ID
44637
Beskrivning
The Cell Therapy Registry (CTR) aims to collect data on fetal or adult stem cells, or progenitor cells used for treatment other than haematopoietic stem cell transplantation or donor lymphocyte infusion, as well as data on the clinical characteristics and outcome of the patients. Data will be collected on characteristics of the cell graft, /in/ or /ex vivo/ cell manipulation and the cell origin (autologous versus allogeneic). Data will include details on patients treated with mesenchymal cells, for instance, to enhance haematopoietic engraftment, for prophylaxis and treatment of GvHD. The registry will also include data on patients treated by other disciplines for neurologic, rheumatologic, cardiac and inflammatory bowel diseases and tissue regeneration. For further information, please contact: The registry will also include data on patients treated by other disciplines for neurologic, rheumatologic, cardiac and inflammatory bowel diseases and tissue regeneration. For further information, please contact: Dr. Katarina Le Blanc Karolinska University Hospital Centre for Allogeneic Stem Cell Transplantation Huddinge SE-141 86 Stockholm Sweden e-mail : Katarina.Leblanc@ki.se please refer: http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Pages/MED-AB-data-collection-forms.aspx
Länk
Nyckelord
Versioner (3)
- 2016-02-26 2016-02-26 -
- 2016-07-11 2016-07-11 -
- 2021-09-27 2021-09-27 -
Uppladdad den
27 september 2021
DOI
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Licens
Creative Commons BY-NC 3.0
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Cell Therapy Registry EBMT
Cell Therapy Registry EBMT
- StudyEvent: ODM
Beskrivning
CENTRE IDENTIFICATION
Beskrivning
OrganizationalUnit::EBMT(CIC)CodeNumber
Datatyp
float
Alias
- UMLS CUI [1]
- C0600091
Beskrivning
Hospital
Datatyp
integer
Alias
- UMLS CUI [1]
- C0019994
Beskrivning
Unit
Datatyp
integer
Alias
- UMLS CUI [1]
- C1519795
Beskrivning
Contact person
Datatyp
integer
Alias
- UMLS CUI [1]
- C0337611
Beskrivning
Phone
Datatyp
text
Alias
- UMLS CUI [1,1]
- C1550483
- UMLS CUI [1,2]
- C1515258
Beskrivning
Fax
Datatyp
text
Alias
- UMLS CUI [1]
- C0085205
Beskrivning
Datatyp
integer
Alias
- UMLS CUI [1]
- C0013849
Beskrivning
REPORT INFORMATION
Beskrivning
PATIENT IDENTIFICATION
Beskrivning
Unique Patient Number or Code
Datatyp
integer
Alias
- UMLS CUI [1]
- C1830427
Beskrivning
(first name(s) _family name(s)
Datatyp
text
Alias
- UMLS CUI [1]
- C2986440
Beskrivning
Date of Birth
Datatyp
date
Alias
- UMLS CUI [1]
- C0421451
Beskrivning
Gender
Datatyp
integer
Alias
- UMLS CUI [1]
- C0079399
Beskrivning
INDICATION FOR TREATMENT If Primary disease
Beskrivning
Date of diagnosis
Datatyp
date
Alias
- UMLS CUI [1]
- C2316983
Beskrivning
Autoimmune disease
Datatyp
integer
Alias
- UMLS CUI [1]
- C0004364
Beskrivning
Neurologic disorder
Datatyp
integer
Alias
- UMLS CUI [1]
- C0027765
Beskrivning
Heart disease
Datatyp
integer
Alias
- UMLS CUI [1]
- C0018799
Beskrivning
Haematologic
Datatyp
integer
Alias
- UMLS CUI [1]
- C0279810
Beskrivning
Other, specify
Datatyp
integer
Alias
- UMLS CUI [1]
- C1299220
Beskrivning
Haematopoietic stem cell transplant
Datatyp
integer
Alias
- UMLS CUI [1]
- C1142465
Beskrivning
CELL THERAPY TREATMENT
Beskrivning
Date of first cell infusion
Datatyp
date
Alias
- UMLS CUI [1,1]
- C2145394
- UMLS CUI [1,2]
- C2145394
Beskrivning
Performance score
Datatyp
integer
Alias
- UMLS CUI [1]
- C1518965
Beskrivning
Score
Datatyp
text
Alias
- UMLS CUI [1]
- C1518965
Beskrivning
Status at therapy
Datatyp
integer
Alias
- UMLS CUI [1]
- C0420207
Beskrivning
Cell origin
Datatyp
integer
Alias
- UMLS CUI [1]
- C0205623
Beskrivning
Tissue cell source
Datatyp
integer
Alias
- UMLS CUI [1]
- C0444088
Beskrivning
Cell characteristic
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C1521970
- UMLS CUI [1,2]
- C0007634
Beskrivning
Cell characteristic
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C1521970
- UMLS CUI [1,2]
- C0007634
- UMLS CUI [1,3]
- C3845569
Beskrivning
f more than 6 months apart
Datatyp
integer
Alias
- UMLS CUI [1]
- C0302189
Beskrivning
GRAFT MANIPULATION
Beskrivning
Ex-vivo manipulation
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0947647
- UMLS CUI [1,2]
- C2348480
Beskrivning
Ex-vivo manipulation
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0947647
- UMLS CUI [1,2]
- C2348480
- UMLS CUI [1,3]
- C0018284
Beskrivning
Ex-vivo manipulation
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0947647
- UMLS CUI [1,2]
- C2348480
- UMLS CUI [1,3]
- C0205394
Beskrivning
In-vivo manipulation
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0947647
- UMLS CUI [1,2]
- C2348480
- UMLS CUI [1,3]
- C0947647
- UMLS CUI [1,4]
- C2348480
Beskrivning
In-vivo manipulation In the donor
Datatyp
text
Alias
- UMLS CUI [1,1]
- C0947647
- UMLS CUI [1,2]
- C1515655
- UMLS CUI [1,3]
- C0018284
Beskrivning
In-vivo manipulation In the donor
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0947647
- UMLS CUI [1,2]
- C1515655
- UMLS CUI [1,3]
- C0013018
Beskrivning
In-vivo manipulation
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0947647
- UMLS CUI [1,2]
- C1515655
- UMLS CUI [1,3]
- C0030705
Beskrivning
In-vivo manipulation, in the patient
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0947647
- UMLS CUI [1,2]
- C1515655
- UMLS CUI [1,3]
- C0018284
- UMLS CUI [1,4]
- C0030705
Beskrivning
In-vivo manipulation, in the patient
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0947647
- UMLS CUI [1,2]
- C1515655
- UMLS CUI [1,3]
- C0030705
- UMLS CUI [1,4]
- C0205394
Beskrivning
TREATMENT
Beskrivning
Route of infusion
Datatyp
integer
Alias
- UMLS CUI [1]
- C1827465
Beskrivning
Route of infusion
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0021487
- UMLS CUI [1,2]
- C1521902
Beskrivning
Route of infusion, other route
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0205394
- UMLS CUI [1,2]
- C1827465
Beskrivning
Dose
Datatyp
integer
Alias
- UMLS CUI [1]
- C3174092
Beskrivning
Dose, Total No of infusions
Datatyp
integer
Alias
- UMLS CUI [1]
- C4071549
Beskrivning
Dose, No of cells infused per infusion
Datatyp
integer
Måttenheter
- x 106/kg
Alias
- UMLS CUI [1]
- C0427872
Beskrivning
Associated procedure
Datatyp
integer
Alias
- UMLS CUI [1]
- C1285504
Beskrivning
Associated procedure
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C1285504
- UMLS CUI [1,2]
- C1521902
Beskrivning
RESPONSE
Beskrivning
Best clinical/biological response after cell therapy
Datatyp
integer
Alias
- UMLS CUI [1]
- C2986560
Beskrivning
Laboratory response
Datatyp
integer
Alias
- UMLS CUI [1]
- C1704632
Beskrivning
Laboratory response
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C1704632
- UMLS CUI [1,2]
- C1532342
Beskrivning
DATE OF LAST CONTACT
Beskrivning
Date of last follow up or death
Datatyp
date
Alias
- UMLS CUI [1,1]
- C3694716
- UMLS CUI [1,2]
- C0011065
Beskrivning
Survival Status
Datatyp
integer
Alias
- UMLS CUI [1]
- C1148433
Beskrivning
Cause of Death
Datatyp
integer
Alias
- UMLS CUI [1]
- C0007465
Beskrivning
Main Cause of Death
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0007465
- UMLS CUI [1,2]
- C0472699
Beskrivning
Main Cause of Death
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0007465
- UMLS CUI [1,2]
- C0302189
Beskrivning
Main Cause of Death, Other
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0007465
- UMLS CUI [1,2]
- C0205394
Beskrivning
CENTRE IDENTIFICATION
Beskrivning
OrganizationalUnit::EBMT(CIC)CodeNumber
Datatyp
float
Alias
- UMLS CUI [1,1]
- C3826859
- UMLS CUI [1,2]
- C1827636
Beskrivning
Hospital
Datatyp
integer
Alias
- UMLS CUI [1]
- C0019994
Beskrivning
Unit
Datatyp
integer
Alias
- UMLS CUI [1]
- C1519795
Beskrivning
Contact person
Datatyp
integer
Alias
- UMLS CUI [1]
- C0337611
Beskrivning
Phone
Datatyp
integer
Alias
- UMLS CUI [1]
- C1136359
Beskrivning
ContactPersonFaxNumber
Datatyp
integer
Alias
- UMLS CUI [1]
- C0085205
Beskrivning
CentralLaboratoryContactPersonEmailAddressText
Datatyp
integer
Alias
- UMLS CUI [1]
- C1705961
Beskrivning
REPORT INFORMATION
Beskrivning
PATIENT IDENTIFICATION
Beskrivning
Unique Patient Number or Code
Datatyp
integer
Alias
- UMLS CUI [1]
- C1830427
Beskrivning
Compulsory, registrations will not be accepted without this item
Datatyp
integer
Alias
- UMLS CUI [1]
- C2986440
Beskrivning
Date of Birth
Datatyp
date
Alias
- UMLS CUI [1]
- C0421451
Beskrivning
Sex
Datatyp
text
Alias
- UMLS CUI [1]
- C0079399
Beskrivning
DATE OF LAST CONTACT
Datatyp
date
Alias
- UMLS CUI [1]
- C0805839
Beskrivning
Was disease detected
Datatyp
boolean
Alias
- UMLS CUI [1]
- C0012634
Beskrivning
PATIENT STATUS
Datatyp
integer
Alias
- UMLS CUI [1]
- C3846084
Beskrivning
Main Cause of Death
Datatyp
integer
Alias
- UMLS CUI [1]
- C0011065
Beskrivning
Main Cause of Death
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0007465
- UMLS CUI [1,2]
- C0472699
Beskrivning
Main Cause of Death
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0007465
- UMLS CUI [1,2]
- C0302189
Beskrivning
Main Cause of Death
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0007465
- UMLS CUI [1,2]
- C0205394
Similar models
Cell Therapy Registry EBMT
- StudyEvent: ODM
C1515258 (UMLS CUI [1,2])
C2145394 (UMLS CUI [1,2])
C0007634 (UMLS CUI [1,2])
C0007634 (UMLS CUI [1,2])
C3845569 (UMLS CUI [1,3])
C2348480 (UMLS CUI [1,2])
C2348480 (UMLS CUI [1,2])
C0018284 (UMLS CUI [1,3])
C2348480 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
C2348480 (UMLS CUI [1,2])
C0947647 (UMLS CUI [1,3])
C2348480 (UMLS CUI [1,4])
C1515655 (UMLS CUI [1,2])
C0018284 (UMLS CUI [1,3])
C1515655 (UMLS CUI [1,2])
C0013018 (UMLS CUI [1,3])
C1515655 (UMLS CUI [1,2])
C0030705 (UMLS CUI [1,3])
C1515655 (UMLS CUI [1,2])
C0018284 (UMLS CUI [1,3])
C0030705 (UMLS CUI [1,4])
C1515655 (UMLS CUI [1,2])
C0030705 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,4])
C1521902 (UMLS CUI [1,2])
C1827465 (UMLS CUI [1,2])
C1514463 (UMLS CUI-2)
C1882428 (UMLS CUI-2)
C1521902 (UMLS CUI [1,2])
C1532342 (UMLS CUI [1,2])
C0011065 (UMLS CUI [1,2])
C0472699 (UMLS CUI [1,2])
C0302189 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
C1827636 (UMLS CUI [1,2])
C0302189 (UMLS CUI-2)
C0472699 (UMLS CUI [1,2])
C0302189 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
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