ID

15499

Descrizione

The CoDe (”Coding of Death in HIV”) Project A significant proportion of deaths in HIV-1 infected persons are now caused by non-AIDS events. It is important to closely monitor the causes of death in this population in order to target interventions appropriately, should specific causes of death emerge or become predominant. It is possible that deaths from diseases related to an accelerated aging process will become more frequent. The same applies for causes of death related to co-infections (e.g. hepatitis) or other co-morbidities (e.g. sequelae of intravenous drug use). Furthermore, it is important to be able to evaluate the risk factors for such emerging diseases, including their possible relationship with immunodeficiency. Until now there has not been a uniform classification system for causes of death in HIV patients. Studies have either created their own coding systems based o­n frequent and/or ‘important’ causes (e.g. rare but important adverse events such as lactic acidosis and pancreatitis), or have used ICD9 or ICD10 codes from death certificates. In many cases, the ICD system cannot be directly adapted to HIV infected persons. Many AIDS defining illnesses are poorly identified in the ICD system, and some diseases (e.g. CNS diseases) have a different aetiology in HIV patients and are therefore not covered by the ICD system, or at great risk of mis-classification. In July 2004, a meeting was held in Copenhagen with the participation from executive committees of a large number of pivotal observational studies and clinical trials that routinely collect data o­n causes of death. At this meeting, it became clear that there was a need for a harmonization and standardization of the approach taken when collecting data o­n cause of death and when reviewing these deaths. As a result, the CoDe Project was initiated. The CoDe Project is a uniform coding system that can be applied to studies of individuals with HIV infection, including a detailed data collection o­n the causes of death and contributing factors, as well as a centralised review process of the data collected. http://www.cphiv.dk/Tools-Standards/CoDe/About Contains: Study and Patient ID, Date of Death, Data Source, Demographics

collegamento

http://www.cphiv.dk/Tools-Standards/CoDe/About

Keywords

  1. 19/05/16 19/05/16 -
  2. 23/05/16 23/05/16 -
  3. 23/05/16 23/05/16 -
  4. 01/06/16 01/06/16 -
Caricato su

1 giugno 2016

DOI

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Licenza

Creative Commons BY-NC 3.0

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Administrative Data The CoDe (”Coding of Death in HIV”) Project

Administrative Data

  1. StudyEvent: ODM
    1. Administrative Data
Administrative Data
Descrizione

Administrative Data

Specify Name of study/ trial
Descrizione

Study Name

Tipo di dati

text

Alias
UMLS CUI [1]
C2348560
Patient ID code:
Descrizione

Complete the specific Patient ID code

Tipo di dati

text

Alias
UMLS CUI [1]
C1269815
Date of death
Descrizione

The patient’s date of death should be recorded

Tipo di dati

date

Alias
UMLS CUI [1]
C1148348
Section 1 Background demographics
Descrizione

Section 1 Background demographics

A. Year of birth:
Descrizione

Year of birth

Tipo di dati

integer

Alias
UMLS CUI [1]
C2826771
B. Gender:
Descrizione

Gender

Tipo di dati

text

Alias
UMLS CUI [1]
C0079399
C. Height (cm):
Descrizione

Height

Tipo di dati

integer

Unità di misura
  • cm
Alias
UMLS CUI [1]
C0005890
cm
D. Weight:
Descrizione

Body weight (most recent before death)

Tipo di dati

float

Unità di misura
  • kg
Alias
UMLS CUI [1]
C0005910
kg
E. Date Weight Measured
Descrizione

(dd-mmm-yy; weight measured)

Tipo di dati

date

Alias
UMLS CUI [1,1]
C0005910
UMLS CUI [1,2]
C0011008
Section 2 Data Sources
Descrizione

Section 2 Data Sources

A. Hospital files
Descrizione

Hospital files

Tipo di dati

text

Alias
UMLS CUI [1]
C0019980
B. Outpatient clinic chart
Descrizione

Outpatient clinic chart

Tipo di dati

text

Alias
UMLS CUI [1,1]
C0029916
UMLS CUI [1,2]
C0025102
C. Autopsy report
Descrizione

Autopsy report

Tipo di dati

text

Alias
UMLS CUI [1]
C1548372
D. Registry
Descrizione

If other, specify:

Tipo di dati

boolean

Alias
UMLS CUI [1]
C0034975
E. Obituary
Descrizione

If other, specify:

Tipo di dati

boolean

Alias
UMLS CUI [1]
C3828738
F. Patients relatives or partner
Descrizione

Patients relatives or partner

Tipo di dati

boolean

Alias
UMLS CUI [1]
C0015576
G. Patients medical provider
Descrizione

Patients medical provider

Tipo di dati

boolean

Alias
UMLS CUI [1,1]
C1138603
UMLS CUI [1,2]
C0205476
H. Nursing home
Descrizione

Nursing home

Tipo di dati

text

Alias
UMLS CUI [1]
C0028688
I. Other Source
Descrizione

Other Source

Tipo di dati

text

Alias
UMLS CUI [1]
C0011001
Completed by
Descrizione

Completed by

Completed by: Name (in print)
Descrizione

Name

Tipo di dati

text

Alias
UMLS CUI [1]
C0027365
Position:
Descrizione

Position

Tipo di dati

text

Alias
UMLS CUI [1]
C0018722
Other, describe
Descrizione

If "Position" was "Other"

Tipo di dati

text

Alias
UMLS CUI [1,1]
C0018722
UMLS CUI [1,2]
C0205394
Directly involved in the medical care of the patient around the time of death?
Descrizione

Involved in medical care

Tipo di dati

boolean

Alias
UMLS CUI [1,1]
C0496675
UMLS CUI [1,2]
C1314939
Date:
Descrizione

Date (dd/mmm/yy) :

Tipo di dati

date

Alias
UMLS CUI [1]
C0011008
Signature:
Descrizione

Signature

Tipo di dati

text

Alias
UMLS CUI [1]
C1519316

Similar models

Administrative Data

  1. StudyEvent: ODM
    1. Administrative Data
Name
genere
Description | Question | Decode (Coded Value)
Tipo di dati
Alias
Item Group
Administrative Data
Study Name
Item
Specify Name of study/ trial
text
C2348560 (UMLS CUI [1])
Patient ID
Item
Patient ID code:
text
C1269815 (UMLS CUI [1])
Date of death
Item
Date of death
date
C1148348 (UMLS CUI [1])
Item Group
Section 1 Background demographics
Year of birth
Item
A. Year of birth:
integer
C2826771 (UMLS CUI [1])
Item
B. Gender:
text
C0079399 (UMLS CUI [1])
Code List
B. Gender:
CL Item
male (male)
CL Item
female (female)
Height
Item
C. Height (cm):
integer
C0005890 (UMLS CUI [1])
Weight
Item
D. Weight:
float
C0005910 (UMLS CUI [1])
Date
Item
E. Date Weight Measured
date
C0005910 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item Group
Section 2 Data Sources
Item
A. Hospital files
text
C0019980 (UMLS CUI [1])
Code List
A. Hospital files
CL Item
Yes, complete  (Yes, complete )
CL Item
Yes, incomplete (Yes, incomplete)
CL Item
No (No)
Item
B. Outpatient clinic chart
text
C0029916 (UMLS CUI [1,1])
C0025102 (UMLS CUI [1,2])
Code List
B. Outpatient clinic chart
CL Item
Yes, complete  (Yes, complete )
CL Item
Yes, incomplete (Yes, incomplete)
CL Item
No (No)
Item
C. Autopsy report
text
C1548372 (UMLS CUI [1])
Code List
C. Autopsy report
CL Item
Yes, complete  (Yes, complete )
CL Item
Yes, incomplete (Yes, incomplete)
CL Item
No (No)
Registry
Item
D. Registry
boolean
C0034975 (UMLS CUI [1])
Obituary
Item
E. Obituary
boolean
C3828738 (UMLS CUI [1])
Patients relatives or partner
Item
F. Patients relatives or partner
boolean
C0015576 (UMLS CUI [1])
Patients medical provider
Item
G. Patients medical provider
boolean
C1138603 (UMLS CUI [1,1])
C0205476 (UMLS CUI [1,2])
Nursing home
Item
H. Nursing home
text
C0028688 (UMLS CUI [1])
Other Source
Item
I. Other Source
text
C0011001 (UMLS CUI [1])
Item Group
Completed by
Name
Item
Completed by: Name (in print)
text
C0027365 (UMLS CUI [1])
Item
Position:
text
C0018722 (UMLS CUI [1])
Code List
Position:
CL Item
Physician  (Physician )
CL Item
Nurse  (Nurse )
CL Item
Other, describe (Other, describe)
Other Position
Item
Other, describe
text
C0018722 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Involved in medical care
Item
Directly involved in the medical care of the patient around the time of death?
boolean
C0496675 (UMLS CUI [1,1])
C1314939 (UMLS CUI [1,2])
Date
Item
Date:
date
C0011008 (UMLS CUI [1])
Signature
Item
Signature:
text
C1519316 (UMLS CUI [1])

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