ID

42175

Beschrijving

The European Society for Blood and Marrow Transplantation maintains a huge registry and delivers data collection forms. The original forms for submitting data to the EBMT can be found under: http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Pages/MED-AB-data-collection-forms.aspx#HSCTMedB This ODM form is derived from the AML-disease specific form of the section MED-B. http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Documents/05AL.pdf

Link

http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Pages/MED-AB-data-collection-forms.aspx#HSCTMedB

Trefwoorden

Versies (4)
  1. 22-11-15 22-11-15 -
  2. 22-11-15 22-11-15 -
  3. 11-02-16 11-02-16 -
  4. 13-04-21 13-04-21 - Dr. rer. medic Philipp Neuhaus
Geüploaded op

13 april 2021

DOI

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Licentie

Creative Commons BY-NC 3.0
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Acute Leukaemia AML EBMT HSCT Registry MED-B Follow Up Form

Engels

Acute Leukaemia AML EBMT HSCT Registry MED-B Follow Up Form

1 Formulieren  
Default Itemgroup
Beschrijving

Default Itemgroup

Unique Identification Code (UIC)
Beschrijving

Identification code

Datatype

text

Alias
UMLS CUI [1]
C2348585
Date of this report
Beschrijving

Date of this report

Datatype

date

Maateenheden
  • yyyy/mm/dd
Alias
UMLS CUI [1]
C1302584
yyyy/mm/dd
Patient following national / international study / trial:
Beschrijving

study patient

Datatype

integer

Alias
UMLS CUI [1]
C1997894
Name of study / trial
Beschrijving

Name of study / trial

Datatype

text

Alias
UMLS CUI [1]
C2348560
Hospital Unique Patient Number
Beschrijving

Hospital Unique Patient Number

Datatype

text

Alias
UMLS CUI [1]
C2348585
Initials
Beschrijving

Patient initials

Datatype

text

Alias
UMLS CUI [1]
C2986440
Date of birth
Beschrijving

Date of birth

Datatype

date

Maateenheden
  • yyyy/mm/dd
Alias
UMLS CUI [1]
C0421451
yyyy/mm/dd
Date of last HSCT for this patient
Beschrijving

Date of last HSCT for this patient

Datatype

date

Maateenheden
  • yyyy/mm/dd
Alias
UMLS CUI [1,1]
C0472699
UMLS CUI [1,2]
C0011008
yyyy/mm/dd
Patient last seen
Beschrijving

Patient last seen

Alias
UMLS CUI-1
C0805839
Date of last contact or death
Beschrijving

Date of last contact or death

Datatype

date

Maateenheden
  • yyyy/mm/dd
Alias
UMLS CUI [1,1]
C0805839
UMLS CUI [1,2]
C1148348
yyyy/mm/dd
Graft versus Host Disease (GvHD) since last report
Beschrijving

Graft versus Host Disease (GvHD) since last report

Alias
UMLS CUI-1
C0018133
Acute Graft versus Host Disease (aGvHD) - Grade
Beschrijving

aGvHD Grade

Datatype

integer

Alias
UMLS CUI [1,1]
C0856825
UMLS CUI [1,2]
C0441800
aGvHD
Beschrijving

aGvHD

Datatype

integer

Alias
UMLS CUI [1]
C0856825
aGvHD Reason
Beschrijving

aGvHD Reason

Datatype

integer

Alias
UMLS CUI [1,1]
C0856825
UMLS CUI [1,2]
M
Date onset of this episode (if new or recurrent)
Beschrijving

Date onset of this episode

Datatype

date

Maateenheden
  • yyyy/mm/dd
Alias
UMLS CUI [1]
C0574845
yyyy/mm/dd
Date onset of this episode:
Beschrijving

Onset Not applicable

Datatype

text

Stage skin
Beschrijving

aGvHD Stage Skin

Datatype

integer

Alias
UMLS CUI [1,1]
C0856825
UMLS CUI [1,2]
C1306673
UMLS CUI [1,3]
C1306673
Stage liver
Beschrijving

aGvHD Stage liver

Datatype

integer

Alias
UMLS CUI [1,1]
C0856825
UMLS CUI [1,2]
C1306673
UMLS CUI [1,3]
C0023884
Stage gut
Beschrijving

aGvHD stage gut

Datatype

integer

Alias
UMLS CUI [1,1]
C0856825
UMLS CUI [1,2]
C1306673
UMLS CUI [1,3]
C0021853
Resolution
Beschrijving

aGvHD Resolution

Datatype

integer

Alias
UMLS CUI [1,1]
C0856825
UMLS CUI [1,2]
C1514893
Date of resolution
Beschrijving

aGvHD Date of resolution

Datatype

date

Maateenheden
  • yyyy/mm/dd
Alias
UMLS CUI [1,1]
C0856825
UMLS CUI [1,2]
C1514893
UMLS CUI [1,3]
C0011008
yyyy/mm/dd
Chronic Graft versus Host Disease
Beschrijving

Chronic Graft versus Host Disease

Alias
UMLS CUI-1
C0867389
Presence of cGVHD
Beschrijving

Presence of cGVHD

Datatype

integer

Alias
UMLS CUI [1]
C0867389
Date of onset
Beschrijving

cGvHD Date of onset

Datatype

date

Maateenheden
  • yyyy/mm/dd
Alias
UMLS CUI [1,1]
C0867389
UMLS CUI [1,2]
C0011008
yyyy/mm/dd
Present continuously since last reported episode
Beschrijving

cGvHD Present continuously since last reported episode

Datatype

boolean

Alias
UMLS CUI [1,1]
C0867389
UMLS CUI [1,2]
C0549178
cGvHD grade
Beschrijving

cGvHD grade

Datatype

integer

Alias
UMLS CUI [1,1]
C0867389
UMLS CUI [1,2]
C0441800
Organs affected
Beschrijving

Organs affected

Datatype

integer

Alias
UMLS CUI [1]
C0449642
Specify
Beschrijving

Specify

Datatype

text

Alias
UMLS CUI [1]
C1521902
Resolved: Date of resolution
Beschrijving

Resolved: Date of resolution

Datatype

date

Maateenheden
  • yyyy/mm/dd
Alias
UMLS CUI [1,1]
C0867389
UMLS CUI [1,2]
C1514893
UMLS CUI [1,3]
C0011008
yyyy/mm/dd
Other complications since last report
Beschrijving

Other complications since last report

Alias
UMLS CUI-1
C0009566
Infection related complications
Beschrijving

Infection related complications

Datatype

boolean

Alias
UMLS CUI [1,1]
C0009450
UMLS CUI [1,2]
C0009566
Systemic symptoms of infection
Beschrijving

Systemic symptoms of infection

Datatype

integer

Alias
UMLS CUI [1]
C2039684
Endorgan disease
Beschrijving

Endorgan disease

Datatype

integer

Alias
UMLS CUI [1]
C0349410
Infectious Disease Date
Beschrijving

Infectious Disease Date

Datatype

date

Maateenheden
  • yyyy/mm/dd
Alias
UMLS CUI [1,1]
C0009450
UMLS CUI [1,2]
C0011008
yyyy/mm/dd
AML Pathogens of interest
Beschrijving

AML Pathogens of interest

Datatype

text

Alias
UMLS CUI [1,1]
C0009450
UMLS CUI [1,2]
C0450254
Non infection related complications
Beschrijving

Non infection related complications

Datatype

boolean

Alias
UMLS CUI [1]
C0009566
Idiopathic pneumonia syndrome
Beschrijving

Idiopathic pneumonia syndrome

Datatype

integer

Alias
UMLS CUI [1]
C1504431
VOD
Beschrijving

VOD

Datatype

integer

Alias
UMLS CUI [1]
C0948441
Cataract
Beschrijving

Cataract

Datatype

integer

Alias
UMLS CUI [1]
C0086543
Haemorrhagic cystitis, non infectious
Beschrijving

Haemorrhagic cystitis, non infectious

Datatype

integer

Alias
UMLS CUI [1]
C0085692
ARDS, non infectious
Beschrijving

ARDS, non infectious

Datatype

integer

Alias
UMLS CUI [1]
C0035222
Multiorgan failure
Beschrijving

Multiorgan failure

Datatype

integer

Alias
UMLS CUI [1]
C0026766
HSCT-associated microangiopathy
Beschrijving

HSCT-associated microangiopathy

Datatype

integer

Alias
UMLS CUI [1]
C0155765
Renal failure requiring dialysis
Beschrijving

Renal failure requiring dialysis

Datatype

integer

Alias
UMLS CUI [1]
C3875178
Haemolytic anaemia due to blood group
Beschrijving

Haemolytic anaemia due to blood group

Datatype

integer

Alias
UMLS CUI [1]
C0002878
Aseptic bone necrosis
Beschrijving

Aseptic bone necrosis

Datatype

integer

Alias
UMLS CUI [1]
C0158452
Other
Beschrijving

Other

Datatype

text

Alias
UMLS CUI [1]
C0205394
Dates of non infection related complications
Beschrijving

Dates non infection related complications

Datatype

date

Maateenheden
  • yyyy/mm/dd
Alias
UMLS CUI [1,1]
C0009566
UMLS CUI [1,2]
C0011008
yyyy/mm/dd
Graft assessment and chimaerism
Beschrijving

Graft assessment and chimaerism

Alias
UMLS CUI-1
C0472699
UMLS CUI-2
C0220825
UMLS CUI-3
C0333678
Graft loss
Beschrijving

Graft loss

Datatype

integer

Alias
UMLS CUI [1]
C0877042
Overall chimaerism
Beschrijving

Overall chimaerism

Datatype

integer

Alias
UMLS CUI [1]
C0333678
Chimerism test
Beschrijving

Chimerism test

Date of test
Beschrijving

Date of test

Datatype

date

Maateenheden
  • yyyy/mm/dd
Alias
UMLS CUI [1]
C2826247
yyyy/mm/dd
Identification of donor or Cord Blood Unit given by the centre
Beschrijving

Donor ID

Datatype

integer

Alias
UMLS CUI [1]
C1718162
Number in the infusion order (if applicable)
Beschrijving

Number in the infusion order (if applicable)

Datatype

integer

Alias
UMLS CUI [1]
C2348184
Cell type on which test was performed
Beschrijving

Cell type on which test was performed

Datatype

integer

Alias
UMLS CUI [1]
C0449475
Percent Donor cells
Beschrijving

Donor cell Percentage

Datatype

float

Maateenheden
  • %
Alias
UMLS CUI [1,1]
C0013018
UMLS CUI [1,2]
C0582380
%
Test used
Beschrijving

Test used

Datatype

integer

Alias
UMLS CUI [1]
C0022885
Other, specify
Beschrijving

Other, specify

Datatype

text

Alias
UMLS CUI [1]
C1521902
Secondary malignancy, lymphoproliferative or myeloproliferative disorder diagnosed
Beschrijving

Secondary malignancy, lymphoproliferative or myeloproliferative disorder diagnosed

Datatype

integer

Alias
UMLS CUI [1]
C3266877
UMLS CUI [2]
C0024314
UMLS CUI [3]
C0027022
Date of diagnosis
Beschrijving

Date of diagnosis

Datatype

date

Maateenheden
  • yyyy/mm/dd
Alias
UMLS CUI [1]
C2316983
yyyy/mm/dd
Diagnosis, other:
Beschrijving

Other diagnosis

Datatype

text

Alias
UMLS CUI [1]
C0205394
Date of diagnosis
Beschrijving

Date of diagnosis

Datatype

date

Maateenheden
  • yyyy/mm/dd
Alias
UMLS CUI [1]
C2316983
yyyy/mm/dd
Additional therapies since last follow up
Beschrijving

Additional therapies since last follow up

Alias
UMLS CUI-1
C0087111
Treatment given since last report
Beschrijving

Treatment given since last report

Datatype

integer

Alias
UMLS CUI [1]
C0087111
Treatment start date
Beschrijving

Treatment date

Datatype

date

Maateenheden
  • yyyy/mm/dd
Alias
UMLS CUI [1,1]
C0087111
UMLS CUI [1,2]
C0011008
yyyy/mm/dd
If yes: Cellular therapy (One cell therapy regimen is defined as any number of infusions given within 10 weeks for the same indication. If more than one regimen of cell therapy has been given since last report, copy this section and complete it as many times as necessary.)
Beschrijving

Cellular therapy

Datatype

integer

Alias
UMLS CUI [1]
C0302189
Disease status before cellular therapy
Beschrijving

Disease status before cellular therapy

Datatype

integer

Alias
UMLS CUI [1]
C1704632
If yes: Type of cells
Beschrijving

Type of cells

Datatype

integer

Alias
UMLS CUI [1]
C0302189
Number of Nucleated cells infused (DLI only)
Beschrijving

Nucleated cells

Datatype

integer

Maateenheden
  • 10^8/kg
Alias
UMLS CUI [1]
C1180059
Number of CD34+ cells infused (DLI only)
Beschrijving

CD34

Datatype

integer

Maateenheden
  • x10^6/kg
Alias
UMLS CUI [1]
C0882849
Number of CD3+ cells infused (DLI only)
Beschrijving

CD3

Datatype

integer

Maateenheden
  • x10^6/kg
Alias
UMLS CUI [1]
C0882828
Total number of cells infused (non DLI only)
Beschrijving

All cells

Datatype

integer

Maateenheden
  • x10^6/kg
Alias
UMLS CUI [1]
C0007584
Chronological number of this cell therapy for this patient
Beschrijving

Chronological number of this cell therapy for this patient

Datatype

integer

Alias
UMLS CUI [1]
C2348184
Indication
Beschrijving

Cell therapy indication

Datatype

integer

Alias
UMLS CUI [1,1]
C3146298
UMLS CUI [1,2]
C0302189
Indication: specify
Beschrijving

Indication specify

Datatype

text

Alias
UMLS CUI [1]
C1521902
Number of infusions within 10 weeks (count only infusions that are part of same regimen and given for the same indication)
Beschrijving

Infusion count

Datatype

float

Alias
UMLS CUI [1,1]
C0574032
UMLS CUI [1,2]
C0750480
Acute Graft Versus Host Disease (after this infusion but before any further infusion / transplant)
Beschrijving

Acute Graft Versus Host Disease

Datatype

integer

Alias
UMLS CUI [1]
C0856825
Disease treatment (apart from donor cell infusion or other type of cell therapy)
Beschrijving

Disease treatment

Datatype

integer

Alias
UMLS CUI [1]
C0087111
First evidence of relapse or progression since last HSCT
Beschrijving

First evidence of relapse or progression since last HSCT

Alias
UMLS CUI-1
C0035020
UMLS CUI-3
C1704632
Relapse or progression
Beschrijving

Relapse or progression

Datatype

integer

Alias
UMLS CUI [1]
C0035020
UMLS CUI [2]
C1704632
Relapse or Progression: Date diagnosed
Beschrijving

Date of diagnosis

Datatype

date

Maateenheden
  • yyyy/mm/dd
Alias
UMLS CUI [1]
C2316983
yyyy/mm/dd
Cinical/haematological relapse or progression
Beschrijving

Clinical/hematological

Datatype

integer

Alias
UMLS CUI [1,1]
C0018939
UMLS CUI [1,2]
C0205210
Cytogenetic relapse or progression
Beschrijving

Cytogenetic relapse or progression

Datatype

integer

Alias
UMLS CUI [1]
C0010802
Molecular relapse or progression
Beschrijving

Molecular relapse or progression

Datatype

integer

Alias
UMLS CUI [1]
C0026376
Date of the assessment/Date first seen
Beschrijving

Date assessed

Datatype

date

Maateenheden
  • yyyy/mm/dd
Alias
UMLS CUI [1]
C2316983
UMLS CUI [2]
C2985720
yyyy/mm/dd
Relapse or progression site
Beschrijving

Site of relapse

Datatype

integer

Alias
UMLS CUI [1]
C0205145
Last disease and patient status
Beschrijving

Last disease and patient status

Alias
UMLS CUI-1
C0449437
Last disease and patient status
Beschrijving

Disease status

Datatype

integer

Alias
UMLS CUI [1]
C1704632
Clinical/haematological
Beschrijving

Clincal/Hematological evaluation

Datatype

integer

Alias
UMLS CUI [1]
C0018939
UMLS CUI [2]
C0205210
Cytogenetic/FISH
Beschrijving

Cytogenetics/FISH

Datatype

integer

Alias
UMLS CUI [1]
C0010802
UMLS CUI [2]
C0162789
Last date evaluated/Last date assessed
Beschrijving

Date of Evaluation

Datatype

date

Maateenheden
  • yyyy/mm/dd
Alias
UMLS CUI [1]
C2985720
yyyy/mm/dd
Conception - Has patient or partner become pregnant after this HSCT?
Beschrijving

Pregnancy

Datatype

integer

Survival status
Beschrijving

Patient vitality

Datatype

integer

Alias
UMLS CUI [1]
C1148433
Performance score (if alive)
Beschrijving

Performance score

Datatype

integer

Alias
UMLS CUI [1]
C1518965
Score
Beschrijving

Performance score

Datatype

integer

Alias
UMLS CUI [1]
C1518965
Cause of death (if dead)
Beschrijving

Cause of death

Datatype

integer

Alias
UMLS CUI [1]
C0007465
HSCT related cause
Beschrijving

HSCT related cause

Datatype

integer

Comments
Beschrijving

Comments

Alias
UMLS CUI-1
C0947611
Comments
Beschrijving

Comments

Datatype

text

Alias
UMLS CUI [1]
C0947611
Identification and Signature
Beschrijving

Identification and Signature

Identification and Signature
Beschrijving

Identification and Signature

Datatype

text

Alias
UMLS CUI [1]
C2346576
UMLS CUI [2]
C1519316
UMLS CUI [3]
C2346576
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Similar models

Acute Leukaemia AML EBMT HSCT Registry MED-B Follow Up Form

1 Formulieren
Name
Type
Description | Question | Decode (Coded Value)
Datatype
Alias
Identification code
Item
Unique Identification Code (UIC)
text
C2348585 (UMLS CUI [1])
Date of this report
Item
Date of this report
date
C1302584 (UMLS CUI [1])
Item
Patient following national / international study / trial:
integer
C1997894 (UMLS CUI [1])
study patient
Code List
Patient following national / international study / trial:
CL Item
No (1)
C1298908 (UMLS CUI-1)
CL Item
Yes (2)
C1705108 (UMLS CUI-1)
CL Item
Not evaluated (3)
C3846720 (UMLS CUI-1)
Name of study / trial
Item
text
C2348560 (UMLS CUI [1])
Hospital Unique Patient Number
Item
Hospital Unique Patient Number
text
C2348585 (UMLS CUI [1])
Patient initials
Item
Initials
text
C2986440 (UMLS CUI [1])
Date of birth
Item
Date of birth
date
C0421451 (UMLS CUI [1])
Date of last HSCT for this patient
Item
Date of last HSCT for this patient
date
C0472699 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item Group
C0805839 (UMLS CUI-1)
Date of last contact or death
Item
date
C0805839 (UMLS CUI [1,1])
C1148348 (UMLS CUI [1,2])
Item
Acute Graft versus Host Disease (aGvHD) - Grade
integer
C0856825 (UMLS CUI [1,1])
C0441800 (UMLS CUI [1,2])
aGvHD Grade
Code List
Acute Graft versus Host Disease (aGvHD) - Grade
CL Item
grade 0 (Absent) (1)
C0332197 (UMLS CUI-1)
CL Item
grade I (2)
C0687695 (UMLS CUI-1)
CL Item
grade II (3)
C0441802 (UMLS CUI-1)
CL Item
grade III (4)
C0450094 (UMLS CUI-1)
CL Item
grade IV (5)
C0547054 (UMLS CUI-1)
CL Item
Not evaluated (6)
C3846720 (UMLS CUI-1)
Item
integer
C0856825 (UMLS CUI [1])
aGvHD
Code List
aGvHD
CL Item
New onset (1)
C0746890 (UMLS CUI-1)
CL Item
Recurrent (2)
C2945760 (UMLS CUI-1)
CL Item
Persistent (3)
C0205322 (UMLS CUI-1)
Item
aGvHD Reason
integer
C0856825 (UMLS CUI [1,1])
M (UMLS CUI [1,2])
aGvHD Reason
Code List
aGvHD Reason
CL Item
Tapering (1)
C0441640 (UMLS CUI-1)
CL Item
DLI (2)
C1512034 (UMLS CUI-1)
CL Item
Unexplained (3)
C0439673 (UMLS CUI-1)
Date onset of this episode
Item
Date onset of this episode (if new or recurrent)
date
C0574845 (UMLS CUI [1])
Item
Date onset of this episode:
text
Onset Not applicable
Code List
Date onset of this episode:
CL Item
Not applicable (Not applicable)
Item
Stage skin
integer
C0856825 (UMLS CUI [1,1])
C1306673 (UMLS CUI [1,2])
C1306673 (UMLS CUI [1,3])
aGvHD Stage Skin
Code List
Stage skin
CL Item
0 (1)
C0441763 (UMLS CUI-1)
CL Item
1 (2)
C3840271 (UMLS CUI-1)
CL Item
2 (3)
C1306673 (UMLS CUI-1)
CL Item
3 (4)
C1306673 (UMLS CUI-1)
CL Item
4 (5)
C1306673 (UMLS CUI-1)
CL Item
Not evaluated (6)
C3846720 (UMLS CUI-1)
CL Item
unknown (7)
C0439673 (UMLS CUI-1)
Item
Stage liver
integer
C0856825 (UMLS CUI [1,1])
C1306673 (UMLS CUI [1,2])
C0023884 (UMLS CUI [1,3])
aGvHD Stage Skin
Code List
Stage liver
CL Item
0 (1)
C0441763 (UMLS CUI-1)
CL Item
1 (2)
C3840271 (UMLS CUI-1)
CL Item
2 (3)
C1306673 (UMLS CUI-1)
CL Item
3 (4)
C1306673 (UMLS CUI-1)
CL Item
4 (5)
C1306673 (UMLS CUI-1)
CL Item
Not evaluated (6)
C3846720 (UMLS CUI-1)
CL Item
unknown (7)
C0439673 (UMLS CUI-1)
Item
Stage gut
integer
C0856825 (UMLS CUI [1,1])
C1306673 (UMLS CUI [1,2])
C0021853 (UMLS CUI [1,3])
aGvHD Stage Skin
Code List
Stage gut
CL Item
0 (1)
C0441763 (UMLS CUI-1)
CL Item
1 (2)
C3840271 (UMLS CUI-1)
CL Item
2 (3)
C1306673 (UMLS CUI-1)
CL Item
3 (4)
C1306673 (UMLS CUI-1)
CL Item
4 (5)
C1306673 (UMLS CUI-1)
CL Item
Not evaluated (6)
C3846720 (UMLS CUI-1)
CL Item
unknown (7)
C0439673 (UMLS CUI-1)
Item
Resolution
integer
C0856825 (UMLS CUI [1,1])
C1514893 (UMLS CUI [1,2])
aGvHD Resolution
Code List
Resolution
CL Item
No  (1)
CL Item
Yes (2)
aGvHD Date of resolution
Item
Date of resolution
date
C0856825 (UMLS CUI [1,1])
C1514893 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,3])
Item Group
C0867389 (UMLS CUI-1)
Item
Presence of cGVHD
integer
C0867389 (UMLS CUI [1])
Presence of cGVHD GRAVHOSD
Code List
Presence of cGVHD
CL Item
No (1)
C1298908 (UMLS CUI-1)
CL Item
Yes, First Episode (2)
C0439615 (UMLS CUI-1)
CL Item
Yes, Recurrence (3)
C0035020 (UMLS CUI-1)
cGvHD Date of onset
Item
Date of onset
date
C0867389 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
cGvHD Present continuously since last reported episode
Item
Present continuously since last reported episode
boolean
C0867389 (UMLS CUI [1,1])
C0549178 (UMLS CUI [1,2])
Item
cGvHD grade
integer
C0867389 (UMLS CUI [1,1])
C0441800 (UMLS CUI [1,2])
cGvHD grade
Code List
cGvHD grade
CL Item
limited (1)
CL Item
Extensive (2)
Item
Organs affected
integer
C0449642 (UMLS CUI [1])
Organs affected
Code List
Organs affected
CL Item
Skin (1)
C1123023 (UMLS CUI-1)
CL Item
Gut (2)
C0021853 (UMLS CUI-1)
CL Item
Liver (3)
C0023884 (UMLS CUI-1)
CL Item
Mouth (4)
C0230028 (UMLS CUI-1)
CL Item
Eyes (5)
C0015392 (UMLS CUI-1)
CL Item
Lung (6)
C0024109 (UMLS CUI-1)
CL Item
Other, specify (7)
C0205394 (UMLS CUI-1)
CL Item
Unknown (8)
C0439673 (UMLS CUI-1)
Specify
Item
Specify
text
C1521902 (UMLS CUI [1])
Resolved: Date of resolution
Item
date
C0867389 (UMLS CUI [1,1])
C1514893 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,3])
Item Group
C0009566 (UMLS CUI-1)
Infection related complications
Item
boolean
C0009450 (UMLS CUI [1,1])
C0009566 (UMLS CUI [1,2])
Item
integer
C2039684 (UMLS CUI [1])
Systemic symptoms of infection
Code List
Systemic symptoms of infection
CL Item
Septic shock (1)
C0036983 (UMLS CUI-1)
CL Item
ARDS (2)
C0035222 (UMLS CUI-1)
CL Item
Multiorgan failure due to infection (3)
C0026766 (UMLS CUI-1)
Item
integer
C0349410 (UMLS CUI [1])
Endorgan disease
Code List
Endorgan disease
CL Item
Pneumonia (1)
C0032285 (UMLS CUI-1)
CL Item
Hepatitis (2)
C0019158 (UMLS CUI-1)
CL Item
CNS infection (3)
C0007684 (UMLS CUI-1)
CL Item
Gut infection (4)
C0178238 (UMLS CUI-1)
CL Item
Skin infection (5)
C0037278 (UMLS CUI-1)
CL Item
Cystitis (6)
C0010692 (UMLS CUI-1)
CL Item
Retinitis (7)
C0035333 (UMLS CUI-1)
CL Item
Other (8)
C0205394 (UMLS CUI-1)
Infectious Disease Date
Item
date
C0009450 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
text
C0009450 (UMLS CUI [1,1])
C0450254 (UMLS CUI [1,2])
AML Pathogens of interest
Code List
AML Pathogens of interest
CL Item
S. pneumoniae (S. pneumoniae)
C0038410 (UMLS CUI-1)
CL Item
HSV (HSV)
C0319232 (UMLS CUI-1)
CL Item
Other gram positive (i.e.: other streptococci, staphylococci, listeria …) (Other gram positive (i.e.: other streptococci, staphylococci, listeria …))
C0018154 (UMLS CUI-1)
C0038402 (UMLS CUI-2)
C0038170 (UMLS CUI-3)
C0023859 (UMLS CUI-4)
CL Item
VZV (VZV)
C0042338 (UMLS CUI-1)
CL Item
EBV (EBV)
C0014644 (UMLS CUI-1)
CL Item
Haemophilus influenzae (Haemophilus influenzae)
C0018483 (UMLS CUI-1)
CL Item
CMV (CMV)
C0582172 (UMLS CUI-1)
CL Item
Other gram negative (i.e.: E. coli klebsiella, proteus, serratia, pseudomonas …) (Other gram negative (i.e.: E. coli klebsiella, proteus, serratia, pseudomonas …))
C0018150 (UMLS CUI-1)
C0014834 (UMLS CUI-2)
C0022727 (UMLS CUI-3)
C0033697 (UMLS CUI-4)
C0036765 (UMLS CUI-5)
C0033808 (UMLS CUI-6)
CL Item
HHV-6 (HHV-6)
C0019381 (UMLS CUI-1)
CL Item
RSV (RSV)
C0035236 (UMLS CUI-1)
CL Item
Legionella sp (Legionella sp)
C0023237 (UMLS CUI-1)
CL Item
Other respiratory virus (influenza, parainfluenza, rhinovirus) (Other respiratory virus (influenza, parainfluenza, rhinovirus))
C0021400 (UMLS CUI-1)
C0030389 (UMLS CUI-2)
C0035473 (UMLS CUI-3)
CL Item
Mycobacteria sp (Mycobacteria sp)
C0026912 (UMLS CUI-1)
CL Item
Adenovirus (Adenovirus Fungi)
C0001483 (UMLS CUI-1)
CL Item
HBV (HBV)
C0019163 (UMLS CUI-1)
CL Item
Candida sp (Candida sp)
C0006836 (UMLS CUI-1)
CL Item
HCV (HCV)
C0019196 (UMLS CUI-1)
CL Item
Aspergillus sp (Aspergillus sp)
C0004034 (UMLS CUI-1)
CL Item
HIV (HIV)
C0019682 (UMLS CUI-1)
CL Item
Pneumocystis carinii (Pneumocystis carinii)
C0032276 (UMLS CUI-1)
CL Item
Papovavirus (Papovavirus)
C0319132 (UMLS CUI-1)
CL Item
Parvovirus (Parvovirus Parasites)
C0086776 (UMLS CUI-1)
CL Item
Toxoplasma gondii (Toxoplasma gondii)
C0040557 (UMLS CUI-1)
CL Item
Other (Other)
C0205394 (UMLS CUI-1)
Non infection related complications
Item
boolean
C0009566 (UMLS CUI [1])
Item
integer
C1504431 (UMLS CUI [1])
Idiopathic pneumonia syndrome
Code List
Idiopathic pneumonia syndrome
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
CL Item
No (2)
C1298908 (UMLS CUI-1)
CL Item
Unknown (3)
C0439673 (UMLS CUI-1)
Item
integer
C0948441 (UMLS CUI [1])
Idiopathic pneumonia syndrome
Code List
VOD
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
CL Item
No (2)
C1298908 (UMLS CUI-1)
CL Item
Unknown (3)
C0439673 (UMLS CUI-1)
Item
integer
C0086543 (UMLS CUI [1])
Idiopathic pneumonia syndrome
Code List
Cataract
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
CL Item
No (2)
C1298908 (UMLS CUI-1)
CL Item
Unknown (3)
C0439673 (UMLS CUI-1)
Item
integer
C0085692 (UMLS CUI [1])
Idiopathic pneumonia syndrome
Code List
Haemorrhagic cystitis, non infectious
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
CL Item
No (2)
C1298908 (UMLS CUI-1)
CL Item
Unknown (3)
C0439673 (UMLS CUI-1)
Item
integer
C0035222 (UMLS CUI [1])
Idiopathic pneumonia syndrome
Code List
ARDS, non infectious
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
CL Item
No (2)
C1298908 (UMLS CUI-1)
CL Item
Unknown (3)
C0439673 (UMLS CUI-1)
Item
integer
C0026766 (UMLS CUI [1])
Idiopathic pneumonia syndrome
Code List
Multiorgan failure
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
CL Item
No (2)
C1298908 (UMLS CUI-1)
CL Item
Unknown (3)
C0439673 (UMLS CUI-1)
Item
integer
C0155765 (UMLS CUI [1])
Idiopathic pneumonia syndrome
Code List
HSCT-associated microangiopathy
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
CL Item
No (2)
C1298908 (UMLS CUI-1)
CL Item
Unknown (3)
C0439673 (UMLS CUI-1)
Item
integer
C3875178 (UMLS CUI [1])
Idiopathic pneumonia syndrome
Code List
Renal failure requiring dialysis
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
CL Item
No (2)
C1298908 (UMLS CUI-1)
CL Item
Unknown (3)
C0439673 (UMLS CUI-1)
Item
integer
C0002878 (UMLS CUI [1])
Idiopathic pneumonia syndrome
Code List
Haemolytic anaemia due to blood group
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
CL Item
No (2)
C1298908 (UMLS CUI-1)
CL Item
Unknown (3)
C0439673 (UMLS CUI-1)
Item
integer
C0158452 (UMLS CUI [1])
Idiopathic pneumonia syndrome
Code List
Aseptic bone necrosis
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
CL Item
No (2)
C1298908 (UMLS CUI-1)
CL Item
Unknown (3)
C0439673 (UMLS CUI-1)
Other
Item
text
C0205394 (UMLS CUI [1])
Dates non infection related complications
Item
Dates of non infection related complications
date
C0009566 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item Group
C0472699 (UMLS CUI-1)
C0220825 (UMLS CUI-2)
C0333678 (UMLS CUI-3)
Item
Graft loss
integer
C0877042 (UMLS CUI [1])
study patient
Code List
Graft loss
CL Item
No (1)
C1298908 (UMLS CUI-1)
CL Item
Yes (2)
C1705108 (UMLS CUI-1)
CL Item
Not evaluated (3)
C3846720 (UMLS CUI-1)
Item
integer
C0333678 (UMLS CUI [1])
Overall chimaerism
Code List
Overall chimaerism
CL Item
Full (donor >95 %) (1)
C0443225 (UMLS CUI-1)
CL Item
Mixed (partial) (2)
C0205430 (UMLS CUI-1)
CL Item
Autologous reconstitution (recipient >95 %) (3)
C0035020 (UMLS CUI-1)
CL Item
Aplasia (4)
C0243065 (UMLS CUI-1)
CL Item
Not evaluated (5)
C3846720 (UMLS CUI-1)
Item Group
Date of test
Item
date
C2826247 (UMLS CUI [1])
Donor ID
Item
Identification of donor or Cord Blood Unit given by the centre
integer
C1718162 (UMLS CUI [1])
Item
Number in the infusion order (if applicable)
integer
C2348184 (UMLS CUI [1])
Number in the infusion order (if applicable)
Code List
Number in the infusion order (if applicable)
CL Item
......... (1)
C0750480 (UMLS CUI-1)
CL Item
N/A (2)
C1272460 (UMLS CUI-1)
Item
integer
C0449475 (UMLS CUI [1])
Cell type on which test was performed
Code List
Cell type on which test was performed
CL Item
BM  (1)
C0005953 (UMLS CUI-1)
CL Item
PB mononuclear cells (PBMC)  (2)
C1321301 (UMLS CUI-1)
CL Item
T-cell (3)
C0039194 (UMLS CUI-1)
CL Item
B-cells (4)
C0004561 (UMLS CUI-1)
CL Item
Red blood cells (5)
C0014772 (UMLS CUI-1)
CL Item
Monocytes (6)
C0942447 (UMLS CUI-1)
CL Item
PMNs (neutrophils) (7)
C0200633 (UMLS CUI-1)
CL Item
Lymphocytes, NOS (8)
C0942440 (UMLS CUI-1)
CL Item
Myeloid cells, NOS (9)
C0887899 (UMLS CUI-1)
CL Item
Other, specify: (10)
C0205394 (UMLS CUI-1)
C1521902 (UMLS CUI-2)
Donor cell Percentage
Item
Percent Donor cells
float
C0013018 (UMLS CUI [1,1])
C0582380 (UMLS CUI [1,2])
Item
integer
C0022885 (UMLS CUI [1])
Test used
Code List
Test used
CL Item
FISH (1)
C0162789 (UMLS CUI-1)
CL Item
Molecular (2)
C1513380 (UMLS CUI-1)
CL Item
Cytogenetic (3)
C0010802 (UMLS CUI-1)
CL Item
AB0 group (4)
C0000778 (UMLS CUI-1)
CL Item
Other (5)
C0205394 (UMLS CUI-1)
CL Item
Unknown (6)
C0439673 (UMLS CUI-1)
Other, specify
Item
text
C1521902 (UMLS CUI [1])
Item
integer
C3266877 (UMLS CUI [1])
C0024314 (UMLS CUI [2])
C0027022 (UMLS CUI [3])
Secondary malignancy, lymphoproliferative or myeloproliferative disorder diagnosed
Code List
Secondary malignancy, lymphoproliferative or myeloproliferative disorder diagnosed
CL Item
Previously reported (1)
C0205309 (UMLS CUI-1)
CL Item
Yes, date of diagnosis: (2)
C1705108 (UMLS CUI-1)
CL Item
Diagnosis: AML  (3)
C0023467 (UMLS CUI-1)
CL Item
Diagnosis: MDS  (4)
C3463824 (UMLS CUI-1)
CL Item
Diagnosis: Lymphoproliferative disorder (5)
C0024314 (UMLS CUI-1)
CL Item
Diagnosis: Other (6)
C0205394 (UMLS CUI-1)
CL Item
No at date of this follow-up (7)
C1298908 (UMLS CUI-1)
Date of diagnosis
Item
date
C2316983 (UMLS CUI [1])
Other diagnosis
Item
Diagnosis, other:
text
C0205394 (UMLS CUI [1])
Date of diagnosis
Item
date
C2316983 (UMLS CUI [1])
Item Group
C0087111 (UMLS CUI-1)
Item
integer
C0087111 (UMLS CUI [1])
Treatment given since last report
Code List
Treatment given since last report
CL Item
No (1)
C1298908 (UMLS CUI-1)
CL Item
Yes (2)
C1705108 (UMLS CUI-1)
CL Item
Unknown (3)
C0439673 (UMLS CUI-1)
Treatment date
Item
Treatment start date
date
C0087111 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
If yes: Cellular therapy (One cell therapy regimen is defined as any number of infusions given within 10 weeks for the same indication. If more than one regimen of cell therapy has been given since last report, copy this section and complete it as many times as necessary.)
integer
C0302189 (UMLS CUI [1])
Cellular therapy
Code List
If yes: Cellular therapy (One cell therapy regimen is defined as any number of infusions given within 10 weeks for the same indication. If more than one regimen of cell therapy has been given since last report, copy this section and complete it as many times as necessary.)
CL Item
No  (1)
C1298908 (UMLS CUI-1)
CL Item
Yes (Mark disease status before this cellular therapy) (2)
C1705108 (UMLS CUI-1)
CL Item
Unknown (3)
C0439673 (UMLS CUI-1)
Item
integer
C1704632 (UMLS CUI [1])
Disease status before cellular therapy
Code List
Disease status before cellular therapy
CL Item
CR (1)
C0677874 (UMLS CUI-1)
CL Item
Not in CR (2)
C3844738 (UMLS CUI-1)
CL Item
Not evaluated (3)
C3846720 (UMLS CUI-1)
Item
If yes: Type of cells
integer
C0302189 (UMLS CUI [1])
Type of cells
Code List
If yes: Type of cells
CL Item
Donor lymphocyte infusion (DLI) (1)
C1512034 (UMLS CUI-1)
CL Item
Mesenchymal cells (2)
C1257975 (UMLS CUI-1)
CL Item
Other (3)
C0205394 (UMLS CUI-1)
CL Item
Unknown (4)
C0439673 (UMLS CUI-1)
Item
Number of Nucleated cells infused (DLI only)
integer
C1180059 (UMLS CUI [1])
Nucleated cells
Code List
Number of Nucleated cells infused (DLI only)
CL Item
Number (1)
C0007584 (UMLS CUI-1)
CL Item
Not evaluated (2)
C3846720 (UMLS CUI-1)
CL Item
Unknown (3)
C0439673 (UMLS CUI-1)
Item
Number of CD34+ cells infused (DLI only)
integer
C0882849 (UMLS CUI [1])
CD34
Code List
Number of CD34+ cells infused (DLI only)
CL Item
Number (1)
C0007584 (UMLS CUI-1)
CL Item
Not evaluated (2)
C3846720 (UMLS CUI-1)
CL Item
Unknown (3)
C0439673 (UMLS CUI-1)
Item
Number of CD3+ cells infused (DLI only)
integer
C0882828 (UMLS CUI [1])
CD3
Code List
Number of CD3+ cells infused (DLI only)
CL Item
Number (1)
C0007584 (UMLS CUI-1)
CL Item
Not evaluated (2)
C3846720 (UMLS CUI-1)
CL Item
Unknown (3)
C0439673 (UMLS CUI-1)
Item
Total number of cells infused (non DLI only)
integer
C0007584 (UMLS CUI [1])
All cells
Code List
Total number of cells infused (non DLI only)
CL Item
Number (1)
C0007584 (UMLS CUI-1)
CL Item
Not evaluated (2)
C3846720 (UMLS CUI-1)
CL Item
Unknown (3)
C0439673 (UMLS CUI-1)
Chronological number of this cell therapy for this patient
Item
Chronological number of this cell therapy for this patient
integer
C2348184 (UMLS CUI [1])
Item
Indication
integer
C3146298 (UMLS CUI [1,1])
C0302189 (UMLS CUI [1,2])
Cell therapy indication
Code List
Indication
CL Item
Planned/protocol  (1)
C2348563 (UMLS CUI-1)
CL Item
Treatment for disease (2)
C0087111 (UMLS CUI-1)
CL Item
Prophylactic (3)
C0199176 (UMLS CUI-1)
CL Item
Mixed chimaerism (4)
C0333678 (UMLS CUI-1)
CL Item
Treatment of GvHD  (5)
C0278845 (UMLS CUI-1)
CL Item
Treatment viral infection (6)
C0280274 (UMLS CUI-1)
CL Item
Loss/decreased chimaerism  (7)
C0333678 (UMLS CUI-1)
CL Item
Treatment PTLD, EBV lymphoma (8)
C0432487 (UMLS CUI-1)
C0014644 (UMLS CUI-3)
C0024299 (UMLS CUI-5)
CL Item
Other, specify (9)
C0205394 (UMLS CUI-1)
Indication specify
Item
Indication: specify
text
C1521902 (UMLS CUI [1])
Infusion count
Item
Number of infusions within 10 weeks (count only infusions that are part of same regimen and given for the same indication)
float
C0574032 (UMLS CUI [1,1])
C0750480 (UMLS CUI [1,2])
Item
Acute Graft Versus Host Disease (after this infusion but before any further infusion / transplant)
integer
C0856825 (UMLS CUI [1])
Acute Graft Versus Host Disease
Code List
Acute Graft Versus Host Disease (after this infusion but before any further infusion / transplant)
CL Item
Grade 0 (absent) (1)
C0332197 (UMLS CUI-1)
CL Item
Grade 1 (2)
C0687695 (UMLS CUI-1)
CL Item
Grade 2 (3)
C1522446 (UMLS CUI-1)
CL Item
Grade 3 (4)
C0450094 (UMLS CUI-1)
CL Item
Grade 4 (5)
C0547054 (UMLS CUI-1)
CL Item
present, grade unknown (6)
C0150312 (UMLS CUI-1)
Item
Disease treatment (apart from donor cell infusion or other type of cell therapy)
integer
C0087111 (UMLS CUI [1])
Disease treatment
Code List
Disease treatment (apart from donor cell infusion or other type of cell therapy)
CL Item
No (1)
C1298908 (UMLS CUI-1)
CL Item
Yes: Planned (planned before HSCT took place) (2)
C0087111 (UMLS CUI-1)
CL Item
Yes: Not planned (for relapse/progression or persistent disease) (3)
C1518546 (UMLS CUI-1)
Item Group
C0035020 (UMLS CUI-1)
C1704632 (UMLS CUI-3)
Item
Relapse or progression
integer
C0035020 (UMLS CUI [1])
C1704632 (UMLS CUI [2])
Relapse or progression
Code List
Relapse or progression
CL Item
Previously reported (1)
C0205309 (UMLS CUI-1)
CL Item
No (2)
C1298908 (UMLS CUI-1)
CL Item
yes (3)
C1705108 (UMLS CUI-1)
CL Item
Continuous progression since transplant (4)
C1335499 (UMLS CUI-1)
CL Item
Unknown (5)
C0439673 (UMLS CUI-1)
Date of diagnosis
Item
Relapse or Progression: Date diagnosed
date
C2316983 (UMLS CUI [1])
Item
Cinical/haematological relapse or progression
integer
C0018939 (UMLS CUI [1,1])
C0205210 (UMLS CUI [1,2])
Clinical/hematological
Code List
Cinical/haematological relapse or progression
CL Item
No (1)
C1298908 (UMLS CUI-1)
CL Item
Yes (2)
C1705108 (UMLS CUI-1)
CL Item
Not evaluated (3)
C3846720 (UMLS CUI-1)
Item
Cytogenetic relapse or progression
integer
C0010802 (UMLS CUI [1])
Clinical/hematological
Code List
Cytogenetic relapse or progression
CL Item
No (1)
C1298908 (UMLS CUI-1)
CL Item
Yes (2)
C1705108 (UMLS CUI-1)
CL Item
Not evaluated (3)
C3846720 (UMLS CUI-1)
Item
Molecular relapse or progression
integer
C0026376 (UMLS CUI [1])
Clinical/hematological
Code List
Molecular relapse or progression
CL Item
No (1)
C1298908 (UMLS CUI-1)
CL Item
Yes (2)
C1705108 (UMLS CUI-1)
CL Item
Not evaluated (3)
C3846720 (UMLS CUI-1)
Date assessed
Item
Date of the assessment/Date first seen
date
C2316983 (UMLS CUI [1])
C2985720 (UMLS CUI [2])
Item
Relapse or progression site
integer
C0205145 (UMLS CUI [1])
Site of relapse
Code List
Relapse or progression site
CL Item
marrow - blood (1)
C0005953 (UMLS CUI-1)
CL Item
extramedullary (2)
C1868812 (UMLS CUI-1)
Item Group
C0449437 (UMLS CUI-1)
Item
Last disease and patient status
integer
C1704632 (UMLS CUI [1])
Disease status
Code List
Last disease and patient status
CL Item
CR (1)
C0677874 (UMLS CUI-1)
CL Item
Stable Disease (2)
C0677946 (UMLS CUI-1)
CL Item
Relapse (3)
C0035020 (UMLS CUI-1)
CL Item
Progression (4)
C1704632 (UMLS CUI-1)
Item
Clinical/haematological
integer
C0018939 (UMLS CUI [1])
C0205210 (UMLS CUI [2])
Clincal/Hematological evaluation
Code List
Clinical/haematological
CL Item
No (1)
C1298908 (UMLS CUI-1)
CL Item
Yes (2)
C1705108 (UMLS CUI-1)
CL Item
Not evaluated (3)
C3846720 (UMLS CUI-1)
Item
Cytogenetic/FISH
integer
C0010802 (UMLS CUI [1])
C0162789 (UMLS CUI [2])
Cytogenetics/FISH
Code List
Cytogenetic/FISH
CL Item
No (1)
C1298908 (UMLS CUI-1)
CL Item
Yes: Considered disease relapse/progression No (2)
C0035020 (UMLS CUI-1)
C1298908 (UMLS CUI-2)
CL Item
Yes: Considered disease relapse/progression Yes (3)
C0035020 (UMLS CUI-1)
C1705108 (UMLS CUI-2)
CL Item
Yes: Considered disease relapse/progression Not evaluated (4)
C0035020 (UMLS CUI-1)
C3846720 (UMLS CUI-2)
Date of Evaluation
Item
Last date evaluated/Last date assessed
date
C2985720 (UMLS CUI [1])
Item
Conception - Has patient or partner become pregnant after this HSCT?
integer
Pregnancy
Code List
Conception - Has patient or partner become pregnant after this HSCT?
CL Item
Yes  (1)
C1705108 (UMLS CUI-1)
CL Item
No (2)
C1298908 (UMLS CUI-1)
CL Item
Unknown (3)
C0439673 (UMLS CUI-1)
Item
Survival status
integer
C1148433 (UMLS CUI [1])
Patient vitality
Code List
Survival status
CL Item
Alive (1)
C2584946 (UMLS CUI-1)
CL Item
Dead (2)
C0011065 (UMLS CUI-1)
Item
Performance score (if alive)
integer
C1518965 (UMLS CUI [1])
Performance score
Code List
Performance score (if alive)
CL Item
Karnofsky (1)
C0206065 (UMLS CUI-1)
CL Item
Lansky (2)
C1522275 (UMLS CUI-1)
Item
Score
integer
C1518965 (UMLS CUI [1])
Performance score
Code List
Score
CL Item
100 (Normal, NED) (1)
C3829431 (UMLS CUI-1)
CL Item
90 (Normal activity)  (2)
C3829422 (UMLS CUI-1)
CL Item
80 (Normal with effort) (3)
C3829423 (UMLS CUI-1)
CL Item
70 (Cares for self) (4)
C3829424 (UMLS CUI-1)
CL Item
60 (Requires occasional assistance) (5)
C3829425 (UMLS CUI-1)
CL Item
50 (Requires assistance) (6)
C3829426 (UMLS CUI-1)
CL Item
40 (Disabled) (7)
C3829427 (UMLS CUI-1)
CL Item
30 (Severely disabled) (8)
C3829428 (UMLS CUI-1)
CL Item
20 (Very sick) (9)
C3829429 (UMLS CUI-1)
CL Item
10 (Moribund) (10)
C3829430 (UMLS CUI-1)
CL Item
Not evaluated (11)
C3846720 (UMLS CUI-1)
CL Item
Unknown (12)
C0439673 (UMLS CUI-1)
Item
Cause of death (if dead)
integer
C0007465 (UMLS CUI [1])
Cause of death
Code List
Cause of death (if dead)
CL Item
Relapse or progression (1)
C0035020 (UMLS CUI-1)
C1335499 (UMLS CUI-3)
CL Item
Secondary malignancy (including lymphoproliferative disease) (2)
C3266877 (UMLS CUI-1)
CL Item
HSCT related cause  (3)
C0472699 (UMLS CUI-1)
CL Item
Unknown (4)
C0439673 (UMLS CUI-1)
CL Item
Other (5)
C0205394 (UMLS CUI-1)
Item
HSCT related cause
integer
HSCT related cause
Code List
HSCT related cause
CL Item
GvHD (1)
C0018133 (UMLS CUI-1)
CL Item
Interstitial pneumonitis (2)
C0206061 (UMLS CUI-1)
CL Item
Pulmonary toxicity (3)
C0013221 (UMLS CUI-1)
C0024109 (UMLS CUI-2)
CL Item
Infection bacterial (4)
C0004623 (UMLS CUI-1)
CL Item
Infection viral (5)
C0042769 (UMLS CUI-1)
CL Item
Infection fungal (6)
C0026946 (UMLS CUI-1)
CL Item
Infection parasitic (7)
C0030498 (UMLS CUI-1)
CL Item
Infection unknown (8)
C0009450 (UMLS CUI-1)
CL Item
Rejection / poor graft function (9)
C0018129 (UMLS CUI-1)
CL Item
Veno-occlusive disease (VOD) (10)
C0948441 (UMLS CUI-1)
CL Item
Haemorrhage (11)
C0019080 (UMLS CUI-1)
CL Item
Cardiac toxicity (12)
C0876994 (UMLS CUI-1)
CL Item
Central nervous system toxicity (13)
C3160947 (UMLS CUI-1)
CL Item
Gastro intestinal toxicity (14)
C0521362 (UMLS CUI-1)
C0600688 (UMLS CUI-2)
CL Item
Skin toxicity (15)
C1167791 (UMLS CUI-1)
CL Item
Renal failure (16)
C0035078 (UMLS CUI-1)
CL Item
Multiple organ failure (17)
C0026766 (UMLS CUI-1)
CL Item
Other (18)
C0205394 (UMLS CUI-1)
Item Group
C0947611 (UMLS CUI-1)
Comments
Item
text
C0947611 (UMLS CUI [1])
Identification and Signature
Item
Identification and Signature
text
C2346576 (UMLS CUI [1])
C1519316 (UMLS CUI [2])
C2346576 (UMLS CUI [3])
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