ID
15499
Beschreibung
The CoDe (”Coding of Death in HIV”) Project A significant proportion of deaths in HIV-1 infected persons are now caused by non-AIDS events. It is important to closely monitor the causes of death in this population in order to target interventions appropriately, should specific causes of death emerge or become predominant. It is possible that deaths from diseases related to an accelerated aging process will become more frequent. The same applies for causes of death related to co-infections (e.g. hepatitis) or other co-morbidities (e.g. sequelae of intravenous drug use). Furthermore, it is important to be able to evaluate the risk factors for such emerging diseases, including their possible relationship with immunodeficiency. Until now there has not been a uniform classification system for causes of death in HIV patients. Studies have either created their own coding systems based on frequent and/or ‘important’ causes (e.g. rare but important adverse events such as lactic acidosis and pancreatitis), or have used ICD9 or ICD10 codes from death certificates. In many cases, the ICD system cannot be directly adapted to HIV infected persons. Many AIDS defining illnesses are poorly identified in the ICD system, and some diseases (e.g. CNS diseases) have a different aetiology in HIV patients and are therefore not covered by the ICD system, or at great risk of mis-classification. In July 2004, a meeting was held in Copenhagen with the participation from executive committees of a large number of pivotal observational studies and clinical trials that routinely collect data on causes of death. At this meeting, it became clear that there was a need for a harmonization and standardization of the approach taken when collecting data on cause of death and when reviewing these deaths. As a result, the CoDe Project was initiated. The CoDe Project is a uniform coding system that can be applied to studies of individuals with HIV infection, including a detailed data collection on the causes of death and contributing factors, as well as a centralised review process of the data collected. http://www.cphiv.dk/Tools-Standards/CoDe/About Contains: Study and Patient ID, Date of Death, Data Source, Demographics
Link
http://www.cphiv.dk/Tools-Standards/CoDe/About
Stichworte
Versionen (4)
- 19.05.16 19.05.16 -
- 23.05.16 23.05.16 -
- 23.05.16 23.05.16 -
- 01.06.16 01.06.16 -
Hochgeladen am
1. Juni 2016
DOI
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Lizenz
Creative Commons BY-NC 3.0
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Administrative Data The CoDe (”Coding of Death in HIV”) Project
Administrative Data
- StudyEvent: ODM
Beschreibung
Section 1 Background demographics
Beschreibung
Year of birth
Datentyp
integer
Alias
- UMLS CUI [1]
- C2826771
Beschreibung
Gender
Datentyp
text
Alias
- UMLS CUI [1]
- C0079399
Beschreibung
Height
Datentyp
integer
Maßeinheiten
- cm
Alias
- UMLS CUI [1]
- C0005890
Beschreibung
Body weight (most recent before death)
Datentyp
float
Maßeinheiten
- kg
Alias
- UMLS CUI [1]
- C0005910
Beschreibung
(dd-mmm-yy; weight measured)
Datentyp
date
Alias
- UMLS CUI [1,1]
- C0005910
- UMLS CUI [1,2]
- C0011008
Beschreibung
Section 2 Data Sources
Beschreibung
Hospital files
Datentyp
text
Alias
- UMLS CUI [1]
- C0019980
Beschreibung
Outpatient clinic chart
Datentyp
text
Alias
- UMLS CUI [1,1]
- C0029916
- UMLS CUI [1,2]
- C0025102
Beschreibung
Autopsy report
Datentyp
text
Alias
- UMLS CUI [1]
- C1548372
Beschreibung
If other, specify:
Datentyp
boolean
Alias
- UMLS CUI [1]
- C0034975
Beschreibung
If other, specify:
Datentyp
boolean
Alias
- UMLS CUI [1]
- C3828738
Beschreibung
Patients relatives or partner
Datentyp
boolean
Alias
- UMLS CUI [1]
- C0015576
Beschreibung
Patients medical provider
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C1138603
- UMLS CUI [1,2]
- C0205476
Beschreibung
Nursing home
Datentyp
text
Alias
- UMLS CUI [1]
- C0028688
Beschreibung
Other Source
Datentyp
text
Alias
- UMLS CUI [1]
- C0011001
Beschreibung
Completed by
Beschreibung
Name
Datentyp
text
Alias
- UMLS CUI [1]
- C0027365
Beschreibung
Position
Datentyp
text
Alias
- UMLS CUI [1]
- C0018722
Beschreibung
If "Position" was "Other"
Datentyp
text
Alias
- UMLS CUI [1,1]
- C0018722
- UMLS CUI [1,2]
- C0205394
Beschreibung
Involved in medical care
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0496675
- UMLS CUI [1,2]
- C1314939
Beschreibung
Date (dd/mmm/yy) :
Datentyp
date
Alias
- UMLS CUI [1]
- C0011008
Beschreibung
Signature
Datentyp
text
Alias
- UMLS CUI [1]
- C1519316
Ähnliche Modelle
Administrative Data
- StudyEvent: ODM
C0011008 (UMLS CUI [1,2])
C0025102 (UMLS CUI [1,2])
C0205476 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
C1314939 (UMLS CUI [1,2])
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