CUI [1]
C0005910
kg
E. Date Weight Measured
Descrição

(dd-mmm-yy; weight measured)

Tipo de dados

date

Alias
UMLS CUI [1,1]
C0005910
UMLS CUI [1,2]
C0011008
Section 2 Data Sources
Descrição

Section 2 Data Sources

A. Hospital files
Descrição

Hospital files

Tipo de dados

text

Alias
UMLS CUI [1]
C0019980
B. Outpatient clinic chart
Descrição

Outpatient clinic chart

Tipo de dados

text

Alias
UMLS CUI [1,1]
C0029916
UMLS CUI [1,2]
C0025102
C. Autopsy report
Descrição

Autopsy report

Tipo de dados

text

Alias
UMLS CUI [1]
C1548372
D. Registry
Descrição

If other, specify:

Tipo de dados

boolean

Alias
UMLS CUI [1]
C0034975
E. Obituary
Descrição

If other, specify:

Tipo de dados

boolean

Alias
UMLS CUI [1]
C3828738
F. Patients relatives or partner
Descrição

Patients relatives or partner

Tipo de dados

boolean

Alias
UMLS CUI [1]
C0015576
G. Patients medical provider
Descrição

Patients medical provider

Tipo de dados

boolean

Alias
UMLS CUI [1,1]
C1138603
UMLS CUI [1,2]
C0205476
H. Nursing home
Descrição

Nursing home

Tipo de dados

text

Alias
UMLS CUI [1]
C0028688
I. Other Source
Descrição

Other Source

Tipo de dados

text

Alias
UMLS CUI [1]
C0011001
Completed by
Descrição

Completed by

Completed by: Name (in print)
Descrição

Name

Tipo de dados

text

Alias
UMLS CUI [1]
C0027365
Position:
Descrição

Position

Tipo de dados

text

Alias
UMLS CUI [1]
C0018722
Other, describe
Descrição

If "Position" was "Other"

Tipo de dados

text

Alias
UMLS CUI [1,1]
C0018722
UMLS CUI [1,2]
C0205394
Directly involved in the medical care of the patient around the time of death?
Descrição

Involved in medical care

Tipo de dados

boolean

Alias
UMLS CUI [1,1]
C0496675
UMLS CUI [1,2]
C1314939
Date:
Descrição

Date (dd/mmm/yy) :

Tipo de dados

date

Alias
UMLS CUI [1]
C0011008
Signature:
Descrição

Signature

Tipo de dados

text

Alias
UMLS CUI [1]
C1519316

Similar models

Administrative Data

  1. StudyEvent: ODM
    1. Administrative Data
Name
Tipo
Description | Question | Decode (Coded Value)
Tipo de dados
Alias
Item Group
Administrative Data
Study Name
Item
Specify Name of study/ trial
text
C2348560 (UMLS CUI [1])
Patient ID
Item
Patient ID code:
text
C1269815 (UMLS CUI [1])
Date of death
Item
Date of death
date
C1148348 (UMLS CUI [1])
Item Group
Section 1 Background demographics
Year of birth
Item
A. Year of birth:
integer
C2826771 (UMLS CUI [1])
Item
B. Gender:
text
C0079399 (UMLS CUI [1])
Code List
B. Gender:
CL Item
male (male)
CL Item
female (female)
Height
Item
C. Height (cm):
integer
C0005890 (UMLS CUI [1])
Weight
Item
D. Weight:
float
C0005910 (UMLS CUI [1])
Date
Item
E. Date Weight Measured
date
C0005910 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item Group
Section 2 Data Sources
Item
A. Hospital files
text
C0019980 (UMLS CUI [1])
Code List
A. Hospital files
CL Item
Yes, complete  (Yes, complete )
CL Item
Yes, incomplete (Yes, incomplete)
CL Item
No (No)
Item
B. Outpatient clinic chart
text
C0029916 (UMLS CUI [1,1])
C0025102 (UMLS CUI [1,2])
Code List
B. Outpatient clinic chart
CL Item
Yes, complete  (Yes, complete )
CL Item
Yes, incomplete (Yes, incomplete)
CL Item
No (No)
Item
C. Autopsy report
text
C1548372 (UMLS CUI [1])
Code List
C. Autopsy report
CL Item
Yes, complete  (Yes, complete )
CL Item
Yes, incomplete (Yes, incomplete)
CL Item
No (No)
Registry
Item
D. Registry
boolean
C0034975 (UMLS CUI [1])
Obituary
Item
E. Obituary
boolean
C3828738 (UMLS CUI [1])
Patients relatives or partner
Item
F. Patients relatives or partner
boolean
C0015576 (UMLS CUI [1])
Patients medical provider
Item
G. Patients medical provider
boolean
C1138603 (UMLS CUI [1,1])
C0205476 (UMLS CUI [1,2])
Nursing home
Item
H. Nursing home
text
C0028688 (UMLS CUI [1])
Other Source
Item
I. Other Source
text
C0011001 (UMLS CUI [1])
Item Group
Completed by
Name
Item
Completed by: Name (in print)
text
C0027365 (UMLS CUI [1])
Item
Position:
text
C0018722 (UMLS CUI [1])
Code List
Position:
CL Item
Physician  (Physician )
CL Item
Nurse  (Nurse )
CL Item
Other, describe (Other, describe)
Other Position
Item
Other, describe
text
C0018722 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Involved in medical care
Item
Directly involved in the medical care of the patient around the time of death?
boolean
C0496675 (UMLS CUI [1,1])
C1314939 (UMLS CUI [1,2])
Date
Item
Date:
date
C0011008 (UMLS CUI [1])
Signature
Item
Signature:
text
C1519316 (UMLS CUI [1])

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