ID

17601

Description

ODM form derived from 100days past HSCT EBMT. please refer to: http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Pages/MED-AB-data-collection-forms.aspx HLA typing results of patient and donor should be attached and sent: - to your NATIONAL REGISTRY if - you normally report to your National Registry and - you are based in the Netherlands, Switzerland, Turkey or the UK - to the EBMT REGISTRY OFFICE in London for any other centre Contact: Shelley Hewerdine EBMT Registry Office 4th Floor, Tabard House Guy's Hospital Great Maze Pond London SE1 9RT United Kingdom Phone: 00 44-207-188-8409 Fax: 00 44-207-188-8411 Email: shelley.hewerdine@ebmt.org

Link

http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Pages/MED-AB-data-collection-forms.aspx

Keywords

  1. 9/25/16 9/25/16 -
Uploaded on

September 25, 2016

DOI

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License

Creative Commons BY-NC 3.0

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100 days past HSCT EBMT Follow up

100 days past HSCT EBMT

Classification
Description

Classification

AML with recurrent genetic abnormalities
Description

AML

Data type

integer

Alias
UMLS CUI [1]
C0023467
AML not otherwise categorised
Description

AML not otherwise categorised

Data type

integer

Alias
UMLS CUI [1]
C0023467
Precursor Lymphoid Neoplasms (old ALL)
Description

Precursor Lymphoid Neoplasms (old ALL)

Data type

integer

Alias
UMLS CUI [1]
C0376544
AML transformed from
Description

AML transformed from

Data type

integer

Alias
UMLS CUI [1]
C1963864
Secondary origin
Description

Secondary origin

Data type

text

Alias
UMLS CUI [1]
C0277555
Date of this HSCT
Description

Date of this HSCT

Data type

date

Alias
UMLS CUI [1]
C2584899
Status at HSCT
Description

Status

Data type

integer

Alias
UMLS CUI [1,1]
C0449438
UMLS CUI [1,2]
C0011900
NUMBER
Description

(complete only for CR or relapse)

Data type

integer

Alias
UMLS CUI [1]
C0449788
Cytogenetic
Description

FOR COMPLETE REMISSION ONLY, TYPE OF REMISSION

Data type

integer

Alias
UMLS CUI [1]
C0010802
Molecular FOR COMPLETE REMISSION ONLY, TYPE OF REMISSION
Description

Molecular

Data type

integer

Alias
UMLS CUI [1]
C0026376
HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 2
Description

HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 2

EBMT Centre Identification Code (CIC)
Description

EBMT Centre Identification Code

Data type

integer

Alias
UMLS CUI [1,1]
C3826859
UMLS CUI [1,2]
C1827636
Hospital Unique Patient Number/Code
Description

Hospital Unique Patient Number

Data type

integer

Alias
UMLS CUI [1]
C2348585
Date of initial diagnosis
Description

Date of initial diagnosis

Data type

date

Alias
UMLS CUI [1]
C2316983
Classification
Description

Classification

At least one investigation must be positive: Translocation (9;22)
Description

Translocation (9;22)

Data type

integer

Alias
UMLS CUI [1]
C3897138
bcr-abl
Description

At least one investigation must be positive:

Data type

integer

Alias
UMLS CUI [1]
C1835417
Date of this HSCT
Description

Date of this HSCT

Data type

date

Alias
UMLS CUI [1]
C2584899
Status at HSCT Phase
Description

Status

Data type

integer

Alias
UMLS CUI [1,1]
C0449438
UMLS CUI [1,2]
C0011900
NUMBER
Description

NUMBER

Data type

integer

Alias
UMLS CUI [1]
C0449788
Haematological
Description

Haematological

Data type

integer

Alias
UMLS CUI [1]
C0279810
Cytogenetic (t[9;22))
Description

Cytogenetic (t9;22)

Data type

integer

Alias
UMLS CUI [1,1]
C0010802
UMLS CUI [1,2]
C3688687
Molecular (bcr-abl)
Description

bcr-abl

Data type

integer

Alias
UMLS CUI [1]
C1835417
Classification
Description

Classification

Classification
Description

Classification

Data type

integer

Alias
UMLS CUI [1]
C0008902
Date of this HSCT
Description

Date of this HSCT

Data type

date

Alias
UMLS CUI [1]
C2584899
Status at HSCT
Description

Status

Data type

integer

Alias
UMLS CUI [1]
C0449438
HSCT - Minimum Essential Data – A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 3
Description

HSCT - Minimum Essential Data – A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 3

EBMT Centre Identification Code (CIC)
Description

EBMT Centre Identification Code

Data type

integer

Alias
UMLS CUI [1,1]
C2348585
UMLS CUI [1,2]
C3826859
Hospital Unique Patient Number/Code
Description

Hospital Unique Patient Number

Data type

integer

Alias
UMLS CUI [1]
C2348585
Date of Initial Diagnosis
Description

Date of Initial Diagnosis

Data type

date

Alias
UMLS CUI [1]
C2316983
Mature B-cell Neoplasms
Description

Mature B-cell Neoplasms

Data type

integer

Alias
UMLS CUI [1]
C1334633
Follicular lymphoma
Description

Follicular lymphoma

Data type

integer

Alias
UMLS CUI [1]
C0024301
Mature T-cell & NK-cell Neoplasms
Description

Mature T-cell & NK-cell Neoplasms

Data type

integer

Alias
UMLS CUI [1]
C1334640
Hodgkin
Description

Hodgkin

Data type

integer

Alias
UMLS CUI [1]
C0019829
Date of this HSCT
Description

Date of HSCT

Data type

date

Alias
UMLS CUI [1,1]
C0472699
UMLS CUI [1,2]
C2584899
STATUS HSCT
Description

STATUS

Data type

integer

Alias
UMLS CUI [1,1]
C0449438
UMLS CUI [1,2]
C0011900
NUMBER
Description

complete only for CR, PR>1 or relapse

Data type

integer

Alias
UMLS CUI [1]
C0449788
SENSITIVITY TO CHEMOTHERAPY
Description

(complete only for relapse)

Data type

integer

Alias
UMLS CUI [1]
C2363824
HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 4
Description

HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 4

EBMT Centre Identification Code (CIC)
Description

EBMT Centre Identification Code

Data type

integer

Alias
UMLS CUI [1]
C2348585
Hospital Unique Patient Number/Code
Description

Hospital Unique Patient Number

Data type

integer

Alias
UMLS CUI [1]
C2348585
Date of initial diagnosis
Description

Date of initial diagnosis

Data type

date

Alias
UMLS CUI [1]
C2316983
WHO Classification at diagnosis
Description

WHO Classification at diagnosis

Data type

integer

Alias
UMLS CUI [1]
C1301142
FAB Classification at diagnosis
Description

FAB Classification

Data type

integer

Alias
UMLS CUI [1]
C2984084
Status at HSCT Treated with chemotherapy
Description

Status at HSCT

Data type

integer

NUMBER (complete for CR or relapse)
Description

NUMBER

Data type

text

HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 5
Description

HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 5

EBMT Centre Identification Code (CIC)
Description

EBMT Centre Identification Code (CIC)

Data type

text

Alias
UMLS CUI [1]
C2348585
Hospital Unique Patient Number/Code
Description

Hospital Unique Patient Number/Code

Data type

integer

Alias
UMLS CUI [1]
C2348585
Date of Initial Diagnosis
Description

Date of Initial Diagnosis

Data type

date

Alias
UMLS CUI [1]
C2316983
Classification at diagnosis
Description

Classification

Data type

integer

Alias
UMLS CUI [1]
C0008902
Classification at HSCT
Description

Classification

Data type

integer

Alias
UMLS CUI [1]
C0008902
Date of this HSCT
Description

Date of this HSCT

Data type

date

Alias
UMLS CUI [1]
C2584899
CMML (including Transformed to AML) / Atypical CML Status at HSCT
Description

chemotherapy

Data type

integer

Alias
UMLS CUI [1]
C0392920
NUMBER (complete for CR or relapse)
Description

NUMBER

Data type

integer

Alias
UMLS CUI [1]
C0449788
jMML
Description

jMML

Data type

integer

Alias
UMLS CUI [1]
C0349639
HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 6
Description

HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 6

EBMT Centre Identification Code (CIC)
Description

EBMT Centre Identification Code (CIC)

Data type

integer

Alias
UMLS CUI [1,1]
C2348585
UMLS CUI [1,2]
C3826859
Hospital Unique Patient Number/Code
Description

Hospital Unique Patient Number/Code

Data type

integer

Alias
UMLS CUI [1]
C2348585
Date of initial diagnosis
Description

Date of initial diagnosis

Data type

date

Alias
UMLS CUI [1]
C2316983
Classification at diagnosis
Description

Classification

Data type

integer

Alias
UMLS CUI [1]
C0008902
Secondary origin (other than transformed to AML)
Description

Secondary origin

Data type

integer

Alias
UMLS CUI [1]
C0277555
Date of this HSCT
Description

Date of this HSCT

Data type

date

Alias
UMLS CUI [1]
C2584899
Classification at HSCT
Description

Classification

Data type

integer

Alias
UMLS CUI [1]
C0008902
Status at HSCT
Description

Treated with chemotherapy

Data type

integer

Alias
UMLS CUI [1,1]
C0449438
UMLS CUI [1,2]
C0011900
Consecutive number
Description

Number

Data type

integer

Alias
UMLS CUI [1]
C0750480
HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 7
Description

HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 7

EBMT Centre Identification Code (CIC)
Description

EBMT Centre Identification Code (CIC)

Data type

text

Alias
UMLS CUI [1]
C2348585
Hospital Unique Patient Number/Code
Description

Hospital Unique Patient Number/Code

Data type

integer

Alias
UMLS CUI [1]
C2348585
Date of Initial Diagnosis
Description

Date of Initial Diagnosis

Data type

date

Classification
Description

Classification

Data type

integer

LIGHT CHAIN TYPE
Description

LIGHT CHAIN TYPE

Data type

text

SALMON & DURIE STAGE AT DIAGNOSIS (Multiple Myeloma only)
Description

SALMON & DURIE STAGE AT DIAGNOSIS

Data type

integer

Date of this HSCT
Description

Date of this HSCT

Data type

date

Status at HSCT
Description

Status at HSCT

Data type

text

NUMBER (complete for sCR, CR,VGPR, PR or relapse)
Description

NUMBER (complete for sCR, CR,VGPR, PR or relapse)

Data type

integer

BONE MARROW FAILURE SYNDROMES including APLASTIC ANAEMIA (main disease code 7)ISMC
Description

BONE MARROW FAILURE SYNDROMES including APLASTIC ANAEMIA (main disease code 7)ISMC

Classification
Description

Classification

Data type

integer

Acquired Severe Aplastic Anaemia (SAA)
Description

Acquired Severe Aplastic Anaemia

Data type

integer

Alias
UMLS CUI [1]
C0002874
Congenital
Description

Congenital

Data type

integer

Alias
UMLS CUI [1]
C0009678
Congenital: if other, please specify
Description

Congenital

Data type

integer

Alias
UMLS CUI [1]
C0009678
Date of this HSCT
Description

Date of HSCT

Data type

date

Alias
UMLS CUI [1,1]
C0472699
UMLS CUI [1,2]
C2584899
HAEMOGLOBINOPATHY Classification
Description

HAEMOGLOBINOPATHY Classification

Data type

integer

Alias
UMLS CUI [1,1]
C0019045
UMLS CUI [1,2]
C0008902
HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 8
Description

HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 8

EBMT Centre Identification Code (CIC)
Description

EBMT Centre Identification Code (CIC)

Data type

text

Alias
UMLS CUI [1]
C2348585
Hospital Unique Patient Number/Code
Description

Hospital Unique Patient Number/Code

Data type

integer

Alias
UMLS CUI [1]
C2348585
Date of initial diagnosis
Description

Date of initial diagnosis

Data type

date

Alias
UMLS CUI [1]
C2316983
Staging at Diagnosis METASTASES
Description

Staging

Data type

integer

Alias
UMLS CUI [1]
C0699749
STAGE
Description

(complete only if No distant metastasis)

Data type

integer

Alias
UMLS CUI [1]
C1300072
CLASSIFICATION
Description

CLASSIFICATION

Data type

integer

Alias
UMLS CUI [1]
C0008902
Date of this HSCT
Description

Date of HSCT

Data type

date

Alias
UMLS CUI [1,1]
C0472699
UMLS CUI [1,2]
C2584899
Status at HSCT
Description

Status

Data type

integer

Alias
UMLS CUI [1]
C0449438
Complete remission (CR)
Description

Complete remission (CR)

Data type

integer

Alias
UMLS CUI [1]
C0677874
Relapse
Description

Relapse

Data type

integer

Alias
UMLS CUI [1]
C0277556
OTHER MALIGNANCIES (main disease code 5)
Description

Malignant Neoplasms

Data type

text

Alias
UMLS CUI [1]
C0006826
Date of this HSCT
Description

Date of this HSCT

Data type

date

Status at HSCT
Description

Status

Data type

text

Alias
UMLS CUI [1,1]
C0449438
UMLS CUI [1,2]
C0011900
Complete remission (CR)
Description

Complete remission (CR)

Data type

integer

Alias
UMLS CUI [1]
C0677874
SENSITIVITY TO CHEMOTHERAPY
Description

(complete only for relapse)

Data type

integer

Alias
UMLS CUI [1]
C2363824
HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 9
Description

HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 9

EBMT Centre Identification Code (CIC)
Description

EBMT Centre Identification Code (CIC)

Data type

text

Alias
UMLS CUI [1]
C2348585
Hospital Unique Patient Number/Code
Description

Hospital Unique Patient Number/Code

Data type

integer

Alias
UMLS CUI [1]
C2348585
Date of Initial Diagnosis
Description

Date of Initial Diagnosis

Data type

date

Alias
UMLS CUI [1]
C2316983
Classification PRIMARY IMMUNE DEFICIENCIES
Description

(main disease code 8)

Data type

integer

Alias
UMLS CUI [1]
C0008902
Date of this HSCT
Description

Date of HSCT

Data type

date

Alias
UMLS CUI [1]
C2584899
INHERITED DISORDERS OF METABOLISM
Description

(main disease code 8) DISMCLFD INHDIS Classification

Data type

integer

Alias
UMLS CUI [1]
C0271824
Date of this HSCT
Description

Date of HSCT

Data type

date

Alias
UMLS CUI [1,1]
C0472699
UMLS CUI [1,2]
C2584899
INHERITED DISORDERS OF METABOLISM
Description

INHERITED DISORDERS OF METABOLISM

Data type

integer

Alias
UMLS CUI [1]
C0025517
Date of this HSCT
Description

Date of HSCT

Data type

date

Alias
UMLS CUI [1]
C2584899
PLATELET and OTHER INHERITED DISORDERS
Description

PLATELET and OTHER INHERITED DISORDERS

Data type

integer

Alias
UMLS CUI [1]
C0005818
Date of this HSCT
Description

Date of HSCT

Data type

date

Alias
UMLS CUI [1,1]
C0472699
UMLS CUI [1,2]
C2584899
HISTIOCYTIC DISORDERS Classification
Description

HISTIOCYTIC DISORDERS Classification

Data type

integer

Alias
UMLS CUI [1,1]
C0398597
UMLS CUI [1,2]
C0008902
Date of this HSCT
Description

Date of HSCT

Data type

date

Alias
UMLS CUI [1]
C2584899
HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 10
Description

HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 10

EBMT Centre Identification Code (CIC)
Description

EBMT Centre Identification Code (CIC)

Data type

integer

Alias
UMLS CUI [1,1]
C2348585
UMLS CUI [1,2]
C3826859
Hospital Unique Patient Number/Code
Description

Hospital Unique Patient Number/Code

Data type

integer

Alias
UMLS CUI [1]
C2348585
Date of initial diagnosis
Description

Date of initial diagnosis

Data type

date

Alias
UMLS CUI [1]
C2316983
Name of Referring Physician
Description

Physician

Data type

integer

Alias
UMLS CUI [1]
C1709880
Address
Description

Address

Data type

integer

Alias
UMLS CUI [1]
C0421449
Fax
Description

Fax

Data type

integer

Alias
UMLS CUI [1]
C1549619
Email
Description

Email

Data type

integer

Alias
UMLS CUI [1]
C0013849
Classification CONNECTIVE TISSUE DISEASE
Description

Classification CONNECTIVE TISSUE DISEASE

Data type

integer

Alias
UMLS CUI [1,1]
C0009782
UMLS CUI [1,2]
C0008902
Date of this HSCT
Description

Date of HSCT

Data type

date

Alias
UMLS CUI [1]
C2584899
Clinical problem
Description

Clinical problem

Data type

integer

Alias
UMLS CUI [1]
C0877248
Indication for HSCT
Description

Indication for HSCT

Data type

integer

Alias
UMLS CUI [1,1]
C3146298
UMLS CUI [1,2]
C0472699
Antibodies studied
Description

Antibodies studied

Data type

integer

Scl 70 positive
Description

Scl 70 positive

Data type

integer

Alias
UMLS CUI [1]
C0587788
ACA positive
Description

ACA positive

Data type

integer

Alias
UMLS CUI [1]
C0162596
Date of this HSCT
Description

Date of HSCT

Data type

date

Alias
UMLS CUI [1,1]
C0472699
UMLS CUI [1,2]
C2584899
renal (biopsy type)
Description

renal

Data type

integer

Alias
UMLS CUI [1]
C0022646
CNS
Description

CNS

Data type

integer

Alias
UMLS CUI [1]
C3714787
PNS
Description

PNS

Data type

integer

Alias
UMLS CUI [1]
C0206417
lung
Description

lung

Data type

integer

Alias
UMLS CUI [1]
C0024109
serositis
Description

serositis

Data type

integer

Alias
UMLS CUI [1]
C0036749
arthritis
Description

arthritis

Data type

integer

Alias
UMLS CUI [1]
C0003864
skin
Description

skin

Data type

integer

Alias
UMLS CUI [1]
C1123023
haematological
Description

haematological

Data type

integer

Alias
UMLS CUI [1,1]
C0018939
UMLS CUI [1,2]
C0449438
vasculitis
Description

vasculitis

Data type

integer

Alias
UMLS CUI [1]
C0042384
Complement reduced
Description

Complement reduced

Data type

integer

Alias
UMLS CUI [1]
C0009498
Antibodies studied if yes
Description

Antibodies

Data type

integer

Alias
UMLS CUI [1]
C0003241

Similar models

100 days past HSCT EBMT

Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Classification
Item
AML with recurrent genetic abnormalities
integer
C0023467 (UMLS CUI [1])
Code List
AML with recurrent genetic abnormalities
CL Item
AML with t(8;21)(q22;q22); RUNX1-RUNX1T1 (1)
CL Item
AML with inv(16)(p13.1;q22) or t(16;16)(p13.1;q22); CBFB-MYH11 (2)
CL Item
Acute promyelocytic leukaemia with t(15;17)(q22;q12); PML/RARA (3)
CL Item
AML with t(9;11) (p22;q23); MLLT 3-MLL (4)
CL Item
AML with myelodysplasia related changes (5)
CL Item
(with multilineage dysplasia; w/o MDS or MDS/MPN antecedents) (6)
CL Item
AML with t(6;9) (p23;q24); DEK-NUP214 (7)
CL Item
AML with inv(3) (q21;q26.2) or t(3;3) (q21;q26.2); RPN1-EVI1 (8)
CL Item
AML (megakaryoblastic) with t(1;22) (p13;q13); RBM15-MKL1 (9)
Item
AML not otherwise categorised
integer
C0023467 (UMLS CUI [1])
Code List
AML not otherwise categorised
CL Item
AML with minimal differentiation (FAB M0) (1)
C0457327 (UMLS CUI-1)
CL Item
AML without maturation (FAB M1) (2)
C0457328 (UMLS CUI-1)
CL Item
AML with maturation (FAB M2) (3)
C0457352 (UMLS CUI-1)
CL Item
Acute myelomonocytic leukaemia (FAB M4) (4)
C0745703 (UMLS CUI-1)
CL Item
Acute monoblastic and monocytic leukaemia (FAB M5) (5)
C0457333 (UMLS CUI-1)
CL Item
Acute erythroid leukaemia (erythroid/myeloid and pure erythroleukaemia) (FAB M6) (6)
C0023440 (UMLS CUI-1)
CL Item
Acute megakaryoblastic leukaemia (FAB M7) (7)
C0023462 (UMLS CUI-1)
CL Item
Acute basophilic leukaemia (8)
C0023437 (UMLS CUI-1)
CL Item
Acute panmyelosis with myelofibrosis (9)
C0334674 (UMLS CUI-1)
CL Item
Myeloid sarcoma (10)
C0152276 (UMLS CUI-1)
CL Item
Myeloid proliferations related to Down syndrome (11)
C2826104 (UMLS CUI-1)
CL Item
Blastic plasmacytoid dendritic cell neoplasm (BPDCN) (12)
C1301363 (UMLS CUI-1)
CL Item
Acute myeloid leukaemia not otherwise specified or other (13)
C0023467 (UMLS CUI-1)
C1518425 (UMLS CUI-2)
Item
Precursor Lymphoid Neoplasms (old ALL)
integer
C0376544 (UMLS CUI [1])
Code List
Precursor Lymphoid Neoplasms (old ALL)
CL Item
B lymphoblastic leukaemia/lymphoma NOS (old Precursor B-cell ALL)  (1)
CL Item
with t(9;22)(q34;q11.2); BCR-ABL1 (2)
CL Item
with t(v;11q23); MLL rearranged (3)
CL Item
with t(12;21)(p13;q22); TEL-AML1 (ETV-UNX1) (4)
CL Item
with hyperdiploidy (5)
CL Item
with hypodiploidy (6)
CL Item
with t(5;14)(q31;q32); IL3-IGH (7)
CL Item
with t(1;19)(q23;p13.3); E2A-PBX1 (8)
CL Item
T lymphoblastic leukaemia/lymphoma (old precursor T-cell ALL) (9)
CL Item
Lymphoblastic leukaemia/lymphoma not otherwise specified or other (10)
Item
AML transformed from
integer
C1963864 (UMLS CUI [1])
Code List
AML transformed from
CL Item
Transformed from MDS (1)
C2363750 (UMLS CUI-1)
CL Item
Transformed from MD/MPN (2)
CL Item
Transformed from MPS (3)
Item
Secondary origin
text
C0277555 (UMLS CUI [1])
Code List
Secondary origin
CL Item
Yes: Disease related to prior exposure to therapeutic drugs or radiation (Yes: Disease related to prior exposure to therapeutic drugs or radiation)
CL Item
No (No)
CL Item
Unknown (Unknown)
Date of this HSCT
Item
Date of this HSCT
date
C2584899 (UMLS CUI [1])
Item
Status at HSCT
integer
C0449438 (UMLS CUI [1,1])
C0011900 (UMLS CUI [1,2])
Code List
Status at HSCT
CL Item
Primary induction failure (1)
C2347677 (UMLS CUI-1)
CL Item
Complete haematological remission  (2)
C0677874 (UMLS CUI-1)
CL Item
Relapse (3)
C0277556 (UMLS CUI-1)
CL Item
Never treated (4)
Item
NUMBER
integer
C0449788 (UMLS CUI [1])
Code List
NUMBER
CL Item
1st (1)
CL Item
2nd (2)
CL Item
3rd or higher (3)
Item
Cytogenetic
integer
C0010802 (UMLS CUI [1])
Code List
Cytogenetic
CL Item
No  (1)
C1298908 (UMLS CUI-1)
CL Item
Yes  (2)
C1705108 (UMLS CUI-1)
CL Item
Not evaluated  (3)
C3846720 (UMLS CUI-1)
CL Item
Unknown (4)
C0439673 (UMLS CUI-1)
Item
Molecular FOR COMPLETE REMISSION ONLY, TYPE OF REMISSION
integer
C0026376 (UMLS CUI [1])
Code List
Molecular FOR COMPLETE REMISSION ONLY, TYPE OF REMISSION
CL Item
No  (1)
CL Item
Yes  (2)
CL Item
Not evaluated  (3)
CL Item
Unknown (4)
Item Group
HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 2
EBMT Centre Identification Code
Item
EBMT Centre Identification Code (CIC)
integer
C3826859 (UMLS CUI [1,1])
C1827636 (UMLS CUI [1,2])
Hospital Unique Patient Number
Item
Hospital Unique Patient Number/Code
integer
C2348585 (UMLS CUI [1])
Date of initial diagnosis
Item
Date of initial diagnosis
date
C2316983 (UMLS CUI [1])
Item
At least one investigation must be positive: Translocation (9;22)
integer
C3897138 (UMLS CUI [1])
Code List
At least one investigation must be positive: Translocation (9;22)
CL Item
Absent (Absent)
C0332197 (UMLS CUI-1)
CL Item
Not evaluated (Not evaluated)
C3846720 (UMLS CUI-1)
CL Item
Present (Present)
C0150312 (UMLS CUI-1)
Item
bcr-abl
integer
C1835417 (UMLS CUI [1])
Code List
bcr-abl
CL Item
Absent (Absent)
C0332197 (UMLS CUI-1)
CL Item
Not evaluated (Not evaluated)
C3846720 (UMLS CUI-1)
CL Item
Present (Present)
C0150312 (UMLS CUI-1)
Date of this HSCT
Item
Date of this HSCT
date
C2584899 (UMLS CUI [1])
Item
Status at HSCT Phase
integer
C0449438 (UMLS CUI [1,1])
C0011900 (UMLS CUI [1,2])
Code List
Status at HSCT Phase
CL Item
Chronic phase  (1)
C0457343 (UMLS CUI-1)
CL Item
Accelerated phase (2)
C0457345 (UMLS CUI-1)
CL Item
Blast crisis (3)
C0005699 (UMLS CUI-1)
Item
NUMBER
integer
C0449788 (UMLS CUI [1])
Code List
NUMBER
CL Item
1st (1)
CL Item
2nd (2)
CL Item
3rd or higher (3)
Item
Haematological
integer
C0279810 (UMLS CUI [1])
Code List
Haematological
CL Item
Yes  (Yes )
C1705108 (UMLS CUI-1)
CL Item
No  (No )
C1298908 (UMLS CUI-1)
CL Item
Not evaluated  (Not evaluated )
C3846720 (UMLS CUI-1)
CL Item
Unknown (Unknown)
C0439673 (UMLS CUI-1)
Item
Cytogenetic (t[9;22))
integer
C0010802 (UMLS CUI [1,1])
C3688687 (UMLS CUI [1,2])
Code List
Cytogenetic (t[9;22))
CL Item
Yes  (1)
CL Item
No  (2)
CL Item
Not evaluated  (3)
CL Item
Unknown (4)
Item
Molecular (bcr-abl)
integer
C1835417 (UMLS CUI [1])
Code List
Molecular (bcr-abl)
CL Item
Yes  (1)
CL Item
No  (2)
CL Item
Not evaluated  (3)
CL Item
Unknown (4)
Item
Classification
integer
C0008902 (UMLS CUI [1])
Code List
Classification
CL Item
Chronic lymphocytic leukaemia  (1)
C0023434 (UMLS CUI-1)
CL Item
Prolymphocytic Leukaemia (2)
C0023486 (UMLS CUI-1)
CL Item
PLL, B-cell (3)
C0475801 (UMLS CUI-1)
CL Item
PLL, T-cell (4)
C2363142 (UMLS CUI-1)
CL Item
Hairy Cell Leukaemia (5)
C0023443 (UMLS CUI-1)
CL Item
Other leukaemia (6)
C0494175 (UMLS CUI-1)
Date of this HSCT
Item
Date of this HSCT
date
C2584899 (UMLS CUI [1])
Item
Status at HSCT
integer
C0449438 (UMLS CUI [1])
Code List
Status at HSCT
CL Item
Complete remission (CR) (Complete remission (CR))
CL Item
Partial remission (PR) Nodular Partial remission (nPR) (Partial remission (PR) Nodular Partial remission (nPR))
CL Item
Relapse (Relapse)
CL Item
Progression (Progression)
CL Item
Never treated (Never treated)
CL Item
Stable disease/No response (Stable disease/No response)
Item Group
HSCT - Minimum Essential Data – A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 3
EBMT Centre Identification Code
Item
EBMT Centre Identification Code (CIC)
integer
C2348585 (UMLS CUI [1,1])
C3826859 (UMLS CUI [1,2])
Hospital Unique Patient Number
Item
Hospital Unique Patient Number/Code
integer
C2348585 (UMLS CUI [1])
Date of Initial Diagnosis
Item
Date of Initial Diagnosis
date
C2316983 (UMLS CUI [1])
Item
Mature B-cell Neoplasms
integer
C1334633 (UMLS CUI [1])
Code List
Mature B-cell Neoplasms
CL Item
Splenic marginal zone lymphoma (Splenic marginal zone lymphoma)
C0349632 (UMLS CUI-1)
CL Item
Extranodal marginal zone lymphoma of mucosa associated lymphoid tissue (MALT) (Extranodal marginal zone lymphoma of mucosa associated lymphoid tissue (MALT))
C0242647 (UMLS CUI-1)
CL Item
Nodal marginal zone lymphoma (Nodal marginal zone lymphoma)
C0855140 (UMLS CUI-1)
CL Item
Lymphoplasmacytic lymphoma (LPL) (Lymphoplasmacytic lymphoma (LPL))
C0334633 (UMLS CUI-1)
CL Item
Waldenstrom macroglobulinaemia (LPL with monoclonal IgM) (Waldenstrom macroglobulinaemia (LPL with monoclonal IgM))
C0024419 (UMLS CUI-1)
CL Item
Follicular lymphoma (Follicular lymphoma)
C0024301 (UMLS CUI-1)
CL Item
Primary cutaneous follicle centre lymphoma (Primary cutaneous follicle centre lymphoma)
C1333171 (UMLS CUI-1)
CL Item
Mantle cell lymphoma (Mantle cell lymphoma)
C1333095 (UMLS CUI-1)
CL Item
Diffuse large B-cell lymphoma (DLBCL), (NOS) (Diffuse large B-cell lymphoma (DLBCL), (NOS))
C0079744 (UMLS CUI-1)
CL Item
T-cell/hystiocyte rich large B cell lymphoma (T-cell/hystiocyte rich large B cell lymphoma)
C0079744 (UMLS CUI-1)
CL Item
Primary DLBCL of the CNS (Primary DLBCL of the CNS)
C0079744 (UMLS CUI-1)
CL Item
Primary cutaneous DLBCL, leg type (Primary cutaneous DLBCL, leg type)
C1275325 (UMLS CUI-1)
CL Item
EBV positive DLBCL of the elderly (EBV positive DLBCL of the elderly)
C2700007 (UMLS CUI-1)
CL Item
DLBCL associated with chronic inflammation (DLBCL associated with chronic inflammation)
C2699776 (UMLS CUI-1)
CL Item
Lymphomatoid granulomatosis (Lymphomatoid granulomatosis)
C0024307 (UMLS CUI-1)
CL Item
Primary mediastinal (thymic) large B-cell lymphoma (Primary mediastinal (thymic) large B-cell lymphoma)
C1292754 (UMLS CUI-1)
CL Item
Intravascular large B-cell lymphoma (Intravascular large B-cell lymphoma)
C0334660 (UMLS CUI-1)
CL Item
ALK positive large B-cell lymphoma (ALK positive large B-cell lymphoma)
C1333294 (UMLS CUI-1)
CL Item
Plasmablastic lymphoma (Plasmablastic lymphoma)
C3472614 (UMLS CUI-1)
CL Item
Large B-cell lymphoma arising in HHV8- associated multicentric Castleman disease (Large B-cell lymphoma arising in HHV8- associated multicentric Castleman disease)
C3472615 (UMLS CUI-1)
CL Item
Primary effusion lymphoma (PEL) (Primary effusion lymphoma (PEL))
C1292753 (UMLS CUI-1)
CL Item
Burkitt lymphoma (BL) (Burkitt lymphoma (BL))
C0006413 (UMLS CUI-1)
CL Item
B-cell lymphoma, unclassifiable, with features intermediate between diffuse large B-cell lymphoma and Burkitt lymphoma (Intermediate DLCBL/BL) (B-cell lymphoma, unclassifiable, with features intermediate between diffuse large B-cell lymphoma and Burkitt lymphoma (Intermediate DLCBL/BL))
C2698294 (UMLS CUI-1)
CL Item
B-cell lymphoma, unclassifiable, with features intermediate between diffuse large B-cell lymphoma and classical Hodgkin lymphoma (Intermediate DLCBL/HD) (B-cell lymphoma, unclassifiable, with features intermediate between diffuse large B-cell lymphoma and classical Hodgkin lymphoma (Intermediate DLCBL/HD))
C1333878 (UMLS CUI-1)
CL Item
Other B-cell (Other B-cell)
C1868683 (UMLS CUI-1)
Item
Follicular lymphoma
integer
C0024301 (UMLS CUI [1])
Code List
Follicular lymphoma
CL Item
Grade I  (1)
CL Item
Grade II  (2)
CL Item
Grade III  (3)
CL Item
Not evaluated (4)
Item
Mature T-cell & NK-cell Neoplasms
integer
C1334640 (UMLS CUI [1])
Code List
Mature T-cell & NK-cell Neoplasms
CL Item
T-cell large granular lymphocytic leukaemia (1)
CL Item
Aggressive NK-cell leukaemia (2)
CL Item
Systemic EBV positive T-cell lymphoproliferative disease of childhood (3)
CL Item
Hydroa vacciniforme-like lymphoma (4)
CL Item
Adult T-cell leukaemia/lymphoma (5)
CL Item
Extranodal NK/T-cell lymphoma, nasal type (6)
CL Item
Enteropathy-associated T-cell lymphoma (7)
CL Item
Hepatosplenic T-cell lymphoma (8)
CL Item
Subcutaneous panniculitis-like T-cell lymphoma (9)
CL Item
Mycosis fungoides (MF) (10)
CL Item
Sézary syndrome (11)
CL Item
Lymphomatoid papulosis (12)
CL Item
Primary cutaneous anaplastic large cell lymphoma (13)
CL Item
Primary cutaneous gamma-delta T-cell lymphoma (14)
CL Item
Primary cutaneous CD8 positive aggressive epidermotropic cytotoxic T-cell lymphoma (15)
CL Item
Primary cutaneous CD4 positive small/medium T-cell lymphoma (16)
CL Item
Peripheral T-cell lymphoma, NOS (PTCL) (17)
CL Item
Angioimmunoblastic T-cell lymphoma (18)
CL Item
Anaplastic large-cell lymphoma (ALCL), ALK-positive (19)
CL Item
Anaplastic large-cell lymphoma (ALCL), ALK-negative (20)
CL Item
Other T-cell (21)
CL Item
Hodgkin (22)
Item
Hodgkin
integer
C0019829 (UMLS CUI [1])
Code List
Hodgkin
CL Item
Nodular lymphocyte predominant (1)
CL Item
Classical predominant  (2)
CL Item
Lymphocyte rich  (3)
CL Item
Nodular sclerosis (4)
CL Item
Mixed cellularity (5)
CL Item
Lymphocyte depleted (6)
CL Item
Other (7)
Date of HSCT
Item
Date of this HSCT
date
C0472699 (UMLS CUI [1,1])
C2584899 (UMLS CUI [1,2])
Item
STATUS HSCT
integer
C0449438 (UMLS CUI [1,1])
C0011900 (UMLS CUI [1,2])
Code List
STATUS HSCT
CL Item
Never treated (Never treated)
CL Item
Primary refractory (Primary refractory)
CL Item
Complete remission (CR) (Complete remission (CR))
CL Item
Confirmed  (Confirmed )
CL Item
Unconfirmed (CRU*) (Unconfirmed (CRU*))
CL Item
1st Partial response (PR1) (1st Partial response (PR1))
CL Item
Partial response>1 (never in CR) (PR>1) (Partial response>1 (never in CR) (PR>1))
CL Item
Relapse (Relapse)
CL Item
Progression (Progression)
Item
NUMBER
integer
C0449788 (UMLS CUI [1])
Code List
NUMBER
CL Item
1st (1)
CL Item
2nd (2)
CL Item
3nd or higher (3)
Item
SENSITIVITY TO CHEMOTHERAPY
integer
C2363824 (UMLS CUI [1])
Code List
SENSITIVITY TO CHEMOTHERAPY
CL Item
Sensitive (Sensitive)
CL Item
Resistan (Resistan)
CL Item
Untreated (Untreated)
CL Item
Unknown (Unknown)
Item Group
HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 4
EBMT Centre Identification Code
Item
EBMT Centre Identification Code (CIC)
integer
C2348585 (UMLS CUI [1])
Hospital Unique Patient Number
Item
Hospital Unique Patient Number/Code
integer
C2348585 (UMLS CUI [1])
Date of initial diagnosis
Item
Date of initial diagnosis
date
C2316983 (UMLS CUI [1])
Item
WHO Classification at diagnosis
integer
C1301142 (UMLS CUI [1])
Code List
WHO Classification at diagnosis
CL Item
Refractory anaemia (without ring sideroblasts) RA (Refractory anaemia (without ring sideroblasts) RA)
CL Item
RA with ring sideroblasts (RARS) (RA with ring sideroblasts (RARS))
CL Item
MDS associated with isolated del(5q) (MDS associated with isolated del(5q))
CL Item
Refractory cytopenia with multilineage dysplasia (RCMD) (Refractory cytopenia with multilineage dysplasia (RCMD))
CL Item
RCMD with ringed sideroblasts (RCMD-RS) (RCMD with ringed sideroblasts (RCMD-RS))
CL Item
RA with excess of blasts-1 (RAEB-1) (RA with excess of blasts-1 (RAEB-1))
CL Item
RA with excess of blasts-2 (RAEB-2) (RA with excess of blasts-2 (RAEB-2))
CL Item
MDS Unclassifiable (MDS-U) (MDS Unclassifiable (MDS-U))
CL Item
Childhood myelodysplastic syndrome (Childhood myelodysplastic syndrome)
Item
FAB Classification at diagnosis
integer
C2984084 (UMLS CUI [1])
Code List
FAB Classification at diagnosis
CL Item
RA (1)
CL Item
RARS (2)
CL Item
RAEB (3)
CL Item
RAEB in transformation (RAEB-t) (4)
CL Item
Unclassified (5)
Item
Status at HSCT Treated with chemotherapy
integer
Code List
Status at HSCT Treated with chemotherapy
CL Item
Primary refractory phase (no change) (1)
CL Item
Complete remission (CR) (2)
CL Item
Improvement but no CR (3)
CL Item
Relapse (after CR) (4)
CL Item
Progression/worse (5)
CL Item
Never treated (Supportive care or treatment without chemotherapy) (6)
Item
NUMBER (complete for CR or relapse)
text
Code List
NUMBER (complete for CR or relapse)
CL Item
1st (1st)
CL Item
2nd (2nd)
CL Item
3rd or higher (3rd or higher)
Item Group
HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 5
EBMT Centre Identification Code (CIC)
Item
EBMT Centre Identification Code (CIC)
text
C2348585 (UMLS CUI [1])
Hospital Unique Patient Number/Code
Item
Hospital Unique Patient Number/Code
integer
C2348585 (UMLS CUI [1])
Date of Initial Diagnosis
Item
Date of Initial Diagnosis
date
C2316983 (UMLS CUI [1])
Item
Classification at diagnosis
integer
C0008902 (UMLS CUI [1])
Code List
Classification at diagnosis
CL Item
Chronic myelomonocytic leukaemia (CMMoL, CMML) (1)
CL Item
Juvenile myelomonocytic leukaemia (JCMMoL, JMML, JCML, JCMML) (2)
CL Item
Atypical CML ((t(9;22) negative and bcr/abl negative) (3)
Item
Classification at HSCT
integer
C0008902 (UMLS CUI [1])
Code List
Classification at HSCT
CL Item
Chronic myelomonocytic leukaemia (CMMoL, CMML) (1)
CL Item
Juvenile myelomonocytic leukaemia (JCMMoL, JMML, JCML, JCMML) (2)
CL Item
Atypical CML ((t(9;22) negative and bcr/abl negative) (3)
CL Item
Transformed to AML: Date of transformation (4)
Date of this HSCT
Item
Date of this HSCT
date
C2584899 (UMLS CUI [1])
Item
CMML (including Transformed to AML) / Atypical CML Status at HSCT
integer
C0392920 (UMLS CUI [1])
Code List
CMML (including Transformed to AML) / Atypical CML Status at HSCT
CL Item
Primary refractory phase (no change) (1)
CL Item
Complete remission (CR) (2)
CL Item
Improvement but no CR (3)
CL Item
Relapse (after CR) (4)
CL Item
Progression/worse (5)
Item
NUMBER (complete for CR or relapse)
integer
C0449788 (UMLS CUI [1])
Code List
NUMBER (complete for CR or relapse)
CL Item
1st (1st)
CL Item
2nd (2nd)
CL Item
3rd or higher (3rd or higher)
Item
jMML
integer
C0349639 (UMLS CUI [1])
Code List
jMML
CL Item
Stable disease (SD) (1)
CL Item
Complete response (CR) (2)
CL Item
Minimal response (MR) (3)
CL Item
Partial response (PR) (4)
CL Item
Progression (PD) (5)
Item Group
HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 6
EBMT Centre Identification Code (CIC)
Item
EBMT Centre Identification Code (CIC)
integer
C2348585 (UMLS CUI [1,1])
C3826859 (UMLS CUI [1,2])
Hospital Unique Patient Number/Code
Item
Hospital Unique Patient Number/Code
integer
C2348585 (UMLS CUI [1])
Date of initial diagnosis
Item
Date of initial diagnosis
date
C2316983 (UMLS CUI [1])
Item
Classification at diagnosis
integer
C0008902 (UMLS CUI [1])
Code List
Classification at diagnosis
CL Item
Chronic idiopathic myelofibrosis (primary myelofibrosis, fibrosis with myeloid metaplasia) (1)
CL Item
Polycythaemia vera (2)
CL Item
Essential or primary thrombocythaemia (3)
CL Item
Hyper eosinophilic syndrome (HES) (4)
CL Item
Chronic eosinophilic leukaemia (CEL) (5)
CL Item
Chronic neutrophilic leukaemia (6)
CL Item
Stem cell leukaemia-lymphoma syndrome (8p11 syndrome) (7)
CL Item
Systemic mastocytosis (8)
CL Item
MPS not otherwise specified (9)
CL Item
Other (10)
Item
Secondary origin (other than transformed to AML)
integer
C0277555 (UMLS CUI [1])
Code List
Secondary origin (other than transformed to AML)
CL Item
Yes: Disease related to prior exposure to therapeutic drugs or radiation (1)
CL Item
No (2)
CL Item
Unknown (3)
Date of this HSCT
Item
Date of this HSCT
date
C2584899 (UMLS CUI [1])
Item
Classification at HSCT
integer
C0008902 (UMLS CUI [1])
Code List
Classification at HSCT
CL Item
Chronic idiopathic myelofibrosis (primary myelofibrosis, fibrosis with myeloid metaplasia) (1)
CL Item
Polycythaemia vera (2)
CL Item
Essential or primary thrombocythaemia (3)
CL Item
Hyper eosinophilic syndrome (HES) (4)
CL Item
Chronic eosinophilic leukaemia (CEL) (5)
CL Item
Chronic neutrophilic leukaemia (6)
CL Item
Stem cell leukaemia-lymphoma syndrome (8p11 syndrome) (7)
CL Item
Myelofibrosis transformed from Polycythaemia vera/ Essential thrombocythaemia (8)
CL Item
Transformed to AML (9)
CL Item
MPS not otherwise specified (10)
CL Item
Other (11)
Item
Status at HSCT
integer
C0449438 (UMLS CUI [1,1])
C0011900 (UMLS CUI [1,2])
Code List
Status at HSCT
CL Item
Primary refractory phase (no change) (Primary refractory phase (no change))
CL Item
Complete remission (CR) (Complete remission (CR))
CL Item
Improvement but no CR (Improvement but no CR)
CL Item
Relapse (after CR) (Relapse (after CR))
CL Item
Progression/worse (Progression/worse)
CL Item
Never treated (Supportive care or treatment without chemotherapy) (Never treated (Supportive care or treatment without chemotherapy))
Number
Item
Consecutive number
integer
C0750480 (UMLS CUI [1])
Item Group
HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 7
EBMT Centre Identification Code (CIC)
Item
EBMT Centre Identification Code (CIC)
text
C2348585 (UMLS CUI [1])
Hospital Unique Patient Number/Code
Item
Hospital Unique Patient Number/Code
integer
C2348585 (UMLS CUI [1])
Date of Initial Diagnosis
Item
Date of Initial Diagnosis
date
Item
Classification
integer
Code List
Classification
CL Item
Multiple myeloma IgG (1)
CL Item
Multiple myeloma IgA (2)
CL Item
Multiple myeloma IgD (3)
CL Item
Multiple myeloma IgE (4)
CL Item
Multiple myeloma IgM (not Waldenstrom) (5)
CL Item
Multiple myeloma-light chain only (6)
CL Item
Multiple myeloma-non-secretory (7)
CL Item
Plasma cell leukaemia (8)
CL Item
Solitary plasmacytoma (9)
CL Item
Primary amyloidosis (10)
CL Item
POEMS (11)
CL Item
Monoclonal light and heavy chain deposition disease (LCDD/HCDD) (12)
CL Item
Other (13)
Item
LIGHT CHAIN TYPE
text
Code List
LIGHT CHAIN TYPE
CL Item
Kappa (Kappa)
CL Item
Lambda (Lambda)
Item
SALMON & DURIE STAGE AT DIAGNOSIS (Multiple Myeloma only)
integer
Code List
SALMON & DURIE STAGE AT DIAGNOSIS (Multiple Myeloma only)
CL Item
I (I)
CL Item
II (II)
CL Item
III (III)
CL Item
A (A)
CL Item
B (B)
Date of this HSCT
Item
Date of this HSCT
date
Item
Status at HSCT
text
Code List
Status at HSCT
CL Item
Never treated (Never treated)
CL Item
Stringent complete remission (sCR) (Stringent complete remission (sCR))
C4050416 (UMLS CUI-1)
CL Item
Complete remission (CR) (Complete remission (CR))
C0677874 (UMLS CUI-1)
CL Item
Very good partial remission (VGPR) (Very good partial remission (VGPR))
C4053871 (UMLS CUI-1)
CL Item
Partial remission (PR) (Partial remission (PR))
C1521726 (UMLS CUI-1)
CL Item
Relapse from cr (Relapse from CR (untreated))
C0035020 (UMLS CUI-1)
CL Item
Progression (Progression)
C0242656 (UMLS CUI-1)
CL Item
stable disease (No change / stable disease)
C0677946 (UMLS CUI-1)
Item
NUMBER (complete for sCR, CR,VGPR, PR or relapse)
integer
Code List
NUMBER (complete for sCR, CR,VGPR, PR or relapse)
CL Item
I (I)
CL Item
II (II)
CL Item
III (III)
CL Item
A (A)
CL Item
B (B)
Item Group
BONE MARROW FAILURE SYNDROMES including APLASTIC ANAEMIA (main disease code 7)ISMC
Item
Classification
integer
Code List
Classification
CL Item
Acquired Severe Aplastic Anaemia (SAA) (1)
CL Item
Amegakaryocytosis, acquired (not congenital) (2)
CL Item
Acquired Pure Red Cell Aplasia (PRCA) (not congenital) (3)
CL Item
Paroxysmal nocturnal haemoglobinuria (PNH) (4)
CL Item
Other acquired cytopenic syndrome (5)
Item
Acquired Severe Aplastic Anaemia (SAA)
integer
C0002874 (UMLS CUI [1])
Code List
Acquired Severe Aplastic Anaemia (SAA)
CL Item
Secondary to hepatitis (1)
CL Item
Secondary to toxin/other drug (2)
CL Item
Idiopathic (3)
CL Item
Other (4)
Item
Congenital
integer
C0009678 (UMLS CUI [1])
Code List
Congenital
CL Item
Amegakaryocytosis / thrombocytopenia (1)
CL Item
Fanconi anaemia (2)
CL Item
Diamond-Blackfan anaemia (congenital PRCA) (3)
CL Item
Shwachman-Diamond Syndrome (4)
CL Item
Other congenital anaemia (5)
Congenital
Item
Congenital: if other, please specify
integer
C0009678 (UMLS CUI [1])
Date of HSCT
Item
Date of this HSCT
date
C0472699 (UMLS CUI [1,1])
C2584899 (UMLS CUI [1,2])
Item
HAEMOGLOBINOPATHY Classification
integer
C0019045 (UMLS CUI [1,1])
C0008902 (UMLS CUI [1,2])
Code List
HAEMOGLOBINOPATHY Classification
CL Item
Thalassaemia (Thalassaemia)
CL Item
Sickle cell disease (Sickle cell disease)
CL Item
Other haemoglobinopathy (Other haemoglobinopathy)
Item Group
HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 8
EBMT Centre Identification Code (CIC)
Item
EBMT Centre Identification Code (CIC)
text
C2348585 (UMLS CUI [1])
Hospital Unique Patient Number/Code
Item
Hospital Unique Patient Number/Code
integer
C2348585 (UMLS CUI [1])
Date of initial diagnosis
Item
Date of initial diagnosis
date
C2316983 (UMLS CUI [1])
Item
Staging at Diagnosis METASTASES
integer
C0699749 (UMLS CUI [1])
Code List
Staging at Diagnosis METASTASES
CL Item
No distant metastases (No distant metastases)
CL Item
Distant metastasis (Distant metastasis)
Item
STAGE
integer
C1300072 (UMLS CUI [1])
Code List
STAGE
CL Item
O (1)
CL Item
I (2)
CL Item
II (3)
CL Item
III (4)
Item
CLASSIFICATION
integer
C0008902 (UMLS CUI [1])
Code List
CLASSIFICATION
CL Item
Inflammatory (1)
CL Item
Non-inflammatory (2)
Date of HSCT
Item
Date of this HSCT
date
C0472699 (UMLS CUI [1,1])
C2584899 (UMLS CUI [1,2])
Item
Status at HSCT
integer
C0449438 (UMLS CUI [1])
Code List
Status at HSCT
CL Item
Adjuvant (Stage II, III only) (1)
CL Item
Never treated (upfront) (2)
CL Item
Primary refractory (3)
CL Item
Complete remission (CR) (4)
CL Item
1st Partial response (PR1) (5)
CL Item
Relapse (6)
Item
Complete remission (CR)
integer
C0677874 (UMLS CUI [1])
Code List
Complete remission (CR)
CL Item
Confirmed (1)
CL Item
Unconfirmed (CRU*) (2)
CL Item
Unknown (3)
Item
Relapse
integer
C0277556 (UMLS CUI [1])
Code List
Relapse
CL Item
Local (1)
CL Item
Metastatic (2)
Item
OTHER MALIGNANCIES (main disease code 5)
text
C0006826 (UMLS CUI [1])
Code List
OTHER MALIGNANCIES (main disease code 5)
CL Item
Bone sarcoma (excluding Ewing sarcoma/PNET) (Bone sarcoma (excluding Ewing sarcoma/PNET))
CL Item
Central nervous system tumours (include CNS PNET) (Central nervous system tumours (include CNS PNET))
CL Item
Colorecta (Colorecta)
CL Item
Ewing sarcoma/PNET, extra-skeletal (Ewing sarcoma/PNET, extra-skeletal)
CL Item
Ewing sarcoma/PNET, skeletal (Ewing sarcoma/PNET, skeletal)
CL Item
Germ cell tumour, extragonadal only (Germ cell tumour, extragonadal only)
CL Item
Hepatobiliary (Hepatobiliary)
CL Item
Lung cancer, non-small cell (Lung cancer, non-small cell)
CL Item
Lung cancer, small cell (Lung cancer, small cell)
CL Item
Medulloblastoma (Medulloblastoma)
CL Item
Melanoma (Melanoma)
CL Item
Neuroblastoma (Neuroblastoma)
CL Item
Ovarian (Ovarian)
CL Item
Pancreas (Pancreas)
CL Item
Prostate (Prostate)
CL Item
Renal cell (Renal cell)
CL Item
Retinoblastoma (Retinoblastoma)
CL Item
Rhabdomyosarcoma (Rhabdomyosarcoma)
CL Item
Soft tissue sarcoma (Soft tissue sarcoma)
CL Item
Testicular (Testicular)
CL Item
Thymoma (Thymoma)
CL Item
Wilm tumour (Wilm tumour)
CL Item
Other (Other)
Date of this HSCT
Item
Date of this HSCT
date
Item
Status at HSCT
text
C0449438 (UMLS CUI [1,1])
C0011900 (UMLS CUI [1,2])
Code List
Status at HSCT
CL Item
Adjuvant (Adjuvant)
C1298675 (UMLS CUI-1)
CL Item
Never treated (upfront) (Never treated (upfront))
CL Item
Stable disease  (Stable disease/no response)
C0677946 (UMLS CUI-1)
CL Item
Complete remission (CR) (Complete remission (CR))
C0677874 (UMLS CUI-1)
CL Item
Partial response  (1st Partial response (PR1))
C1521726 (UMLS CUI-1)
CL Item
Relapse (Relapse)
C0277556 (UMLS CUI-1)
CL Item
Progressive disease  (Progressive disease (PD))
C1335499 (UMLS CUI-1)
Item
Complete remission (CR)
integer
C0677874 (UMLS CUI [1])
Code List
Complete remission (CR)
CL Item
Confirmed (1)
CL Item
Unconfirmed (CRU complete response with persistent scan abnormalities of unknown significance) (2)
Item
SENSITIVITY TO CHEMOTHERAPY
integer
C2363824 (UMLS CUI [1])
Code List
SENSITIVITY TO CHEMOTHERAPY
CL Item
Sensitive (1)
CL Item
Resistant (2)
CL Item
Untreated (3)
Item Group
HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 9
EBMT Centre Identification Code (CIC)
Item
EBMT Centre Identification Code (CIC)
text
C2348585 (UMLS CUI [1])
Hospital Unique Patient Number/Code
Item
Hospital Unique Patient Number/Code
integer
C2348585 (UMLS CUI [1])
Date of Initial Diagnosis
Item
Date of Initial Diagnosis
date
C2316983 (UMLS CUI [1])
Item
Classification PRIMARY IMMUNE DEFICIENCIES
integer
C0008902 (UMLS CUI [1])
Code List
Classification PRIMARY IMMUNE DEFICIENCIES
CL Item
Absence of T and B cells SCID (1)
CL Item
Kostmann syndrome-congenital neutropenia (2)
CL Item
Absence of T, normal B cell SCID (3)
CL Item
Leukocyte adhesion deficiencies (4)
CL Item
ADA deficiency (Adenosine deaminase deficiency)  (5)
CL Item
Neutrophil actin deficiency (6)
CL Item
Ataxia telangiectasia (7)
CL Item
Omenn syndrome (8)
CL Item
Bare lymphocyte syndrome  (9)
CL Item
PNP deficiency Purine nucleoside phosphorylase deficiency) (10)
CL Item
Cartilage hair hypoplasiaVD (11)
CL Item
Reticular dysgenesis (12)
CL Item
CD 40 Ligand deficiency (13)
CL Item
SCID other (14)
CL Item
Chediak-Higashi syndrome (15)
CL Item
SCID, unspecified (16)
CL Item
Chronic granulomatous disease (17)
CL Item
Wiskott Aldrich syndrome (18)
CL Item
Common variable immunodeficiency (19)
CL Item
X-linked lymphoproliferative syndrome (20)
CL Item
DiGeorge anomaly (21)
CL Item
Other (22)
CL Item
Immune deficiencies, not otherwise specified (23)
Date of HSCT
Item
Date of this HSCT
date
C2584899 (UMLS CUI [1])
Item
INHERITED DISORDERS OF METABOLISM
integer
C0271824 (UMLS CUI [1])
CL Item
Adrenoleukodystrophy (1)
C0162309 (UMLS CUI-1)
CL Item
Metachromatic leukodystrophy (2)
C0023522 (UMLS CUI-1)
CL Item
Aspartyl glucosaminuria (3)
C0268225 (UMLS CUI-1)
CL Item
Morquio (IV) (4)
C0026707 (UMLS CUI-1)
CL Item
B-glucuronidase deficiency (VII) (5)
C0085132 (UMLS CUI-1)
CL Item
Mucolipidoses (6)
C0026697 (UMLS CUI-1)
CL Item
Fucosidosis (7)
C0016788 (UMLS CUI-1)
CL Item
Mucopolysaccharidosis (V) (8)
C0026708 (UMLS CUI-1)
CL Item
Gaucher disease  (9)
C0017205 (UMLS CUI-1)
CL Item
Mucopolysaccharidosis (10)
C0026703 (UMLS CUI-1)
CL Item
Glucose storage disease (11)
C1257958 (UMLS CUI-1)
CL Item
Niemann-Pick disease (Type A,B) (12)
C3169377 (UMLS CUI-1)
CL Item
Hunter syndrome (II) (13)
C0026705 (UMLS CUI-1)
CL Item
Niemann-Pick disease (Type C,D,E) (14)
C0220756 (UMLS CUI-1)
CL Item
Hurler syndrome (IH) (15)
C0342841 (UMLS CUI-1)
CL Item
Neuronal ceroid – lipofuscinosis (Batten disease) (16)
C0022340 (UMLS CUI-1)
CL Item
T-cell disease (17)
C0023492 (UMLS CUI-1)
CL Item
Polysaccharide hydrolase abnormalities, unspecified  (18)
C3274708 (UMLS CUI-1)
CL Item
Krabbe disease (globoid leukodystrophy) (19)
C0023521 (UMLS CUI-1)
CL Item
Sanfilippo (III) (20)
C4016924 (UMLS CUI-1)
CL Item
Lesch-Nyhan (HGPRT deficiency) (21)
C0023374 (UMLS CUI-1)
CL Item
Scheie syndrome (IS) (22)
C0086431 (UMLS CUI-1)
CL Item
Mannosidosis (23)
C1257960 (UMLS CUI-1)
CL Item
Wolman disease (24)
C0043208 (UMLS CUI-1)
CL Item
Maroteaux-Lamy (VI) (25)
C0026709 (UMLS CUI-1)
CL Item
Other (26)
C0205394 (UMLS CUI-1)
CL Item
Inherited disorders of metabolism, not otherwise specified (27)
C0025517 (UMLS CUI-1)
Date of HSCT
Item
Date of this HSCT
date
C0472699 (UMLS CUI [1,1])
C2584899 (UMLS CUI [1,2])
Item
INHERITED DISORDERS OF METABOLISM
integer
C0025517 (UMLS CUI [1])
Code List
INHERITED DISORDERS OF METABOLISM
CL Item
Adrenoleukodystrophy (Adrenoleukodystrophy)
C0162309 (UMLS CUI-1)
CL Item
Metachromatic leukodystrophy (Metachromatic leukodystrophy)
C0023522 (UMLS CUI-1)
CL Item
Aspartyl glucosaminuria (Aspartyl glucosaminuria)
C0268225 (UMLS CUI-1)
CL Item
Morquio (IV) (Morquio (IV))
C0026707 (UMLS CUI-1)
CL Item
B-glucuronidase deficiency (VII) (B-glucuronidase deficiency (VII))
C0085132 (UMLS CUI-1)
CL Item
Mucolipidoses, unspecified (Mucolipidoses, unspecified)
C0026697 (UMLS CUI-1)
CL Item
Fucosidosis (Fucosidosis)
C0016788 (UMLS CUI-1)
CL Item
Mucopolysaccharidosis (V) (Mucopolysaccharidosis (V))
C0026708 (UMLS CUI-1)
CL Item
Gaucher disease  (Gaucher disease )
C0017205 (UMLS CUI-1)
CL Item
Mucopolysaccharidosis (Mucopolysaccharidosis, unspecified)
C0026703 (UMLS CUI-1)
CL Item
Glucose storage disease (Glucose storage disease)
C1257958 (UMLS CUI-1)
CL Item
Niemann-Pick disease (Niemann-Pick disease (Type A,B))
C3169377 (UMLS CUI-1)
CL Item
Hunter syndrome (II) (Hunter syndrome (II))
C0026705 (UMLS CUI-1)
CL Item
Niemann-Pick disease (Type C,D,E) (Niemann-Pick disease (Type C,D,E))
C0220756 (UMLS CUI-1)
CL Item
Hurler syndrome (IH) (Hurler syndrome (IH))
C0342841 (UMLS CUI-1)
CL Item
I-cell disease (I-cell disease)
C0020725 (UMLS CUI-1)
CL Item
Polysaccharide hydrolase abnormalities, unspecified (Polysaccharide hydrolase abnormalities, unspecified)
C3274708 (UMLS CUI-1)
CL Item
Krabbe disease (globoid leukodystrophy) (Krabbe disease (globoid leukodystrophy))
C0023521 (UMLS CUI-1)
CL Item
Sanfilippo (III) (Sanfilippo (III))
C4016924 (UMLS CUI-1)
CL Item
Lesch-Nyhan (HGPRT deficiency) (Lesch-Nyhan (HGPRT deficiency))
C0023374 (UMLS CUI-1)
CL Item
Scheie syndrome (IS) (Scheie syndrome (IS))
C0086431 (UMLS CUI-1)
CL Item
Mannosidosis (Mannosidosis)
C1257960 (UMLS CUI-1)
CL Item
Wolman disease (Wolman disease)
C0043208 (UMLS CUI-1)
CL Item
Maroteaux-Lamy (VI) (Maroteaux-Lamy (VI))
C0026709 (UMLS CUI-1)
CL Item
Other (Other)
C0205394 (UMLS CUI-1)
CL Item
Inherited disorders of metabolism, not otherwise specified (Inherited disorders of metabolism, not otherwise specified)
C0268605 (UMLS CUI-1)
CL Item
Neuronal ceroid – lipofuscinosis (Batten disease) (Neuronal ceroid – lipofuscinosis (Batten disease))
Date of HSCT
Item
Date of this HSCT
date
C2584899 (UMLS CUI [1])
Item
PLATELET and OTHER INHERITED DISORDERS
integer
C0005818 (UMLS CUI [1])
Code List
PLATELET and OTHER INHERITED DISORDERS
CL Item
Glanzmann thrombasthenia (1)
C1861195 (UMLS CUI-1)
CL Item
Other inherited platelet abnormalities (2)
C0151854 (UMLS CUI-1)
CL Item
Osteopetrosis (malignant infantile osteopetrosis) (3)
C1318518 (UMLS CUI-1)
CL Item
Other osteoclast defects (4)
C0029431 (UMLS CUI-1)
Date of HSCT
Item
Date of this HSCT
date
C0472699 (UMLS CUI [1,1])
C2584899 (UMLS CUI [1,2])
Item
HISTIOCYTIC DISORDERS Classification
integer
C0398597 (UMLS CUI [1,1])
C0008902 (UMLS CUI [1,2])
Code List
HISTIOCYTIC DISORDERS Classification
CL Item
Histiocytic disorders (Histiocytic disorders, not otherwise specified )
C0019613 (UMLS CUI-1)
CL Item
Familial erythro/haemophagocytic lymphohistiocytosis (FELH)  (Familial erythro/haemophagocytic lymphohistiocytosis (FELH) )
C0024291 (UMLS CUI-1)
CL Item
Malignant histiocytosis HISTIOCY  (Malignant histiocytosis HISTIOCY )
C0019623 (UMLS CUI-1)
CL Item
Other (Other)
C0205394 (UMLS CUI-1)
CL Item
Langerhans Cell Histiocytosis (Histiocytosis-X)  Haemophagocytosis (reactive or viral associated)  (Langerhans Cell Histiocytosis (Histiocytosis-X)  Haemophagocytosis (reactive or viral associated) )
Date of HSCT
Item
Date of this HSCT
date
C2584899 (UMLS CUI [1])
Item Group
HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 10
EBMT Centre Identification Code (CIC)
Item
EBMT Centre Identification Code (CIC)
integer
C2348585 (UMLS CUI [1,1])
C3826859 (UMLS CUI [1,2])
Hospital Unique Patient Number/Code
Item
Hospital Unique Patient Number/Code
integer
C2348585 (UMLS CUI [1])
Date of initial diagnosis
Item
Date of initial diagnosis
date
C2316983 (UMLS CUI [1])
Physician
Item
Name of Referring Physician
integer
C1709880 (UMLS CUI [1])
Address
Item
Address
integer
C0421449 (UMLS CUI [1])
Fax
Item
Fax
integer
C1549619 (UMLS CUI [1])
Email
Item
Email
integer
C0013849 (UMLS CUI [1])
Item
Classification CONNECTIVE TISSUE DISEASE
integer
C0009782 (UMLS CUI [1,1])
C0008902 (UMLS CUI [1,2])
Code List
Classification CONNECTIVE TISSUE DISEASE
CL Item
Systemic sclerosis (1)
C0036421 (UMLS CUI-1)
CL Item
Systemic lupus erythematosus (2)
C0024141 (UMLS CUI-1)
Date of HSCT
Item
Date of this HSCT
date
C2584899 (UMLS CUI [1])
Item
Clinical problem
integer
C0877248 (UMLS CUI [1])
Code List
Clinical problem
CL Item
diffuse cutaneous (1)
C0024901 (UMLS CUI-1)
CL Item
limited cutaneous (2)
C0748540 (UMLS CUI-1)
CL Item
lung parenchyma (3)
C0819757 (UMLS CUI-1)
CL Item
pulmonary hypertension (4)
C0020542 (UMLS CUI-1)
CL Item
systemic hypertension (5)
C0020538 (UMLS CUI-1)
CL Item
renal  (6)
C0022646 (UMLS CUI-1)
CL Item
oesophagus (7)
C0014876 (UMLS CUI-1)
CL Item
GI tract (8)
C0017189 (UMLS CUI-1)
CL Item
Raynaud (9)
C0034734 (UMLS CUI-1)
CL Item
CREST (10)
C0206138 (UMLS CUI-1)
Item
Indication for HSCT
integer
C3146298 (UMLS CUI [1,1])
C0472699 (UMLS CUI [1,2])
Code List
Indication for HSCT
CL Item
diffuse cutaneous (1)
CL Item
limited cutaneous (2)
CL Item
lung parenchyma (3)
CL Item
pulmonary hypertension (4)
CL Item
systemic hypertension (5)
CL Item
renal (6)
CL Item
oesophagus (7)
CL Item
GI tract (8)
CL Item
Raynaud (9)
CL Item
CREST (10)
Item
Antibodies studied
integer
Code List
Antibodies studied
CL Item
No (1)
CL Item
Yes (2)
CL Item
Unknown (3)
Item
Scl 70 positive
integer
C0587788 (UMLS CUI [1])
Code List
Scl 70 positive
CL Item
Normal (Normal/Negative )
C0205307 (UMLS CUI-1)
CL Item
Elevated (Elevated/Positive )
CL Item
Not evaluated (Not evaluated)
C3846720 (UMLS CUI-1)
Item
ACA positive
integer
C0162596 (UMLS CUI [1])
Code List
ACA positive
CL Item
Normal/Negative  (1)
CL Item
Elevated/Positive  (2)
CL Item
Not evaluated (3)
Date of HSCT
Item
Date of this HSCT
date
C0472699 (UMLS CUI [1,1])
C2584899 (UMLS CUI [1,2])
renal
Item
renal (biopsy type)
integer
C0022646 (UMLS CUI [1])
Item
CNS
integer
C3714787 (UMLS CUI [1])
Code List
CNS
CL Item
type (1)
CL Item
Presence  (2)
CL Item
Indication for HSCT (3)
Item
PNS
integer
C0206417 (UMLS CUI [1])
Code List
PNS
CL Item
type (1)
CL Item
Presence  (2)
CL Item
Indication for HSCT (3)
Item
lung
integer
C0024109 (UMLS CUI [1])
Code List
lung
CL Item
Presence  (1)
CL Item
Indication for HSCT (2)
Item
serositis
integer
C0036749 (UMLS CUI [1])
Code List
serositis
CL Item
Presence  (1)
CL Item
Indication for HSCT (2)
Item
arthritis
integer
C0003864 (UMLS CUI [1])
Code List
arthritis
CL Item
Presence  (1)
CL Item
Indication for HSCT (2)
Item
skin
integer
C1123023 (UMLS CUI [1])
Code List
skin
CL Item
type (1)
C0332307 (UMLS CUI-1)
CL Item
Presence  (2)
C0150312 (UMLS CUI-1)
CL Item
Indication for HSCT (3)
C0392360 (UMLS CUI-1)
C0472699 (UMLS CUI-2)
Item
haematological
integer
C0018939 (UMLS CUI [1,1])
C0449438 (UMLS CUI [1,2])
Code List
haematological
CL Item
type (1)
CL Item
Presence  (2)
CL Item
Indication for HSCT (3)
Item
vasculitis
integer
C0042384 (UMLS CUI [1])
Code List
vasculitis
CL Item
type (1)
CL Item
Presence  (2)
CL Item
Indication for HSCT (3)
Item
Complement reduced
integer
C0009498 (UMLS CUI [1])
Code List
Complement reduced
CL Item
No (1)
CL Item
Yes (2)
CL Item
Not evaluated (3)
Item
Antibodies studied if yes
integer
C0003241 (UMLS CUI [1])
Code List
Antibodies studied if yes
CL Item
DNA  (DNA )
C0012854 (UMLS CUI-1)
CL Item
Normal (Normal/Negative )
C0205307 (UMLS CUI-1)
CL Item
Elevated (Elevated/Positive )
C3163633 (UMLS CUI-1)
CL Item
Not evaluated (Not evaluated)
C3846720 (UMLS CUI-1)
CL Item
Other (Other)
C0205394 (UMLS CUI-1)

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