ID

44637

Description

The Cell Therapy Registry (CTR) aims to collect data on fetal or adult stem cells, or progenitor cells used for treatment other than haematopoietic stem cell transplantation or donor lymphocyte infusion, as well as data on the clinical characteristics and outcome of the patients. Data will be collected on characteristics of the cell graft, /in/ or /ex vivo/ cell manipulation and the cell origin (autologous versus allogeneic). Data will include details on patients treated with mesenchymal cells, for instance, to enhance haematopoietic engraftment, for prophylaxis and treatment of GvHD. The registry will also include data on patients treated by other disciplines for neurologic, rheumatologic, cardiac and inflammatory bowel diseases and tissue regeneration. For further information, please contact: The registry will also include data on patients treated by other disciplines for neurologic, rheumatologic, cardiac and inflammatory bowel diseases and tissue regeneration. For further information, please contact: Dr. Katarina Le Blanc Karolinska University Hospital Centre for Allogeneic Stem Cell Transplantation Huddinge SE-141 86 Stockholm Sweden e-mail : Katarina.Leblanc@ki.se please refer: http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Pages/MED-AB-data-collection-forms.aspx

Lien

http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Pages/MED-AB-data-collection-forms.aspx

Mots-clés

  1. 26/02/2016 26/02/2016 -
  2. 11/07/2016 11/07/2016 -
  3. 27/09/2021 27/09/2021 -
Téléchargé le

27 septembre 2021

DOI

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Licence

Creative Commons BY-NC 3.0

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Cell Therapy Registry EBMT

Cell Therapy Registry EBMT

Cell Therapy Registry – Med-A
Description

Cell Therapy Registry – Med-A

First report – 6 months after cell therapy
Description

The Cell Therapy Registry (CTR) aims to collect data on fetal or adult stem cells, or progenitor cells used for treatment other than haematopoietic stem cell transplantation or donor lymphocyte infusion, as well as data on the clinical characteristics and outcome of the patients. Data will be collected on characteristics of the cell graft, /in/ or /ex vivo/ cell manipulation and the cell origin (autologous versus allogeneic). Data will include details on patients treated with mesenchymal cells, for instance, to enhance haematopoietic engraftment, for prophylaxis and treatment of GvHD.

Type de données

integer

Alias
UMLS CUI [1]
C0700287
CENTRE IDENTIFICATION
Description

CENTRE IDENTIFICATION

EBMT Code (CIC) Number
Description

OrganizationalUnit::EBMT(CIC)CodeNumber

Type de données

float

Alias
UMLS CUI [1]
C0600091
Hospital
Description

Hospital

Type de données

integer

Alias
UMLS CUI [1]
C0019994
Unit
Description

Unit

Type de données

integer

Alias
UMLS CUI [1]
C1519795
Contact person
Description

Contact person

Type de données

integer

Alias
UMLS CUI [1]
C0337611
Phone
Description

Phone

Type de données

text

Alias
UMLS CUI [1,1]
C1550483
UMLS CUI [1,2]
C1515258
Fax
Description

Fax

Type de données

text

Alias
UMLS CUI [1]
C0085205
E-mail
Description

Email

Type de données

integer

Alias
UMLS CUI [1]
C0013849
REPORT INFORMATION
Description

REPORT INFORMATION

Date of this report
Description

Date of this report

Type de données

date

Unités de mesure
  • yyyy/mm/dd
Alias
UMLS CUI [1]
C1302584
yyyy/mm/dd
PATIENT IDENTIFICATION
Description

PATIENT IDENTIFICATION

Unique Patient Number or Code
Description

Unique Patient Number or Code

Type de données

integer

Alias
UMLS CUI [1]
C1830427
Initials
Description

(first name(s) _family name(s)

Type de données

text

Alias
UMLS CUI [1]
C2986440
Date of Birth
Description

Date of Birth

Type de données

date

Alias
UMLS CUI [1]
C0421451
Gender
Description

Gender

Type de données

integer

Alias
UMLS CUI [1]
C0079399
INDICATION FOR TREATMENT If Primary disease
Description

INDICATION FOR TREATMENT If Primary disease

Date of diagnosis
Description

Date of diagnosis

Type de données

date

Alias
UMLS CUI [1]
C2316983
Autoimmune disease, specify
Description

Autoimmune disease

Type de données

integer

Alias
UMLS CUI [1]
C0004364
Neurologic disorder, specify
Description

Neurologic disorder

Type de données

integer

Alias
UMLS CUI [1]
C0027765
Heart disease, specify
Description

Heart disease

Type de données

integer

Alias
UMLS CUI [1]
C0018799
Haematologic, specify
Description

Haematologic

Type de données

integer

Alias
UMLS CUI [1]
C0279810
Other, specify
Description

Other, specify

Type de données

integer

Alias
UMLS CUI [1]
C1299220
If Haematopoietic stem cell transplant related
Description

Haematopoietic stem cell transplant

Type de données

integer

Alias
UMLS CUI [1]
C1142465
CELL THERAPY TREATMENT
Description

CELL THERAPY TREATMENT

Date of first cell infusion
Description

Date of first cell infusion

Type de données

date

Alias
UMLS CUI [1,1]
C2145394
UMLS CUI [1,2]
C2145394
Performance score (if alive)
Description

Performance score

Type de données

integer

Alias
UMLS CUI [1]
C1518965
Score achived
Description

Score

Type de données

text

Alias
UMLS CUI [1]
C1518965
Status at therapy
Description

Status at therapy

Type de données

integer

Alias
UMLS CUI [1]
C0420207
Cell origin
Description

Cell origin

Type de données

integer

Alias
UMLS CUI [1]
C0205623
Tissue cell source
Description

Tissue cell source

Type de données

integer

Alias
UMLS CUI [1]
C0444088
Cell characteristic
Description

Cell characteristic

Type de données

integer

Alias
UMLS CUI [1,1]
C1521970
UMLS CUI [1,2]
C0007634
Cell characteristic, specify other
Description

Cell characteristic

Type de données

integer

Alias
UMLS CUI [1,1]
C1521970
UMLS CUI [1,2]
C0007634
UMLS CUI [1,3]
C3845569
Chronological no. of cell therapy for this patient
Description

f more than 6 months apart

Type de données

integer

Alias
UMLS CUI [1]
C0302189
GRAFT MANIPULATION
Description

GRAFT MANIPULATION

Ex-vivo manipulation
Description

Ex-vivo manipulation

Type de données

integer

Alias
UMLS CUI [1,1]
C0947647
UMLS CUI [1,2]
C2348480
Ex-vivo manipulation, Growth factor, specify
Description

Ex-vivo manipulation

Type de données

integer

Alias
UMLS CUI [1,1]
C0947647
UMLS CUI [1,2]
C2348480
UMLS CUI [1,3]
C0018284
Ex-vivo manipulation, other
Description

Ex-vivo manipulation

Type de données

integer

Alias
UMLS CUI [1,1]
C0947647
UMLS CUI [1,2]
C2348480
UMLS CUI [1,3]
C0205394
In-vivo manipulation, in the donor
Description

In-vivo manipulation

Type de données

integer

Alias
UMLS CUI [1,1]
C0947647
UMLS CUI [1,2]
C2348480
UMLS CUI [1,3]
C0947647
UMLS CUI [1,4]
C2348480
In-vivo manipulation In the donor, growth factor, specify
Description

In-vivo manipulation In the donor

Type de données

text

Alias
UMLS CUI [1,1]
C0947647
UMLS CUI [1,2]
C1515655
UMLS CUI [1,3]
C0018284
In-vivo manipulation In the donor, other
Description

In-vivo manipulation In the donor

Type de données

integer

Alias
UMLS CUI [1,1]
C0947647
UMLS CUI [1,2]
C1515655
UMLS CUI [1,3]
C0013018
In-vivo manipulation, in the patient
Description

In-vivo manipulation

Type de données

integer

Alias
UMLS CUI [1,1]
C0947647
UMLS CUI [1,2]
C1515655
UMLS CUI [1,3]
C0030705
In-vivo manipulation in the patient, growth factor, specify
Description

In-vivo manipulation, in the patient

Type de données

integer

Alias
UMLS CUI [1,1]
C0947647
UMLS CUI [1,2]
C1515655
UMLS CUI [1,3]
C0018284
UMLS CUI [1,4]
C0030705
In-vivo manipulation in the patient, other
Description

In-vivo manipulation, in the patient

Type de données

integer

Alias
UMLS CUI [1,1]
C0947647
UMLS CUI [1,2]
C1515655
UMLS CUI [1,3]
C0030705
UMLS CUI [1,4]
C0205394
TREATMENT
Description

TREATMENT

Route of infusion
Description

Route of infusion

Type de données

integer

Alias
UMLS CUI [1]
C1827465
Route of infusion, Locally intra-arterially, specify artery
Description

Route of infusion

Type de données

integer

Alias
UMLS CUI [1,1]
C0021487
UMLS CUI [1,2]
C1521902
Route of infusion, other route
Description

Route of infusion, other route

Type de données

integer

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C1827465
Dose
Description

Dose

Type de données

integer

Alias
UMLS CUI [1]
C3174092
Dose, Total No of infusions
Description

Dose, Total No of infusions

Type de données

integer

Alias
UMLS CUI [1]
C4071549
Dose, No of cells infused per infusion
Description

Dose, No of cells infused per infusion

Type de données

integer

Unités de mesure
  • x 106/kg
Alias
UMLS CUI [1]
C0427872
x 106/kg
Associated procedure
Description

Associated procedure

Type de données

integer

Alias
UMLS CUI [1]
C1285504
Associated procedure, Yes: specify
Description

Associated procedure

Type de données

integer

Alias
UMLS CUI [1,1]
C1285504
UMLS CUI [1,2]
C1521902
RESPONSE
Description

RESPONSE

Best clinical/biological response after cell therapy
Description

Best clinical/biological response after cell therapy

Type de données

integer

Alias
UMLS CUI [1]
C2986560
Laboratory response
Description

Laboratory response

Type de données

integer

Alias
UMLS CUI [1]
C1704632
Laboratory response, Specify laboratory parameter
Description

Laboratory response

Type de données

integer

Alias
UMLS CUI [1,1]
C1704632
UMLS CUI [1,2]
C1532342
DATE OF LAST CONTACT
Description

DATE OF LAST CONTACT

Date of last follow up or death
Description

Date of last follow up or death

Type de données

date

Alias
UMLS CUI [1,1]
C3694716
UMLS CUI [1,2]
C0011065
Survival Status
Description

Survival Status

Type de données

integer

Alias
UMLS CUI [1]
C1148433
Main Cause of Death
Description

Cause of Death

Type de données

integer

Alias
UMLS CUI [1]
C0007465
Main Cause of Death, HSCT related (if applicable
Description

Main Cause of Death

Type de données

integer

Alias
UMLS CUI [1,1]
C0007465
UMLS CUI [1,2]
C0472699
Main Cause of Death, Cell Therapy related:
Description

Main Cause of Death

Type de données

integer

Alias
UMLS CUI [1,1]
C0007465
UMLS CUI [1,2]
C0302189
Main Cause of Death, Other
Description

Main Cause of Death, Other

Type de données

integer

Alias
UMLS CUI [1,1]
C0007465
UMLS CUI [1,2]
C0205394
CENTRE IDENTIFICATION
Description

CENTRE IDENTIFICATION

EBMT Code (CIC) Number
Description

OrganizationalUnit::EBMT(CIC)CodeNumber

Type de données

float

Alias
UMLS CUI [1,1]
C3826859
UMLS CUI [1,2]
C1827636
Hospital
Description

Hospital

Type de données

integer

Alias
UMLS CUI [1]
C0019994
Unit
Description

Unit

Type de données

integer

Alias
UMLS CUI [1]
C1519795
Contact person
Description

Contact person

Type de données

integer

Alias
UMLS CUI [1]
C0337611
Phone
Description

Phone

Type de données

integer

Alias
UMLS CUI [1]
C1136359
Fax
Description

ContactPersonFaxNumber

Type de données

integer

Alias
UMLS CUI [1]
C0085205
Contact Person E-Mail
Description

CentralLaboratoryContactPersonEmailAddressText

Type de données

integer

Alias
UMLS CUI [1]
C1705961
REPORT INFORMATION
Description

REPORT INFORMATION

Date of this Report
Description

Date of this Report

Type de données

date

Alias
UMLS CUI [1]
C1302584
PATIENT IDENTIFICATION
Description

PATIENT IDENTIFICATION

Unique Patient Number or Code
Description

Unique Patient Number or Code

Type de données

integer

Alias
UMLS CUI [1]
C1830427
Initials, first name(s), family name(s)
Description

Compulsory, registrations will not be accepted without this item

Type de données

integer

Alias
UMLS CUI [1]
C2986440
Date of Birth
Description

Date of Birth

Type de données

date

Alias
UMLS CUI [1]
C0421451
Sex
Description

Sex

Type de données

text

Alias
UMLS CUI [1]
C0079399
DATE OF LAST CONTACT
Description

DATE OF LAST CONTACT

Type de données

date

Alias
UMLS CUI [1]
C0805839
DISEASE PRESENCE/DETECTION AT LAST CONTACT
Description

Was disease detected

Type de données

boolean

Alias
UMLS CUI [1]
C0012634
PATIENT STATUS, Survival Status
Description

PATIENT STATUS

Type de données

integer

Alias
UMLS CUI [1]
C3846084
Main Cause of Death
Description

Main Cause of Death

Type de données

integer

Alias
UMLS CUI [1]
C0011065
Main Cause of Death, HSCT related (if applicable)
Description

Main Cause of Death

Type de données

integer

Alias
UMLS CUI [1,1]
C0007465
UMLS CUI [1,2]
C0472699
Main Cause of Death, Cell Therapy related
Description

Main Cause of Death

Type de données

integer

Alias
UMLS CUI [1,1]
C0007465
UMLS CUI [1,2]
C0302189
Main Cause of Death, Other
Description

Main Cause of Death

Type de données

integer

Alias
UMLS CUI [1,1]
C0007465
UMLS CUI [1,2]
C0205394

Similar models

Cell Therapy Registry EBMT

Name
Type
Description | Question | Decode (Coded Value)
Type de données
Alias
Item Group
Cell Therapy Registry – Med-A
First report – 6 months after cell therapy
Item
First report – 6 months after cell therapy
integer
C0700287 (UMLS CUI [1])
Item Group
CENTRE IDENTIFICATION
OrganizationalUnit::EBMT(CIC)CodeNumber
Item
EBMT Code (CIC) Number
float
C0600091 (UMLS CUI [1])
Hospital
Item
Hospital
integer
C0019994 (UMLS CUI [1])
Unit
Item
Unit
integer
C1519795 (UMLS CUI [1])
Contact person
Item
Contact person
integer
C0337611 (UMLS CUI [1])
Phone
Item
Phone
text
C1550483 (UMLS CUI [1,1])
C1515258 (UMLS CUI [1,2])
Fax
Item
Fax
text
C0085205 (UMLS CUI [1])
Email
Item
E-mail
integer
C0013849 (UMLS CUI [1])
Item Group
REPORT INFORMATION
Date of this report
Item
Date of this report
date
C1302584 (UMLS CUI [1])
Item Group
PATIENT IDENTIFICATION
Unique Patient Number or Code
Item
Unique Patient Number or Code
integer
C1830427 (UMLS CUI [1])
Initialen
Item
Initials
text
C2986440 (UMLS CUI [1])
Date of Birth
Item
Date of Birth
date
C0421451 (UMLS CUI [1])
Item
Gender
integer
C0079399 (UMLS CUI [1])
Code List
Gender
CL Item
male  (1)
C1706180 (UMLS CUI-1)
CL Item
female (2)
C0086287 (UMLS CUI-1)
Item Group
INDICATION FOR TREATMENT If Primary disease
Date of diagnosis
Item
Date of diagnosis
date
C2316983 (UMLS CUI [1])
Autoimmune disease
Item
Autoimmune disease, specify
integer
C0004364 (UMLS CUI [1])
Neurologic disorder
Item
Neurologic disorder, specify
integer
C0027765 (UMLS CUI [1])
Heart disease
Item
Heart disease, specify
integer
C0018799 (UMLS CUI [1])
Haematologic
Item
Haematologic, specify
integer
C0279810 (UMLS CUI [1])
Other, specify
Item
Other, specify
integer
C1299220 (UMLS CUI [1])
Item
If Haematopoietic stem cell transplant related
integer
C1142465 (UMLS CUI [1])
Code List
If Haematopoietic stem cell transplant related
CL Item
GvHD prophylaxis (1)
C0278845 (UMLS CUI-1)
CL Item
GvHD treatment (2)
C0018133 (UMLS CUI-1)
CL Item
Prevention of rejection (3)
C0547622 (UMLS CUI-1)
CL Item
Graft enhancement (4)
C0018126 (UMLS CUI-1)
CL Item
Bone marrow failure (5)
C0340991 (UMLS CUI-1)
Item Group
CELL THERAPY TREATMENT
Date of first cell infusion
Item
Date of first cell infusion
date
C2145394 (UMLS CUI [1,1])
C2145394 (UMLS CUI [1,2])
Item
Performance score (if alive)
integer
C1518965 (UMLS CUI [1])
Code List
Performance score (if alive)
CL Item
Karnofsky (1)
C0206065 (UMLS CUI-1)
CL Item
Lansky (2)
C1522275 (UMLS CUI-1)
Item
Score achived
text
C1518965 (UMLS CUI [1])
Code List
Score achived
CL Item
10 (1)
CL Item
20 (2)
CL Item
30 (3)
CL Item
40 (4)
CL Item
50 (5)
CL Item
60 (6)
CL Item
70 (7)
CL Item
80 (8)
CL Item
90 (9)
CL Item
100 (10)
Item
Status at therapy
integer
C0420207 (UMLS CUI [1])
Code List
Status at therapy
CL Item
Chronic (1)
C0205191 (UMLS CUI-1)
CL Item
Acute (2)
C0149524 (UMLS CUI-1)
CL Item
Acute exacerbation of chronic disease (3)
C3540542 (UMLS CUI-1)
Item
Cell origin
integer
C0205623 (UMLS CUI [1])
Code List
Cell origin
CL Item
Allogeneic  (1)
C2242529 (UMLS CUI-1)
CL Item
Autologous (2)
C0194037 (UMLS CUI-1)
Item
Tissue cell source
integer
C0444088 (UMLS CUI [1])
Code List
Tissue cell source
CL Item
Bone Marrow  (1)
C0005953 (UMLS CUI-1)
CL Item
Peripheral Blood  (2)
C0229664 (UMLS CUI-1)
CL Item
Cord Blood  (3)
C0162371 (UMLS CUI-1)
CL Item
Adipose  (4)
C2711708 (UMLS CUI-1)
CL Item
Endothelial cell progenitor  (5)
C3850017 (UMLS CUI-1)
CL Item
Other, specify (6)
C1299220 (UMLS CUI-1)
Item
Cell characteristic
integer
C1521970 (UMLS CUI [1,1])
C0007634 (UMLS CUI [1,2])
Code List
Cell characteristic
CL Item
Mononuclear cells  (1)
C0806987 (UMLS CUI-1)
CL Item
CD34+ CD34POS (2)
C1332710 (UMLS CUI-1)
CL Item
Mesenchymal  (3)
C1513143 (UMLS CUI-1)
CL Item
Unseparated bone marrow (4)
C0005953 (UMLS CUI-1)
CL Item
Other, specify (5)
C3845569 (UMLS CUI-1)
Cell characteristic
Item
Cell characteristic, specify other
integer
C1521970 (UMLS CUI [1,1])
C0007634 (UMLS CUI [1,2])
C3845569 (UMLS CUI [1,3])
Chronological no. of cell therapy for this patient
Item
Chronological no. of cell therapy for this patient
integer
C0302189 (UMLS CUI [1])
Item Group
GRAFT MANIPULATION
Item
Ex-vivo manipulation
integer
C0947647 (UMLS CUI [1,1])
C2348480 (UMLS CUI [1,2])
Code List
Ex-vivo manipulation
CL Item
no (1)
C1298908 (UMLS CUI-1)
CL Item
yes (2)
C1705108 (UMLS CUI-1)
CL Item
unknown (3)
C0439673 (UMLS CUI-1)
CL Item
Growth factor (4)
C0018284 (UMLS CUI-1)
CL Item
Other (5)
C0205394 (UMLS CUI-1)
CL Item
Expansion (6)
C0040290 (UMLS CUI-1)
Ex-vivo manipulation
Item
Ex-vivo manipulation, Growth factor, specify
integer
C0947647 (UMLS CUI [1,1])
C2348480 (UMLS CUI [1,2])
C0018284 (UMLS CUI [1,3])
Ex-vivo manipulation
Item
Ex-vivo manipulation, other
integer
C0947647 (UMLS CUI [1,1])
C2348480 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
Item
In-vivo manipulation, in the donor
integer
C0947647 (UMLS CUI [1,1])
C2348480 (UMLS CUI [1,2])
C0947647 (UMLS CUI [1,3])
C2348480 (UMLS CUI [1,4])
Code List
In-vivo manipulation, in the donor
CL Item
No  (1)
C1298908 (UMLS CUI-1)
CL Item
Yes (2)
C1705108 (UMLS CUI-1)
CL Item
Growth factor (3)
C0018284 (UMLS CUI-1)
CL Item
Other (4)
C0205394 (UMLS CUI-1)
CL Item
unknown (5)
C0439673 (UMLS CUI-1)
In-vivo manipulation In the donor
Item
In-vivo manipulation In the donor, growth factor, specify
text
C0947647 (UMLS CUI [1,1])
C1515655 (UMLS CUI [1,2])
C0018284 (UMLS CUI [1,3])
In-vivo manipulation In the donor
Item
In-vivo manipulation In the donor, other
integer
C0947647 (UMLS CUI [1,1])
C1515655 (UMLS CUI [1,2])
C0013018 (UMLS CUI [1,3])
Item
In-vivo manipulation, in the patient
integer
C0947647 (UMLS CUI [1,1])
C1515655 (UMLS CUI [1,2])
C0030705 (UMLS CUI [1,3])
Code List
In-vivo manipulation, in the patient
CL Item
No  (1)
CL Item
Yes (2)
CL Item
Growth factor, specify (3)
CL Item
Other  (4)
CL Item
Unknown (5)
In-vivo manipulation, in the patient
Item
In-vivo manipulation in the patient, growth factor, specify
integer
C0947647 (UMLS CUI [1,1])
C1515655 (UMLS CUI [1,2])
C0018284 (UMLS CUI [1,3])
C0030705 (UMLS CUI [1,4])
In-vivo manipulation, in the patient
Item
In-vivo manipulation in the patient, other
integer
C0947647 (UMLS CUI [1,1])
C1515655 (UMLS CUI [1,2])
C0030705 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,4])
Item Group
TREATMENT
Item
Route of infusion
integer
C1827465 (UMLS CUI [1])
Code List
Route of infusion
CL Item
Intravenous (1)
C0348016 (UMLS CUI-1)
CL Item
Locally intra-arterially (2)
C0021487 (UMLS CUI-1)
CL Item
Locally into tissue (3)
C0185357 (UMLS CUI-1)
CL Item
Intra bone (4)
C0194018 (UMLS CUI-1)
CL Item
Other route (5)
CL Item
Intraperitoneal injection (6)
C0021493 (UMLS CUI-1)
CL Item
intrathecal (7)
C1831734 (UMLS CUI-1)
Route of infusion
Item
Route of infusion, Locally intra-arterially, specify artery
integer
C0021487 (UMLS CUI [1,1])
C1521902 (UMLS CUI [1,2])
Route of infusion, other route
Item
Route of infusion, other route
integer
C0205394 (UMLS CUI [1,1])
C1827465 (UMLS CUI [1,2])
Item
Dose
integer
C3174092 (UMLS CUI [1])
Code List
Dose
CL Item
Total No of infusions (1)
CL Item
No of cells infused per infusion (2)
Dose, Total No of infusions
Item
Dose, Total No of infusions
integer
C4071549 (UMLS CUI [1])
Dose, No of cells infused per infusion
Item
Dose, No of cells infused per infusion
integer
C0427872 (UMLS CUI [1])
Item
Associated procedure
integer
C1285504 (UMLS CUI [1])
Code List
Associated procedure
CL Item
no (1)
C1298908 (UMLS CUI-1)
CL Item
yes (2)
C1705108 (UMLS CUI-1)
CL Item
Prior to cell therapy (3)
C0302189 (UMLS CUI-1)
C1514463 (UMLS CUI-2)
CL Item
Simultaneous (4)
C0521115 (UMLS CUI-1)
CL Item
Post cell therapy (5)
C0302189 (UMLS CUI-1)
C1882428 (UMLS CUI-2)
CL Item
unknown (6)
C0439673 (UMLS CUI-1)
Associated procedure
Item
Associated procedure, Yes: specify
integer
C1285504 (UMLS CUI [1,1])
C1521902 (UMLS CUI [1,2])
Item Group
RESPONSE
Item
Best clinical/biological response after cell therapy
integer
C2986560 (UMLS CUI [1])
Code List
Best clinical/biological response after cell therapy
CL Item
Complete sustained remission (CR) (1)
C0677874 (UMLS CUI-1)
CL Item
Partial sustained remission (PR) (2)
C1521726 (UMLS CUI-1)
CL Item
Remission (CR or PR) followed by relapse or progression (3)
CL Item
Stable (4)
C0205360 (UMLS CUI-1)
CL Item
Progression (5)
C0242656 (UMLS CUI-1)
CL Item
Unknown (6)
C0439673 (UMLS CUI-1)
Item
Laboratory response
integer
C1704632 (UMLS CUI [1])
Code List
Laboratory response
CL Item
Normalized (1)
C1882115 (UMLS CUI-1)
CL Item
Improvement (2)
C2986411 (UMLS CUI-1)
CL Item
Unchanged (3)
C0442739 (UMLS CUI-1)
CL Item
Worsening (4)
C0332271 (UMLS CUI-1)
CL Item
Specify laboratory parameter (5)
C0011911 (UMLS CUI-1)
Laboratory response
Item
Laboratory response, Specify laboratory parameter
integer
C1704632 (UMLS CUI [1,1])
C1532342 (UMLS CUI [1,2])
Item Group
DATE OF LAST CONTACT
Date of last follow up or death
Item
Date of last follow up or death
date
C3694716 (UMLS CUI [1,1])
C0011065 (UMLS CUI [1,2])
Item
Survival Status
integer
C1148433 (UMLS CUI [1])
Code List
Survival Status
CL Item
Alive (1)
C2584946 (UMLS CUI-1)
CL Item
Dead (2)
C0011065 (UMLS CUI-1)
CL Item
Check here if patient lost to follow up (3)
C1302313 (UMLS CUI-1)
Item
Main Cause of Death
integer
C0007465 (UMLS CUI [1])
Code List
Main Cause of Death
CL Item
Relapse or Progression (if indication: primary disease) (1)
C0035020 (UMLS CUI-1)
CL Item
HSCT related (if applicable) (2)
C0472699 (UMLS CUI-1)
CL Item
Cell Therapy  (3)
C3146298 (UMLS CUI-1)
CL Item
Other (4)
C0205394 (UMLS CUI-1)
CL Item
Unknown (5)
C0439673 (UMLS CUI-1)
Main Cause of Death
Item
Main Cause of Death, HSCT related (if applicable
integer
C0007465 (UMLS CUI [1,1])
C0472699 (UMLS CUI [1,2])
Main Cause of Death
Item
Main Cause of Death, Cell Therapy related:
integer
C0007465 (UMLS CUI [1,1])
C0302189 (UMLS CUI [1,2])
Main Cause of Death, Other
Item
Main Cause of Death, Other
integer
C0007465 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Item Group
CENTRE IDENTIFICATION
OrganizationalUnit::EBMT(CIC)CodeNumber
Item
EBMT Code (CIC) Number
float
C3826859 (UMLS CUI [1,1])
C1827636 (UMLS CUI [1,2])
Hospital
Item
Hospital
integer
C0019994 (UMLS CUI [1])
Unit
Item
Unit
integer
C1519795 (UMLS CUI [1])
Contact person
Item
Contact person
integer
C0337611 (UMLS CUI [1])
Phone
Item
Phone
integer
C1136359 (UMLS CUI [1])
ContactPersonFaxNumber
Item
Fax
integer
C0085205 (UMLS CUI [1])
CentralLaboratoryContactPersonEmailAddressText
Item
Contact Person E-Mail
integer
C1705961 (UMLS CUI [1])
Item Group
REPORT INFORMATION
Date of this Report
Item
Date of this Report
date
C1302584 (UMLS CUI [1])
Item Group
PATIENT IDENTIFICATION
Unique Patient Number or Code
Item
Unique Patient Number or Code
integer
C1830427 (UMLS CUI [1])
Initials
Item
Initials, first name(s), family name(s)
integer
C2986440 (UMLS CUI [1])
Date of Birth
Item
Date of Birth
date
C0421451 (UMLS CUI [1])
Item
Sex
text
C0079399 (UMLS CUI [1])
Code List
Sex
CL Item
Male (1)
CL Item
Female (2)
DATE OF LAST CONTACT
Item
DATE OF LAST CONTACT
date
C0805839 (UMLS CUI [1])
DISEASE
Item
DISEASE PRESENCE/DETECTION AT LAST CONTACT
boolean
C0012634 (UMLS CUI [1])
Item
PATIENT STATUS, Survival Status
integer
C3846084 (UMLS CUI [1])
Code List
PATIENT STATUS, Survival Status
CL Item
Alive (1)
CL Item
Dead (2)
CL Item
Check here if patient lost to follow up (3)
Item
Main Cause of Death
integer
C0011065 (UMLS CUI [1])
Code List
Main Cause of Death
CL Item
Relapse  (1)
C0277556 (UMLS CUI-1)
CL Item
Progression (2)
C0242656 (UMLS CUI-1)
CL Item
Cell Therapy  (3)
C3146298 (UMLS CUI-1)
C0302189 (UMLS CUI-2)
CL Item
Other (4)
C0205394 (UMLS CUI-1)
CL Item
Unknown (5)
C0439673 (UMLS CUI-1)
Main Cause of Death
Item
Main Cause of Death, HSCT related (if applicable)
integer
C0007465 (UMLS CUI [1,1])
C0472699 (UMLS CUI [1,2])
Main Cause of Death
Item
Main Cause of Death, Cell Therapy related
integer
C0007465 (UMLS CUI [1,1])
C0302189 (UMLS CUI [1,2])
Main Cause of Death
Item
Main Cause of Death, Other
integer
C0007465 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])

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