ID
15214
Descrição
The CoDe (”Coding of Death in HIV”) Project A significant proportion of deaths in HIV-1 infected persons are now caused by non-AIDS events. It is important to closely monitor the causes of death in this population in order to target interventions appropriately, should specific causes of death emerge or become predominant. It is possible that deaths from diseases related to an accelerated aging process will become more frequent. The same applies for causes of death related to co-infections (e.g. hepatitis) or other co-morbidities (e.g. sequelae of intravenous drug use). Furthermore, it is important to be able to evaluate the risk factors for such emerging diseases, including their possible relationship with immunodeficiency. Until now there has not been a uniform classification system for causes of death in HIV patients. Studies have either created their own coding systems based on frequent and/or ‘important’ causes (e.g. rare but important adverse events such as lactic acidosis and pancreatitis), or have used ICD9 or ICD10 codes from death certificates. In many cases, the ICD system cannot be directly adapted to HIV infected persons. Many AIDS defining illnesses are poorly identified in the ICD system, and some diseases (e.g. CNS diseases) have a different aetiology in HIV patients and are therefore not covered by the ICD system, or at great risk of mis-classification. In July 2004, a meeting was held in Copenhagen with the participation from executive committees of a large number of pivotal observational studies and clinical trials that routinely collect data on causes of death. At this meeting, it became clear that there was a need for a harmonization and standardization of the approach taken when collecting data on cause of death and when reviewing these deaths. As a result, the CoDe Project was initiated. The CoDe Project is a uniform coding system that can be applied to studies of individuals with HIV infection, including a detailed data collection on the causes of death and contributing factors, as well as a centralised review process of the data collected. http://www.cphiv.dk/Tools-Standards/CoDe/About Contains: Study and Patient ID, Date of Death, Data Source, Demographics
Link
http://www.cphiv.dk/Tools-Standards/CoDe/About
Palavras-chave
Versões (4)
- 19/05/2016 19/05/2016 -
- 23/05/2016 23/05/2016 -
- 23/05/2016 23/05/2016 -
- 01/06/2016 01/06/2016 -
Transferido a
23 de maio de 2016
DOI
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Licença
Creative Commons BY-NC 3.0
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Administrative Data The CoDe (”Coding of Death in HIV”) Project
Administrative Data
- StudyEvent: ODM
Descrição
Background demographics
Descrição
Year of birth
Tipo de dados
integer
Alias
- UMLS CUI [1]
- C2826771
Descrição
Gender
Tipo de dados
text
Alias
- UMLS CUI [1]
- C0079399
Descrição
Height
Tipo de dados
integer
Unidades de medida
- cm
Alias
- UMLS CUI [1]
- C0005890
Descrição
Body weight (most recent before death)
Tipo de dados
float
Unidades de medida
- kg
Alias
- UMLS CUI [1]
- C0005910
Descrição
(dd-mmm-yy; weight measured)
Tipo de dados
date
Alias
- UMLS CUI [1,1]
- C0011008
- UMLS CUI [1,2]
- C0005910
Descrição
Data Sources
Descrição
Hospital files
Tipo de dados
text
Alias
- UMLS CUI [1,1]
- C0019994
- UMLS CUI [1,2]
- C0016094
Descrição
Outpatient clinic chart
Tipo de dados
text
Alias
- UMLS CUI [1,1]
- C0029916
- UMLS CUI [1,2]
- C0025102
Descrição
Autopsy report
Tipo de dados
text
Alias
- UMLS CUI [1]
- C1548372
Descrição
If other, specify:
Tipo de dados
boolean
Alias
- UMLS CUI [1,1]
- C0034975
- UMLS CUI [1,2]
- C0205394
Descrição
If other, specify:
Tipo de dados
boolean
Alias
- UMLS CUI [1]
- C3828738
Descrição
Patients relatives or partner
Tipo de dados
boolean
Alias
- UMLS CUI [1]
- C0015576
Descrição
Patients medical provider
Tipo de dados
boolean
Alias
- UMLS CUI [1,1]
- C1138603
- UMLS CUI [1,2]
- C0205476
Descrição
Nursing home
Tipo de dados
text
Alias
- UMLS CUI [1]
- C0028688
Descrição
Other Source
Tipo de dados
text
Alias
- UMLS CUI [1]
- C0011001
Descrição
Treating Physician
Descrição
Name
Tipo de dados
text
Alias
- UMLS CUI [1]
- C0027365
Descrição
Position
Tipo de dados
text
Alias
- UMLS CUI [1]
- C0733755
Descrição
If "Position" was "Other"
Tipo de dados
text
Alias
- UMLS CUI [1,1]
- C0733755
- UMLS CUI [1,2]
- C0205394
Descrição
Involved in medical care
Tipo de dados
boolean
Alias
- UMLS CUI [1,1]
- C1314939
- UMLS CUI [1,2]
- C0496675
Descrição
Date (dd/mmm/yy) :
Tipo de dados
date
Alias
- UMLS CUI [1]
- C0011008
Descrição
Signature
Tipo de dados
text
Alias
- UMLS CUI [1]
- C1519316
Similar models
Administrative Data
- StudyEvent: ODM
C0005910 (UMLS CUI [1,2])
C0025102 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
C0205476 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
C0496675 (UMLS CUI [1,2])
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