ID

15834

Description

NINDS Common Data Elements (Headache Diagnosis; Headache) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

Link

https://www.commondataelements.ninds.nih.gov/

Keywords

Versions (1)
  1. 6/15/16 6/15/16 -
Uploaded on

June 15, 2016

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License

Creative Commons BY-NC 3.0
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NINDS CDE Headache Diagnosis

English

Headache Diagnosis

1 forms  
  1. StudyEvent: ODM
    1. Headache Diagnosis
Demographics
Description

Demographics

Study ID
Description

Study ID

Data type

text

Alias
UMLS CUI [1]
C2826693
Study site name
Description

Study site

Data type

text

Alias
UMLS CUI [1]
C2825164
Subject ID
Description

Subject ID

Data type

text

Alias
UMLS CUI [1]
C2348585
Headache Diagnosis
Description

Headache Diagnosis

Some people have changes in their vision with their headache. BEFORE YOUR HEADACHE BEGAN, did you see the following? (Choose all that apply)
Description

Visual symptoms

Data type

integer

Alias
UMLS CUI [1]
C0422943
Some people have changes in their skin sensation with their headache. BEFORE YOUR HEADACHE BEGAN, do you have numbness or tingling in your face or arms?
Description

Skin sensations

Data type

boolean

Alias
UMLS CUI [1]
C3472693
BEFORE YOUR HEADACHE BEGAN, do you have numbness or tingling in your face or arms? If yes. Which side(s)? (Choose one)
Description

Skin sensations

Data type

integer

Alias
UMLS CUI [1]
C3472693
BEFORE YOUR HEADACHE BEGAN, do you have numbness or tingling in your face or arms? If yes, how often? (Choose one)
Description

Skin sensations

Data type

integer

Alias
UMLS CUI [1]
C3472693
In which parts of the head does the headache typically occur? (Choose all that apply)
Description

Localization

Data type

integer

Alias
UMLS CUI [1]
C0475264
In which parts of the head does the headache typically occur? Please specify other:
Description

Localization

Data type

text

Alias
UMLS CUI [1]
C0475264
Which of the following describes the headache pain you feel? (Choose all that apply)
Description

Quality of pain

Data type

integer

Alias
UMLS CUI [1]
C1148406
Which of the following describes the headache pain you feel? PLease specify other:
Description

Quality of pain

Data type

text

Alias
UMLS CUI [1]
C1148406
How many hours does the TREATED headache last? Shortest: (please specify) hours
Description

Duration

Data type

integer

Alias
UMLS CUI [1]
C0449238
How many hours does the TREATED headache last? Longest: (please specify) hours
Description

Duration

Data type

integer

Alias
UMLS CUI [1]
C0449238
How many hours does the TREATED headache last? Average: (please specify) hours
Description

Duration

Data type

integer

Alias
UMLS CUI [1]
C0449238
How many hours does the NON-TREATED headache last? Shortest: (please specify) hours
Description

Duration

Data type

integer

Alias
UMLS CUI [1]
C0449238
How many hours does the NON-TREATED headache last? Longest: (please specify) hours
Description

Duration

Data type

integer

Alias
UMLS CUI [1]
C0449238
How many hours does the NON-TREATED headache last? Average: (please specify) hours
Description

Duration

Data type

integer

Alias
UMLS CUI [1]
C0449238
On average, how bad would you rate the severity of the headaches?
Description

Severity

Data type

integer

Alias
UMLS CUI [1]
C0439793
How often do your headaches occur? (Choose one)
Description

Frequency

Data type

integer

Alias
UMLS CUI [1]
C0439603
How often do your headaches occur?Please specify other
Description

Frequency

Data type

text

Alias
UMLS CUI [1]
C0439603
Over the last 3 months, on average how many days PER MONTH did you have a headache? (please specify) (between 0 and 30)
Description

Headache days per month

Data type

integer

Alias
UMLS CUI [1,1]
C0018681
UMLS CUI [1,2]
C0556971
Does the headache hurt more when you walk up stairs?
Description

Headache

Data type

integer

Alias
UMLS CUI [1]
C0018681
Additional Pediatric-specific Elements
Description

Additional Pediatric-specific Elements

Does activity or playing make your headache worse?
Description

Headache

Data type

integer

Alias
UMLS CUI [1]
C0018681
UMLS CUI [2]
C0026606
Does the headache change your activity level (i.e., stop playing)?
Description

Headache

Data type

integer

Alias
UMLS CUI [1]
C0018681
UMLS CUI [2]
C0026606
When you get a headache at school at what level are you able to function?
Description

Headache

Data type

integer

Alias
UMLS CUI [1]
C0018681
UMLS CUI [2]
C0935587
When you get a headache playing at what level are you able to function?
Description

Headache

Data type

integer

Alias
UMLS CUI [1]
C0018681
UMLS CUI [2]
C0935587
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Similar models

Headache Diagnosis

1 forms
  1. StudyEvent: ODM
    1. Headache Diagnosis
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Demographics
Study ID
Item
Study ID
text
C2826693 (UMLS CUI [1])
Study site
Item
Study site name
text
C2825164 (UMLS CUI [1])
Subject ID
Item
Subject ID
text
C2348585 (UMLS CUI [1])
Item Group
Headache Diagnosis
Item
Some people have changes in their vision with their headache. BEFORE YOUR HEADACHE BEGAN, did you see the following? (Choose all that apply)
integer
C0422943 (UMLS CUI [1])
Visual symptoms
Code List
Some people have changes in their vision with their headache. BEFORE YOUR HEADACHE BEGAN, did you see the following? (Choose all that apply)
CL Item
Spots (1)
CL Item
Stars (2)
CL Item
Lights (3)
CL Item
Zigzag lines (4)
CL Item
Heat waves (5)
CL Item
No changes in vision (6)
Skin sensations
Item
Some people have changes in their skin sensation with their headache. BEFORE YOUR HEADACHE BEGAN, do you have numbness or tingling in your face or arms?
boolean
C3472693 (UMLS CUI [1])
Item
BEFORE YOUR HEADACHE BEGAN, do you have numbness or tingling in your face or arms? If yes. Which side(s)? (Choose one)
integer
C3472693 (UMLS CUI [1])
Skin sensations
Code List
BEFORE YOUR HEADACHE BEGAN, do you have numbness or tingling in your face or arms? If yes. Which side(s)? (Choose one)
CL Item
Right (1)
CL Item
Left (2)
CL Item
Bilateral (3)
Item
BEFORE YOUR HEADACHE BEGAN, do you have numbness or tingling in your face or arms? If yes, how often? (Choose one)
integer
C3472693 (UMLS CUI [1])
Skin sensations
Code List
BEFORE YOUR HEADACHE BEGAN, do you have numbness or tingling in your face or arms? If yes, how often? (Choose one)
CL Item
Rarely  (1)
CL Item
Sometimes  (2)
CL Item
Always (3)
Item
In which parts of the head does the headache typically occur? (Choose all that apply)
integer
C0475264 (UMLS CUI [1])
Localization
Code List
In which parts of the head does the headache typically occur? (Choose all that apply)
CL Item
Left temple (1)
CL Item
Right temple (2)
CL Item
Front (3)
CL Item
Top (4)
CL Item
Back (5)
CL Item
Around eyes (6)
CL Item
Behind eyes (7)
CL Item
Other, specify (8)
Localization
Item
In which parts of the head does the headache typically occur? Please specify other:
text
C0475264 (UMLS CUI [1])
Item
Which of the following describes the headache pain you feel? (Choose all that apply)
integer
C1148406 (UMLS CUI [1])
Quality of pain
Code List
Which of the following describes the headache pain you feel? (Choose all that apply)
CL Item
Throbbing (1)
CL Item
Squeezing (2)
CL Item
Tightness (3)
CL Item
Stabbing (4)
CL Item
Pinching (5)
CL Item
Pressure (6)
CL Item
Burning (7)
CL Item
Pounding (8)
CL Item
Pulsating (9)
CL Item
Sharp (10)
CL Item
Constant (11)
CL Item
Dull (12)
CL Item
Other, specify (13)
Quality of pain
Item
Which of the following describes the headache pain you feel? PLease specify other:
text
C1148406 (UMLS CUI [1])
Duration
Item
How many hours does the TREATED headache last? Shortest: (please specify) hours
integer
C0449238 (UMLS CUI [1])
Duration
Item
How many hours does the TREATED headache last? Longest: (please specify) hours
integer
C0449238 (UMLS CUI [1])
Duration
Item
How many hours does the TREATED headache last? Average: (please specify) hours
integer
C0449238 (UMLS CUI [1])
Duration
Item
How many hours does the NON-TREATED headache last? Shortest: (please specify) hours
integer
C0449238 (UMLS CUI [1])
Duration
Item
How many hours does the NON-TREATED headache last? Longest: (please specify) hours
integer
C0449238 (UMLS CUI [1])
Duration
Item
How many hours does the NON-TREATED headache last? Average: (please specify) hours
integer
C0449238 (UMLS CUI [1])
Item
On average, how bad would you rate the severity of the headaches?
integer
C0439793 (UMLS CUI [1])
Severity
Code List
On average, how bad would you rate the severity of the headaches?
CL Item
Mild (1)
CL Item
Moderate (2)
CL Item
Severe (3)
Item
How often do your headaches occur? (Choose one)
integer
C0439603 (UMLS CUI [1])
Frequency
Code List
How often do your headaches occur? (Choose one)
CL Item
<1 /per month (1)
CL Item
1 to 3 /per month (2)
CL Item
1 /per week (3)
CL Item
2 to 4 /per week (4)
CL Item
5 to 6 /per week (5)
CL Item
Once per day (6)
CL Item
Other, specify (7)
Frequency
Item
How often do your headaches occur?Please specify other
text
C0439603 (UMLS CUI [1])
Headache days per month
Item
Over the last 3 months, on average how many days PER MONTH did you have a headache? (please specify) (between 0 and 30)
integer
C0018681 (UMLS CUI [1,1])
C0556971 (UMLS CUI [1,2])
Item
Does the headache hurt more when you walk up stairs?
integer
C0018681 (UMLS CUI [1])
Headache
Code List
Does the headache hurt more when you walk up stairs?
CL Item
Yes (1)
CL Item
No (2)
CL Item
N/A (3)
Item Group
Additional Pediatric-specific Elements
Item
Does activity or playing make your headache worse?
integer
C0018681 (UMLS CUI [1])
C0026606 (UMLS CUI [2])
Headache
Code List
Does activity or playing make your headache worse?
CL Item
Yes (1)
CL Item
No (2)
CL Item
N/A (3)
Item
Does the headache change your activity level (i.e., stop playing)?
integer
C0018681 (UMLS CUI [1])
C0026606 (UMLS CUI [2])
Headache
Code List
Does the headache change your activity level (i.e., stop playing)?
CL Item
Yes (1)
CL Item
No (2)
CL Item
N/A (3)
Item
When you get a headache at school at what level are you able to function?
integer
C0018681 (UMLS CUI [1])
C0935587 (UMLS CUI [2])
Headache
Code List
When you get a headache at school at what level are you able to function?
CL Item
100% (1)
CL Item
75% (2)
CL Item
50% (3)
CL Item
25% (4)
CL Item
0% (5)
Item
When you get a headache playing at what level are you able to function?
integer
C0018681 (UMLS CUI [1])
C0935587 (UMLS CUI [2])
Headache
Code List
When you get a headache playing at what level are you able to function?
CL Item
100% (1)
CL Item
75% (2)
CL Item
50% (3)
CL Item
25% (4)
CL Item
0% (5)
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