ID
17601
Description
ODM form derived from 100days past HSCT EBMT. please refer to: http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Pages/MED-AB-data-collection-forms.aspx HLA typing results of patient and donor should be attached and sent: - to your NATIONAL REGISTRY if - you normally report to your National Registry and - you are based in the Netherlands, Switzerland, Turkey or the UK - to the EBMT REGISTRY OFFICE in London for any other centre Contact: Shelley Hewerdine EBMT Registry Office 4th Floor, Tabard House Guy's Hospital Great Maze Pond London SE1 9RT United Kingdom Phone: 00 44-207-188-8409 Fax: 00 44-207-188-8411 Email: shelley.hewerdine@ebmt.org
Link
Keywords
Versions (1)
- 9/25/16 9/25/16 -
Uploaded on
September 25, 2016
DOI
To request one please log in.
License
Creative Commons BY-NC 3.0
Model comments :
You can comment on the data model here. Via the speech bubbles at the itemgroups and items you can add comments to those specificially.
Itemgroup comments for :
Item comments for :
In order to download data models you must be logged in. Please log in or register for free.
100 days past HSCT EBMT Follow up
100 days past HSCT EBMT
- StudyEvent: ODM
Description
HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 2
Description
EBMT Centre Identification Code
Data type
integer
Alias
- UMLS CUI [1,1]
- C3826859
- UMLS CUI [1,2]
- C1827636
Description
Hospital Unique Patient Number
Data type
integer
Alias
- UMLS CUI [1]
- C2348585
Description
Date of initial diagnosis
Data type
date
Alias
- UMLS CUI [1]
- C2316983
Description
Classification
Description
Translocation (9;22)
Data type
integer
Alias
- UMLS CUI [1]
- C3897138
Description
At least one investigation must be positive:
Data type
integer
Alias
- UMLS CUI [1]
- C1835417
Description
Date of this HSCT
Data type
date
Alias
- UMLS CUI [1]
- C2584899
Description
Status
Data type
integer
Alias
- UMLS CUI [1,1]
- C0449438
- UMLS CUI [1,2]
- C0011900
Description
NUMBER
Data type
integer
Alias
- UMLS CUI [1]
- C0449788
Description
Haematological
Data type
integer
Alias
- UMLS CUI [1]
- C0279810
Description
Cytogenetic (t9;22)
Data type
integer
Alias
- UMLS CUI [1,1]
- C0010802
- UMLS CUI [1,2]
- C3688687
Description
bcr-abl
Data type
integer
Alias
- UMLS CUI [1]
- C1835417
Description
Classification
Description
HSCT - Minimum Essential Data – A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 3
Description
EBMT Centre Identification Code
Data type
integer
Alias
- UMLS CUI [1,1]
- C2348585
- UMLS CUI [1,2]
- C3826859
Description
Hospital Unique Patient Number
Data type
integer
Alias
- UMLS CUI [1]
- C2348585
Description
Date of Initial Diagnosis
Data type
date
Alias
- UMLS CUI [1]
- C2316983
Description
Mature B-cell Neoplasms
Data type
integer
Alias
- UMLS CUI [1]
- C1334633
Description
Follicular lymphoma
Data type
integer
Alias
- UMLS CUI [1]
- C0024301
Description
Mature T-cell & NK-cell Neoplasms
Data type
integer
Alias
- UMLS CUI [1]
- C1334640
Description
Hodgkin
Data type
integer
Alias
- UMLS CUI [1]
- C0019829
Description
Date of HSCT
Data type
date
Alias
- UMLS CUI [1,1]
- C0472699
- UMLS CUI [1,2]
- C2584899
Description
STATUS
Data type
integer
Alias
- UMLS CUI [1,1]
- C0449438
- UMLS CUI [1,2]
- C0011900
Description
complete only for CR, PR>1 or relapse
Data type
integer
Alias
- UMLS CUI [1]
- C0449788
Description
(complete only for relapse)
Data type
integer
Alias
- UMLS CUI [1]
- C2363824
Description
HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 4
Description
EBMT Centre Identification Code
Data type
integer
Alias
- UMLS CUI [1]
- C2348585
Description
Hospital Unique Patient Number
Data type
integer
Alias
- UMLS CUI [1]
- C2348585
Description
Date of initial diagnosis
Data type
date
Alias
- UMLS CUI [1]
- C2316983
Description
WHO Classification at diagnosis
Data type
integer
Alias
- UMLS CUI [1]
- C1301142
Description
FAB Classification
Data type
integer
Alias
- UMLS CUI [1]
- C2984084
Description
Status at HSCT
Data type
integer
Description
NUMBER
Data type
text
Description
HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 5
Description
EBMT Centre Identification Code (CIC)
Data type
text
Alias
- UMLS CUI [1]
- C2348585
Description
Hospital Unique Patient Number/Code
Data type
integer
Alias
- UMLS CUI [1]
- C2348585
Description
Date of Initial Diagnosis
Data type
date
Alias
- UMLS CUI [1]
- C2316983
Description
Classification
Data type
integer
Alias
- UMLS CUI [1]
- C0008902
Description
Classification
Data type
integer
Alias
- UMLS CUI [1]
- C0008902
Description
Date of this HSCT
Data type
date
Alias
- UMLS CUI [1]
- C2584899
Description
chemotherapy
Data type
integer
Alias
- UMLS CUI [1]
- C0392920
Description
NUMBER
Data type
integer
Alias
- UMLS CUI [1]
- C0449788
Description
jMML
Data type
integer
Alias
- UMLS CUI [1]
- C0349639
Description
HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 6
Description
EBMT Centre Identification Code (CIC)
Data type
integer
Alias
- UMLS CUI [1,1]
- C2348585
- UMLS CUI [1,2]
- C3826859
Description
Hospital Unique Patient Number/Code
Data type
integer
Alias
- UMLS CUI [1]
- C2348585
Description
Date of initial diagnosis
Data type
date
Alias
- UMLS CUI [1]
- C2316983
Description
Classification
Data type
integer
Alias
- UMLS CUI [1]
- C0008902
Description
Secondary origin
Data type
integer
Alias
- UMLS CUI [1]
- C0277555
Description
Date of this HSCT
Data type
date
Alias
- UMLS CUI [1]
- C2584899
Description
Classification
Data type
integer
Alias
- UMLS CUI [1]
- C0008902
Description
Treated with chemotherapy
Data type
integer
Alias
- UMLS CUI [1,1]
- C0449438
- UMLS CUI [1,2]
- C0011900
Description
Number
Data type
integer
Alias
- UMLS CUI [1]
- C0750480
Description
HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 7
Description
EBMT Centre Identification Code (CIC)
Data type
text
Alias
- UMLS CUI [1]
- C2348585
Description
Hospital Unique Patient Number/Code
Data type
integer
Alias
- UMLS CUI [1]
- C2348585
Description
Date of Initial Diagnosis
Data type
date
Description
Classification
Data type
integer
Description
LIGHT CHAIN TYPE
Data type
text
Description
SALMON & DURIE STAGE AT DIAGNOSIS
Data type
integer
Description
Date of this HSCT
Data type
date
Description
Status at HSCT
Data type
text
Description
NUMBER (complete for sCR, CR,VGPR, PR or relapse)
Data type
integer
Description
BONE MARROW FAILURE SYNDROMES including APLASTIC ANAEMIA (main disease code 7)ISMC
Description
Classification
Data type
integer
Description
Acquired Severe Aplastic Anaemia
Data type
integer
Alias
- UMLS CUI [1]
- C0002874
Description
Congenital
Data type
integer
Alias
- UMLS CUI [1]
- C0009678
Description
Congenital
Data type
integer
Alias
- UMLS CUI [1]
- C0009678
Description
Date of HSCT
Data type
date
Alias
- UMLS CUI [1,1]
- C0472699
- UMLS CUI [1,2]
- C2584899
Description
HAEMOGLOBINOPATHY Classification
Data type
integer
Alias
- UMLS CUI [1,1]
- C0019045
- UMLS CUI [1,2]
- C0008902
Description
HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 8
Description
EBMT Centre Identification Code (CIC)
Data type
text
Alias
- UMLS CUI [1]
- C2348585
Description
Hospital Unique Patient Number/Code
Data type
integer
Alias
- UMLS CUI [1]
- C2348585
Description
Date of initial diagnosis
Data type
date
Alias
- UMLS CUI [1]
- C2316983
Description
Staging
Data type
integer
Alias
- UMLS CUI [1]
- C0699749
Description
(complete only if No distant metastasis)
Data type
integer
Alias
- UMLS CUI [1]
- C1300072
Description
CLASSIFICATION
Data type
integer
Alias
- UMLS CUI [1]
- C0008902
Description
Date of HSCT
Data type
date
Alias
- UMLS CUI [1,1]
- C0472699
- UMLS CUI [1,2]
- C2584899
Description
Status
Data type
integer
Alias
- UMLS CUI [1]
- C0449438
Description
Complete remission (CR)
Data type
integer
Alias
- UMLS CUI [1]
- C0677874
Description
Relapse
Data type
integer
Alias
- UMLS CUI [1]
- C0277556
Description
Malignant Neoplasms
Data type
text
Alias
- UMLS CUI [1]
- C0006826
Description
Date of this HSCT
Data type
date
Description
Status
Data type
text
Alias
- UMLS CUI [1,1]
- C0449438
- UMLS CUI [1,2]
- C0011900
Description
Complete remission (CR)
Data type
integer
Alias
- UMLS CUI [1]
- C0677874
Description
(complete only for relapse)
Data type
integer
Alias
- UMLS CUI [1]
- C2363824
Description
HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 9
Description
EBMT Centre Identification Code (CIC)
Data type
text
Alias
- UMLS CUI [1]
- C2348585
Description
Hospital Unique Patient Number/Code
Data type
integer
Alias
- UMLS CUI [1]
- C2348585
Description
Date of Initial Diagnosis
Data type
date
Alias
- UMLS CUI [1]
- C2316983
Description
(main disease code 8)
Data type
integer
Alias
- UMLS CUI [1]
- C0008902
Description
Date of HSCT
Data type
date
Alias
- UMLS CUI [1]
- C2584899
Description
(main disease code 8) DISMCLFD INHDIS Classification
Data type
integer
Alias
- UMLS CUI [1]
- C0271824
Description
Date of HSCT
Data type
date
Alias
- UMLS CUI [1,1]
- C0472699
- UMLS CUI [1,2]
- C2584899
Description
INHERITED DISORDERS OF METABOLISM
Data type
integer
Alias
- UMLS CUI [1]
- C0025517
Description
Date of HSCT
Data type
date
Alias
- UMLS CUI [1]
- C2584899
Description
PLATELET and OTHER INHERITED DISORDERS
Data type
integer
Alias
- UMLS CUI [1]
- C0005818
Description
Date of HSCT
Data type
date
Alias
- UMLS CUI [1,1]
- C0472699
- UMLS CUI [1,2]
- C2584899
Description
HISTIOCYTIC DISORDERS Classification
Data type
integer
Alias
- UMLS CUI [1,1]
- C0398597
- UMLS CUI [1,2]
- C0008902
Description
Date of HSCT
Data type
date
Alias
- UMLS CUI [1]
- C2584899
Description
HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 10
Description
EBMT Centre Identification Code (CIC)
Data type
integer
Alias
- UMLS CUI [1,1]
- C2348585
- UMLS CUI [1,2]
- C3826859
Description
Hospital Unique Patient Number/Code
Data type
integer
Alias
- UMLS CUI [1]
- C2348585
Description
Date of initial diagnosis
Data type
date
Alias
- UMLS CUI [1]
- C2316983
Description
Physician
Data type
integer
Alias
- UMLS CUI [1]
- C1709880
Description
Address
Data type
integer
Alias
- UMLS CUI [1]
- C0421449
Description
Fax
Data type
integer
Alias
- UMLS CUI [1]
- C1549619
Description
Data type
integer
Alias
- UMLS CUI [1]
- C0013849
Description
Classification CONNECTIVE TISSUE DISEASE
Data type
integer
Alias
- UMLS CUI [1,1]
- C0009782
- UMLS CUI [1,2]
- C0008902
Description
Date of HSCT
Data type
date
Alias
- UMLS CUI [1]
- C2584899
Description
Clinical problem
Data type
integer
Alias
- UMLS CUI [1]
- C0877248
Description
Indication for HSCT
Data type
integer
Alias
- UMLS CUI [1,1]
- C3146298
- UMLS CUI [1,2]
- C0472699
Description
Antibodies studied
Data type
integer
Description
Scl 70 positive
Data type
integer
Alias
- UMLS CUI [1]
- C0587788
Description
ACA positive
Data type
integer
Alias
- UMLS CUI [1]
- C0162596
Description
Date of HSCT
Data type
date
Alias
- UMLS CUI [1,1]
- C0472699
- UMLS CUI [1,2]
- C2584899
Description
renal
Data type
integer
Alias
- UMLS CUI [1]
- C0022646
Description
CNS
Data type
integer
Alias
- UMLS CUI [1]
- C3714787
Description
PNS
Data type
integer
Alias
- UMLS CUI [1]
- C0206417
Description
lung
Data type
integer
Alias
- UMLS CUI [1]
- C0024109
Description
serositis
Data type
integer
Alias
- UMLS CUI [1]
- C0036749
Description
arthritis
Data type
integer
Alias
- UMLS CUI [1]
- C0003864
Description
skin
Data type
integer
Alias
- UMLS CUI [1]
- C1123023
Description
haematological
Data type
integer
Alias
- UMLS CUI [1,1]
- C0018939
- UMLS CUI [1,2]
- C0449438
Description
vasculitis
Data type
integer
Alias
- UMLS CUI [1]
- C0042384
Description
Complement reduced
Data type
integer
Alias
- UMLS CUI [1]
- C0009498
Description
Antibodies
Data type
integer
Alias
- UMLS CUI [1]
- C0003241
Similar models
100 days past HSCT EBMT
- StudyEvent: ODM
C1518425 (UMLS CUI-2)
C1827636 (UMLS CUI [1,2])
C3688687 (UMLS CUI [1,2])
C3826859 (UMLS CUI [1,2])
C2584899 (UMLS CUI [1,2])
C3826859 (UMLS CUI [1,2])
C2584899 (UMLS CUI [1,2])
C0008902 (UMLS CUI [1,2])
C2584899 (UMLS CUI [1,2])
C2584899 (UMLS CUI [1,2])
C2584899 (UMLS CUI [1,2])
C0008902 (UMLS CUI [1,2])
C3826859 (UMLS CUI [1,2])
C0008902 (UMLS CUI [1,2])
C0472699 (UMLS CUI [1,2])
C2584899 (UMLS CUI [1,2])
C0472699 (UMLS CUI-2)
No comments