ID

15215

Description

The CoDe (”Coding of Death in HIV”) Project A significant proportion of deaths in HIV-1 infected persons are now caused by non-AIDS events. It is important to closely monitor the causes of death in this population in order to target interventions appropriately, should specific causes of death emerge or become predominant. It is possible that deaths from diseases related to an accelerated aging process will become more frequent. The same applies for causes of death related to co-infections (e.g. hepatitis) or other co-morbidities (e.g. sequelae of intravenous drug use). Furthermore, it is important to be able to evaluate the risk factors for such emerging diseases, including their possible relationship with immunodeficiency. Until now there has not been a uniform classification system for causes of death in HIV patients. Studies have either created their own coding systems based o­n frequent and/or ‘important’ causes (e.g. rare but important adverse events such as lactic acidosis and pancreatitis), or have used ICD9 or ICD10 codes from death certificates. In many cases, the ICD system cannot be directly adapted to HIV infected persons. Many AIDS defining illnesses are poorly identified in the ICD system, and some diseases (e.g. CNS diseases) have a different aetiology in HIV patients and are therefore not covered by the ICD system, or at great risk of mis-classification. In July 2004, a meeting was held in Copenhagen with the participation from executive committees of a large number of pivotal observational studies and clinical trials that routinely collect data o­n causes of death. At this meeting, it became clear that there was a need for a harmonization and standardization of the approach taken when collecting data o­n cause of death and when reviewing these deaths. As a result, the CoDe Project was initiated. The CoDe Project is a uniform coding system that can be applied to studies of individuals with HIV infection, including a detailed data collection o­n the causes of death and contributing factors, as well as a centralised review process of the data collected. http://www.cphiv.dk/Tools-Standards/CoDe/About Contains: Study and Patient ID, Date of Death, Data Source, Demographics

Link

http://www.cphiv.dk/Tools-Standards/CoDe/About

Keywords

  1. 5/19/16 5/19/16 -
  2. 5/23/16 5/23/16 -
  3. 5/23/16 5/23/16 -
  4. 6/1/16 6/1/16 -
Uploaded on

May 23, 2016

DOI

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License

Creative Commons BY-NC 3.0

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Administrative Data The CoDe (”Coding of Death in HIV”) Project

Administrative Data

  1. StudyEvent: ODM
    1. Administrative Data
Administrative Data
Description

Administrative Data

Study
Description

Complete the specific study name (cohort or trial)

Data type

text

Alias
UMLS CUI [1]
C0008976
Patient ID code:
Description

Complete the specific Patient ID code

Data type

text

Alias
UMLS CUI [1]
C1269815
Date of death
Description

The patient’s date of death should be recorded

Data type

date

Alias
UMLS CUI [1]
C1148348
Background demographics
Description

Background demographics

Year of birth:
Description

Year of birth

Data type

integer

Alias
UMLS CUI [1]
C2826771
Gender:
Description

Gender

Data type

text

Alias
UMLS CUI [1]
C0079399
Height (cm):
Description

Height

Data type

integer

Measurement units
  • cm
Alias
UMLS CUI [1]
C0005890
cm
Weight:
Description

Body weight (most recent before death)

Data type

float

Measurement units
  • kg
Alias
UMLS CUI [1]
C0005910
kg
Date Weight Measured
Description

(dd-mmm-yy; weight measured)

Data type

date

Alias
UMLS CUI [1,1]
C0011008
UMLS CUI [1,2]
C0005910
Data Sources
Description

Data Sources

Hospital files
Description

Hospital files

Data type

text

Alias
UMLS CUI [1,1]
C0019994
UMLS CUI [1,2]
C0016094
Outpatient clinic chart
Description

Outpatient clinic chart

Data type

text

Alias
UMLS CUI [1,1]
C0029916
UMLS CUI [1,2]
C0025102
Autopsy report
Description

Autopsy report

Data type

text

Alias
UMLS CUI [1]
C1548372
Registry
Description

If other, specify:

Data type

boolean

Alias
UMLS CUI [1,1]
C0034975
UMLS CUI [1,2]
C0205394
Obituary
Description

If other, specify:

Data type

boolean

Alias
UMLS CUI [1]
C3828738
Patients relatives or partner
Description

Patients relatives or partner

Data type

boolean

Alias
UMLS CUI [1]
C0015576
Patients medical provider
Description

Patients medical provider

Data type

boolean

Alias
UMLS CUI [1,1]
C1138603
UMLS CUI [1,2]
C0205476
Nursing home
Description

Nursing home

Data type

text

Alias
UMLS CUI [1]
C0028688
Other Source
Description

Other Source

Data type

text

Alias
UMLS CUI [1]
C0011001
Treating Physician
Description

Treating Physician

Completed by: Name (in print)
Description

Name

Data type

text

Alias
UMLS CUI [1]
C0027365
Position:
Description

Position

Data type

text

Alias
UMLS CUI [1]
C0733755
Other, describe
Description

If "Position" was "Other"

Data type

text

Alias
UMLS CUI [1,1]
C0733755
UMLS CUI [1,2]
C0205394
Directly involved in the medical care of the patient around the time of death?
Description

Involved in medical care

Data type

boolean

Alias
UMLS CUI [1,1]
C1314939
UMLS CUI [1,2]
C0496675
Date:
Description

Date (dd/mmm/yy) :

Data type

date

Alias
UMLS CUI [1]
C0011008
Signature:
Description

Signature

Data type

text

Alias
UMLS CUI [1]
C1519316

Similar models

Administrative Data

  1. StudyEvent: ODM
    1. Administrative Data
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Administrative Data
Study
Item
Study
text
C0008976 (UMLS CUI [1])
Patient ID
Item
Patient ID code:
text
C1269815 (UMLS CUI [1])
Date of death
Item
Date of death
date
C1148348 (UMLS CUI [1])
Item Group
Background demographics
Year of birth
Item
Year of birth:
integer
C2826771 (UMLS CUI [1])
Item
Gender:
text
C0079399 (UMLS CUI [1])
Code List
Gender:
CL Item
male (male)
CL Item
female (female)
Height
Item
Height (cm):
integer
C0005890 (UMLS CUI [1])
Weight
Item
Weight:
float
C0005910 (UMLS CUI [1])
Date
Item
Date Weight Measured
date
C0011008 (UMLS CUI [1,1])
C0005910 (UMLS CUI [1,2])
Item Group
Data Sources
Item
Hospital files
text
C0019994 (UMLS CUI [1,1])
C0016094 (UMLS CUI [1,2])
Code List
Hospital files
CL Item
Yes, complete  (Yes, complete )
CL Item
Yes, incomplete (Yes, incomplete)
CL Item
No (No)
Item
Outpatient clinic chart
text
C0029916 (UMLS CUI [1,1])
C0025102 (UMLS CUI [1,2])
Code List
Outpatient clinic chart
CL Item
Yes, complete  (Yes, complete )
CL Item
Yes, incomplete (Yes, incomplete)
CL Item
No (No)
Item
Autopsy report
text
C1548372 (UMLS CUI [1])
Code List
Autopsy report
CL Item
Yes, complete  (Yes, complete )
CL Item
Yes, incomplete (Yes, incomplete)
CL Item
No (No)
Registry
Item
Registry
boolean
C0034975 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Obituary
Item
Obituary
boolean
C3828738 (UMLS CUI [1])
Patients relatives or partner
Item
Patients relatives or partner
boolean
C0015576 (UMLS CUI [1])
Patients medical provider
Item
Patients medical provider
boolean
C1138603 (UMLS CUI [1,1])
C0205476 (UMLS CUI [1,2])
Nursing home
Item
Nursing home
text
C0028688 (UMLS CUI [1])
Other Source
Item
Other Source
text
C0011001 (UMLS CUI [1])
Item Group
Treating Physician
Name
Item
Completed by: Name (in print)
text
C0027365 (UMLS CUI [1])
Item
Position:
text
C0733755 (UMLS CUI [1])
Code List
Position:
CL Item
Physician  (Physician )
CL Item
Nurse  (Nurse )
CL Item
Other, describe (Other, describe)
Other Position
Item
Other, describe
text
C0733755 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Involved in medical care
Item
Directly involved in the medical care of the patient around the time of death?
boolean
C1314939 (UMLS CUI [1,1])
C0496675 (UMLS CUI [1,2])
Date
Item
Date:
date
C0011008 (UMLS CUI [1])
Signature
Item
Signature:
text
C1519316 (UMLS CUI [1])

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