ID
42175
Description
The European Society for Blood and Marrow Transplantation maintains a huge registry and delivers data collection forms. The original forms for submitting data to the EBMT can be found under: http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Pages/MED-AB-data-collection-forms.aspx#HSCTMedB This ODM form is derived from the AML-disease specific form of the section MED-B. http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Documents/05AL.pdf
Link
Keywords
Versions (4)
- 11/22/15 11/22/15 -
- 11/22/15 11/22/15 -
- 2/11/16 2/11/16 -
- 4/13/21 4/13/21 - Dr. rer. medic Philipp Neuhaus
Uploaded on
April 13, 2021
DOI
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License
Creative Commons BY-NC 3.0
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Acute Leukaemia AML EBMT HSCT Registry MED-B Follow Up Form
Acute Leukaemia AML EBMT HSCT Registry MED-B Follow Up Form
- StudyEvent: ODM
Description
Patient last seen
Alias
- UMLS CUI-1
- C0805839
Description
Graft versus Host Disease (GvHD) since last report
Alias
- UMLS CUI-1
- C0018133
Description
aGvHD Grade
Data type
integer
Alias
- UMLS CUI [1,1]
- C0856825
- UMLS CUI [1,2]
- C0441800
Description
aGvHD
Data type
integer
Alias
- UMLS CUI [1]
- C0856825
Description
aGvHD Reason
Data type
integer
Alias
- UMLS CUI [1,1]
- C0856825
- UMLS CUI [1,2]
- M
Description
Date onset of this episode
Data type
date
Measurement units
- yyyy/mm/dd
Alias
- UMLS CUI [1]
- C0574845
Description
Onset Not applicable
Data type
text
Description
aGvHD Stage Skin
Data type
integer
Alias
- UMLS CUI [1,1]
- C0856825
- UMLS CUI [1,2]
- C1306673
- UMLS CUI [1,3]
- C1306673
Description
aGvHD Stage liver
Data type
integer
Alias
- UMLS CUI [1,1]
- C0856825
- UMLS CUI [1,2]
- C1306673
- UMLS CUI [1,3]
- C0023884
Description
aGvHD stage gut
Data type
integer
Alias
- UMLS CUI [1,1]
- C0856825
- UMLS CUI [1,2]
- C1306673
- UMLS CUI [1,3]
- C0021853
Description
aGvHD Resolution
Data type
integer
Alias
- UMLS CUI [1,1]
- C0856825
- UMLS CUI [1,2]
- C1514893
Description
aGvHD Date of resolution
Data type
date
Measurement units
- yyyy/mm/dd
Alias
- UMLS CUI [1,1]
- C0856825
- UMLS CUI [1,2]
- C1514893
- UMLS CUI [1,3]
- C0011008
Description
Chronic Graft versus Host Disease
Alias
- UMLS CUI-1
- C0867389
Description
Presence of cGVHD
Data type
integer
Alias
- UMLS CUI [1]
- C0867389
Description
cGvHD Date of onset
Data type
date
Measurement units
- yyyy/mm/dd
Alias
- UMLS CUI [1,1]
- C0867389
- UMLS CUI [1,2]
- C0011008
Description
cGvHD Present continuously since last reported episode
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0867389
- UMLS CUI [1,2]
- C0549178
Description
cGvHD grade
Data type
integer
Alias
- UMLS CUI [1,1]
- C0867389
- UMLS CUI [1,2]
- C0441800
Description
Organs affected
Data type
integer
Alias
- UMLS CUI [1]
- C0449642
Description
Specify
Data type
text
Alias
- UMLS CUI [1]
- C1521902
Description
Resolved: Date of resolution
Data type
date
Measurement units
- yyyy/mm/dd
Alias
- UMLS CUI [1,1]
- C0867389
- UMLS CUI [1,2]
- C1514893
- UMLS CUI [1,3]
- C0011008
Description
Other complications since last report
Alias
- UMLS CUI-1
- C0009566
Description
Infection related complications
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0009450
- UMLS CUI [1,2]
- C0009566
Description
Systemic symptoms of infection
Data type
integer
Alias
- UMLS CUI [1]
- C2039684
Description
Endorgan disease
Data type
integer
Alias
- UMLS CUI [1]
- C0349410
Description
Infectious Disease Date
Data type
date
Measurement units
- yyyy/mm/dd
Alias
- UMLS CUI [1,1]
- C0009450
- UMLS CUI [1,2]
- C0011008
Description
AML Pathogens of interest
Data type
text
Alias
- UMLS CUI [1,1]
- C0009450
- UMLS CUI [1,2]
- C0450254
Description
Non infection related complications
Data type
boolean
Alias
- UMLS CUI [1]
- C0009566
Description
Idiopathic pneumonia syndrome
Data type
integer
Alias
- UMLS CUI [1]
- C1504431
Description
VOD
Data type
integer
Alias
- UMLS CUI [1]
- C0948441
Description
Cataract
Data type
integer
Alias
- UMLS CUI [1]
- C0086543
Description
Haemorrhagic cystitis, non infectious
Data type
integer
Alias
- UMLS CUI [1]
- C0085692
Description
ARDS, non infectious
Data type
integer
Alias
- UMLS CUI [1]
- C0035222
Description
Multiorgan failure
Data type
integer
Alias
- UMLS CUI [1]
- C0026766
Description
HSCT-associated microangiopathy
Data type
integer
Alias
- UMLS CUI [1]
- C0155765
Description
Renal failure requiring dialysis
Data type
integer
Alias
- UMLS CUI [1]
- C3875178
Description
Haemolytic anaemia due to blood group
Data type
integer
Alias
- UMLS CUI [1]
- C0002878
Description
Aseptic bone necrosis
Data type
integer
Alias
- UMLS CUI [1]
- C0158452
Description
Other
Data type
text
Alias
- UMLS CUI [1]
- C0205394
Description
Dates non infection related complications
Data type
date
Measurement units
- yyyy/mm/dd
Alias
- UMLS CUI [1,1]
- C0009566
- UMLS CUI [1,2]
- C0011008
Description
Graft assessment and chimaerism
Alias
- UMLS CUI-1
- C0472699
- UMLS CUI-2
- C0220825
- UMLS CUI-3
- C0333678
Description
Chimerism test
Description
Date of test
Data type
date
Measurement units
- yyyy/mm/dd
Alias
- UMLS CUI [1]
- C2826247
Description
Donor ID
Data type
integer
Alias
- UMLS CUI [1]
- C1718162
Description
Number in the infusion order (if applicable)
Data type
integer
Alias
- UMLS CUI [1]
- C2348184
Description
Cell type on which test was performed
Data type
integer
Alias
- UMLS CUI [1]
- C0449475
Description
Donor cell Percentage
Data type
float
Measurement units
- %
Alias
- UMLS CUI [1,1]
- C0013018
- UMLS CUI [1,2]
- C0582380
Description
Test used
Data type
integer
Alias
- UMLS CUI [1]
- C0022885
Description
Other, specify
Data type
text
Alias
- UMLS CUI [1]
- C1521902
Description
Secondary malignancy, lymphoproliferative or myeloproliferative disorder diagnosed
Data type
integer
Alias
- UMLS CUI [1]
- C3266877
- UMLS CUI [2]
- C0024314
- UMLS CUI [3]
- C0027022
Description
Date of diagnosis
Data type
date
Measurement units
- yyyy/mm/dd
Alias
- UMLS CUI [1]
- C2316983
Description
Other diagnosis
Data type
text
Alias
- UMLS CUI [1]
- C0205394
Description
Date of diagnosis
Data type
date
Measurement units
- yyyy/mm/dd
Alias
- UMLS CUI [1]
- C2316983
Description
Additional therapies since last follow up
Alias
- UMLS CUI-1
- C0087111
Description
Treatment given since last report
Data type
integer
Alias
- UMLS CUI [1]
- C0087111
Description
Treatment date
Data type
date
Measurement units
- yyyy/mm/dd
Alias
- UMLS CUI [1,1]
- C0087111
- UMLS CUI [1,2]
- C0011008
Description
Cellular therapy
Data type
integer
Alias
- UMLS CUI [1]
- C0302189
Description
Disease status before cellular therapy
Data type
integer
Alias
- UMLS CUI [1]
- C1704632
Description
Type of cells
Data type
integer
Alias
- UMLS CUI [1]
- C0302189
Description
Nucleated cells
Data type
integer
Measurement units
- 10^8/kg
Alias
- UMLS CUI [1]
- C1180059
Description
CD34
Data type
integer
Measurement units
- x10^6/kg
Alias
- UMLS CUI [1]
- C0882849
Description
CD3
Data type
integer
Measurement units
- x10^6/kg
Alias
- UMLS CUI [1]
- C0882828
Description
All cells
Data type
integer
Measurement units
- x10^6/kg
Alias
- UMLS CUI [1]
- C0007584
Description
Chronological number of this cell therapy for this patient
Data type
integer
Alias
- UMLS CUI [1]
- C2348184
Description
Cell therapy indication
Data type
integer
Alias
- UMLS CUI [1,1]
- C3146298
- UMLS CUI [1,2]
- C0302189
Description
Indication specify
Data type
text
Alias
- UMLS CUI [1]
- C1521902
Description
Infusion count
Data type
float
Alias
- UMLS CUI [1,1]
- C0574032
- UMLS CUI [1,2]
- C0750480
Description
Acute Graft Versus Host Disease
Data type
integer
Alias
- UMLS CUI [1]
- C0856825
Description
Disease treatment
Data type
integer
Alias
- UMLS CUI [1]
- C0087111
Description
First evidence of relapse or progression since last HSCT
Alias
- UMLS CUI-1
- C0035020
- UMLS CUI-3
- C1704632
Description
Relapse or progression
Data type
integer
Alias
- UMLS CUI [1]
- C0035020
- UMLS CUI [2]
- C1704632
Description
Date of diagnosis
Data type
date
Measurement units
- yyyy/mm/dd
Alias
- UMLS CUI [1]
- C2316983
Description
Clinical/hematological
Data type
integer
Alias
- UMLS CUI [1,1]
- C0018939
- UMLS CUI [1,2]
- C0205210
Description
Cytogenetic relapse or progression
Data type
integer
Alias
- UMLS CUI [1]
- C0010802
Description
Molecular relapse or progression
Data type
integer
Alias
- UMLS CUI [1]
- C0026376
Description
Date assessed
Data type
date
Measurement units
- yyyy/mm/dd
Alias
- UMLS CUI [1]
- C2316983
- UMLS CUI [2]
- C2985720
Description
Site of relapse
Data type
integer
Alias
- UMLS CUI [1]
- C0205145
Description
Last disease and patient status
Alias
- UMLS CUI-1
- C0449437
Description
Disease status
Data type
integer
Alias
- UMLS CUI [1]
- C1704632
Description
Clincal/Hematological evaluation
Data type
integer
Alias
- UMLS CUI [1]
- C0018939
- UMLS CUI [2]
- C0205210
Description
Cytogenetics/FISH
Data type
integer
Alias
- UMLS CUI [1]
- C0010802
- UMLS CUI [2]
- C0162789
Description
Date of Evaluation
Data type
date
Measurement units
- yyyy/mm/dd
Alias
- UMLS CUI [1]
- C2985720
Description
Pregnancy
Data type
integer
Description
Patient vitality
Data type
integer
Alias
- UMLS CUI [1]
- C1148433
Description
Performance score
Data type
integer
Alias
- UMLS CUI [1]
- C1518965
Description
Performance score
Data type
integer
Alias
- UMLS CUI [1]
- C1518965
Description
Cause of death
Data type
integer
Alias
- UMLS CUI [1]
- C0007465
Description
HSCT related cause
Data type
integer
Description
Comments
Alias
- UMLS CUI-1
- C0947611
Description
Identification and Signature
Similar models
Acute Leukaemia AML EBMT HSCT Registry MED-B Follow Up Form
- StudyEvent: ODM
C0011008 (UMLS CUI [1,2])
C1148348 (UMLS CUI [1,2])
C0441800 (UMLS CUI [1,2])
C1306673 (UMLS CUI [1,2])
C1306673 (UMLS CUI [1,3])
C1306673 (UMLS CUI [1,2])
C0023884 (UMLS CUI [1,3])
C1306673 (UMLS CUI [1,2])
C0021853 (UMLS CUI [1,3])
C1514893 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,3])
C0011008 (UMLS CUI [1,2])
C0549178 (UMLS CUI [1,2])
C1514893 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,3])
C0009566 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,2])
C0038402 (UMLS CUI-2)
C0038170 (UMLS CUI-3)
C0023859 (UMLS CUI-4)
C0014834 (UMLS CUI-2)
C0022727 (UMLS CUI-3)
C0033697 (UMLS CUI-4)
C0036765 (UMLS CUI-5)
C0033808 (UMLS CUI-6)
C0030389 (UMLS CUI-2)
C0035473 (UMLS CUI-3)
C0011008 (UMLS CUI [1,2])
C0220825 (UMLS CUI-2)
C0333678 (UMLS CUI-3)
C1521902 (UMLS CUI-2)
C0582380 (UMLS CUI [1,2])
C0024314 (UMLS CUI [2])
C0027022 (UMLS CUI [3])
C0011008 (UMLS CUI [1,2])
C0014644 (UMLS CUI-3)
C0024299 (UMLS CUI-5)
C0750480 (UMLS CUI [1,2])
C1704632 (UMLS CUI-3)
C1704632 (UMLS CUI [2])
C0205210 (UMLS CUI [1,2])
C2985720 (UMLS CUI [2])
C0205210 (UMLS CUI [2])
C1298908 (UMLS CUI-2)
C1705108 (UMLS CUI-2)
C3846720 (UMLS CUI-2)
C1335499 (UMLS CUI-3)
C0024109 (UMLS CUI-2)
C0600688 (UMLS CUI-2)
C1519316 (UMLS CUI [2])
C2346576 (UMLS CUI [3])