ID

43962

Description

The Self-Administered Questionnaire for Migraine is a 20-item questionnaire that assesses the frequency of severe headaches, the level of pain, whether the person is taking medications, and associated complications such as nausea. ODM derived from: https://cde.nlm.nih.gov Primary source: https://www.phenxtoolkit.org/ Recent publication: Hendershot, T., Pan, H., Haines, J., Harlan, W.R., Marazita, M.L., McCarty, C.A., Ramos, E.M., and Hamilton, C.M. (2015) Using the PhenX toolkit to add standard measures to a study. Curr. Protoc. Hum. Genet. 86:1.21.1-1.21.17. doi: 10.1002/0471142905.hg0121s86 Permission to publish granted by Carol M. Hamilton.

Link

https://cde.nlm.nih.gov

Keywords

Versions (3)
  1. 4/26/16 4/26/16 -
  2. 12/18/16 12/18/16 -
  3. 9/20/21 9/20/21 -
Uploaded on

September 20, 2021

DOI

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License

Creative Commons BY-NC 3.0
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Migraine Protocol PhenX Toolkit

German English

Migraine Protocol PhenX Toolkit

1 forms  
PhenX - migraine protocol
Description

PhenX - migraine protocol

Alias
UMLS CUI-1
C3165747
Over the past year, have you suffered from severe headaches?
Description

Over the past year, have you suffered from severe headaches?

Data type

boolean

Alias
UMLS CUI [1]
C2957106
Age
Description

Age

Data type

integer

Alias
UMLS CUI [1]
C0001779
Sex
Description

Sex

Data type

integer

Alias
UMLS CUI [1]
C0079399
When you have a severe headache, do you experience any of the following?
Description

When you have a severe headache, do you experience any of the following?

Data type

integer

Alias
UMLS CUI [1]
C3174217
About how often do your severe headaches occur?
Description

About how often do your severe headaches occur?

Data type

integer

Measurement units
  • count
Alias
UMLS CUI [1]
C3174218
count
Which statement best describes the pain of your severe headaches?
Description

Which statement best describes the pain of your severe headaches?

Data type

integer

Alias
UMLS CUI [1]
C3174220
Which best describes how you are usually affected by severe headaches?
Description

Which best describes how you are usually affected by severe headaches?

Data type

integer

Alias
UMLS CUI [1]
C3174221
Each time you have a severe headache, how long are you unable to work or undertake normal activities?
Description

Each time you have a severe headache, how long are you unable to work or undertake normal activities?

Data type

integer

Alias
UMLS CUI [1]
C3174222
On how many days in the last 3 months did you have a headache (if headache lasted more than 1 day, count each day)?
Description

On how many days in the last 3 months did you have a headache (if headache lasted more than 1 day, count each day)?

Data type

integer

Measurement units
  • Tage
Alias
UMLS CUI [1]
C3174224
Tage
Because of your headaches on how many days in the last 3 months . . .did you miss work or school
Description

Because of your headaches on how many days in the last 3 months . . .did you miss work or school

Data type

integer

Measurement units
  • Tage
Alias
UMLS CUI [1]
C3174226
Tage
Because of your headaches on how many days in the last 3 months . . .was your productivity at work/school reduced by half or more
Description

Because of your headaches on how many days in the last 3 months . . .was your productivity at work/school reduced by half or more

Data type

integer

Measurement units
  • Tage
Alias
UMLS CUI [1]
C3175715
Tage
Because of your headaches on how many days in the last 3 months . . . did you not do household work
Description

Because of your headaches on how many days in the last 3 months . . . did you not do household work

Data type

integer

Measurement units
  • Tage
Alias
UMLS CUI [1]
C3175717
Tage
Because of your headaches on how many days in the last 3 months . . . was your productivity in house-hold work reduced by half or more
Description

Because of your headaches on how many days in the last 3 months . . . was your productivity in house-hold work reduced by half or more

Data type

integer

Measurement units
  • Tage
Alias
UMLS CUI [1]
C3175719
Tage
Because of your headaches on how many days in the last 3 months . . . did you miss family, social, or leisure activities
Description

Because of your headaches on how many days in the last 3 months . . . did you miss family, social, or leisure activities

Data type

integer

Measurement units
  • Tage
Alias
UMLS CUI [1]
C3175721
Tage
At what age did you BEGIN having severe headaches?
Description

At what age did you BEGIN having severe headaches?

Data type

integer

Alias
UMLS CUI [1]
C3175723
Have you ever gone to the hospital emergency room or to an urgent care clinic because of your severe headaches?
Description

Have you ever gone to the hospital emergency room or to an urgent care clinic because of your severe headaches?

Data type

boolean

Alias
UMLS CUI [1]
C3175725
Which best describes the way you usually treat severe headaches?
Description

Which best describes the way you usually treat severe headaches?

Data type

integer

Alias
UMLS CUI [1,1]
C0087111
UMLS CUI [1,2]
C0018681
Have you ever taken prescription medication for headache on a DAILY basis, whether or not you have a headache, to help prevent a severe headache from happening in the first place?
Description

Have you ever taken prescription medication for headache on a DAILY basis, whether or not you have a headache, to help prevent a severe headache from happening in the first place?

Data type

boolean

Alias
UMLS CUI [1]
C3175728
Are you currently taking any other medication on a DAILY basis?
Description

Are you currently taking any other medication on a DAILY basis?

Data type

integer

Alias
UMLS CUI [1]
C3175730
When did you last take prescription medication for headache on a DAILY basis to help prevent a severe headache from happening in the first place?
Description

When did you last take prescription medication for headache on a DAILY basis to help prevent a severe headache from happening in the first place?

Data type

integer

Alias
UMLS CUI [1]
C3175732
Do you consider your severe headaches to be migraines?
Description

Do you consider your severe headaches to be migraines?

Data type

boolean

Alias
UMLS CUI [1]
C3175733
Have you ever been diagnosed by a physician or other health professional as suffering from . . . ?
Description

Have you ever been diagnosed by a physician or other health professional as suffering from . . . ?

Data type

integer

Alias
UMLS CUI [1]
C3175735
If diagnosed with migraines, at what age were you FIRST DIAGNOSED with migraines?
Description

If diagnosed with migraines, at what age were you FIRST DIAGNOSED with migraines?

Data type

integer

Alias
UMLS CUI [1]
C3175737
Body height --standing
Description

Body height --standing

Data type

float

Alias
UMLS CUI [1]
C0005890
Body weight
Description

Body weight

Data type

float

Alias
UMLS CUI [1]
C0005910
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Similar models

Migraine Protocol PhenX Toolkit

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
PhenX - migraine protocol
C3165747 (UMLS CUI-1)
severe headaches past year
Item
Over the past year, have you suffered from severe headaches?
boolean
C2957106 (UMLS CUI [1])
age
Item
Age
integer
C0001779 (UMLS CUI [1])
Item
Sex
integer
C0079399 (UMLS CUI [1])
Sex
Code List
Sex
CL Item
male (1)
C1706180 (UMLS CUI-1)
CL Item
female (2 )
C0086287 (UMLS CUI-1)
Item
When you have a severe headache, do you experience any of the following?
integer
C3174217 (UMLS CUI [1])
headache complications
Code List
When you have a severe headache, do you experience any of the following?
CL Item
Nausea  (1)
C0027497 (UMLS CUI-1)
CL Item
Vomiting  (2)
C0042963 (UMLS CUI-1)
CL Item
One side of head only  (3)
C3843210 (UMLS CUI-1)
CL Item
Pulsating/throbbing headaches  (4)
C3843209 (UMLS CUI-1)
CL Item
Pain-free intervals of days or weeks between severe headache attacks  (5)
C3843208 (UMLS CUI-1)
CL Item
Sensitivity to light  (6)
C0085636 (UMLS CUI-1)
CL Item
Sensitivity to noise  (7)
C3843207 (UMLS CUI-1)
CL Item
Blurring of vision  (8)
C0344232 (UMLS CUI-1)
CL Item
Seeing shimmering lights, circles, other shapes, or colors before the eyes, before the headache starts  (9)
C3843206 (UMLS CUI-1)
CL Item
Numbness of lips, tongue, fingers, or legs before the headache starts (10)
C3843205 (UMLS CUI-1)
severe headaches freq
Item
About how often do your severe headaches occur?
integer
C3174218 (UMLS CUI [1])
Item
Which statement best describes the pain of your severe headaches?
integer
C3174220 (UMLS CUI [1])
severe headache pain type
Code List
Which statement best describes the pain of your severe headaches?
CL Item
Extremely severe pain  (1)
C3843204 (UMLS CUI-1)
CL Item
Severe pain  (2)
C0278140 (UMLS CUI-1)
CL Item
Moderately severe pain (3)
C3843203 (UMLS CUI-1)
CL Item
Mild pain (4)
C0278138 (UMLS CUI-1)
Item
Which best describes how you are usually affected by severe headaches?
integer
C3174221 (UMLS CUI [1])
affect of severe headaches
Code List
Which best describes how you are usually affected by severe headaches?
CL Item
Able to work/function normally  (1)
C3840895 (UMLS CUI-1)
CL Item
Working ability or activity impaired to some degree  (2)
C3843202 (UMLS CUI-1)
CL Item
Working ability or activity severely impaired  (3)
C3843201 (UMLS CUI-1)
CL Item
Bed rest required (4)
C3843200 (UMLS CUI-1)
Item
Each time you have a severe headache, how long are you unable to work or undertake normal activities?
integer
C3174222 (UMLS CUI [1])
how long unable to work
Code List
Each time you have a severe headache, how long are you unable to work or undertake normal activities?
CL Item
0 days (no activity restriction)  (1)
C3843199 (UMLS CUI-1)
CL Item
Less than 1 day  (2)
C3843198 (UMLS CUI-1)
CL Item
1-2 days  (3)
C3843197 (UMLS CUI-1)
CL Item
3-5 days  (4)
C3843196 (UMLS CUI-1)
CL Item
6 or more days (5)
C3843195 (UMLS CUI-1)
headache freq
Item
On how many days in the last 3 months did you have a headache (if headache lasted more than 1 day, count each day)?
integer
C3174224 (UMLS CUI [1])
miss school because of headaches
Item
Because of your headaches on how many days in the last 3 months . . .did you miss work or school
integer
C3174226 (UMLS CUI [1])
reduced productiv because of headaches
Item
Because of your headaches on how many days in the last 3 months . . .was your productivity at work/school reduced by half or more
integer
C3175715 (UMLS CUI [1])
no housework because of headaches
Item
Because of your headaches on how many days in the last 3 months . . . did you not do household work
integer
C3175717 (UMLS CUI [1])
housework reduced because of headaches
Item
Because of your headaches on how many days in the last 3 months . . . was your productivity in house-hold work reduced by half or more
integer
C3175719 (UMLS CUI [1])
miss social activities
Item
Because of your headaches on how many days in the last 3 months . . . did you miss family, social, or leisure activities
integer
C3175721 (UMLS CUI [1])
age headaches began
Item
At what age did you BEGIN having severe headaches?
integer
C3175723 (UMLS CUI [1])
hospital for headaches
Item
Have you ever gone to the hospital emergency room or to an urgent care clinic because of your severe headaches?
boolean
C3175725 (UMLS CUI [1])
Item
Which best describes the way you usually treat severe headaches?
integer
C0087111 (UMLS CUI [1,1])
C0018681 (UMLS CUI [1,2])
usual headache treatment
Code List
Which best describes the way you usually treat severe headaches?
CL Item
Take non-prescription medications  (1)
C3843194 (UMLS CUI-1)
CL Item
Take prescription medications  (2)
C3843193 (UMLS CUI-1)
CL Item
Take both prescription and non-prescription medications (3)
C3843192 (UMLS CUI-1)
CL Item
Take no medications (4)
C3843191 (UMLS CUI-1)
headache prescription med daily
Item
Have you ever taken prescription medication for headache on a DAILY basis, whether or not you have a headache, to help prevent a severe headache from happening in the first place?
boolean
C3175728 (UMLS CUI [1])
Item
Are you currently taking any other medication on a DAILY basis?
integer
C3175730 (UMLS CUI [1])
any other med daily
Code List
Are you currently taking any other medication on a DAILY basis?
CL Item
Water pill or prescription diuretic for high blood pressure  (1)
C3843190 (UMLS CUI-1)
CL Item
Prescription medicine (other than water pill) for high blood pressure  (2)
C3843189 (UMLS CUI-1)
CL Item
Prescription medicine for seizures, epilepsy, or fits  (3)
C3843188 (UMLS CUI-1)
CL Item
Prescription medicine for diabetes  (4)
C3843187 (UMLS CUI-1)
CL Item
Prescription medicine for depression or anxiety (5)
C3843186 (UMLS CUI-1)
Item
When did you last take prescription medication for headache on a DAILY basis to help prevent a severe headache from happening in the first place?
integer
C3175732 (UMLS CUI [1])
last took daily med
Code List
When did you last take prescription medication for headache on a DAILY basis to help prevent a severe headache from happening in the first place?
CL Item
Currently taking  (1)
C3843777 (UMLS CUI-1)
CL Item
Last took within the past 3 months  (2)
C3840644 (UMLS CUI-1)
CL Item
Last took 3 to 12 months ago  (3)
C3843185 (UMLS CUI-1)
CL Item
Last took more than 12 months ago  (4)
C3843184 (UMLS CUI-1)
CL Item
Never took (5)
C3843183 (UMLS CUI-1)
consider headaches migraines
Item
Do you consider your severe headaches to be migraines?
boolean
C3175733 (UMLS CUI [1])
Item
Have you ever been diagnosed by a physician or other health professional as suffering from . . . ?
integer
C3175735 (UMLS CUI [1])
diagnosed with headache type
Code List
Have you ever been diagnosed by a physician or other health professional as suffering from . . . ?
CL Item
Tension headaches (1)
C0033893 (UMLS CUI-1)
CL Item
Sinus headaches  (2)
C0037195 (UMLS CUI-1)
CL Item
Cluster headaches  (3)
C0009088 (UMLS CUI-1)
CL Item
Stress headaches  (4)
C0033893 (UMLS CUI-1)
CL Item
'Sick' headaches  (5)
C0700438 (UMLS CUI-1)
CL Item
Migraine headaches (6)
C0149931 (UMLS CUI-1)
age diagnosed migraines
Item
If diagnosed with migraines, at what age were you FIRST DIAGNOSED with migraines?
integer
C3175737 (UMLS CUI [1])
body height
Item
Body height --standing
float
C0005890 (UMLS CUI [1])
body weight
Item
Body weight
float
C0005910 (UMLS CUI [1])
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