ID
42175
Beschreibung
The European Society for Blood and Marrow Transplantation maintains a huge registry and delivers data collection forms. The original forms for submitting data to the EBMT can be found under: http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Pages/MED-AB-data-collection-forms.aspx#HSCTMedB This ODM form is derived from the AML-disease specific form of the section MED-B. http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Documents/05AL.pdf
Link
Stichworte
Versionen (4)
- 22.11.15 22.11.15 -
- 22.11.15 22.11.15 -
- 11.02.16 11.02.16 -
- 13.04.21 13.04.21 - Dr. rer. medic Philipp Neuhaus
Hochgeladen am
13. April 2021
DOI
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Acute Leukaemia AML EBMT HSCT Registry MED-B Follow Up Form
Acute Leukaemia AML EBMT HSCT Registry MED-B Follow Up Form
- StudyEvent: ODM
Beschreibung
Patient last seen
Alias
- UMLS CUI-1
- C0805839
Beschreibung
Graft versus Host Disease (GvHD) since last report
Alias
- UMLS CUI-1
- C0018133
Beschreibung
aGvHD Grade
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0856825
- UMLS CUI [1,2]
- C0441800
Beschreibung
aGvHD
Datentyp
integer
Alias
- UMLS CUI [1]
- C0856825
Beschreibung
aGvHD Reason
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0856825
- UMLS CUI [1,2]
- M
Beschreibung
Date onset of this episode
Datentyp
date
Maßeinheiten
- yyyy/mm/dd
Alias
- UMLS CUI [1]
- C0574845
Beschreibung
Onset Not applicable
Datentyp
text
Beschreibung
aGvHD Stage Skin
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0856825
- UMLS CUI [1,2]
- C1306673
- UMLS CUI [1,3]
- C1306673
Beschreibung
aGvHD Stage liver
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0856825
- UMLS CUI [1,2]
- C1306673
- UMLS CUI [1,3]
- C0023884
Beschreibung
aGvHD stage gut
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0856825
- UMLS CUI [1,2]
- C1306673
- UMLS CUI [1,3]
- C0021853
Beschreibung
aGvHD Resolution
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0856825
- UMLS CUI [1,2]
- C1514893
Beschreibung
aGvHD Date of resolution
Datentyp
date
Maßeinheiten
- yyyy/mm/dd
Alias
- UMLS CUI [1,1]
- C0856825
- UMLS CUI [1,2]
- C1514893
- UMLS CUI [1,3]
- C0011008
Beschreibung
Chronic Graft versus Host Disease
Alias
- UMLS CUI-1
- C0867389
Beschreibung
Presence of cGVHD
Datentyp
integer
Alias
- UMLS CUI [1]
- C0867389
Beschreibung
cGvHD Date of onset
Datentyp
date
Maßeinheiten
- yyyy/mm/dd
Alias
- UMLS CUI [1,1]
- C0867389
- UMLS CUI [1,2]
- C0011008
Beschreibung
cGvHD Present continuously since last reported episode
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0867389
- UMLS CUI [1,2]
- C0549178
Beschreibung
cGvHD grade
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0867389
- UMLS CUI [1,2]
- C0441800
Beschreibung
Organs affected
Datentyp
integer
Alias
- UMLS CUI [1]
- C0449642
Beschreibung
Specify
Datentyp
text
Alias
- UMLS CUI [1]
- C1521902
Beschreibung
Resolved: Date of resolution
Datentyp
date
Maßeinheiten
- yyyy/mm/dd
Alias
- UMLS CUI [1,1]
- C0867389
- UMLS CUI [1,2]
- C1514893
- UMLS CUI [1,3]
- C0011008
Beschreibung
Other complications since last report
Alias
- UMLS CUI-1
- C0009566
Beschreibung
Infection related complications
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0009450
- UMLS CUI [1,2]
- C0009566
Beschreibung
Systemic symptoms of infection
Datentyp
integer
Alias
- UMLS CUI [1]
- C2039684
Beschreibung
Endorgan disease
Datentyp
integer
Alias
- UMLS CUI [1]
- C0349410
Beschreibung
Infectious Disease Date
Datentyp
date
Maßeinheiten
- yyyy/mm/dd
Alias
- UMLS CUI [1,1]
- C0009450
- UMLS CUI [1,2]
- C0011008
Beschreibung
AML Pathogens of interest
Datentyp
text
Alias
- UMLS CUI [1,1]
- C0009450
- UMLS CUI [1,2]
- C0450254
Beschreibung
Non infection related complications
Datentyp
boolean
Alias
- UMLS CUI [1]
- C0009566
Beschreibung
Idiopathic pneumonia syndrome
Datentyp
integer
Alias
- UMLS CUI [1]
- C1504431
Beschreibung
VOD
Datentyp
integer
Alias
- UMLS CUI [1]
- C0948441
Beschreibung
Cataract
Datentyp
integer
Alias
- UMLS CUI [1]
- C0086543
Beschreibung
Haemorrhagic cystitis, non infectious
Datentyp
integer
Alias
- UMLS CUI [1]
- C0085692
Beschreibung
ARDS, non infectious
Datentyp
integer
Alias
- UMLS CUI [1]
- C0035222
Beschreibung
Multiorgan failure
Datentyp
integer
Alias
- UMLS CUI [1]
- C0026766
Beschreibung
HSCT-associated microangiopathy
Datentyp
integer
Alias
- UMLS CUI [1]
- C0155765
Beschreibung
Renal failure requiring dialysis
Datentyp
integer
Alias
- UMLS CUI [1]
- C3875178
Beschreibung
Haemolytic anaemia due to blood group
Datentyp
integer
Alias
- UMLS CUI [1]
- C0002878
Beschreibung
Aseptic bone necrosis
Datentyp
integer
Alias
- UMLS CUI [1]
- C0158452
Beschreibung
Other
Datentyp
text
Alias
- UMLS CUI [1]
- C0205394
Beschreibung
Dates non infection related complications
Datentyp
date
Maßeinheiten
- yyyy/mm/dd
Alias
- UMLS CUI [1,1]
- C0009566
- UMLS CUI [1,2]
- C0011008
Beschreibung
Graft assessment and chimaerism
Alias
- UMLS CUI-1
- C0472699
- UMLS CUI-2
- C0220825
- UMLS CUI-3
- C0333678
Beschreibung
Chimerism test
Beschreibung
Date of test
Datentyp
date
Maßeinheiten
- yyyy/mm/dd
Alias
- UMLS CUI [1]
- C2826247
Beschreibung
Donor ID
Datentyp
integer
Alias
- UMLS CUI [1]
- C1718162
Beschreibung
Number in the infusion order (if applicable)
Datentyp
integer
Alias
- UMLS CUI [1]
- C2348184
Beschreibung
Cell type on which test was performed
Datentyp
integer
Alias
- UMLS CUI [1]
- C0449475
Beschreibung
Donor cell Percentage
Datentyp
float
Maßeinheiten
- %
Alias
- UMLS CUI [1,1]
- C0013018
- UMLS CUI [1,2]
- C0582380
Beschreibung
Test used
Datentyp
integer
Alias
- UMLS CUI [1]
- C0022885
Beschreibung
Other, specify
Datentyp
text
Alias
- UMLS CUI [1]
- C1521902
Beschreibung
Secondary malignancy, lymphoproliferative or myeloproliferative disorder diagnosed
Datentyp
integer
Alias
- UMLS CUI [1]
- C3266877
- UMLS CUI [2]
- C0024314
- UMLS CUI [3]
- C0027022
Beschreibung
Date of diagnosis
Datentyp
date
Maßeinheiten
- yyyy/mm/dd
Alias
- UMLS CUI [1]
- C2316983
Beschreibung
Other diagnosis
Datentyp
text
Alias
- UMLS CUI [1]
- C0205394
Beschreibung
Date of diagnosis
Datentyp
date
Maßeinheiten
- yyyy/mm/dd
Alias
- UMLS CUI [1]
- C2316983
Beschreibung
Additional therapies since last follow up
Alias
- UMLS CUI-1
- C0087111
Beschreibung
Treatment given since last report
Datentyp
integer
Alias
- UMLS CUI [1]
- C0087111
Beschreibung
Treatment date
Datentyp
date
Maßeinheiten
- yyyy/mm/dd
Alias
- UMLS CUI [1,1]
- C0087111
- UMLS CUI [1,2]
- C0011008
Beschreibung
Cellular therapy
Datentyp
integer
Alias
- UMLS CUI [1]
- C0302189
Beschreibung
Disease status before cellular therapy
Datentyp
integer
Alias
- UMLS CUI [1]
- C1704632
Beschreibung
Type of cells
Datentyp
integer
Alias
- UMLS CUI [1]
- C0302189
Beschreibung
Nucleated cells
Datentyp
integer
Maßeinheiten
- 10^8/kg
Alias
- UMLS CUI [1]
- C1180059
Beschreibung
CD34
Datentyp
integer
Maßeinheiten
- x10^6/kg
Alias
- UMLS CUI [1]
- C0882849
Beschreibung
CD3
Datentyp
integer
Maßeinheiten
- x10^6/kg
Alias
- UMLS CUI [1]
- C0882828
Beschreibung
All cells
Datentyp
integer
Maßeinheiten
- x10^6/kg
Alias
- UMLS CUI [1]
- C0007584
Beschreibung
Chronological number of this cell therapy for this patient
Datentyp
integer
Alias
- UMLS CUI [1]
- C2348184
Beschreibung
Cell therapy indication
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C3146298
- UMLS CUI [1,2]
- C0302189
Beschreibung
Indication specify
Datentyp
text
Alias
- UMLS CUI [1]
- C1521902
Beschreibung
Infusion count
Datentyp
float
Alias
- UMLS CUI [1,1]
- C0574032
- UMLS CUI [1,2]
- C0750480
Beschreibung
Acute Graft Versus Host Disease
Datentyp
integer
Alias
- UMLS CUI [1]
- C0856825
Beschreibung
Disease treatment
Datentyp
integer
Alias
- UMLS CUI [1]
- C0087111
Beschreibung
First evidence of relapse or progression since last HSCT
Alias
- UMLS CUI-1
- C0035020
- UMLS CUI-3
- C1704632
Beschreibung
Relapse or progression
Datentyp
integer
Alias
- UMLS CUI [1]
- C0035020
- UMLS CUI [2]
- C1704632
Beschreibung
Date of diagnosis
Datentyp
date
Maßeinheiten
- yyyy/mm/dd
Alias
- UMLS CUI [1]
- C2316983
Beschreibung
Clinical/hematological
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0018939
- UMLS CUI [1,2]
- C0205210
Beschreibung
Cytogenetic relapse or progression
Datentyp
integer
Alias
- UMLS CUI [1]
- C0010802
Beschreibung
Molecular relapse or progression
Datentyp
integer
Alias
- UMLS CUI [1]
- C0026376
Beschreibung
Date assessed
Datentyp
date
Maßeinheiten
- yyyy/mm/dd
Alias
- UMLS CUI [1]
- C2316983
- UMLS CUI [2]
- C2985720
Beschreibung
Site of relapse
Datentyp
integer
Alias
- UMLS CUI [1]
- C0205145
Beschreibung
Last disease and patient status
Alias
- UMLS CUI-1
- C0449437
Beschreibung
Disease status
Datentyp
integer
Alias
- UMLS CUI [1]
- C1704632
Beschreibung
Clincal/Hematological evaluation
Datentyp
integer
Alias
- UMLS CUI [1]
- C0018939
- UMLS CUI [2]
- C0205210
Beschreibung
Cytogenetics/FISH
Datentyp
integer
Alias
- UMLS CUI [1]
- C0010802
- UMLS CUI [2]
- C0162789
Beschreibung
Date of Evaluation
Datentyp
date
Maßeinheiten
- yyyy/mm/dd
Alias
- UMLS CUI [1]
- C2985720
Beschreibung
Pregnancy
Datentyp
integer
Beschreibung
Patient vitality
Datentyp
integer
Alias
- UMLS CUI [1]
- C1148433
Beschreibung
Performance score
Datentyp
integer
Alias
- UMLS CUI [1]
- C1518965
Beschreibung
Performance score
Datentyp
integer
Alias
- UMLS CUI [1]
- C1518965
Beschreibung
Cause of death
Datentyp
integer
Alias
- UMLS CUI [1]
- C0007465
Beschreibung
HSCT related cause
Datentyp
integer
Beschreibung
Comments
Alias
- UMLS CUI-1
- C0947611
Beschreibung
Identification and Signature
Ähnliche Modelle
Acute Leukaemia AML EBMT HSCT Registry MED-B Follow Up Form
- StudyEvent: ODM
C0011008 (UMLS CUI [1,2])
C1148348 (UMLS CUI [1,2])
C0441800 (UMLS CUI [1,2])
C1306673 (UMLS CUI [1,2])
C1306673 (UMLS CUI [1,3])
C1306673 (UMLS CUI [1,2])
C0023884 (UMLS CUI [1,3])
C1306673 (UMLS CUI [1,2])
C0021853 (UMLS CUI [1,3])
C1514893 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,3])
C0011008 (UMLS CUI [1,2])
C0549178 (UMLS CUI [1,2])
C1514893 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,3])
C0009566 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,2])
C0038402 (UMLS CUI-2)
C0038170 (UMLS CUI-3)
C0023859 (UMLS CUI-4)
C0014834 (UMLS CUI-2)
C0022727 (UMLS CUI-3)
C0033697 (UMLS CUI-4)
C0036765 (UMLS CUI-5)
C0033808 (UMLS CUI-6)
C0030389 (UMLS CUI-2)
C0035473 (UMLS CUI-3)
C0011008 (UMLS CUI [1,2])
C0220825 (UMLS CUI-2)
C0333678 (UMLS CUI-3)
C1521902 (UMLS CUI-2)
C0582380 (UMLS CUI [1,2])
C0024314 (UMLS CUI [2])
C0027022 (UMLS CUI [3])
C0011008 (UMLS CUI [1,2])
C0014644 (UMLS CUI-3)
C0024299 (UMLS CUI-5)
C0750480 (UMLS CUI [1,2])
C1704632 (UMLS CUI-3)
C1704632 (UMLS CUI [2])
C0205210 (UMLS CUI [1,2])
C2985720 (UMLS CUI [2])
C0205210 (UMLS CUI [2])
C1298908 (UMLS CUI-2)
C1705108 (UMLS CUI-2)
C3846720 (UMLS CUI-2)
C1335499 (UMLS CUI-3)
C0024109 (UMLS CUI-2)
C0600688 (UMLS CUI-2)
C1519316 (UMLS CUI [2])
C2346576 (UMLS CUI [3])
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