ID

42144

Description

NINDS Common Data Elements, Multiple Sclerosis Non-Imaging Diagnostics Recommendations Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

Link

https://www.commondataelements.ninds.nih.gov/

Keywords

Versions (2)
  1. 8/14/16 8/14/16 -
  2. 4/13/21 4/13/21 - Dr. rer. medic Philipp Neuhaus
Uploaded on

April 13, 2021

DOI

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Creative Commons BY-NC 3.0
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NINDS CDE Non-Imaging Diagnostics Recommendations Multiple Sclerosis

English

Non-Imaging Diagnostics Recommendations

1 forms  
ECG
Description

ECG

Alias
UMLS CUI-1
C1623258
ECG/EKG
Description

ECG

Data type

text

Alias
UMLS CUI [1]
C1623258
Other
Description

Other

Data type

text

Alias
UMLS CUI [1]
C0205394
Pulmonary Function Tests
Description

Pulmonary Function Tests

Alias
UMLS CUI-1
C0024119
Pulmonary Function Tests
Description

Interpreted as predicted value based on age and size

Data type

text

Alias
UMLS CUI [1]
C0024119
Scalp Electroencephalogram
Description

Scalp Electroencephalogram

Alias
UMLS CUI-1
C0430784
Activating procedures used
Description

Sleep; Hyperventilation ; Photic stimulation

Data type

text

Alias
UMLS CUI [1,1]
C0037313
UMLS CUI [1,2]
C0020578
UMLS CUI [2]
C0031734
Other
Description

Other

Data type

text

Alias
UMLS CUI [1]
C0205394
Behavioral states recorded
Description

awake; asleep

Data type

text

Alias
UMLS CUI [1]
C0234422
UMLS CUI [2]
C0424522
Other
Description

Other

Data type

text

Alias
UMLS CUI [1]
C0205394
Date EEG recorded
Description

Date EEG

Data type

date

Alias
UMLS CUI [1,1]
C0011008
UMLS CUI [1,2]
C0013819
Duration, if prolonged
Description

Duration

Data type

text

Alias
UMLS CUI [1]
C0449238
Other
Description

Other

Data type

text

Alias
UMLS CUI [1]
C0205394
Frequency of the posterior dominant rhythm during relaxed wakefulness
Description

Round to the nearest 0.5 Hz

Data type

float

Alias
UMLS CUI [1]
C3476109
Location
Description

Location

Data type

text

Alias
UMLS CUI [1]
C0450429
Other
Description

Other

Data type

text

Alias
UMLS CUI [1]
C0205394
Number of seizures with EEG only
Description

Number of seizures EEG

Data type

integer

Alias
UMLS CUI [1,1]
C0036572
UMLS CUI [1,2]
C0750480
UMLS CUI [1,3]
C0013819
Number of seizures with Video and EEG
Description

Number of seizures EEG Video

Data type

integer

Alias
UMLS CUI [1,1]
C0036572
UMLS CUI [1,2]
C0750480
UMLS CUI [1,3]
C0013819
UMLS CUI [1,4]
C0430801
Number of seizures with video only
Description

Number of seizures EEG Video

Data type

integer

Alias
UMLS CUI [1,1]
C0036572
UMLS CUI [1,2]
C0750480
UMLS CUI [1,3]
C0013819
UMLS CUI [1,4]
C0430801
Original purpose of EEG
Description

EEG

Data type

text

Alias
UMLS CUI [1]
C0013819
Other
Description

Other

Data type

text

Alias
UMLS CUI [1]
C0205394
Posterior dominant rhythm present?
Description

Posterior dominant rhythm

Data type

boolean

Total number of seizures recorded
Description

number of seizures

Data type

integer

Alias
UMLS CUI [1,1]
C0036572
UMLS CUI [1,2]
C0750480
Type
Description

Type

Data type

text

Alias
UMLS CUI [1]
C0332307
Video?
Description

Video

Data type

text

Alias
UMLS CUI [1]
C0042650
Other
Description

Other

Data type

text

Alias
UMLS CUI [1]
C0205394
Immune Cell Subsets
Description

Immune Cell Subsets

CD2+ (T cell % )
Description

CD2+

Data type

float

Measurement units
  • %
Alias
UMLS CUI [1]
C2347546
%
CD2+ (T cell number )
Description

CD2+

Data type

integer

Alias
UMLS CUI [1]
C2347546
CD2+DR (T cell % )
Description

CD2+DR

Data type

float

Measurement units
  • %
%
CD2+DR (T cell number )
Description

CD2+DR

Data type

integer

CD3+/CD4+ (T cell %)
Description

CD3+/CD4+

Data type

float

Measurement units
  • %
Alias
UMLS CUI [1]
C0801312
%
CD3+/CD4+ (T cell number)
Description

CD3+/CD4+

Data type

integer

Alias
UMLS CUI [1]
C0801312
CD3+/CD8+ (T cell %)
Description

CD3+/CD8+

Data type

float

Measurement units
  • %
Alias
UMLS CUI [1]
C0797321
%
CD3+/CD8+ (T cell number)
Description

CD3+/CD8+

Data type

integer

Alias
UMLS CUI [1]
C0797321
CD3-/CD56+ bright (Absolute number )
Description

CD3-/CD56+

Data type

integer

Alias
UMLS CUI [1]
C0942755
CD3-/CD56+ bright (proportional NK cells )
Description

CD3-/CD56+

Data type

integer

Alias
UMLS CUI [1]
C0942755
CD3+ (T cells %)
Description

CD3+ (T cells)

Data type

float

Measurement units
  • %
Alias
UMLS CUI [1]
C2025558
%
CD3+ (T cells number)
Description

CD3+ (T cells)

Data type

integer

Alias
UMLS CUI [1]
C2025558
CD4/CD8 ratio
Description

CD4/CD8 ratio

Data type

float

Alias
UMLS CUI [1]
C1832816
CD4+DR (T cell %)
Description

CD4+DR

Data type

float

Measurement units
  • %
Alias
UMLS CUI [1]
C0942858
%
CD4+DR (T cell number)
Description

CD4+DR

Data type

integer

Alias
UMLS CUI [1]
C0942858
CD8+DR (T cell % )
Description

CD8+DR

Data type

float

Measurement units
  • %
Alias
UMLS CUI [1]
C0799272
%
CD8+DR (T cell number )
Description

CD8+DR

Data type

integer

Alias
UMLS CUI [1]
C0799272
CD14+ (monocytes)
Description

CD14+ (monocytes)

Data type

integer

Alias
UMLS CUI [1]
C0108768
CD19+ (B cells %)
Description

CD19+ (B cells)

Data type

float

Measurement units
  • %
Alias
UMLS CUI [1]
C2208728
%
CD19+ (B cells number)
Description

CD19+ (B cells)

Data type

integer

Alias
UMLS CUI [1]
C2208728
Other mononuclear subsets
Description

mononuclear subsets

Data type

text

Electrophysiology
Description

Electrophysiology

Alias
UMLS CUI-1
C0013865
Motor EP: Arm, right and left cortex - APB
Description

Results should include: latency, amp, CMCT, threshold

Data type

text

Alias
UMLS CUI [1,1]
C0013865
UMLS CUI [1,2]
C0026609
UMLS CUI [1,3]
C1140618
Motor EP: Leg, right and left cortex - EDB
Description

Results should include: latency, amp, CMCT, threshold

Data type

text

Alias
UMLS CUI [1,1]
C0013865
UMLS CUI [1,2]
C0026609
UMLS CUI [1,3]
C0023216
Motor EP: Leg, right and left cortex - TA
Description

Results should include: latency, amp, CMCT, threshold

Data type

text

Alias
UMLS CUI [1,1]
C0013865
UMLS CUI [1,2]
C0026609
UMLS CUI [1,3]
C0023216
VEP checkerboard size 16
Description

N75 latency; P100 latency; N145 latency

Data type

text

Alias
UMLS CUI [1]
C0546834
VEP checkerboard size 32
Description

N75 latency; P100 latency; N145 latency

Data type

text

Alias
UMLS CUI [1]
C0546834
Nerve Conduction
Description

Nerve Conduction

Alias
UMLS CUI-1
C0947630
UMLS CUI-2
C0027788
Fwave studies (right and left; M-latency, F-latency)
Description

Permissible values: Peroneal (EDB); Peroneal (TA); Median

Data type

text

Alias
UMLS CUI [1]
C0429368
Median Right and Left (amp, latency, CV, temp)
Description

Segment: abductor pollicis brevis (wrist right and left)

Data type

text

Alias
UMLS CUI [1,1]
C0027788
UMLS CUI [1,2]
C2939193
UMLS CUI [1,3]
C2326105
Peroneal (amp, latency, CV, temp)
Description

Segment: extensor digitorum brevis (ankle right and left); TA (ankle right and left)

Data type

text

Alias
UMLS CUI [1,1]
C0027788
UMLS CUI [1,2]
C0442035
UMLS CUI [1,3]
C0835411
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Similar models

Non-Imaging Diagnostics Recommendations

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
ECG
C1623258 (UMLS CUI-1)
Item
ECG/EKG
text
C1623258 (UMLS CUI [1])
ECG
Code List
ECG/EKG
CL Item
Abnormal (1)
CL Item
Not Clinically Significant  (2)
CL Item
Abnormal  (3)
CL Item
Clinically Significant  (4)
CL Item
Other, specify (5)
Other
Item
Other
text
C0205394 (UMLS CUI [1])
Item Group
Pulmonary Function Tests
C0024119 (UMLS CUI-1)
Pulmonary Function Tests
Item
Pulmonary Function Tests
text
C0024119 (UMLS CUI [1])
Item Group
Scalp Electroencephalogram
C0430784 (UMLS CUI-1)
Item
Activating procedures used
text
C0037313 (UMLS CUI [1,1])
C0020578 (UMLS CUI [1,2])
C0031734 (UMLS CUI [2])
Sleep; Hyperventilation ; Photic stimulation
Code List
Activating procedures used
CL Item
Sleep  (1)
CL Item
Hyperventilation  (2)
CL Item
Photic stimulation (3)
CL Item
Unknown  (4)
CL Item
Other, specify (5)
Other
Item
Other
text
C0205394 (UMLS CUI [1])
Item
Behavioral states recorded
text
C0234422 (UMLS CUI [1])
C0424522 (UMLS CUI [2])
awake; asleep
Code List
Behavioral states recorded
CL Item
Awake  (1)
CL Item
Asleep  (2)
CL Item
Unresponsive state (3)
CL Item
Indeterminate (4)
CL Item
Other, specify (5)
Other
Item
Other
text
C0205394 (UMLS CUI [1])
Date EEG
Item
Date EEG recorded
date
C0011008 (UMLS CUI [1,1])
C0013819 (UMLS CUI [1,2])
Item
Duration, if prolonged
text
C0449238 (UMLS CUI [1])
Duration
Code List
Duration, if prolonged
CL Item
Less than 24 hours (1)
CL Item
Greater than or equal to 24 hours (2)
CL Item
N/A  (3)
CL Item
Other, specify (4)
Other
Item
Other
text
C0205394 (UMLS CUI [1])
Frequency
Item
Frequency of the posterior dominant rhythm during relaxed wakefulness
float
C3476109 (UMLS CUI [1])
Item
Location
text
C0450429 (UMLS CUI [1])
Location
Code List
Location
CL Item
Outpatient EEG Lab (1)
CL Item
Inpatient Monitoring Unit  (2)
CL Item
Intensive Care Unit  (3)
CL Item
Ambulatory (4)
CL Item
Other, specify (5)
Other
Item
Other
text
C0205394 (UMLS CUI [1])
Number of seizures EEG
Item
Number of seizures with EEG only
integer
C0036572 (UMLS CUI [1,1])
C0750480 (UMLS CUI [1,2])
C0013819 (UMLS CUI [1,3])
Number of seizures EEG Video
Item
Number of seizures with Video and EEG
integer
C0036572 (UMLS CUI [1,1])
C0750480 (UMLS CUI [1,2])
C0013819 (UMLS CUI [1,3])
C0430801 (UMLS CUI [1,4])
Number of seizures EEG Video
Item
Number of seizures with video only
integer
C0036572 (UMLS CUI [1,1])
C0750480 (UMLS CUI [1,2])
C0013819 (UMLS CUI [1,3])
C0430801 (UMLS CUI [1,4])
Item
Original purpose of EEG
text
C0013819 (UMLS CUI [1])
EEG
Code List
Original purpose of EEG
CL Item
Research purposes - prospective (1)
CL Item
Research purposes - retrospective (2)
CL Item
Clinical purposes (3)
CL Item
Other, specify (4)
Other
Item
Other
text
C0205394 (UMLS CUI [1])
Posterior dominant rhythm
Item
Posterior dominant rhythm present?
boolean
number of seizures
Item
Total number of seizures recorded
integer
C0036572 (UMLS CUI [1,1])
C0750480 (UMLS CUI [1,2])
Item
Type
text
C0332307 (UMLS CUI [1])
Type
Code List
Type
CL Item
routine (1)
CL Item
prolonged (2)
Item
Video?
text
C0042650 (UMLS CUI [1])
Video
Code List
Video?
CL Item
Yes  (1)
CL Item
No  (2)
CL Item
Unknown (3)
CL Item
Other, specify (4)
Other
Item
Other
text
C0205394 (UMLS CUI [1])
Item Group
Immune Cell Subsets
CD2+
Item
CD2+ (T cell % )
float
C2347546 (UMLS CUI [1])
CD2+
Item
CD2+ (T cell number )
integer
C2347546 (UMLS CUI [1])
CD2+DR
Item
CD2+DR (T cell % )
float
CD2+DR
Item
CD2+DR (T cell number )
integer
CD3+/CD4+
Item
CD3+/CD4+ (T cell %)
float
C0801312 (UMLS CUI [1])
CD3+/CD4+
Item
CD3+/CD4+ (T cell number)
integer
C0801312 (UMLS CUI [1])
CD3+/CD8+
Item
CD3+/CD8+ (T cell %)
float
C0797321 (UMLS CUI [1])
CD3+/CD8+
Item
CD3+/CD8+ (T cell number)
integer
C0797321 (UMLS CUI [1])
CD3-/CD56+
Item
CD3-/CD56+ bright (Absolute number )
integer
C0942755 (UMLS CUI [1])
CD3-/CD56+
Item
CD3-/CD56+ bright (proportional NK cells )
integer
C0942755 (UMLS CUI [1])
CD3+ (T cells)
Item
CD3+ (T cells %)
float
C2025558 (UMLS CUI [1])
CD3+ (T cells)
Item
CD3+ (T cells number)
integer
C2025558 (UMLS CUI [1])
CD4/CD8 ratio
Item
CD4/CD8 ratio
float
C1832816 (UMLS CUI [1])
CD4+DR
Item
CD4+DR (T cell %)
float
C0942858 (UMLS CUI [1])
CD4+DR
Item
CD4+DR (T cell number)
integer
C0942858 (UMLS CUI [1])
CD8+DR
Item
CD8+DR (T cell % )
float
C0799272 (UMLS CUI [1])
CD8+DR
Item
CD8+DR (T cell number )
integer
C0799272 (UMLS CUI [1])
CD14+ (monocytes)
Item
CD14+ (monocytes)
integer
C0108768 (UMLS CUI [1])
CD19+ (B cells)
Item
CD19+ (B cells %)
float
C2208728 (UMLS CUI [1])
CD19+ (B cells)
Item
CD19+ (B cells number)
integer
C2208728 (UMLS CUI [1])
mononuclear subsets
Item
Other mononuclear subsets
text
Item Group
Electrophysiology
C0013865 (UMLS CUI-1)
EP motor arm
Item
Motor EP: Arm, right and left cortex - APB
text
C0013865 (UMLS CUI [1,1])
C0026609 (UMLS CUI [1,2])
C1140618 (UMLS CUI [1,3])
EP motor leg
Item
Motor EP: Leg, right and left cortex - EDB
text
C0013865 (UMLS CUI [1,1])
C0026609 (UMLS CUI [1,2])
C0023216 (UMLS CUI [1,3])
EP motor leg
Item
Motor EP: Leg, right and left cortex - TA
text
C0013865 (UMLS CUI [1,1])
C0026609 (UMLS CUI [1,2])
C0023216 (UMLS CUI [1,3])
VEP
Item
VEP checkerboard size 16
text
C0546834 (UMLS CUI [1])
VEP
Item
VEP checkerboard size 32
text
C0546834 (UMLS CUI [1])
Item Group
Nerve Conduction
C0947630 (UMLS CUI-1)
C0027788 (UMLS CUI-2)
F-wave
Item
Fwave studies (right and left; M-latency, F-latency)
text
C0429368 (UMLS CUI [1])
Nerve Conduction median abductor pollicis brevis
Item
Median Right and Left (amp, latency, CV, temp)
text
C0027788 (UMLS CUI [1,1])
C2939193 (UMLS CUI [1,2])
C2326105 (UMLS CUI [1,3])
Nerve Conduction Peroneal extensor digitorum brevis
Item
Peroneal (amp, latency, CV, temp)
text
C0027788 (UMLS CUI [1,1])
C0442035 (UMLS CUI [1,2])
C0835411 (UMLS CUI [1,3])
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