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GECCO - German Corona Consensus - Covid-19 Research-Dataset - Symptome

- 05-01-23 - 13 Formulieren, 7 Itemgroepen, 80 Data-elementen, 1 Taal
Itemgroepen: Symptome, Atemwegssymptome, Systemische Symptome, Neurologische/Psychiatrische Symptome, Schmerzen, Magendarmsymptome, Andere Symptome
Disclaimer: Der „GECCO - German Corona Consensus - Covid-19 Research-Dataset“ Inhalt, der auf dem Portal für medizinische Datenmodelle (MDM Portal) zu finden ist, ersetzt nicht den GECCO Datensatz auf simplifier.net. Für die Nutzung von GECCO-FHIR-Profilen verwenden Sie bitte die auf https://simplifier.net/ForschungsnetzCovid-19/ verfügbaren Profile. Der FHIR-Download auf MDM erzeugt lediglich eine FHIR-Fragebogenresource. Ziel Überarbeitung August 2021: höhere Kompatibilität mit der NUM-COMPASS-App bzw. der Schnittstelle zur zentralen Datenbank; Zwischenstand, gewisse Module sind noch nicht kompatibel mit der Schnittstelle (u.a. Medikation und Laborwerte; Beatmungstherapie ist aktuell doppelt hinterlegt) This version of the GECCO logical model is based on https://art-decor.org/art-decor/decor-datasets--covid19f-, and the implementation for REDCap by the University of Tübingen (3.3.2021), partially updated with https://simplifier.net/guide/GermanCoronaConsensusDataSet-ImplementationGuide/Home information. For actual use of FHIR profiles, please use the actual profiles available on https://simplifier.net/ForschungsnetzCovid-19/ResearchDatasetGECCO/~overview (FHIR download on MDM is only a FHIR questionnaire resource). This version is not compatible with the REDCap to FHIR GECCO converter of the University of Tübingen. It aims at a higher compatibility with the app generated for the NUM-COMPASS project (conversion to COMPASS-compatible FHIR questionnaire necessary) and from there with the central platform of the NUM-CODEX project. A few modules are not yet compatible (e.g. Medication and lab values; ventilation is currently double). Official German text from http://cocos.team/datasets.html: Zur Bewältigung der aktuellen Pandemie und der damit einhergehenden Behandlung von Patienten fördert das Bundesministerium für Bildung und Forschung (BMBF) ein nationales Netzwerk der Universitätsmedizin im Kampf gegen COVID-19. Unter anderem soll das Netzwerk die Daten der behandelten COVID-19 Patienten systematisch erfassen und bündeln. Die Forschenden sollen die Behandlung der COVID-19-Patienten standardisiert erheben, verfolgen und analysieren. Die hohe Bedrohungslage hat zu intensiver wissenschaftlicher Aktivität zu COVID-19 geführt, wozu zahlreiche regionale, nationale und internationale epidemiologische Erhebungen und Registerstudien zählen. Der Konsensusdatensatz gibt der Wissenschaft um COVID-19 eine gemeinsame Sprache und Arbeitsgrundlage. Inofficial translation: In order to cope with the current pandemic and the associated treatment of patients, the Federal Ministry of Education and Research (BMBF) is funding a national network of university medicine in the fight against COVID-19. Among other things, the network will systematically collect and bundle the data of the treated COVID-19 patients. The researchers are to collect, track and analyze the treatment of COVID-19 patients in a standardized way. The high threat level has led to intensive scientific activity on COVID-19, including numerous regional, national and international epidemiological surveys and register studies. The consensus data set provides a common language and working basis for the science around COVID-19.

Studieneinschluss/Einschlusskriterien

1 Itemgroep 3 Data-elementen

Vitalparameter

2 Itemgroepen 18 Data-elementen

Therapie

1 Itemgroep 11 Data-elementen

Laborwerte

26 Itemgroepen 78 Data-elementen

Anamnese/Risikofaktoren

16 Itemgroepen 101 Data-elementen

Medikation

5 Itemgroepen 56 Data-elementen

Virus finder - F.1

- 24-06-22 - 1 Formulier, 5 Itemgroepen, 57 Data-elementen, 3 Talen
Itemgroepen: Screening Tool, Symptoms, Optional Questions, Data use for future research, Informed Consent
Mischung Beispielfragebogen von Virusfinder und Screening-Tool-Vorschläge von COMPASS vom 22 Okt. 2020, vs3.1 https://www.virus-finder.de Research study of Heidelberg University Hospital and Heidelberg University New Corona testing strategies for the general public Die Studie wurde von einem Team der Universität Heidelberg im Rahmen des bundesweiten Forschungsnetzes zur angewandten Surveillance und Testung durchgeführt, das wiederum zum Nationalen Forschungsnetzwerk der Universitätsmedizin zu Covid-19 gehört. Sie wurden von den örtlichen Gesundheitsämtern unterstützt und vom Bundesministerium für Bildung und Forschung finanziert. "Das neuartige Coronavirus, wissenschaftlich SARS-CoV-2 genannt, stellt uns alle vor große Herausforderungen und wir mussten uns alle in den letzten Monaten wegen der Pandemie stark einschränken. Aktuell wird auf steigende Fallzahlen in der Regel mit einer Verschärfung der Maßnahmen reagiert. Das liegt vor allem daran, dass auch viele Personen ohne Symptome das Virus unerkannt weitertragen und damit nicht rechtzeitig lokal begrenzt reagiert werden kann. Dafür bräuchte es eine Strategie, die frühzeitig auch infizierte Personen ohne Symptome erkennen kann. Mit der Corona-Forschungsstudie erproben wir neue Verfahren hierzu. Im Zeitraum vom 18. November bis 08. Dezember [2020] werden ca. 28.000 Einwohner im Rhein-Neckar-Raum von uns ein Einladungsschreiben zur Teilnahme der Studie erhalten. Die Einladungen werden dabei gleichmäßig verteilt über die Tage verschickt. Sollten Sie in diesem Zeitraum kein Einladungsschreiben erhalten, können Sie leider nicht an der Studie teilnehmen und wir bitten Sie, von Anfragen rund um eine mögliche Teilnahme an der Studie abzusehen. Die Probandinnen und Probanden, d. h. die Menschen, die an der Corona-Forschungsstudie teilnehmen können, wurden dafür zufällig aus den Einwohnermeldeämtern der Gemeinden im Rhein-Neckar-Raum ausgewählt. Solche sogenannten Einwohnermeldestichproben sind nach §46 des Bundesmeldegesetzes zulässig, falls die Studie im öffentlichen Interesse stattfindet." Vielen Dank an Dr. Andreas Deckert für die Erlaubnis zum Upload.

Study SHIP-TREND_TREND1_PIA - t1.signinfect2

- 26-10-24 - 26 Formulieren, 1 Itemgroep, 6 Data-elementen, 2 Talen
Itemgroep: t1.signinfect2
SHIP Study https://doi.org/10.1093/ije/dyac034

t1.pia_sf12

1 Itemgroep 12 Data-elementen

t1.symptomresp1

1 Itemgroep 32 Data-elementen

t1.allergyresp

1 Itemgroep 24 Data-elementen

t1.pia_solidar

1 Itemgroep 7 Data-elementen

t1.piacontact

1 Itemgroep 37 Data-elementen

t1.pia_impact

1 Itemgroep 75 Data-elementen

The CoRonavIruS Health Impact Survey (CRISIS) V0.3 - Parent Caregiver Self-Report Follow Up Form - Form.adult_selfreport_follow_up_form

- 18-08-22 - 1 Formulier, 10 Itemgroepen, 99 Data-elementen, 1 Taal
Itemgroepen: Background, IG.3, Life changes last two weeks, Daily behaviors past two weeks, Emotions/ Worries past two weeks, Media use past two weeks, Substance use past two weeks, Supports disrupted, Additional concerns and comments, Comment section - Adult Selfreport Baseline Form
The CRISIS Survey is designed to enable the researchers and care providers to examine the extent and impact of life changes induced by the epidemic on the mental health and behavior of individuals and families across diverse international settings. Our hope is that such data will enable the identification of pre-, peri, and post-COVID19 demographic, social, and clinical predictors of both short- and long-term impairment and distress induced by COVID19 and its sequelae. The CRISIS can be used to track impact of the survey in diverse clinical, population and research settings. It may be even more informative for identifying predictors of impact and service needs from studies that have well characterized information from prior to COVID19. A broad range of behaviors and function are probed in the survey, including daily behaviors, emotional status, media usage, and substance use. The survey is designed to allow for follow-ups on a regular basis, with recommended frequencies of twice monthly or monthly. To facilitate multicultural perspectives, translations in a broad range of languages are available. Investigators: K. Merikangas, M. Milham, A. Stringaris Collaborators: E. Bromet, S. Colcombe, V. Zipunnikov The team encourages advanced notification of any media, scientific reports or publications of data that have been collected with the CRISIS (merikank@mail.nih.gov), though this is not required. We also encourage voluntary data sharing for the purpose of psychometric studies that will be led by Dr. Stringaris (argyris.stringaris@nih.gov).

The CoRonavIruS Health Impact Survey (CRISIS) V0.3 - Parent Caregiver Self-Report Baseline Form - Adult Selfreport Baseline Form

- 18-08-22 - 1 Formulier, 14 Itemgroepen, 189 Data-elementen, 1 Taal
Itemgroepen: Background, Exposure status last two weeks, Life changes last two weeks, Daily behaviors past three month, Emotions/ Worries past three month, Media use past three month, Substance use past three month, Daily behaviors past two weeks, Emotions/ Worries past two weeks, Media use past two weeks, Substance use past two weeks, Supports disrupted, Additional concerns and comments, Comment section - Adult Selfreport Baseline Form
The CRISIS Survey is designed to enable the researchers and care providers to examine the extent and impact of life changes induced by the epidemic on the mental health and behavior of individuals and families across diverse international settings. Our hope is that such data will enable the identification of pre-, peri, and post-COVID19 demographic, social, and clinical predictors of both short- and long-term impairment and distress induced by COVID19 and its sequelae. The CRISIS can be used to track impact of the survey in diverse clinical, population and research settings. It may be even more informative for identifying predictors of impact and service needs from studies that have well characterized information from prior to COVID19. A broad range of behaviors and function are probed in the survey, including daily behaviors, emotional status, media usage, and substance use. The survey is designed to allow for follow-ups on a regular basis, with recommended frequencies of twice monthly or monthly. To facilitate multicultural perspectives, translations in a broad range of languages are available. Investigators: K. Merikangas, M. Milham, A. Stringaris Collaborators: E. Bromet, S. Colcombe, V. Zipunnikov The team encourages advanced notification of any media, scientific reports or publications of data that have been collected with the CRISIS (merikank@mail.nih.gov), though this is not required. We also encourage voluntary data sharing for the purpose of psychometric studies that will be led by Dr. Stringaris (argyris.stringaris@nih.gov).

The CoRonavIruS Health Impact Survey (CRISIS) V0.3 - Youth Self-Report Baseline Form - Adult Selfreport Baseline Form

- 18-08-22 - 1 Formulier, 14 Itemgroepen, 182 Data-elementen, 1 Taal
Itemgroepen: Background, Exposure status last two weeks, Life changes last two weeks, Daily behaviors past three month, Emotions/ Worries past three month, Media use past three month, Substance use past three month, Daily behaviors past two weeks, Emotions/ Worries past two weeks, Media use past two weeks, Substance use past two weeks, Supports disrupted, Additional concerns and comments, Comment section - Adult Selfreport Baseline Form
The CRISIS Survey is designed to enable the researchers and care providers to examine the extent and impact of life changes induced by the epidemic on the mental health and behavior of individuals and families across diverse international settings. Our hope is that such data will enable the identification of pre-, peri, and post-COVID19 demographic, social, and clinical predictors of both short- and long-term impairment and distress induced by COVID19 and its sequelae. The CRISIS can be used to track impact of the survey in diverse clinical, population and research settings. It may be even more informative for identifying predictors of impact and service needs from studies that have well characterized information from prior to COVID19. A broad range of behaviors and function are probed in the survey, including daily behaviors, emotional status, media usage, and substance use. The survey is designed to allow for follow-ups on a regular basis, with recommended frequencies of twice monthly or monthly. To facilitate multicultural perspectives, translations in a broad range of languages are available. Investigators: K. Merikangas, M. Milham, A. Stringaris Collaborators: E. Bromet, S. Colcombe, V. Zipunnikov The team encourages advanced notification of any media, scientific reports or publications of data that have been collected with the CRISIS (merikank@mail.nih.gov), though this is not required. We also encourage voluntary data sharing for the purpose of psychometric studies that will be led by Dr. Stringaris (argyris.stringaris@nih.gov).

The CoRonavIruS Health Impact Survey (CRISIS) V0.3 - Youth Self-Report Follow Up Form - Form.adult_selfreport_follow_up_form

- 18-08-22 - 1 Formulier, 10 Itemgroepen, 96 Data-elementen, 1 Taal
Itemgroepen: Background, IG.3, Life changes last two weeks, Daily behaviors past two weeks, Emotions/ Worries past two weeks, Media use past two weeks, Substance use past two weeks, Supports disrupted, Additional concerns and comments, Comment section - Adult Selfreport Baseline Form
The CRISIS Survey is designed to enable the researchers and care providers to examine the extent and impact of life changes induced by the epidemic on the mental health and behavior of individuals and families across diverse international settings. Our hope is that such data will enable the identification of pre-, peri, and post-COVID19 demographic, social, and clinical predictors of both short- and long-term impairment and distress induced by COVID19 and its sequelae. The CRISIS can be used to track impact of the survey in diverse clinical, population and research settings. It may be even more informative for identifying predictors of impact and service needs from studies that have well characterized information from prior to COVID19. A broad range of behaviors and function are probed in the survey, including daily behaviors, emotional status, media usage, and substance use. The survey is designed to allow for follow-ups on a regular basis, with recommended frequencies of twice monthly or monthly. To facilitate multicultural perspectives, translations in a broad range of languages are available. Investigators: K. Merikangas, M. Milham, A. Stringaris Collaborators: E. Bromet, S. Colcombe, V. Zipunnikov The team encourages advanced notification of any media, scientific reports or publications of data that have been collected with the CRISIS (merikank@mail.nih.gov), though this is not required. We also encourage voluntary data sharing for the purpose of psychometric studies that will be led by Dr. Stringaris (argyris.stringaris@nih.gov).

The CoRonavIruS Health Impact Survey (CRISIS) V0.3 - Adult Self-Report Follow Up Form - Form.adult_selfreport_follow_up_form

- 18-08-22 - 1 Formulier, 10 Itemgroepen, 101 Data-elementen, 1 Taal
Itemgroepen: Background, IG.3, Life changes last two weeks, Daily behaviors past two weeks, Emotions/ Worries past two weeks, Media use past two weeks, Substance use past two weeks, Supports disrupted, Additional concerns and comments, adult_selfreport_follow_up_form.surveycomments
The CRISIS Survey is designed to enable the researchers and care providers to examine the extent and impact of life changes induced by the epidemic on the mental health and behavior of individuals and families across diverse international settings. Our hope is that such data will enable the identification of pre-, peri, and post-COVID19 demographic, social, and clinical predictors of both short- and long-term impairment and distress induced by COVID19 and its sequelae. The CRISIS can be used to track impact of the survey in diverse clinical, population and research settings. It may be even more informative for identifying predictors of impact and service needs from studies that have well characterized information from prior to COVID19. A broad range of behaviors and function are probed in the survey, including daily behaviors, emotional status, media usage, and substance use. The survey is designed to allow for follow-ups on a regular basis, with recommended frequencies of twice monthly or monthly. To facilitate multicultural perspectives, translations in a broad range of languages are available. Investigators: K. Merikangas, M. Milham, A. Stringaris Collaborators: E. Bromet, S. Colcombe, V. Zipunnikov The team encourages advanced notification of any media, scientific reports or publications of data that have been collected with the CRISIS (merikank@mail.nih.gov), though this is not required. We also encourage voluntary data sharing for the purpose of psychometric studies that will be led by Dr. Stringaris (argyris.stringaris@nih.gov).

The CoRonavIruS Health Impact Survey (CRISIS) V0.3 - Adult Self-Report Baseline Form - Adult Selfreport Baseline Form

- 18-08-22 - 1 Formulier, 14 Itemgroepen, 192 Data-elementen, 1 Taal
Itemgroepen: Background, Exposure status last two weeks, Life changes last two weeks, Daily behaviors past three month, Emotions/ Worries past three month, Media use past three month, Substance use past three month, Daily behaviors past two weeks, Emotions/ Worries past two weeks, Media use past two weeks, Substance use past two weeks, Supports disrupted, Additional concerns and comments, Comment section - Adult Selfreport Baseline Form
The CRISIS Survey is designed to enable the researchers and care providers to examine the extent and impact of life changes induced by the epidemic on the mental health and behavior of individuals and families across diverse international settings. Our hope is that such data will enable the identification of pre-, peri, and post-COVID19 demographic, social, and clinical predictors of both short- and long-term impairment and distress induced by COVID19 and its sequelae. The CRISIS can be used to track impact of the survey in diverse clinical, population and research settings. It may be even more informative for identifying predictors of impact and service needs from studies that have well characterized information from prior to COVID19. A broad range of behaviors and function are probed in the survey, including daily behaviors, emotional status, media usage, and substance use. The survey is designed to allow for follow-ups on a regular basis, with recommended frequencies of twice monthly or monthly. To facilitate multicultural perspectives, translations in a broad range of languages are available. Investigators: K. Merikangas, M. Milham, A. Stringaris Collaborators: E. Bromet, S. Colcombe, V. Zipunnikov The team encourages advanced notification of any media, scientific reports or publications of data that have been collected with the CRISIS (merikank@mail.nih.gov), though this is not required. We also encourage voluntary data sharing for the purpose of psychometric studies that will be led by Dr. Stringaris (argyris.stringaris@nih.gov).

Risk perception and optimism during the early stages of the COVID-19 pandemic - Questionnaire risk perception and optimism about COVID-19

- 05-01-22 - 1 Formulier, 7 Itemgroepen, 151 Data-elementen, 1 Taal
Itemgroepen: Risk perception for COVID-19, Control questions for optimism, Adherence to protective measures, Mental health, General control questions, Other, Demographics
In this study, we assessed risk perception and optimism about COVID-19 in a multinational (UK, USA and Germany), longitudinal design during the early stages of the pandemic (16 March 2020; 1 April 2020; 20 May 2020). Our main findings are that (i) people showed a comparative optimism bias about getting infected and infecting others, but not for getting severe symptoms, (ii) this optimism bias did not change over time, (iii) optimism bias seemed to relate to perceived level of control over the action, (iv) risk perception was linked to publicly available information about the disorder, (v) people reported adhering closely to protective measures but these measures did not seem to be related to risk perception, and (vi) risk perception was related to questions about stress and anxiety. Kuper-Smith BJ, Doppelhofer LM, Oganian Y, Rosenblau G, Korn CW. 2021 Risk perception and optimism during the early stages of the COVID-19 pandemic. R. Soc. Open Sci. 8: 210904. https://doi.org/10.1098/rsos.210904

COVID-Follow-Up - Verlaufsdokumentation

- 05-11-21 - 1 Formulier, 3 Itemgroepen, 13 Data-elementen, 12 Talen
Itemgroepen: Vitalzeichen, Symptome, Medikamente
Follow-Up of COVID-19 positive risk patients to document course of disease

COVID-19 Medical History - Corona Anamnese

- 05-11-21 - 1 Formulier, 5 Itemgroepen, 25 Data-elementen, 12 Talen
Itemgroepen: Symptome, Kontakt, Risikogebiet, Allgemeine Angaben, Ergänzungen
COVID-19 Medical History in 12 languages

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