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Table des matières
  1. 1. Essai clinique
  2. 2. Routinedokumentation
  3. 3. Études de registres/cohortes
  4. 4. Assurance qualité
  5. 5. Standard de données
  6. 6. Questionnaire pour les patients
  7. 7. Spécialité médicale
    1. 7.1. Anesthésie
    1. 7.2. Dermatologie
    1. 7.3. HNO
    1. 7.4. Gériatrie
    1. 7.5. Gynécologie/obstétrique
    1. 7.6. Médecine interne
      1. Hématologie
      1. Infectiologie
      1. Cardiologie/angiologie
      1. Pneumologie
      1. Gastroentérologie
      1. Néphrologie
      1. Endocrinologie/métabolisme
      1. Rhumatologie
    1. 7.7. Neurologie
    1. 7.8. Ophtalmologie
    1. 7.9. Médecine palliative
    1. 7.10. Pathologie/médécine légale
    1. 7.11. Pédiatrie
    1. 7.12. Psychiatrie/psychosomatique
    1. 7.13. Radiologie
    1. 7.14. Chirurgie
      1. Chirurgie générale/viscérale
      1. Neurochirurgie
      1. Chirurgie plastique
      1. Chirurgie cardiaque/thoracique
      1. Chirurgie traumatologique/orthopédie
      1. Chirurgie vasculaire
    1. 7.15. Urologie
    1. 7.16. Médecine dentaire/MKG
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258 Résultats de recherche.
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NINDS CDE Pediatric Developmental History Multiple Sclerosis - Pediatric Developmental History

- 26/06/2016 - 1 Formulaire, 5 Groupes Item, 46 Eléments de données, 1 Langue
Groupes Item: Early Life Nutrition, Early Development, Educational History, Cognitive, Vaccinations
NINDS Common Data Elements, Multiple Sclerosis Pediatric Developmental History Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

Pediatric Risk of Mortality (PRISM) Score for Children

- 25/01/2018 - 1 Formulaire, 1 Groupe Item, 15 Eléments de données, 1 Langue
Groupe Item: PRISM score for children
"The Pediatric Risk of Mortality (PRISM) score was developed from the Physiologic Stability Index (PSI) to reduce the number of physiologic variables required for pediatric ICU (PICU) mortality risk assessment and to obtain an objective weighting of the remaining variables." Version for children(>1 year) Reference: Pollack, M. M., Ruttimann, U. E., & Getson, P. R. (1988). Pediatric risk of mortality (PRISM) score. Critical care medicine, 16(11), 1110-1116.

NSCH 2016 Children Ages 12-17 - B. This Child as an Infant

- 20/09/2021 - 11 Formulaires, 1 Groupe Item, 3 Eléments de données, 1 Langue
Groupe Item: Infant
Study part: Children Ages 12-17 National Survey of Childrens Health, NSCH, 2016. A study by the U.S. Department of Health and Human Services to better understand the health issues faced by children in the United States today. Child and Adolescent Health Measurement Initiative, Data Resource Center on Child and Adolescent Health website. Retrieved on 07/12/2016 from http://childhealthdata.org/learn/NSCH/resources/survey-instruments. OMB No. 0607-0990: Approval Expires 04/30/2019.

A. This Child’s Health

1 Groupe Item 108 Eléments de données

D. Experience with This Child’s Health Care Providers

1 Groupe Item 30 Eléments de données

E. This Child’s Health Insurance Coverage

1 Groupe Item 18 Eléments de données

F. Providing for This Child’s Health

1 Groupe Item 8 Eléments de données

I. About Your Family and Household

1 Groupe Item 34 Eléments de données

K. Household Information

1 Groupe Item 15 Eléments de données

NSCH 2016 Children Ages 0-5 - B. This Child as an Infant

- 20/09/2021 - 11 Formulaires, 1 Groupe Item, 10 Eléments de données, 1 Langue
Groupe Item: Infant
Study part: Children Ages 0-5 National Survey of Childrens Health, NSCH, 2016. A study by the U.S. Department of Health and Human Services to better understand the health issues faced by children in the United States today. Child and Adolescent Health Measurement Initiative, Data Resource Center on Child and Adolescent Health website. Retrieved on 07/12/2016 from http://childhealthdata.org/learn/NSCH/resources/survey-instruments. OMB No. 0607-0990: Approval Expires 04/30/2019.

D. Experience with This Child’s Health Care Providers

1 Groupe Item 18 Eléments de données

F. Providing for This Child’s Health

1 Groupe Item 8 Eléments de données

E. This Child’s Health Insurance Coverage

1 Groupe Item 18 Eléments de données

C. Health Care Services

1 Groupe Item 49 Eléments de données

A. This Child’s Health

1 Groupe Item 99 Eléments de données

I. About Your Family and Household

1 Groupe Item 32 Eléments de données

NSCH 2016 Children Ages 6-11 - B. This Child as an Infant

- 20/09/2021 - 11 Formulaires, 1 Groupe Item, 3 Eléments de données, 1 Langue
Groupe Item: Infant
Study part: Children Ages 6-11 National Survey of Childrens Health, NSCH, 2016. A study by the U.S. Department of Health and Human Services to better understand the health issues faced by children in the United States today. Child and Adolescent Health Measurement Initiative, Data Resource Center on Child and Adolescent Health website. Retrieved on 07/12/2016 from http://childhealthdata.org/learn/NSCH/resources/survey-instruments. OMB No. 0607-0990: Approval Expires 04/30/2019.

F. Providing for This Child’s Health

1 Groupe Item 8 Eléments de données

E. This Child’s Health Insurance Coverage

1 Groupe Item 18 Eléments de données

I. About Your Family and Household

1 Groupe Item 34 Eléments de données

K. Household Information

1 Groupe Item 15 Eléments de données

G. This Child’s Learning

1 Groupe Item 11 Eléments de données

H. About You and This Child

1 Groupe Item 21 Eléments de données

German Examination Booklet for Children G-BA - German Examination Booklet for Children G-BA U9

- 03/02/2017 - 19 Formulaires, 17 Groupes Item, 63 Eléments de données, 1 Langue
Groupes Item: findings, body measurements, Examination of skin, findings Thorax organ heart neck, lungs findings, finding Abdominal organ, findings Genitalia, findings urine, findings Vertebral column, findings limbs, findings eye, findings Mouth, findings Nose, findings Ear, findings Motor function nervous system, additional information, Physical Examination
German Kinderuntersuchungsheft (resolution in June 2008 by G-BA) for early detection of diseases in children. The scope of early detection measures for children is specified in the G-BA Paediatrics Directive. Findings are documented in the “Examination Booklet for Children”. This yellow booklet is issued to parents following delivery, either by the delivery ward or the midwife. Medical measures to be performed in accordance with the directives target the early detection of diseases that could jeopardize normal physical or mental development. The examinations provided must be administered within specific periods. Source: Gemeinsamer Bundesausschuss (G-BA), juristische Person des öffentlichen Rechts, Wegelystr. 8, 10623 Berlin, https://www.g-ba.de/institution/themenschwerpunkte/frueherkennung/kinder/, Publication granted by Dr. Beate Axmann.

German Examination Booklet for Children G-BA U7a

17 Groupes Item 61 Eléments de données

German Examination Booklet for Children G-BA U7

17 Groupes Item 66 Eléments de données

German Examination Booklet for Children G-BA U8

18 Groupes Item 63 Eléments de données

German Examination Booklet for Children G-BA U6

17 Groupes Item 70 Eléments de données

German Examination Booklet for Children G-BA U4

18 Groupes Item 68 Eléments de données

German Examination Booklet for Children G-BA U3

18 Groupes Item 89 Eléments de données

German Dental Examination Booklet for Children - UZ 5 Permanent teeth Examination (5 years old)

- 03/02/2017 - 7 Formulaires, 2 Groupes Item, 22 Eléments de données, 1 Langue
Groupes Item: dental examination, report
The Child‘s Dental Examination Book is used to help to look after a child‘s dental health from the very beginning. Children are examined specifically with regard to particular risks, such as baby tooth decay and all the precautionary examinations are documented in this book. The examinations provided must be administered within specific periods. Source: Chamber of Dental Surgeons Westfalen-Lippe, Chamber of Dental Surgeons Nordrhein, Association of Health Service Dental Surgeons Westfalen-Lippe) and Association of Health Service Dental Surgeons Nordrhein.

UZ 6 Permanent teeth Examination (6 years old)

2 Groupes Item 22 Eléments de données

UZ 2 Milk Teeth Examination (2 years old)

2 Groupes Item 19 Eléments de données

UZ 3 Milk Teeth Examination (3 years old)

2 Groupes Item 19 Eléments de données

UZ 4 Milk Teeth Examination (4 years old)

2 Groupes Item 19 Eléments de données

UZ 1 Milk Teeth Examination (1 year old)

1 Groupe Item 10 Eléments de données

Intro

1 Groupe Item 8 Eléments de données

Neurology follow Pediatric surgery UKM - Neurology follow up

- 12/12/2016 - 1 Formulaire, 2 Groupes Item, 9 Eléments de données, 2 Langues
Groupes Item: Patient identification, Neurological assessment
Neurology follow up form converted to ODM format. Routine documentation of University Hospital of Münster.

AB MS PÄD Intensiv University Hospital Muenster (UKM) Subform

- 23/11/2016 - 1 Formulaire, 8 Groupes Item, 36 Eléments de données, 1 Langue
Groupes Item: Diagnosis, Ventilation, Newborn, Surgery, Anamnesis and findings, Therapy and progress, Recommendation, Stay
Hospital Routine Documentation Subform at the University Hospital Muenster. Original Form name: AB MS PÄD Intensiv.

Pediatric oncology brain tumor tumor board Oncology Form University Hospital Cologne

- 08/05/2017 - 1 Formulaire, 1 Groupe Item, 30 Eléments de données, 1 Langue
Groupe Item: Pediatric oncology brain tumor tumor board request
Pediatric oncology brain tumor tumor board request form at the endocrinology polyclinic department University Hospital Cologne. Asking questions regarding basic patient information, tumor board organisation, diagnosis and comorbidity, pathology and tumor staging as well as diagnostic imaging. ODM derived from routine documentation of University Hospital Cologne.

Pediatric Risk of Mortality (PRISM) Score for Infants

- 25/01/2018 - 1 Formulaire, 1 Groupe Item, 15 Eléments de données, 1 Langue
Groupe Item: PRISM score for infants
"The Pediatric Risk of Mortality (PRISM) score was developed from the Physiologic Stability Index (PSI) to reduce the number of physiologic variables required for pediatric ICU (PICU) mortality risk assessment and to obtain an objective weighting of the remaining variables." Version for infants (0-1 year) Reference: Pollack, M. M., Ruttimann, U. E., & Getson, P. R. (1988). Pediatric risk of mortality (PRISM) score. Critical care medicine, 16(11), 1110-1116.

Metronomic Treatment in Children and Adolescents With Recurrent or Progressive High Risk Neuroblastoma (METRO-NB2012) NCT02641314 - Therapy and toxicity cycle 10-13

- 20/09/2021 - 16 Formulaires, 16 Groupes Item, 68 Eléments de données, 1 Langue
Groupes Item: Therapy cycle 10-13, Therapy after cycle, Propranolol, Propranolol therapy deviation, Celecoxib, Celecoxib deviation, Cyclophosphamide, Cyclophosphamide deviation, Vinblastine, Vinblastine deviation, Toxicity overview, Toxicity, Hospitalization, Comments, Transfusion, Footer module
NCT02641314 Phase 2 Trial of Metronomic Treatment in Children and Adolescents With Recurrent or Progressive Neuroblastoma (NB). The study investigates the tolerance and the efficacy of a new combination of five drugs consisting of propranolol (antiangiogenetic, anti-neuroblastic), Celecoxib (modulating immune response, ant-neuroblastic), cyclophosphamide (antiangiogenetic, anti-neuroblastic), etoposide (antiangiogenetic, anti-neuroblastic), and vinblastin (antiangiogenetic, anti-neuroblastic). Vinblastin is scheduled every 14 days intravenously, all other drugs are applied daily throughout 365 days (except etoposide for 4x3 weeks). The efficacies of each of the drugs have been demonstrated in vitro and in vivo in animal studies. All drugs have been used in children for other conditions. From those experiences low toxicities and a favorable Quality of life are expected. Prof. Dr. Frank Berthold Abt. für Kinderonkologie und –hämatologie Zentrum für Kinder- und Jugendmedizin Universität zu Köln

Therapy and toxicity cycle > 13

16 Groupes Item 68 Eléments de données

Therapy and toxicity cycle 1-3

16 Groupes Item 68 Eléments de données

Therapy and toxicity cycle 4-6

16 Groupes Item 68 Eléments de données

Therapy and toxicity cycle 7-9

16 Groupes Item 68 Eléments de données

Baseline

13 Groupes Item 77 Eléments de données

Reference

12 Groupes Item 111 Eléments de données

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