ID
44637
Beschreibung
The Cell Therapy Registry (CTR) aims to collect data on fetal or adult stem cells, or progenitor cells used for treatment other than haematopoietic stem cell transplantation or donor lymphocyte infusion, as well as data on the clinical characteristics and outcome of the patients. Data will be collected on characteristics of the cell graft, /in/ or /ex vivo/ cell manipulation and the cell origin (autologous versus allogeneic). Data will include details on patients treated with mesenchymal cells, for instance, to enhance haematopoietic engraftment, for prophylaxis and treatment of GvHD. The registry will also include data on patients treated by other disciplines for neurologic, rheumatologic, cardiac and inflammatory bowel diseases and tissue regeneration. For further information, please contact: The registry will also include data on patients treated by other disciplines for neurologic, rheumatologic, cardiac and inflammatory bowel diseases and tissue regeneration. For further information, please contact: Dr. Katarina Le Blanc Karolinska University Hospital Centre for Allogeneic Stem Cell Transplantation Huddinge SE-141 86 Stockholm Sweden e-mail : Katarina.Leblanc@ki.se please refer: http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Pages/MED-AB-data-collection-forms.aspx
Link
Stichworte
Versionen (3)
- 26.02.16 26.02.16 -
- 11.07.16 11.07.16 -
- 27.09.21 27.09.21 -
Hochgeladen am
27. September 2021
DOI
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Lizenz
Creative Commons BY-NC 3.0
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Cell Therapy Registry EBMT
Cell Therapy Registry EBMT
- StudyEvent: ODM
Beschreibung
CENTRE IDENTIFICATION
Beschreibung
OrganizationalUnit::EBMT(CIC)CodeNumber
Datentyp
float
Alias
- UMLS CUI [1]
- C0600091
Beschreibung
Hospital
Datentyp
integer
Alias
- UMLS CUI [1]
- C0019994
Beschreibung
Unit
Datentyp
integer
Alias
- UMLS CUI [1]
- C1519795
Beschreibung
Contact person
Datentyp
integer
Alias
- UMLS CUI [1]
- C0337611
Beschreibung
Phone
Datentyp
text
Alias
- UMLS CUI [1,1]
- C1550483
- UMLS CUI [1,2]
- C1515258
Beschreibung
Fax
Datentyp
text
Alias
- UMLS CUI [1]
- C0085205
Beschreibung
Datentyp
integer
Alias
- UMLS CUI [1]
- C0013849
Beschreibung
REPORT INFORMATION
Beschreibung
PATIENT IDENTIFICATION
Beschreibung
Unique Patient Number or Code
Datentyp
integer
Alias
- UMLS CUI [1]
- C1830427
Beschreibung
(first name(s) _family name(s)
Datentyp
text
Alias
- UMLS CUI [1]
- C2986440
Beschreibung
Date of Birth
Datentyp
date
Alias
- UMLS CUI [1]
- C0421451
Beschreibung
Gender
Datentyp
integer
Alias
- UMLS CUI [1]
- C0079399
Beschreibung
INDICATION FOR TREATMENT If Primary disease
Beschreibung
Date of diagnosis
Datentyp
date
Alias
- UMLS CUI [1]
- C2316983
Beschreibung
Autoimmune disease
Datentyp
integer
Alias
- UMLS CUI [1]
- C0004364
Beschreibung
Neurologic disorder
Datentyp
integer
Alias
- UMLS CUI [1]
- C0027765
Beschreibung
Heart disease
Datentyp
integer
Alias
- UMLS CUI [1]
- C0018799
Beschreibung
Haematologic
Datentyp
integer
Alias
- UMLS CUI [1]
- C0279810
Beschreibung
Other, specify
Datentyp
integer
Alias
- UMLS CUI [1]
- C1299220
Beschreibung
Haematopoietic stem cell transplant
Datentyp
integer
Alias
- UMLS CUI [1]
- C1142465
Beschreibung
CELL THERAPY TREATMENT
Beschreibung
Date of first cell infusion
Datentyp
date
Alias
- UMLS CUI [1,1]
- C2145394
- UMLS CUI [1,2]
- C2145394
Beschreibung
Performance score
Datentyp
integer
Alias
- UMLS CUI [1]
- C1518965
Beschreibung
Score
Datentyp
text
Alias
- UMLS CUI [1]
- C1518965
Beschreibung
Status at therapy
Datentyp
integer
Alias
- UMLS CUI [1]
- C0420207
Beschreibung
Cell origin
Datentyp
integer
Alias
- UMLS CUI [1]
- C0205623
Beschreibung
Tissue cell source
Datentyp
integer
Alias
- UMLS CUI [1]
- C0444088
Beschreibung
Cell characteristic
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C1521970
- UMLS CUI [1,2]
- C0007634
Beschreibung
Cell characteristic
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C1521970
- UMLS CUI [1,2]
- C0007634
- UMLS CUI [1,3]
- C3845569
Beschreibung
f more than 6 months apart
Datentyp
integer
Alias
- UMLS CUI [1]
- C0302189
Beschreibung
GRAFT MANIPULATION
Beschreibung
Ex-vivo manipulation
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0947647
- UMLS CUI [1,2]
- C2348480
Beschreibung
Ex-vivo manipulation
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0947647
- UMLS CUI [1,2]
- C2348480
- UMLS CUI [1,3]
- C0018284
Beschreibung
Ex-vivo manipulation
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0947647
- UMLS CUI [1,2]
- C2348480
- UMLS CUI [1,3]
- C0205394
Beschreibung
In-vivo manipulation
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0947647
- UMLS CUI [1,2]
- C2348480
- UMLS CUI [1,3]
- C0947647
- UMLS CUI [1,4]
- C2348480
Beschreibung
In-vivo manipulation In the donor
Datentyp
text
Alias
- UMLS CUI [1,1]
- C0947647
- UMLS CUI [1,2]
- C1515655
- UMLS CUI [1,3]
- C0018284
Beschreibung
In-vivo manipulation In the donor
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0947647
- UMLS CUI [1,2]
- C1515655
- UMLS CUI [1,3]
- C0013018
Beschreibung
In-vivo manipulation
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0947647
- UMLS CUI [1,2]
- C1515655
- UMLS CUI [1,3]
- C0030705
Beschreibung
In-vivo manipulation, in the patient
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0947647
- UMLS CUI [1,2]
- C1515655
- UMLS CUI [1,3]
- C0018284
- UMLS CUI [1,4]
- C0030705
Beschreibung
In-vivo manipulation, in the patient
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0947647
- UMLS CUI [1,2]
- C1515655
- UMLS CUI [1,3]
- C0030705
- UMLS CUI [1,4]
- C0205394
Beschreibung
TREATMENT
Beschreibung
Route of infusion
Datentyp
integer
Alias
- UMLS CUI [1]
- C1827465
Beschreibung
Route of infusion
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0021487
- UMLS CUI [1,2]
- C1521902
Beschreibung
Route of infusion, other route
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0205394
- UMLS CUI [1,2]
- C1827465
Beschreibung
Dose
Datentyp
integer
Alias
- UMLS CUI [1]
- C3174092
Beschreibung
Dose, Total No of infusions
Datentyp
integer
Alias
- UMLS CUI [1]
- C4071549
Beschreibung
Dose, No of cells infused per infusion
Datentyp
integer
Maßeinheiten
- x 106/kg
Alias
- UMLS CUI [1]
- C0427872
Beschreibung
Associated procedure
Datentyp
integer
Alias
- UMLS CUI [1]
- C1285504
Beschreibung
Associated procedure
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C1285504
- UMLS CUI [1,2]
- C1521902
Beschreibung
RESPONSE
Beschreibung
Best clinical/biological response after cell therapy
Datentyp
integer
Alias
- UMLS CUI [1]
- C2986560
Beschreibung
Laboratory response
Datentyp
integer
Alias
- UMLS CUI [1]
- C1704632
Beschreibung
Laboratory response
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C1704632
- UMLS CUI [1,2]
- C1532342
Beschreibung
DATE OF LAST CONTACT
Beschreibung
Date of last follow up or death
Datentyp
date
Alias
- UMLS CUI [1,1]
- C3694716
- UMLS CUI [1,2]
- C0011065
Beschreibung
Survival Status
Datentyp
integer
Alias
- UMLS CUI [1]
- C1148433
Beschreibung
Cause of Death
Datentyp
integer
Alias
- UMLS CUI [1]
- C0007465
Beschreibung
Main Cause of Death
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0007465
- UMLS CUI [1,2]
- C0472699
Beschreibung
Main Cause of Death
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0007465
- UMLS CUI [1,2]
- C0302189
Beschreibung
Main Cause of Death, Other
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0007465
- UMLS CUI [1,2]
- C0205394
Beschreibung
CENTRE IDENTIFICATION
Beschreibung
OrganizationalUnit::EBMT(CIC)CodeNumber
Datentyp
float
Alias
- UMLS CUI [1,1]
- C3826859
- UMLS CUI [1,2]
- C1827636
Beschreibung
Hospital
Datentyp
integer
Alias
- UMLS CUI [1]
- C0019994
Beschreibung
Unit
Datentyp
integer
Alias
- UMLS CUI [1]
- C1519795
Beschreibung
Contact person
Datentyp
integer
Alias
- UMLS CUI [1]
- C0337611
Beschreibung
Phone
Datentyp
integer
Alias
- UMLS CUI [1]
- C1136359
Beschreibung
ContactPersonFaxNumber
Datentyp
integer
Alias
- UMLS CUI [1]
- C0085205
Beschreibung
CentralLaboratoryContactPersonEmailAddressText
Datentyp
integer
Alias
- UMLS CUI [1]
- C1705961
Beschreibung
REPORT INFORMATION
Beschreibung
PATIENT IDENTIFICATION
Beschreibung
Unique Patient Number or Code
Datentyp
integer
Alias
- UMLS CUI [1]
- C1830427
Beschreibung
Compulsory, registrations will not be accepted without this item
Datentyp
integer
Alias
- UMLS CUI [1]
- C2986440
Beschreibung
Date of Birth
Datentyp
date
Alias
- UMLS CUI [1]
- C0421451
Beschreibung
Sex
Datentyp
text
Alias
- UMLS CUI [1]
- C0079399
Beschreibung
DATE OF LAST CONTACT
Datentyp
date
Alias
- UMLS CUI [1]
- C0805839
Beschreibung
Was disease detected
Datentyp
boolean
Alias
- UMLS CUI [1]
- C0012634
Beschreibung
PATIENT STATUS
Datentyp
integer
Alias
- UMLS CUI [1]
- C3846084
Beschreibung
Main Cause of Death
Datentyp
integer
Alias
- UMLS CUI [1]
- C0011065
Beschreibung
Main Cause of Death
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0007465
- UMLS CUI [1,2]
- C0472699
Beschreibung
Main Cause of Death
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0007465
- UMLS CUI [1,2]
- C0302189
Beschreibung
Main Cause of Death
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0007465
- UMLS CUI [1,2]
- C0205394
Ähnliche Modelle
Cell Therapy Registry EBMT
- StudyEvent: ODM
C1515258 (UMLS CUI [1,2])
C2145394 (UMLS CUI [1,2])
C0007634 (UMLS CUI [1,2])
C0007634 (UMLS CUI [1,2])
C3845569 (UMLS CUI [1,3])
C2348480 (UMLS CUI [1,2])
C2348480 (UMLS CUI [1,2])
C0018284 (UMLS CUI [1,3])
C2348480 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
C2348480 (UMLS CUI [1,2])
C0947647 (UMLS CUI [1,3])
C2348480 (UMLS CUI [1,4])
C1515655 (UMLS CUI [1,2])
C0018284 (UMLS CUI [1,3])
C1515655 (UMLS CUI [1,2])
C0013018 (UMLS CUI [1,3])
C1515655 (UMLS CUI [1,2])
C0030705 (UMLS CUI [1,3])
C1515655 (UMLS CUI [1,2])
C0018284 (UMLS CUI [1,3])
C0030705 (UMLS CUI [1,4])
C1515655 (UMLS CUI [1,2])
C0030705 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,4])
C1521902 (UMLS CUI [1,2])
C1827465 (UMLS CUI [1,2])
C1514463 (UMLS CUI-2)
C1882428 (UMLS CUI-2)
C1521902 (UMLS CUI [1,2])
C1532342 (UMLS CUI [1,2])
C0011065 (UMLS CUI [1,2])
C0472699 (UMLS CUI [1,2])
C0302189 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
C1827636 (UMLS CUI [1,2])
C0302189 (UMLS CUI-2)
C0472699 (UMLS CUI [1,2])
C0302189 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
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