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NINDS CDE Headache Mail Questionnaire - Headache Mail Questionnaire

- 23-04-19 - 1 Formulier, 1 Itemgroep, 86 Data-elementen, 1 Taal
Itemgroep: Headache Mail Questionnaire
NINDS Common Data Elements (Headache Mail Questionnaire) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Headache Diagnosis - Headache Diagnosis

- 15-06-16 - 1 Formulier, 3 Itemgroepen, 26 Data-elementen, 1 Taal
Itemgroepen: Demographics, Headache Diagnosis, Additional Pediatric-specific Elements
NINDS Common Data Elements (Headache Diagnosis; Headache) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Pregnancy Information Headache - Pregnancy Information

- 15-06-16 - 1 Formulier, 4 Itemgroepen, 32 Data-elementen, 1 Taal
Itemgroepen: Demographics, Pregnancy Information, Current Pregnancy, Pregnancy History
NINDS Common Data Elements (Pregnancy Information; Headache) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Pregnancy Outcome Headache - Pregnancy Outcome

- 15-06-16 - 1 Formulier, 3 Itemgroepen, 40 Data-elementen, 1 Taal
Itemgroepen: Demographics, Pregnancy History, Details of Most Recent Live Birth
NINDS Common Data Elements (Pregnancy Outcome; Headache) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE General Health History Headache - General Health History

- 01-06-16 - 1 Formulier, 1 Itemgroep, 552 Data-elementen, 1 Taal
Itemgroep: Medical and Family History
NINDS Common Data Elements (General Health History; Headache) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Symptoms, Frequency and Severity - Headache - Symptoms, Frequency and Severity - Baseline

- 15-06-16 - 1 Formulier, 2 Itemgroepen, 27 Data-elementen, 1 Taal
Itemgroepen: Demographics, Symptoms, Frequency and Severity - Baseline
NINDS Common Data Elements (Symptoms, Frequency and Severity - Baseline; Headache) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Medical and Family History of Headache/Migraine - Medical and Family History of Headache/Migraine

- 15-06-16 - 1 Formulier, 1 Itemgroep, 122 Data-elementen, 1 Taal
Itemgroep: Medical and Family History of Migraine Headache
NINDS Common Data Elements (Medical and Family History of Headache/Migraine) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Participant/Subject Characteristics Headache - Demographics and Social Status

- 04-05-16 - 1 Formulier, 2 Itemgroepen, 58 Data-elementen, 1 Taal
Itemgroepen: Demographics, Social Status
NINDS Common Data Elements (Participant/Subject Characteristics; Headache) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

Migraine Protocol PhenX Toolkit

- 20-09-21 - 1 Formulier, 1 Itemgroep, 25 Data-elementen, 2 Talen
Itemgroep: PhenX - migraine protocol
The Self-Administered Questionnaire for Migraine is a 20-item questionnaire that assesses the frequency of severe headaches, the level of pain, whether the person is taking medications, and associated complications such as nausea. ODM derived from: https://cde.nlm.nih.gov Primary source: https://www.phenxtoolkit.org/ Recent publication: Hendershot, T., Pan, H., Haines, J., Harlan, W.R., Marazita, M.L., McCarty, C.A., Ramos, E.M., and Hamilton, C.M. (2015) Using the PhenX toolkit to add standard measures to a study. Curr. Protoc. Hum. Genet. 86:1.21.1-1.21.17. doi: 10.1002/0471142905.hg0121s86 Permission to publish granted by Carol M. Hamilton.

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