Zoekresultaten - Portaal voor medische datamodellen (MDM-portaal)

End Registry Oncology Thromboses UK Essen - End

- 28-11-16 - 1 Formulier, 1 Itemgroep, 19 Data-elementen, 1 Taal

Itemgroep: death

Study part: End Registry for oncologic patients with thromboses. The aim of the study was to determine the incidence of thrombosis in oncology patients. A register study of University Clinic Essen (UK Essen), permission granted by Claudia Ose from the Center for Clinical Studies Essen (Zentrums für Klinische Studien Essen, ZKSE).

Hospitalization Registry Oncology Thromboses UK Essen - Hospitalization

- 28-11-16 - 1 Formulier, 1 Itemgroep, 28 Data-elementen, 1 Taal

Itemgroep: Hospitalization

Study part: Hospitalization Registry for oncologic patients with thromboses. The aim of the study was to determine the incidence of thrombosis in oncology patients. A register study of University Clinic Essen (UK Essen), permission granted by Claudia Ose from the Center for Clinical Studies Essen (Zentrums für Klinische Studien Essen, ZKSE).

Address Registry Oncology Thromboses UK Essen - Address

- 23-11-16 - 1 Formulier, 1 Itemgroep, 13 Data-elementen, 1 Taal

Itemgroep: Address

Study part: Address Registry for oncologic patients with thromboses. The aim of the study was to determine the incidence of thrombosis in oncology patients. A register study of University Clinic Essen (UK Essen), permission granted by Claudia Ose from the Center for Clinical Studies Essen (Zentrums für Klinische Studien Essen, ZKSE).

Medical history Registry Oncology Thromboses UK Essen - Medical history

- 23-11-16 - 1 Formulier, 1 Itemgroep, 45 Data-elementen, 1 Taal

Itemgroep: medical history

Study part: Medical history, Registry for oncologic patients with thromboses. The aim of the study was to determine the incidence of thrombosis in oncology patients. A register study of University Clinic Essen (UK Essen), permission granted by Claudia Ose from the Center for Clinical Studies Essen (Zentrums für Klinische Studien Essen, ZKSE).

Genereral information EBMT JUVENILE IDIOPATHIC ARTHRITIS (JIA)

- 02-10-16 - 1 Formulier, 16 Itemgroepen, 133 Data-elementen, 1 Taal

Itemgroepen: Team, Patient, Disease, INITIAL DIAGNOSIS, FIRST LINE THERAPIES, DATE OF HSCT, STATUS OF DISEASE AT MOBILISATION, HAEMATOLOGICAL VALUES, CLINICAL AND LABORATORY DATA, AUTOANTIBODIES, RADIOGRAPHIC EVALUATION, HEALTH ASSESSMENT, PHYSICIAN’S ASSESSMENT, STATUS OF DISEASE AT HSCT, STATUS AT 100 DAYS POST-HSCT, FORMS TO BE FILLED IN

ODM derived from 20pp EBMT Arthritis 14JIA forms on http://www.ebmt.org/

100 days past HSCT EBMT Follow up - 100 days past HSCT EBMT

- 25-09-16 - 1 Formulier, 13 Itemgroepen, 129 Data-elementen, 1 Taal

Itemgroepen: Classification, HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 2, CHRONIC MYELOGENOUS LEUKAEMIA (CML) (main disease code 2) Note: CMML is not a CML, OTHER LEUKAEMIAS (main disease code 2), HSCT - Minimum Essential Data – A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 3, HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 4, HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 5, HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 6, HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 7, BONE MARROW FAILURE SYNDROMES including APLASTIC ANAEMIA (main disease code 7)ISMC, HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 8, HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 9, HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 10

ODM form derived from 100days past HSCT EBMT. please refer to: http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Pages/MED-AB-data-collection-forms.aspx HLA typing results of patient and donor should be attached and sent: - to your NATIONAL REGISTRY if - you normally report to your National Registry and - you are based in the Netherlands, Switzerland, Turkey or the UK - to the EBMT REGISTRY OFFICE in London for any other centre Contact: Shelley Hewerdine EBMT Registry Office 4th Floor, Tabard House Guy's Hospital Great Maze Pond London SE1 9RT United Kingdom Phone: 00 44-207-188-8409 Fax: 00 44-207-188-8411 Email: shelley.hewerdine@ebmt.org

EBMT Solid Tumors Follow up

- 27-07-16 - 1 Formulier, 7 Itemgroepen, 105 Data-elementen, 1 Taal

Itemgroepen: FOLLOW UP MULTIPLE SCLEROSIS, GRAFT VERSUS HOST DISEASE (GvHD) SINCE LAST REPORT, OTHER COMPLICATIONS SINCE LAST REPORT, ADDITIONAL THERAPIES SINCE LAST FOLLOW UP, FIRST EVIDENCE OF DISEASE WORSENING SINCE LAST HSCT, LAST DISEASE AND PATIENT STATUS, ADDITIONAL NOTES IF APPLICABLE

ODM form derived from 14pp EBMT Solid Tumors 11SoTu.pdf refer to: http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Pages/MED-AB-data-collection-forms.aspx

EBMT FOLLOW UP MYELOPROLIFERATIVE NEOPLASM

- 17-07-16 - 1 Formulier, 7 Itemgroepen, 108 Data-elementen, 1 Taal

Itemgroepen: FOLLOW UP MYELOPROLIFERATIVE NEOPLASM, GRAFT VERSUS HOST DISEASE (GvHD) SINCE LAST REPORT, OTHER COMPLICATIONS SINCE LAST REPORT, ADDITIONAL THERAPIES SINCE LAST FOLLOW UP, GRAFT ASSESSMENT AND HAEMOPOIETIC CHIMAERISM, LAST DISEASE AND PATIENT STATUS, ADDITIONAL NOTES IF APPLICABLE

ODM form derived from MYELOPROLIFERATIVE NEOPLASM please refer to: http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Pages/MED-AB-data-collection-forms.aspx