ID
15215
Beskrivning
The CoDe (”Coding of Death in HIV”) Project A significant proportion of deaths in HIV-1 infected persons are now caused by non-AIDS events. It is important to closely monitor the causes of death in this population in order to target interventions appropriately, should specific causes of death emerge or become predominant. It is possible that deaths from diseases related to an accelerated aging process will become more frequent. The same applies for causes of death related to co-infections (e.g. hepatitis) or other co-morbidities (e.g. sequelae of intravenous drug use). Furthermore, it is important to be able to evaluate the risk factors for such emerging diseases, including their possible relationship with immunodeficiency. Until now there has not been a uniform classification system for causes of death in HIV patients. Studies have either created their own coding systems based on frequent and/or ‘important’ causes (e.g. rare but important adverse events such as lactic acidosis and pancreatitis), or have used ICD9 or ICD10 codes from death certificates. In many cases, the ICD system cannot be directly adapted to HIV infected persons. Many AIDS defining illnesses are poorly identified in the ICD system, and some diseases (e.g. CNS diseases) have a different aetiology in HIV patients and are therefore not covered by the ICD system, or at great risk of mis-classification. In July 2004, a meeting was held in Copenhagen with the participation from executive committees of a large number of pivotal observational studies and clinical trials that routinely collect data on causes of death. At this meeting, it became clear that there was a need for a harmonization and standardization of the approach taken when collecting data on cause of death and when reviewing these deaths. As a result, the CoDe Project was initiated. The CoDe Project is a uniform coding system that can be applied to studies of individuals with HIV infection, including a detailed data collection on the causes of death and contributing factors, as well as a centralised review process of the data collected. http://www.cphiv.dk/Tools-Standards/CoDe/About Contains: Study and Patient ID, Date of Death, Data Source, Demographics
Länk
http://www.cphiv.dk/Tools-Standards/CoDe/About
Nyckelord
Versioner (4)
- 2016-05-19 2016-05-19 -
- 2016-05-23 2016-05-23 -
- 2016-05-23 2016-05-23 -
- 2016-06-01 2016-06-01 -
Uppladdad den
23 maj 2016
DOI
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Licens
Creative Commons BY-NC 3.0
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Administrative Data The CoDe (”Coding of Death in HIV”) Project
Administrative Data
- StudyEvent: ODM
Beskrivning
Background demographics
Beskrivning
Year of birth
Datatyp
integer
Alias
- UMLS CUI [1]
- C2826771
Beskrivning
Gender
Datatyp
text
Alias
- UMLS CUI [1]
- C0079399
Beskrivning
Height
Datatyp
integer
Måttenheter
- cm
Alias
- UMLS CUI [1]
- C0005890
Beskrivning
Body weight (most recent before death)
Datatyp
float
Måttenheter
- kg
Alias
- UMLS CUI [1]
- C0005910
Beskrivning
(dd-mmm-yy; weight measured)
Datatyp
date
Alias
- UMLS CUI [1,1]
- C0011008
- UMLS CUI [1,2]
- C0005910
Beskrivning
Data Sources
Beskrivning
Hospital files
Datatyp
text
Alias
- UMLS CUI [1,1]
- C0019994
- UMLS CUI [1,2]
- C0016094
Beskrivning
Outpatient clinic chart
Datatyp
text
Alias
- UMLS CUI [1,1]
- C0029916
- UMLS CUI [1,2]
- C0025102
Beskrivning
Autopsy report
Datatyp
text
Alias
- UMLS CUI [1]
- C1548372
Beskrivning
If other, specify:
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0034975
- UMLS CUI [1,2]
- C0205394
Beskrivning
If other, specify:
Datatyp
boolean
Alias
- UMLS CUI [1]
- C3828738
Beskrivning
Patients relatives or partner
Datatyp
boolean
Alias
- UMLS CUI [1]
- C0015576
Beskrivning
Patients medical provider
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C1138603
- UMLS CUI [1,2]
- C0205476
Beskrivning
Nursing home
Datatyp
text
Alias
- UMLS CUI [1]
- C0028688
Beskrivning
Other Source
Datatyp
text
Alias
- UMLS CUI [1]
- C0011001
Beskrivning
Treating Physician
Beskrivning
Name
Datatyp
text
Alias
- UMLS CUI [1]
- C0027365
Beskrivning
Position
Datatyp
text
Alias
- UMLS CUI [1]
- C0733755
Beskrivning
If "Position" was "Other"
Datatyp
text
Alias
- UMLS CUI [1,1]
- C0733755
- UMLS CUI [1,2]
- C0205394
Beskrivning
Involved in medical care
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C1314939
- UMLS CUI [1,2]
- C0496675
Beskrivning
Date (dd/mmm/yy) :
Datatyp
date
Alias
- UMLS CUI [1]
- C0011008
Beskrivning
Signature
Datatyp
text
Alias
- UMLS CUI [1]
- C1519316
Similar models
Administrative Data
- StudyEvent: ODM
C0005910 (UMLS CUI [1,2])
C0025102 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
C0205476 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
C0496675 (UMLS CUI [1,2])
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