Information:
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ID
14891
Description
NINDS Common Data Elements (Participant/Subject Characteristics; Headache) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.
Link
https://www.commondataelements.ninds.nih.gov/
Keywords
Versions (1)
- 5/4/16 5/4/16 -
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May 4, 2016
DOI
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License
Creative Commons BY-NC 3.0
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NINDS CDE Participant/Subject Characteristics Headache
Demographics and Social Status
- StudyEvent: ODM
Similar models
Demographics and Social Status
- StudyEvent: ODM
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Study ID
Item
Study ID
text
C2826693 (UMLS CUI [1])
Study site
Item
Study site name
text
C2825164 (UMLS CUI [1])
Subject ID
Item
Subject ID
text
C2348585 (UMLS CUI [1])
Date of birth
Item
Date of birth
date
C0421451 (UMLS CUI [1])
CL Item
Female (1)
CL Item
Male (2)
CL Item
Unknown (3)
CL Item
Unspecified (4)
CL Item
Not reported (5)
CL Item
Hispanic or Latino (1)
CL Item
not Hispanic or Latino (2)
CL Item
Not Reported (3)
CL Item
Unknown (4)
CL Item
American Indian or Alaskan Native (1)
CL Item
Asian (2)
CL Item
Black or African American (3)
CL Item
Native Hawaiian or Other Pacific Islander (4)
CL Item
Unknown (5)
CL Item
White (6)
CL Item
Not reported (7)
Years of education
Item
Years of education
integer
C0013658 (UMLS CUI [1])
Snomed CT code
Item
Snomed CT code
text
C3645701 (UMLS CUI [1])
Medical History Reported Term
Item
Medical History Term
text
C2826728 (UMLS CUI [1])
CL Item
0 English (eng) (1)
CL Item
0 Spanish (spa) (2)
CL Item
Sign Languages (sgn) (3)
CL Item
Chinese languages (chi) (4)
CL Item
French (fre) (5)
CL Item
German (ger) (6)
CL Item
Other, specify (7)
Primary Language
Item
Primary Language:if other please specify
text
C0424919 (UMLS CUI [1])
Country of birth
Item
Country of birth
text
C1300001 (UMLS CUI [1])
Zip code
Item
First 3 digits of zip code
integer
C0421454 (UMLS CUI [1])
Social Security Number
Item
Patient Social Security Number
text
C1301821 (UMLS CUI [1])
CL Item
months (1)
CL Item
years (2)
Age
Item
Age of child
integer
C0001779 (UMLS CUI [1])
CL Item
1st (1)
CL Item
2nd (2)
CL Item
3rd (3)
CL Item
4th (4)
CL Item
5th (5)
CL Item
Other, specify (6)
Birth order
Item
Birth order:if other,please specify
text
C0005607 (UMLS CUI [1])
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Maternal ethnicity
integer
C0015031 (UMLS CUI [1,1])
C0026591 (UMLS CUI [1,2])
C0026591 (UMLS CUI [1,2])
CL Item
Hispanic or Latino (1)
CL Item
Not Hispanic or Latino (2)
CL Item
Unknown (3)
CL Item
Not Reported (4)
CL Item
American Indian Or Alaska Native (1)
CL Item
Asian (2)
CL Item
Black Or African American (3)
CL Item
Native Hawaiian Or Other Pacific Islander (4)
CL Item
White (5)
CL Item
Not Reported (6)
CL Item
Unknown (7)
Item
Paternal ethnicity
integer
C0015031 (UMLS CUI [1,1])
C0015671 (UMLS CUI [1,2])
C0015671 (UMLS CUI [1,2])
CL Item
Hispanic or Latino (1)
CL Item
not Hispanic or Latino (2)
CL Item
Not Reported (3)
CL Item
Unknown (4)
CL Item
American Indian Or Alaska Native (1)
CL Item
Asian (2)
CL Item
Black Or African American (3)
CL Item
Native Hawaiian Or Other Pacific Islander (4)
CL Item
White (5)
CL Item
Not Reported (6)
CL Item
Unknown (7)
CL Item
Never attended/ Kindergarten only (1)
CL Item
1st Grade (2)
CL Item
2nd Grade (3)
CL Item
3rd Grade (4)
CL Item
4th Grade (5)
CL Item
5th Grade (6)
CL Item
6th Grade (7)
CL Item
7th Grade (8)
CL Item
8th Grade (9)
CL Item
9th Grade (10)
CL Item
10th Grade (11)
CL Item
11th Grade (12)
CL Item
12th Grade, no diploma (13)
CL Item
High school graduate (14)
CL Item
GED or equivalent (15)
CL Item
Some college, no degree (16)
CL Item
Associate degree: occupational, technical, or vocational program (17)
CL Item
Associate degree: academic program (18)
CL Item
Bachelor´s degree (e.g., BA, AB, BS, BBA) (19)
CL Item
Master´s degree (e.g., MA, MS, MEng, MEd, MBA) (20)
CL Item
Professional school degree (e.g., MD, DDS, DVM, JD) (21)
CL Item
Doctoral degree (e.g., PhD, EdD) (22)
CL Item
Unknown (23)
CL Item
Public (1)
CL Item
Private (2)
CL Item
Home school (3)
CL Item
Other, specify (4)
Years of education
Item
Years of education
integer
C0013658 (UMLS CUI [1])
Item
Were grades repeated
integer
C0205341 (UMLS CUI [1,1])
C3244287 (UMLS CUI [1,2])
C3244287 (UMLS CUI [1,2])
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
CL Item
Never Married (1)
CL Item
Married (2)
CL Item
Domestic Partnership (3)
CL Item
Separated (4)
CL Item
Divorced (5)
CL Item
Widowed (6)
CL Item
Working now (1)
CL Item
Student (2)
CL Item
Looking for work, unemployed (3)
CL Item
Only temporarily laid off (4)
CL Item
Sick leave or maternity leave (5)
CL Item
Retired (6)
CL Item
Disabled, permanently or temporarily (7)
CL Item
Keeping house (8)
CL Item
Other, specify: (9)
CL Item
Unknown (10)
Item
If student,what is the course load
integer
C0681364 (UMLS CUI [1,1])
C0085122 (UMLS CUI [1,2])
C0085122 (UMLS CUI [1,2])
CL Item
Full-time (1)
CL Item
Part-time (2)
CL Item
Unknown (3)
Working hours
Item
If employed,how many hours per week
integer
C0043227 (UMLS CUI [1,1])
C0556976 (UMLS CUI [1,2])
C0556976 (UMLS CUI [1,2])
Number of paid jobs
Item
If employed, indicate the number of paid jobs
integer
C0028811 (UMLS CUI [1,1])
C0750480 (UMLS CUI [1,2])
C0750480 (UMLS CUI [1,2])
Reason for unemployment
Item
If unemployed, indicate the main reason for no job
text
C0041674 (UMLS CUI [1,1])
C0566251 (UMLS CUI [1,2])
C0566251 (UMLS CUI [1,2])
Item
Which of the following best describes the occupation?
integer
C0022396 (UMLS CUI [1])
CL Item
Official/Manger (1)
CL Item
Professional (2)
CL Item
Technician (3)
CL Item
Sales Worker (4)
CL Item
Administrative Support Worker (5)
CL Item
Craft Worker (6)
CL Item
Operative (7)
CL Item
Laborer/Helper (8)
CL Item
Social Worker (9)
CL Item
Unknown (10)
CL Item
Active duty military (1)
CL Item
Active reserves (or national guard) (2)
CL Item
Inactive reserve (3)
CL Item
Retired from military (4)
CL Item
No military service or previous or current (5)
Item
If Active, Active reserves, Inactive or Civilian military contractor, specify military branch of service
integer
C2135638 (UMLS CUI [1])
Code List
If Active, Active reserves, Inactive or Civilian military contractor, specify military branch of service
CL Item
Air force (1)
CL Item
Army (2)
CL Item
Navy (3)
CL Item
Marine Corps (4)
CL Item
Coast Guard (5)
CL Item
Other, specify (6)
Active military service status
Item
If other military branch of service, please specify
text
C2135638 (UMLS CUI [1])
Item
If Active, Active reserves, Inactive or Civilian military contractor, specify military rank
integer
C2135638 (UMLS CUI [1])
Code List
If Active, Active reserves, Inactive or Civilian military contractor, specify military rank
CL Item
Field grade officer or above (1)
CL Item
Company grade officer (2)
CL Item
Warrant officer (3)
CL Item
Non-commissioned officer (e.g., sergeant/corporal) (4)
CL Item
Other, enlisted rank (5)
Item
Current or most recent military occupation
integer
C2129059 (UMLS CUI [1])
CL Item
Combat (1)
CL Item
Non-combat (2)
Military service status
Item
If ever deployed to combat zone, indicate number of deployments in a combat role
integer
C2129059 (UMLS CUI [1,1])
C2321231 (UMLS CUI [1,2])
C2321231 (UMLS CUI [1,2])
Military service status
Item
If ever deployed to combat zone, indicate number of deployments in a non combat role
integer
C2129059 (UMLS CUI [1,1])
C2321231 (UMLS CUI [1,2])
C2321231 (UMLS CUI [1,2])
Military service status
Item
If ever deployed to combat zone, indicate start date of most recent deployment
date
C2321231 (UMLS CUI [1,1])
C0808070 (UMLS CUI [1,2])
C0808070 (UMLS CUI [1,2])
Military service status
Item
If ever deployed to combat zone, indicate end date of most recent deployment
date
C2321231 (UMLS CUI [1,1])
C0806020 (UMLS CUI [1,2])
C0806020 (UMLS CUI [1,2])
Household
Item
Number of people the participant/subject lives or stays with
integer
C0015578 (UMLS CUI [1])
CL Item
Husband or wife (1)
CL Item
Biological son or daughter (2)
CL Item
Adopted son or daughter (3)
CL Item
Stepson or stepdaughter (4)
CL Item
Brother or sister (5)
CL Item
Father or mother (6)
CL Item
Stepfather or stepmother (7)
CL Item
Grandchild (8)
CL Item
Grandparent (9)
CL Item
Parent-in-law (10)
CL Item
Son-in-law or daughter-in-law (11)
CL Item
Other relative (12)
CL Item
Roomer or boarder (13)
CL Item
Housemate or roommate (14)
CL Item
Unmarried partner (15)
CL Item
Foster child (16)
CL Item
Other patient/resident in care facility (17)
CL Item
Personal care attendant (18)
CL Item
Military unit member (19)
CL Item
Other non-relative (20)
CL Item
N/A – Homeless (21)
CL Item
N/A – Alone (22)
CL Item
Unknown (23)
Dependent children
Item
Number of dependent children
integer
C3242655 (UMLS CUI [1])
Dependent children
Item
Number of dependent children living in the household
integer
C3242655 (UMLS CUI [1,1])
C0020052 (UMLS CUI [1,2])
C0020052 (UMLS CUI [1,2])
CL Item
Under $15,000 (1)
CL Item
$15,000 to $24,999 (2)
CL Item
$25,000 to $34,999 (3)
CL Item
$35,000 to $49,999 (4)
CL Item
$50,000 to $74,999 (5)
CL Item
$75,000 to $99,999 (6)
CL Item
$100,000 and over (7)
CL Item
Refused (8)
CL Item
Unknown (9)
Wage earners
Item
Number of wage earners in the household
integer
C0020052 (UMLS CUI [1,1])
C0599987 (UMLS CUI [1,2])
C0599987 (UMLS CUI [1,2])
Number of people
Item
Number of people supported by this income
integer
C0449788 (UMLS CUI [1,1])
C0027361 (UMLS CUI [1,2])
C0027361 (UMLS CUI [1,2])
CL Item
Medicaid (1)
CL Item
Veterans Affairs/Military (2)
CL Item
Medicare (3)
CL Item
Self-pay (4)
CL Item
Employer-sponsored disability insurance (5)
CL Item
Unknown (6)
CL Item
Private or group health insurance (7)
CL Item
National Health Insurance (8)
CL Item
Other, specify (9)
Health Insurance
Item
Health Insurance:please specify other
text
C0021682 (UMLS CUI [1])
CL Item
Mother (1)
CL Item
Father (2)
CL Item
Other,specify (3)
Item
Mothers Education Level
integer
C0013658 (UMLS CUI [1,1])
C0026591 (UMLS CUI [1,2])
C0026591 (UMLS CUI [1,2])
CL Item
Never attended/ Kindergarten only (1)
CL Item
1st Grade (2)
CL Item
2nd Grade (3)
CL Item
3rd Grade (4)
CL Item
4th Grade (5)
CL Item
5th Grade (6)
CL Item
6th Grade (7)
CL Item
7th Grade (8)
CL Item
8th Grade (9)
CL Item
9th Grade (10)
CL Item
10th Grade (11)
CL Item
11th Grade (12)
CL Item
12th Grade, no diploma (13)
CL Item
High school graduate (14)
CL Item
GED or equivalent (15)
CL Item
Some college, no degree (16)
CL Item
Associate degree: occupational, technical, or vocational program (17)
CL Item
Associate degree: academic program (18)
CL Item
Bachelor's degree (e.g., BA, AB, BS, BBA) (19)
CL Item
Master's degree (e.g., MA, MS, MEng, MEd, MBA) (20)
CL Item
Professional school degree (e.g., MD, DDS, DVM, JD) (21)
CL Item
Doctoral degree (e.g., PhD, EdD) (22)
CL Item
Unknown (23)
Item
Fathers education level
integer
C0013658 (UMLS CUI [1,1])
C0015671 (UMLS CUI [1,2])
C0015671 (UMLS CUI [1,2])
CL Item
Never attended/ Kindergarten only (1)
CL Item
1st Grade (2)
CL Item
2nd Grade (3)
CL Item
3rd Grade (4)
CL Item
4th Grade (5)
CL Item
5th Grade (6)
CL Item
6th Grade (7)
CL Item
7th Grade (8)
CL Item
8th Grade (9)
CL Item
9th Grade (10)
CL Item
10th Grade (11)
CL Item
11th Grade (12)
CL Item
12th Grade, no diploma (13)
CL Item
High school graduate (14)
CL Item
GED or equivalent (15)
CL Item
Some college, no degree (16)
CL Item
Associate degree: occupational, technical, or vocational program (17)
CL Item
Associate degree: academic program (18)
CL Item
Bachelor´s degree (e.g., BA, AB, BS, BBA) (19)
CL Item
Master´s degree (e.g., MA, MS, MEng, MEd, MBA) (20)
CL Item
Professional school degree (e.g., MD, DDS, DVM, JD) (21)
CL Item
Doctoral degree (e.g., PhD, EdD) (22)
CL Item
Unknown (23)
Child rearing: other caregiver
Item
Child rearing: please specify other caregiver
text
C0008091 (UMLS CUI [1,1])
C1709355 (UMLS CUI [1,2])
C1709355 (UMLS CUI [1,2])
Item
Education level of other caregiver
integer
C0013658 (UMLS CUI [1,1])
C1709355 (UMLS CUI [1,2])
C1709355 (UMLS CUI [1,2])
CL Item
Never attended/ Kindergarten only (1)
CL Item
1st Grade (2)
CL Item
2nd Grade (3)
CL Item
3rd Grade (4)
CL Item
4th Grade (5)
CL Item
5th Grade (6)
CL Item
6th Grade (7)
CL Item
7th Grade (8)
CL Item
8th Grade (9)
CL Item
9th Grade (10)
CL Item
10th Grade (11)
CL Item
11th Grade (12)
CL Item
12th Grade, no diploma (13)
CL Item
High school graduate (14)
CL Item
GED or equivalent (15)
CL Item
Some college, no degree (16)
CL Item
Associate degree: occupational, technical, or vocational program (17)
CL Item
Associate degree: academic program (18)
CL Item
Bachelor´s degree (e.g., BA, AB, BS, BBA) (19)
CL Item
Master´s degree (e.g., MA, MS, MEng, MEd, MBA) (20)
CL Item
Professional school degree (e.g., MD, DDS, DVM, JD) (21)
CL Item
Doctoral degree (e.g., PhD, EdD) (22)
CL Item
Unknown (23)