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  1. 1. Klinisk studie
  2. 2. Rutindokumentation
  3. 3. Register- och kohortstudier
  4. 4. Kvalitetssäkring
  5. 5. Datastandard
  6. 6. Frågeformulär för patienter
  7. 7. Medicinsk specialitet
Valda datamodeller

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- 2021-09-20 - 1 Formulär, 5 Item-grupper, 41 Dataelement, 2 Språk
Item-grupper: Patient data, -, Therapeutic procedure , Tumor Status, Tumor Expansion
- 2021-09-20 - 1 Formulär, 15 Item-grupper, 189 Dataelement, 1 Språk
Item-grupper: Administrative data, Symptoms at initial diagnosis, Comorbidity at initial diagnosis, Comorbidity Follow up, Laboratory at initial diagnosis, Laboratory follow-up, Follow up, Disease progression, Blood cell morphology, Cellular Morphology Bone marrow, Histology Bone Marrow, Molecular Genetics, secondary myelodysplastic syndromes, Therapy Myelodysplastic syndrome, Treatment
- 2021-09-20 - 9 Formulär, 1 Item-grupp, 12 Dataelement, 1 Språk
Item-grupp: Patient registration

Eligibility

1 Item-grupp 5 Dataelement

Visit details

6 Item-grupper 29 Dataelement

Bone marrow assessment

3 Item-grupper 13 Dataelement

Concomitant treatment

1 Item-grupp 5 Dataelement

Withdrawal

2 Item-grupper 7 Dataelement

General medical history

1 Item-grupp 5 Dataelement
- 2021-09-20 - 1 Formulär, 7 Item-grupper, 17 Dataelement, 2 Språk
Item-grupper: Signed informed consent available for participation in the registry and consultation, Signed informed consent available for data transfer, data storage, and data handling ..., Storage of remaining bio material with contact for each scientific usage, Storage and use of remaining bio material for the following research projects (pseudonymized) for all NHL, Storage and use of remaining bio material for the following research projects (pseudonymized) FOR LYMPHOBLASTIC LYMPHOMA, Storage and use of remaining bio material for the following research projects (pseudonymized) FOR MATURE B-CELL LYMPHOMA, Storage and use of remaining bio material for the following research projects (pseudonymized) FOR LARGE CELL ANAPLASTIC LYMPHOMA (ALCL)
- 2021-09-20 - 1 Formulär, 24 Item-grupper, 397 Dataelement, 1 Språk
Item-grupper: Registry Use Only, Identification Data, HSCT Type, Vital Status, Hematopoietic Reconstitution, Granulopoiesis / Neutrophil Recovery, Megakaryopoiesis / Platelet Recovery, Hematology findings, Immune Reconstitution, Chimerism analysis post transplantation, Chimerism Studies - Single Donor, Chimerism Studies - Multiple Donors, Engraftment Syndrome, Acute GVHD, Chronic GVHD, Infection, Pulmonary Function, Liver, Other Organ Impairment, New malignancy, Functional Status, Subsequent HSCT, Donor Cellular Infusion, Author Information
- 2021-09-20 - 1 Formulär, 20 Item-grupper, 200 Dataelement, 1 Språk
Item-grupper: CENTRE IDENTIFICATION, PATIENT DATA, DISEASE, HSCT, STEM CELLS (autograft or allograft), HSCT, AFTER HSCT, ADDITIONAL TREATMENT INCLUDING CELL THERAPY, DISEASE STATUS, Date of last follow up or death, DISEASE PRESENCE/DETECTION AT LAST CONTACT, PATIENT STATUS AT LAST CONTACT, COVER PAGE FOR HISTOCOMPATIBILITY REPORTS, HSCT - Minimum Essential Data - A First report - 100 days after HSCT - APPENDIX, DISEASE OF SECONDARY ORIGIN, THERAPY GIVEN PRIOR TO THIS HSCT, Comorbidity, HSCT - Minimum Essential Data - A First report - 100 days after HSCT - APPENDIX, HSCT - Minimum Essential Data - A First report - 100 days after HSCT - APPENDIX, HSCT - Minimum Essential Data - A First report - 100 days after HSCT DISEASE CLASSIFICATION SHEET 1

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