1 Bedömning
ID

42029

Beskrivning

REGIMS is a registry of the administration, adverse events and benefit of immunotherapeutic agents in patients with Multiple Sclerosis. REGIMS is a project from the Institute of Epidemiology and Social Medicine of the University of Muenster, publication granted by Prof. Dr. Berger. For further information (in German), please view http://campus.uni-muenster.de/index.php?id=6075 or http://www.kompetenznetz-multiplesklerose.de/aktuelle-studien/regims. REGIMS ist ein Immuntherapieregister zur Verbesserung der Arzneimittelsicherheit in der Multiple Sklerose Therapie innerhalb des krankheitsbezogenen Kompetenznetzes MS. Das primäre Ziel von REGIMS ist die Erfassung der Häufigkeit, Charakteristika und Auswirkungen von Nebenwirkungen aktueller und neuer Immuntherapien in der klinischen Routinebehandlung der MS. Sekundäre Ziele sind die Auswertung von Faktoren, die a) mit Nebenwirkungen und b) mit guter Therapie-Adhärenz assoziiert sind. Optional können bei Zustimmung der Patienten Blutproben für die Biobank des KKNMS gesammelt werden. Patienten mit Multipler Sklerose (MS) weisen trotz des chronischen Verlaufs eine große Heterogenität klinischer Symptome, in Befunden der Bildgebung sowie pathophysiologischen Prozessen auf. Faktoren, die zur individuellen Krankheitsprognose beitragen sind kaum bekannt, jedoch hat die Einführung neuer Substanzen die Therapiemöglichkeiten der MS in den letzten Jahren deutlich erweitert. Die Anwendung sogenannter Immuntherapeutika (inklusive der neuen Substanzklasse der Biologika) bietet in der MS-Therapie eine Reihe von Chancen, birgt aber auch Risiken.

Länk

http://campus.uni-muenster.de/index.php?id=6075

Nyckelord

Versioner (10)
  1. 2016-07-07 2016-07-07 -
  2. 2016-07-07 2016-07-07 -
  3. 2016-07-07 2016-07-07 -
  4. 2016-07-11 2016-07-11 -
  5. 2016-07-11 2016-07-11 -
  6. 2016-07-12 2016-07-12 -
  7. 2016-08-03 2016-08-03 -
  8. 2017-12-07 2017-12-07 -
  9. 2021-03-15 2021-03-15 - Dr. rer. medic Philipp Neuhaus
  10. 2021-09-20 2021-09-20 -
Rättsinnehavare

Institute of Epidemiology and Social Medicine UKM

Uppladdad den

15 mars 2021

DOI

För en begäran logga in.

Licens

Creative Commons BY-NC 3.0
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    REGIMS Multiple Sclerosis Immunotherapy Registry Version 2016

    Tysk Engelsk

    Baseline Main Sheet

    9 Formulär  
    Inclusion-/Exclusion Criteria
    Beskrivning

    Inclusion-/Exclusion Criteria

    Alias
    UMLS CUI-1
    C1516637
    Visit date
    Beskrivning

    Visitendatum

    Datatyp

    date

    Alias
    UMLS CUI [1]
    C1320303
    Patient meets the criteria for inclusion
    Beskrivning

    Kriterien erfüllt

    Datatyp

    integer

    Alias
    UMLS CUI [1]
    C1512693
    Written informed consent obtained?
    Beskrivning

    Einverständnis

    Datatyp

    integer

    Alias
    UMLS CUI [1]
    C0021430
    Patient's Data
    Beskrivning

    Patient's Data

    Alias
    UMLS CUI-1
    C2707520
    Sex
    Beskrivning

    sex

    Datatyp

    integer

    Alias
    UMLS CUI [1]
    C0079399
    Year of birth
    Beskrivning

    Geburtsjahr

    Datatyp

    integer

    Alias
    UMLS CUI [1]
    C2826771
    Size (cm)
    Beskrivning

    geoesse

    Datatyp

    integer

    Måttenheter
    • cm
    Alias
    UMLS CUI [1]
    C0005890
    cm
    Body weight (kg)
    Beskrivning

    Gewicht

    Datatyp

    float

    Alias
    UMLS CUI [1]
    C0005910
    Multiple Sclerosis specific information
    Beskrivning

    Multiple Sclerosis specific information

    Alias
    UMLS CUI-1
    C0026769
    Date of first symptoms of MS: month/year
    Beskrivning

    Please select a day of the respective month. It is applied to only the month and year

    Datatyp

    date

    Alias
    UMLS CUI [1,1]
    C0574845
    UMLS CUI [1,2]
    C0026769
    Unknown
    Beskrivning

    Unbekannt

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0574845
    UMLS CUI [1,2]
    C0026769
    UMLS CUI [1,3]
    C0439673
    MS diagnosis date: month/year
    Beskrivning

    Please select a day of the respective month. It is applied to only the month and year

    Datatyp

    date

    Alias
    UMLS CUI [1,1]
    C2316983
    UMLS CUI [1,2]
    C0026769
    Unknown
    Beskrivning

    Unbekannt MS-Diag

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C2316983
    UMLS CUI [1,2]
    C0439673
    UMLS CUI [1,3]
    C0026769
    Clinical Course of multiple sclerosis
    Beskrivning

    mslauf

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0449259
    UMLS CUI [1,2]
    C0026769
    Other clinical course?
    Beskrivning

    Andere Verlaufsform

    Datatyp

    text

    Alias
    UMLS CUI [1,1]
    C0449259
    UMLS CUI [1,2]
    C0205394
    UMLS CUI [1,3]
    C0026769
    Number of flares in the last 24 months
    Beskrivning

    Schübe anzahl

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0035020
    UMLS CUI [1,2]
    C3846158
    Current flare?
    Beskrivning

    Schub

    Datatyp

    integer

    Alias
    UMLS CUI [1]
    C0856120
    UMLS CUI [2]
    C0035020
    EDSS-Score 12 month ago
    Beskrivning

    EDSS-Score 12 month ago

    Alias
    UMLS CUI-1
    C3830336
    UMLS CUI-2
    C3898100
    EDSS score
    Beskrivning

    Please specify the score between 0 and 10 months ago.

    Datatyp

    float

    Alias
    UMLS CUI [1,1]
    C3830336
    UMLS CUI [1,2]
    C3898100
    Unknown
    Beskrivning

    Unbekannt EDSSv12

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C3830336
    UMLS CUI [1,2]
    C3898100
    UMLS CUI [1,3]
    C0439673
    Today's scores for functional systems
    Beskrivning

    Today's scores for functional systems

    Alias
    UMLS CUI-1
    C3830336
    Today's EDSS
    Beskrivning

    Please specify a value between 0 and 10.

    Datatyp

    float

    Alias
    UMLS CUI [1]
    C3830336
    Unknown / not obtained
    Beskrivning

    Unbekannt EDSS

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C3830336
    UMLS CUI [1,2]
    C0439673
    Pyramidal
    Beskrivning

    Pyramidal

    Datatyp

    integer

    Alias
    UMLS CUI [1]
    C3829393
    Sensitivity
    Beskrivning

    Sensibilität

    Datatyp

    integer

    Alias
    UMLS CUI [1]
    C3829391
    Cerebral
    Beskrivning

    Zerebral

    Datatyp

    integer

    Alias
    UMLS CUI [1]
    C3829397
    Cerebellum
    Beskrivning

    Kleinhirn

    Datatyp

    integer

    Alias
    UMLS CUI [1]
    C3829398
    Bowel and Bladder Functions
    Beskrivning

    BlaseMastdarm

    Datatyp

    integer

    Alias
    UMLS CUI [1]
    C3829400
    Ability to walk
    Beskrivning

    Gehfähigkeit

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C3829396
    UMLS CUI [1,2]
    C0559964
    Brain stem
    Beskrivning

    Hirnstamm

    Datatyp

    integer

    Alias
    UMLS CUI [1]
    C3829399
    Visual
    Beskrivning

    Visuell

    Datatyp

    integer

    Alias
    UMLS CUI [1]
    C3827261
    Sum
    Beskrivning

    Score

    Datatyp

    float

    Alias
    UMLS CUI [1]
    C3830336
    Previous disease-modifying MS-Medication
    Beskrivning

    Previous disease-modifying MS-Medication

    Alias
    UMLS CUI-1
    C2114510
    Was a disease-modifying MS therapy previously conducted?
    Beskrivning

    mentryr

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C2114510
    UMLS CUI [1,2]
    C0026769
    Active ingredient
    Beskrivning

    Wirkstoff

    Datatyp

    text

    Alias
    UMLS CUI [1,1]
    C2114510
    UMLS CUI [1,2]
    C0026769
    other active ingredient
    Beskrivning

    Wirkstoff anderer

    Datatyp

    text

    Alias
    UMLS CUI [1,1]
    C2114510
    UMLS CUI [1,2]
    C0205394
    UMLS CUI [1,3]
    C0026769
    Start: Month/year
    Beskrivning

    Please select a day of the respective month. It is applied to only the month and year

    Datatyp

    date

    Alias
    UMLS CUI [1,1]
    C3173309
    UMLS CUI [1,2]
    C2114510
    UMLS CUI [1,3]
    C0026769
    End: Month
    Beskrivning

    Please select a day of the respective month. It is applied to only the month and year

    Datatyp

    date

    Alias
    UMLS CUI [1,1]
    C1531784
    UMLS CUI [1,2]
    C2114510
    UMLS CUI [1,3]
    C0026769
    Main reason for stopping the therapy
    Beskrivning

    HauptgrundTherapieende

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0850893
    UMLS CUI [1,2]
    C0566251
    UMLS CUI [1,3]
    C0026769
    If other, please indicate the reason
    Beskrivning

    Text Anderer Grund

    Datatyp

    text

    Alias
    UMLS CUI [1,1]
    C3840932
    UMLS CUI [1,2]
    C0850893
    UMLS CUI [1,3]
    C0026769
    Current MS therapy
    Beskrivning

    Current MS therapy

    Alias
    UMLS CUI-1
    C2827774
    Active ingredient
    Beskrivning

    Wirkstoff

    Datatyp

    text

    Alias
    UMLS CUI [1,1]
    C2827774
    UMLS CUI [1,2]
    C0026769
    other active ingredient
    Beskrivning

    curth1a

    Datatyp

    text

    Alias
    UMLS CUI [1,1]
    C2827774
    UMLS CUI [1,2]
    C0205394
    UMLS CUI [1,3]
    C0026769
    Start: Month/year
    Beskrivning

    Please select a day of the respective month. It is applied to only the month and year

    Datatyp

    date

    Alias
    UMLS CUI [1,1]
    C3173309
    UMLS CUI [1,2]
    C2827774
    UMLS CUI [1,3]
    C0026769
    Regimen
    Beskrivning

    Therapieschema

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C1276413
    UMLS CUI [1,2]
    C2827774
    UMLS CUI [1,3]
    C0026769
    Please specify the dose and type of administration
    Beskrivning

    andere

    Datatyp

    text

    Alias
    UMLS CUI [1,1]
    C0001555
    UMLS CUI [1,2]
    C2827774
    UMLS CUI [1,3]
    C0026769
    Other diagnoses
    Beskrivning

    Other diagnoses

    Alias
    UMLS CUI-1
    C0332138
    Has any other of the following diagnoses been diagnosed?
    Beskrivning

    WeitereErkr

    Datatyp

    boolean

    Alias
    UMLS CUI [1]
    C0332138
    Heart / cardiovascular disease
    Beskrivning

    Heart / cardiovascular disease

    Alias
    UMLS CUI-1
    C0007222
    Heart / cardiovascular disease
    Beskrivning

    Gruppe Kreislauferkrankungen

    Datatyp

    integer

    Alias
    UMLS CUI [1]
    C0007222
    Which disease has been diagnosed?
    Beskrivning

    Kreislauferkrankungen

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0007222
    UMLS CUI [1,2]
    C0457464
    Month/year
    Beskrivning

    Please select a day of the respective month. It is applied to only the month and year

    Datatyp

    date

    Alias
    UMLS CUI [1,1]
    C0007222
    UMLS CUI [1,2]
    C0011008
    Date unknown
    Beskrivning

    Datum unbekannt

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0007222
    UMLS CUI [1,2]
    C0011008
    UMLS CUI [1,3]
    C0439673
    Current drug treatment
    Beskrivning

    MediBehandlung

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0007222
    UMLS CUI [1,2]
    C2827774
    Metabolic diseases
    Beskrivning

    Metabolic diseases

    Alias
    UMLS CUI-1
    C0025517
    Metabolic diseases
    Beskrivning

    Gruppe Stoffwechsel

    Datatyp

    integer

    Alias
    UMLS CUI [1]
    C0025517
    Which disease has been diagnosed?
    Beskrivning

    Stoffwechsel

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0025517
    UMLS CUI [1,2]
    C0457464
    Month/year
    Beskrivning

    Please select a day of the respective month. It is applied to only the month and year

    Datatyp

    date

    Alias
    UMLS CUI [1,1]
    C0025517
    UMLS CUI [1,2]
    C0011008
    Date unknown
    Beskrivning

    Datum unbekannt

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0025517
    UMLS CUI [1,2]
    C0011008
    UMLS CUI [1,3]
    C0439673
    Current drug treatment
    Beskrivning

    MediBehandlung

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0025517
    UMLS CUI [1,2]
    C2827774
    Infectious diseases
    Beskrivning

    Infectious diseases

    Alias
    UMLS CUI-1
    C0009450
    Infectious diseases
    Beskrivning

    Gruppe Infektionserkrankungen

    Datatyp

    integer

    Alias
    UMLS CUI [1]
    C0009450
    Which disease has been diagnosed?
    Beskrivning

    Infekt

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0009450
    UMLS CUI [1,2]
    C0457464
    If Yes, what opportunistic infection
    Beskrivning

    Welche opportunistische Infektion

    Datatyp

    text

    Alias
    UMLS CUI [1]
    C0029118
    Site of infection
    Beskrivning

    Ort der Herpes-Infektion

    Datatyp

    text

    Alias
    UMLS CUI [1,1]
    C0019372
    UMLS CUI [1,2]
    C0475264
    Month/year
    Beskrivning

    Please select a day of the respective month. It is applied to only the month and year

    Datatyp

    date

    Alias
    UMLS CUI [1,1]
    C0009450
    UMLS CUI [1,2]
    C0011008
    Date unknown
    Beskrivning

    Datum unbekannt

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0009450
    UMLS CUI [1,2]
    C0011008
    UMLS CUI [1,3]
    C0439673
    Current drug treatment
    Beskrivning

    MediBehandlung

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0009450
    UMLS CUI [1,2]
    C2827774
    Gastrointestinal diseases
    Beskrivning

    Gastrointestinal diseases

    Alias
    UMLS CUI-1
    C0017178
    Gastrointestinal diseases
    Beskrivning

    Gruppe Gastrointestinale Erkrankungen

    Datatyp

    integer

    Alias
    UMLS CUI [1]
    C0017178
    Which disease has been diagnosed?
    Beskrivning

    Gastro

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0017178
    UMLS CUI [1,2]
    C0457464
    Month/year
    Beskrivning

    Please select a day of the respective month. It is applied to only the month and year

    Datatyp

    date

    Alias
    UMLS CUI [1,1]
    C0017178
    UMLS CUI [1,2]
    C0011008
    Date unknown
    Beskrivning

    Datum unbekannt

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0017178
    UMLS CUI [1,2]
    C0011008
    UMLS CUI [1,3]
    C0439673
    Current drug treatment
    Beskrivning

    MediBehandlung

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0017178
    UMLS CUI [1,2]
    C2827774
    Neurological / psychiatric disorders
    Beskrivning

    Neurological / psychiatric disorders

    Alias
    UMLS CUI-1
    C0027765
    UMLS CUI-3
    C0004936
    Neurological / psychiatric disorders
    Beskrivning

    Gruppe Neurologische Erkrankungen

    Datatyp

    integer

    Alias
    UMLS CUI [1]
    C0027765
    UMLS CUI [2]
    C0004936
    Which disease has been diagnosed?
    Beskrivning

    Neurologische / Psychiatrische Erkrankungen

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0027765
    UMLS CUI [1,2]
    C0457464
    UMLS CUI [2,1]
    C0004936
    UMLS CUI [2,2]
    C0457464
    Month/year
    Beskrivning

    Please select a day of the respective month. It is applied to only the month and year

    Datatyp

    date

    Alias
    UMLS CUI [1,1]
    C0027765
    UMLS CUI [1,2]
    C0011008
    UMLS CUI [2,1]
    C0004936
    UMLS CUI [2,2]
    C0011008
    Date unknown
    Beskrivning

    Datum unbekannt

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0027765
    UMLS CUI [1,2]
    C0011008
    UMLS CUI [1,3]
    C0439673
    UMLS CUI [2,1]
    C0004936
    UMLS CUI [2,2]
    C0011008
    UMLS CUI [2,3]
    C0439673
    Current drug treatment
    Beskrivning

    MediBehandlung

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0027765
    UMLS CUI [1,2]
    C2827774
    UMLS CUI [2,1]
    C0004936
    UMLS CUI [2,2]
    C2827774
    Allergies
    Beskrivning

    Allergies

    Alias
    UMLS CUI-1
    C0020517
    Allergies
    Beskrivning

    Gruppe Allergien

    Datatyp

    integer

    Alias
    UMLS CUI [1]
    C0020517
    Which disease has been diagnosed?
    Beskrivning

    Allergien

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0020517
    UMLS CUI [1,2]
    C0457464
    Which drug?
    Beskrivning

    Medikamentenallergien

    Datatyp

    text

    Alias
    UMLS CUI [1,1]
    C0013182
    UMLS CUI [1,2]
    C2360065
    Month/year
    Beskrivning

    Please select a day of the respective month. It is applied to only the month and year

    Datatyp

    date

    Alias
    UMLS CUI [1,1]
    C0020517
    UMLS CUI [1,2]
    C0011008
    Date unknown
    Beskrivning

    Datum unbekannt

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0020517
    UMLS CUI [1,2]
    C0011008
    UMLS CUI [1,3]
    C0439673
    Current drug treatment
    Beskrivning

    MediBehandlung

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0020517
    UMLS CUI [1,2]
    C2827774
    Genitourinary Disorders
    Beskrivning

    Genitourinary Disorders

    Alias
    UMLS CUI-1
    C0080276
    Genitourinary Disorders
    Beskrivning

    Gruppe Urogenitale Erkrankungen

    Datatyp

    integer

    Alias
    UMLS CUI [1]
    C0080276
    Which disease has been diagnosed?
    Beskrivning

    Uro

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0080276
    UMLS CUI [1,2]
    C0457464
    Month/year
    Beskrivning

    Please select a day of the respective month. It is applied to only the month and year

    Datatyp

    date

    Alias
    UMLS CUI [1,1]
    C0080276
    UMLS CUI [1,2]
    C0011008
    Date unknown
    Beskrivning

    Datum unbekannt

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0080276
    UMLS CUI [1,2]
    C0011008
    UMLS CUI [1,3]
    C0439673
    Current drug treatment
    Beskrivning

    MediBehandlung

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0080276
    UMLS CUI [1,2]
    C2827774
    Auto-immune diseases
    Beskrivning

    Auto-immune diseases

    Alias
    UMLS CUI-1
    C0004364
    Auto-immune diseases
    Beskrivning

    Gruppe Autoimmunerkrankungen

    Datatyp

    integer

    Alias
    UMLS CUI [1]
    C0004364
    Which disease has been diagnosed?
    Beskrivning

    Autoimmunerkrankungen

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0004364
    UMLS CUI [1,2]
    C0457464
    Month/year
    Beskrivning

    Please select a day of the respective month. It is applied to only the month and year

    Datatyp

    date

    Alias
    UMLS CUI [1,1]
    C0004364
    UMLS CUI [1,2]
    C0011008
    Date unknown
    Beskrivning

    Datum unbekannt

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0004364
    UMLS CUI [1,2]
    C0011008
    UMLS CUI [1,3]
    C0439673
    Current drug treatment
    Beskrivning

    MediBehandlung

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0004364
    UMLS CUI [1,2]
    C2827774
    Blood Count / laboratory
    Beskrivning

    Blood Count / laboratory

    Alias
    UMLS CUI-1
    C0018939
    Blood Count / laboratory
    Beskrivning

    Gruppe Blutbild / Labor

    Datatyp

    integer

    Alias
    UMLS CUI [1]
    C0018939
    Which disease has been diagnosed?
    Beskrivning

    BlutLabVer

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0018939
    UMLS CUI [1,2]
    C0457464
    Month/year
    Beskrivning

    Please select a day of the respective month. It is applied to only the month and year

    Datatyp

    date

    Alias
    UMLS CUI [1,1]
    C0018939
    UMLS CUI [1,2]
    C0011008
    Date unknown
    Beskrivning

    Datum unbekannt

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0018939
    UMLS CUI [1,2]
    C0011008
    UMLS CUI [1,3]
    C0439673
    Current drug treatment
    Beskrivning

    MediBehandlung

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0018939
    UMLS CUI [1,2]
    C2827774
    General Symptoms
    Beskrivning

    General Symptoms

    Alias
    UMLS CUI-1
    C0159028
    General symptoms
    Beskrivning

    Gruppe AllgemSympt

    Datatyp

    integer

    Alias
    UMLS CUI [1]
    C0159028
    Which symptom was diagnosed?
    Beskrivning

    AllgemSympt

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0159028
    UMLS CUI [1,2]
    C0457464
    Month/year
    Beskrivning

    Please select a day of the respective month. It is applied to only the month and year

    Datatyp

    date

    Alias
    UMLS CUI [1,1]
    C0159028
    UMLS CUI [1,2]
    C0011008
    Date unknown
    Beskrivning

    Datum unbekannt

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0159028
    UMLS CUI [1,2]
    C0011008
    UMLS CUI [1,3]
    C0439673
    Current drug treatment
    Beskrivning

    MediBehandlung

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0159028
    UMLS CUI [1,2]
    C2827774
    Operation
    Beskrivning

    Operation

    Alias
    UMLS CUI-1
    C0543467
    Operation
    Beskrivning

    Gruppe Operation

    Datatyp

    integer

    Alias
    UMLS CUI [1]
    C0543467
    Which operations?
    Beskrivning

    Operation

    Datatyp

    text

    Alias
    UMLS CUI [1]
    C0679638
    Month/year
    Beskrivning

    Please select a day of the respective month. It is applied to only the month and year

    Datatyp

    date

    Alias
    UMLS CUI [1,1]
    C0543467
    UMLS CUI [1,2]
    C0011008
    Date unknown
    Beskrivning

    Datum unbekannt

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0543467
    UMLS CUI [1,2]
    C0011008
    UMLS CUI [1,3]
    C0439673
    Current drug treatment
    Beskrivning

    MediBehandlung

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0543467
    UMLS CUI [1,2]
    C2827774
    Cancer
    Beskrivning

    Cancer

    Alias
    UMLS CUI-1
    C0006826
    Cancer
    Beskrivning

    Gruppe Krebs

    Datatyp

    integer

    Alias
    UMLS CUI [1]
    C0006826
    What kind of cancer
    Beskrivning

    Art von Krebs

    Datatyp

    text

    Alias
    UMLS CUI [1,1]
    C0006826
    UMLS CUI [1,2]
    C0457464
    Month/year
    Beskrivning

    Please select a day of the respective month. It is applied to only the month and year

    Datatyp

    date

    Alias
    UMLS CUI [1,1]
    C0006826
    UMLS CUI [1,2]
    C0011008
    Cancer Treatment?
    Beskrivning

    Cancer Treatment?

    Alias
    UMLS CUI-1
    C0920425
    Operation
    Beskrivning

    Operation

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0543467
    UMLS CUI [1,2]
    C0920425
    Radiation
    Beskrivning

    Bestrahlung

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C1522449
    UMLS CUI [1,2]
    C0920425
    Chemotherapy
    Beskrivning

    Chemotherapie

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C3665472
    UMLS CUI [1,2]
    C0920425
    If yes, please specify substances chemotherapy
    Beskrivning

    Substanzen

    Datatyp

    text

    Alias
    UMLS CUI [1,1]
    C0729502
    UMLS CUI [1,2]
    C0920425
    not known
    Beskrivning

    nicht bekannt

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0729502
    UMLS CUI [1,2]
    C0439673
    UMLS CUI [1,3]
    C0920425
    Other diseases?
    Beskrivning

    Other diseases?

    Alias
    UMLS CUI-1
    C0332138
    UMLS CUI-2
    C0205394
    Other diseases
    Beskrivning

    Gruppe Andere

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0332138
    UMLS CUI [1,2]
    C0205394
    What other disease?
    Beskrivning

    Andere

    Datatyp

    text

    Alias
    UMLS CUI [1,1]
    C0332138
    UMLS CUI [1,2]
    C0205394
    UMLS CUI [1,3]
    C0457464
    Month/year
    Beskrivning

    Please select a day of the respective month. It is applied to only the month and year

    Datatyp

    date

    Alias
    UMLS CUI [1,1]
    C0332138
    UMLS CUI [1,2]
    C0205394
    UMLS CUI [1,3]
    C0011008
    Date unknown
    Beskrivning

    ubk

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0332138
    UMLS CUI [1,2]
    C0205394
    UMLS CUI [1,3]
    C0011008
    UMLS CUI [1,4]
    C0439673
    Current drug treatment
    Beskrivning

    MediBehandlung

    Datatyp

    integer

    Alias
    UMLS CUI [1,1]
    C0332138
    UMLS CUI [1,2]
    C0205394
    UMLS CUI [1,3]
    C2827774
    None of the mentioned secondary diagnoses known
    Beskrivning

    None of the mentioned secondary diagnoses known

    Applicable
    Beskrivning

    Keine

    Datatyp

    integer

    Alias
    UMLS CUI [1]
    C0549184
    Pregnancy
    Beskrivning

    Pregnancy

    Alias
    UMLS CUI-1
    C0032961
    Currently pregnant?
    Beskrivning

    Schwangerschaft

    Datatyp

    integer

    Alias
    UMLS CUI [1]
    C0549206
    Biologic Material (for example blood)
    Beskrivning

    Biologic Material (for example blood)

    Alias
    UMLS CUI-1
    C0370003
    Sample No.
    Beskrivning

    Probennummer

    Datatyp

    text

    Alias
    UMLS CUI [1,1]
    C0370003
    UMLS CUI [1,2]
    C1300638
    Additional (currently disabled)
    Beskrivning

    Zusatz

    Datatyp

    text

    Alias
    UMLS CUI [1]
    C0947611
    Tillbaka till toppen

    Similar models

    Baseline Main Sheet

    9 Formulär
    Name
    Typ
    Description | Question | Decode (Coded Value)
    Datatyp
    Alias
    Item Group
    Inclusion-/Exclusion Criteria
    C1516637 (UMLS CUI-1)
    Visitendatum
    Item
    Visit date
    date
    C1320303 (UMLS CUI [1])
    Item
    Patient meets the criteria for inclusion
    integer
    C1512693 (UMLS CUI [1])
    Yes / No
    Code List
    Patient meets the criteria for inclusion
    CL Item
    Yes (1)
    CL Item
    No (0)
    Item
    Written informed consent obtained?
    integer
    C0021430 (UMLS CUI [1])
    Yes / No
    Code List
    Written informed consent obtained?
    CL Item
    Yes (1)
    CL Item
    No (0)
    Item Group
    Patient's Data
    C2707520 (UMLS CUI-1)
    Item
    Sex
    integer
    C0079399 (UMLS CUI [1])
    sex
    Code List
    Sex
    CL Item
    male (1)
    CL Item
    female (2)
    Geburtsjahr
    Item
    Year of birth
    integer
    C2826771 (UMLS CUI [1])
    geoesse
    Item
    Size (cm)
    integer
    C0005890 (UMLS CUI [1])
    Gewicht
    Item
    Body weight (kg)
    float
    C0005910 (UMLS CUI [1])
    Item Group
    Multiple Sclerosis specific information
    C0026769 (UMLS CUI-1)
    Datum MS-Symptomatik
    Item
    Date of first symptoms of MS: month/year
    date
    C0574845 (UMLS CUI [1,1])
    C0026769 (UMLS CUI [1,2])
    Item
    Unknown
    integer
    C0574845 (UMLS CUI [1,1])
    C0026769 (UMLS CUI [1,2])
    C0439673 (UMLS CUI [1,3])
    Unbekannt Ja
    Code List
    Unknown
    CL Item
    Yes (1)
    diagdat
    Item
    MS diagnosis date: month/year
    date
    C2316983 (UMLS CUI [1,1])
    C0026769 (UMLS CUI [1,2])
    Item
    Unknown
    integer
    C2316983 (UMLS CUI [1,1])
    C0439673 (UMLS CUI [1,2])
    C0026769 (UMLS CUI [1,3])
    Unbekannt Ja
    Code List
    Unknown
    CL Item
    Yes (1)
    Item
    Clinical Course of multiple sclerosis
    integer
    C0449259 (UMLS CUI [1,1])
    C0026769 (UMLS CUI [1,2])
    mslauf
    Code List
    Clinical Course of multiple sclerosis
    CL Item
    not clearly attributable (-1)
    (Comment:en)
    CL Item
    Clinically isolated syndrome (CIS) (1)
    C2350037 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Relapsing-remitting MS (RRMS) (2)
    C0751967 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Secondary progressive MS (SPMS) (3)
    C0751965 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Primary progressive MS (PPMS) (4)
    C0751964 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Others (5)
    C0026769 (UMLS CUI-1)
    C0449259 (UMLS CUI-2)
    C0205394 (UMLS CUI-3)
    (Comment:en)
    Andere Verlaufsform
    Item
    Other clinical course?
    text
    C0449259 (UMLS CUI [1,1])
    C0205394 (UMLS CUI [1,2])
    C0026769 (UMLS CUI [1,3])
    Item
    Number of flares in the last 24 months
    integer
    C0035020 (UMLS CUI [1,1])
    C3846158 (UMLS CUI [1,2])
    Anzahl Schübe
    Code List
    Number of flares in the last 24 months
    CL Item
    0 (0)
    CL Item
    1 (1)
    CL Item
    2 (2)
    CL Item
    3 (3)
    CL Item
    4 (4)
    CL Item
    5 (5)
    CL Item
    6 (6)
    CL Item
    7 (7)
    CL Item
    8 (8)
    CL Item
    9 (9)
    CL Item
    10 (10)
    CL Item
    > 10 (11)
    Item
    Current flare?
    integer
    C0856120 (UMLS CUI [1])
    C0035020 (UMLS CUI [2])
    Yes / No
    Code List
    Current flare?
    CL Item
    Yes (1)
    CL Item
    No (0)
    Item Group
    EDSS-Score 12 month ago
    C3830336 (UMLS CUI-1)
    C3898100 (UMLS CUI-2)
    EDSS vor 12
    Item
    EDSS score
    float
    C3830336 (UMLS CUI [1,1])
    C3898100 (UMLS CUI [1,2])
    Item
    Unknown
    integer
    C3830336 (UMLS CUI [1,1])
    C3898100 (UMLS CUI [1,2])
    C0439673 (UMLS CUI [1,3])
    Unbekannt Ja
    Code List
    Unknown
    CL Item
    Yes (1)
    Item Group
    Today's scores for functional systems
    C3830336 (UMLS CUI-1)
    Heutiger EDSS
    Item
    Today's EDSS
    float
    C3830336 (UMLS CUI [1])
    Item
    Unknown / not obtained
    integer
    C3830336 (UMLS CUI [1,1])
    C0439673 (UMLS CUI [1,2])
    Unbekannt Ja
    Code List
    Unknown / not obtained
    CL Item
    Yes (1)
    Pyramidal
    Item
    Pyramidal
    integer
    C3829393 (UMLS CUI [1])
    Sensibilität
    Item
    Sensitivity
    integer
    C3829391 (UMLS CUI [1])
    Zerebral
    Item
    Cerebral
    integer
    C3829397 (UMLS CUI [1])
    Kleinhirn
    Item
    Cerebellum
    integer
    C3829398 (UMLS CUI [1])
    BlaseMastdarm
    Item
    Bowel and Bladder Functions
    integer
    C3829400 (UMLS CUI [1])
    Gehfähigkeit
    Item
    Ability to walk
    integer
    C3829396 (UMLS CUI [1,1])
    C0559964 (UMLS CUI [1,2])
    Hirnstamm
    Item
    Brain stem
    integer
    C3829399 (UMLS CUI [1])
    Visuell
    Item
    Visual
    integer
    C3827261 (UMLS CUI [1])
    Score
    Item
    Sum
    float
    C3830336 (UMLS CUI [1])
    Item Group
    Previous disease-modifying MS-Medication
    C2114510 (UMLS CUI-1)
    Item
    Was a disease-modifying MS therapy previously conducted?
    integer
    C2114510 (UMLS CUI [1,1])
    C0026769 (UMLS CUI [1,2])
    YESdenovo
    Code List
    Was a disease-modifying MS therapy previously conducted?
    CL Item
    Yes (1)
    CL Item
    No, de novo therapy (please go to next field) (99)
    Item
    Active ingredient
    text
    C2114510 (UMLS CUI [1,1])
    C0026769 (UMLS CUI [1,2])
    curth1
    Code List
    Active ingredient
    CL Item
    Alemtuzumab (Lemtrada) (22)
    C0383429 (UMLS CUI-1)
    CL Item
    Azathioprine (2)
    C0004482 (UMLS CUI-1)
    CL Item
    Cyclophosphamide (4)
    C0010583 (UMLS CUI-1)
    CL Item
    Fingolimod (Gilenya) (18)
    C1699926 (UMLS CUI-1)
    CL Item
    Fumarate (BG-12; Tecfidera) (24)
    C0058218 (UMLS CUI-1)
    CL Item
    COPAXONE (Copaxone) (6)
    C0289884 (UMLS CUI-1)
    CL Item
    Immune Globulins (7)
    C0021027 (UMLS CUI-1)
    CL Item
    Interferon ß-1A (Avonex) (19)
    C0254119 (UMLS CUI-1)
    C0021492 (UMLS CUI-2)
    CL Item
    Interferon ß-1A SC (Rebif 22 µg, Rebif 44 µg) (20)
    C0254119 (UMLS CUI-1)
    CL Item
    Interferon ß 1SC (Betaseron, Extavia) (21)
    C0244713 (UMLS CUI-1)
    CL Item
    * Medication from a MS study (8)
    C0013175 (UMLS CUI-1)
    C0013227 (UMLS CUI-2)
    CL Item
    Methotrexate (9)
    C0025677 (UMLS CUI-1)
    CL Item
    Mitoxantrone (10)
    C0026259 (UMLS CUI-1)
    CL Item
    Natalizumab (Tysabri) (11)
    C1172734 (UMLS CUI-1)
    CL Item
    Rituximab (14)
    C0393022 (UMLS CUI-1)
    CL Item
    Teriflunomide (Aubagio) (23)
    C1718383 (UMLS CUI-1)
    CL Item
    Cortisone (25)
    C0010137 (UMLS CUI-1)
    CL Item
    Others... (99)
    C1115771 (UMLS CUI-1)
    Wirkstoff anderer
    Item
    other active ingredient
    text
    C2114510 (UMLS CUI [1,1])
    C0205394 (UMLS CUI [1,2])
    C0026769 (UMLS CUI [1,3])
    Wirkstoff Beginn
    Item
    Start: Month/year
    date
    C3173309 (UMLS CUI [1,1])
    C2114510 (UMLS CUI [1,2])
    C0026769 (UMLS CUI [1,3])
    Wirkstoff Ende
    Item
    End: Month
    date
    C1531784 (UMLS CUI [1,1])
    C2114510 (UMLS CUI [1,2])
    C0026769 (UMLS CUI [1,3])
    Item
    Main reason for stopping the therapy
    integer
    C0850893 (UMLS CUI [1,1])
    C0566251 (UMLS CUI [1,2])
    C0026769 (UMLS CUI [1,3])
    Therapieende
    Code List
    Main reason for stopping the therapy
    CL Item
    Side effects (1)
    C0559546 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Lack effectiveness (2)
    C0235828 (UMLS CUI-1)
    (Comment:en)
    CL Item
    Another reason (99)
    C3840932 (UMLS CUI-1)
    C0850893 (UMLS CUI-2)
    (Comment:en)
    Text Anderer Grund
    Item
    If other, please indicate the reason
    text
    C3840932 (UMLS CUI [1,1])
    C0850893 (UMLS CUI [1,2])
    C0026769 (UMLS CUI [1,3])
    Item Group
    Current MS therapy
    C2827774 (UMLS CUI-1)
    Item
    Active ingredient
    text
    C2827774 (UMLS CUI [1,1])
    C0026769 (UMLS CUI [1,2])
    curth1
    Code List
    Active ingredient
    CL Item
    Alemtuzumab (Lemtrada) (22)
    C0383429 (UMLS CUI-1)
    CL Item
    Azathioprine (2)
    C0004482 (UMLS CUI-1)
    CL Item
    Cyclophosphamide (4)
    C0010583 (UMLS CUI-1)
    CL Item
    Fingolimod (Gilenya) (18)
    C1699926 (UMLS CUI-1)
    CL Item
    Fumarate (BG-12; Tecfidera) (24)
    C0058218 (UMLS CUI-1)
    CL Item
    COPAXONE (Copaxone) (6)
    C0289884 (UMLS CUI-1)
    CL Item
    Immune Globulins (7)
    C0021027 (UMLS CUI-1)
    CL Item
    Interferon ß-1A (Avonex) (19)
    C0254119 (UMLS CUI-1)
    C0021492 (UMLS CUI-2)
    CL Item
    Interferon ß-1A SC (Rebif 22 µg, Rebif 44 µg) (20)
    C0254119 (UMLS CUI-1)
    CL Item
    Interferon ß 1SC (Betaseron, Extavia) (21)
    C0244713 (UMLS CUI-1)
    CL Item
    * Medication from a MS study (8)
    C0013175 (UMLS CUI-1)
    C0013227 (UMLS CUI-2)
    CL Item
    Methotrexate (9)
    C0025677 (UMLS CUI-1)
    CL Item
    Mitoxantrone (10)
    C0026259 (UMLS CUI-1)
    CL Item
    Natalizumab (Tysabri) (11)
    C1172734 (UMLS CUI-1)
    CL Item
    Rituximab (14)
    C0393022 (UMLS CUI-1)
    CL Item
    Teriflunomide (Aubagio) (23)
    C1718383 (UMLS CUI-1)
    CL Item
    Cortisone (25)
    C0010137 (UMLS CUI-1)
    CL Item
    Others... (99)
    C1115771 (UMLS CUI-1)
    curth1a
    Item
    other active ingredient
    text
    C2827774 (UMLS CUI [1,1])
    C0205394 (UMLS CUI [1,2])
    C0026769 (UMLS CUI [1,3])
    curth1ab
    Item
    Start: Month/year
    date
    C3173309 (UMLS CUI [1,1])
    C2827774 (UMLS CUI [1,2])
    C0026769 (UMLS CUI [1,3])
    Item
    Regimen
    integer
    C1276413 (UMLS CUI [1,1])
    C2827774 (UMLS CUI [1,2])
    C0026769 (UMLS CUI [1,3])
    TherapieSchema
    Code List
    Regimen
    CL Item
    Standard (1)
    CL Item
    Others (99)
    andere
    Item
    Please specify the dose and type of administration
    text
    C0001555 (UMLS CUI [1,1])
    C2827774 (UMLS CUI [1,2])
    C0026769 (UMLS CUI [1,3])
    Item Group
    Other diagnoses
    C0332138 (UMLS CUI-1)
    WeitereErkr
    Item
    Has any other of the following diagnoses been diagnosed?
    boolean
    C0332138 (UMLS CUI [1])
    Item Group
    Heart / cardiovascular disease
    C0007222 (UMLS CUI-1)
    Item
    Heart / cardiovascular disease
    integer
    C0007222 (UMLS CUI [1])
    Unbekannt Ja ohne Überschrift
    Code List
    Heart / cardiovascular disease
    CL Item
    NA (1)
    Item
    Which disease has been diagnosed?
    integer
    C0007222 (UMLS CUI [1,1])
    C0457464 (UMLS CUI [1,2])
    Kreislauferkrankungen
    Code List
    Which disease has been diagnosed?
    CL Item
    High blood pressure (02)
    C0020538 (UMLS CUI-1)
    CL Item
    Heart failure/insufficiency (03)
    C0392173 (UMLS CUI-1)
    CL Item
    Heart rhythm disorder (04)
    C0003811 (UMLS CUI-1)
    CL Item
    Heart attack (05)
    C0027051 (UMLS CUI-1)
    CL Item
    CHD / Angina Pectoris (06)
    C0010068 (UMLS CUI-1)
    CL Item
    Vein thrombosis (07)
    C0587220 (UMLS CUI-1)
    CL Item
    Pulmonary embolism (08)
    C0034065 (UMLS CUI-1)
    Kreislauferkrankungen: Monat/Jahr
    Item
    Month/year
    date
    C0007222 (UMLS CUI [1,1])
    C0011008 (UMLS CUI [1,2])
    Item
    Date unknown
    integer
    C0007222 (UMLS CUI [1,1])
    C0011008 (UMLS CUI [1,2])
    C0439673 (UMLS CUI [1,3])
    Unbekannt Ja
    Code List
    Date unknown
    CL Item
    Yes (1)
    Item
    Current drug treatment
    integer
    C0007222 (UMLS CUI [1,1])
    C2827774 (UMLS CUI [1,2])
    Yes / No
    Code List
    Current drug treatment
    CL Item
    Yes (1)
    CL Item
    No (0)
    Item Group
    Metabolic diseases
    C0025517 (UMLS CUI-1)
    Item
    Metabolic diseases
    integer
    C0025517 (UMLS CUI [1])
    Unbekannt Ja ohne Überschrift
    Code List
    Metabolic diseases
    CL Item
    NA (1)
    Item
    Which disease has been diagnosed?
    integer
    C0025517 (UMLS CUI [1,1])
    C0457464 (UMLS CUI [1,2])
    Stoffwechsel
    Code List
    Which disease has been diagnosed?
    CL Item
    Diabetes mellitus (11)
    C0011849 (UMLS CUI-1)
    CL Item
    Thyroid under or overactive (12)
    C0040128 (UMLS CUI-1)
    Stoffwechsel: Monat/Jahr
    Item
    Month/year
    date
    C0025517 (UMLS CUI [1,1])
    C0011008 (UMLS CUI [1,2])
    Item
    Date unknown
    integer
    C0025517 (UMLS CUI [1,1])
    C0011008 (UMLS CUI [1,2])
    C0439673 (UMLS CUI [1,3])
    Unbekannt Ja
    Code List
    Date unknown
    CL Item
    Yes (1)
    Item
    Current drug treatment
    integer
    C0025517 (UMLS CUI [1,1])
    C2827774 (UMLS CUI [1,2])
    Yes / No
    Code List
    Current drug treatment
    CL Item
    Yes (1)
    CL Item
    No (0)
    Item Group
    Infectious diseases
    C0009450 (UMLS CUI-1)
    Item
    Infectious diseases
    integer
    C0009450 (UMLS CUI [1])
    Unbekannt Ja ohne Überschrift
    Code List
    Infectious diseases
    CL Item
    NA (1)
    Item
    Which disease has been diagnosed?
    integer
    C0009450 (UMLS CUI [1,1])
    C0457464 (UMLS CUI [1,2])
    Infekt
    Code List
    Which disease has been diagnosed?
    CL Item
    Hepatitis B or C (21)
    C0019163 (UMLS CUI-1)
    C0019196 (UMLS CUI-3)
    CL Item
    HIV infection (22)
    C0019693 (UMLS CUI-1)
    CL Item
    Tuberculosis (23)
    C0041296 (UMLS CUI-1)
    CL Item
    Opportunistic infections (24)
    C0029118 (UMLS CUI-1)
    CL Item
    Herpes infection (25)
    C0019372 (UMLS CUI-1)
    CL Item
    PML (26)
    C0023524 (UMLS CUI-1)
    CL Item
    Lung inflammation (27)
    C0032285 (UMLS CUI-1)
    Welche opportunistische Infektion
    Item
    If Yes, what opportunistic infection
    text
    C0029118 (UMLS CUI [1])
    Ort der Herpes-Infektion
    Item
    Site of infection
    text
    C0019372 (UMLS CUI [1,1])
    C0475264 (UMLS CUI [1,2])
    Infektion: Monat/Jahr
    Item
    Month/year
    date
    C0009450 (UMLS CUI [1,1])
    C0011008 (UMLS CUI [1,2])
    Item
    Date unknown
    integer
    C0009450 (UMLS CUI [1,1])
    C0011008 (UMLS CUI [1,2])
    C0439673 (UMLS CUI [1,3])
    Unbekannt Ja
    Code List
    Date unknown
    CL Item
    Yes (1)
    Item
    Current drug treatment
    integer
    C0009450 (UMLS CUI [1,1])
    C2827774 (UMLS CUI [1,2])
    Yes / No
    Code List
    Current drug treatment
    CL Item
    Yes (1)
    CL Item
    No (0)
    Item Group
    Gastrointestinal diseases
    C0017178 (UMLS CUI-1)
    Item
    Gastrointestinal diseases
    integer
    C0017178 (UMLS CUI [1])
    Unbekannt Ja ohne Überschrift
    Code List
    Gastrointestinal diseases
    CL Item
    NA (1)
    Item
    Which disease has been diagnosed?
    integer
    C0017178 (UMLS CUI [1,1])
    C0457464 (UMLS CUI [1,2])
    Gastro
    Code List
    Which disease has been diagnosed?
    CL Item
    Inflammation of the pancreas (31)
    C3889003 (UMLS CUI-1)
    CL Item
    Cirrhosis of the liver (32)
    C0023890 (UMLS CUI-1)
    CL Item
    Crohn's disease (33)
    C0010346 (UMLS CUI-1)
    CL Item
    Ulcerative colitis (34)
    C0009324 (UMLS CUI-1)
    Gastro: Monat/Jahr
    Item
    Month/year
    date
    C0017178 (UMLS CUI [1,1])
    C0011008 (UMLS CUI [1,2])
    Item
    Date unknown
    integer
    C0017178 (UMLS CUI [1,1])
    C0011008 (UMLS CUI [1,2])
    C0439673 (UMLS CUI [1,3])
    Unbekannt Ja
    Code List
    Date unknown
    CL Item
    Yes (1)
    Item
    Current drug treatment
    integer
    C0017178 (UMLS CUI [1,1])
    C2827774 (UMLS CUI [1,2])
    Yes / No
    Code List
    Current drug treatment
    CL Item
    Yes (1)
    CL Item
    No (0)
    Item Group
    Neurological / psychiatric disorders
    C0027765 (UMLS CUI-1)
    C0004936 (UMLS CUI-3)
    Item
    Neurological / psychiatric disorders
    integer
    C0027765 (UMLS CUI [1])
    C0004936 (UMLS CUI [2])
    Unbekannt Ja ohne Überschrift
    Code List
    Neurological / psychiatric disorders
    CL Item
    NA (1)
    Item
    Which disease has been diagnosed?
    integer
    C0027765 (UMLS CUI [1,1])
    C0457464 (UMLS CUI [1,2])
    C0004936 (UMLS CUI [2,1])
    C0457464 (UMLS CUI [2,2])
    Neuro
    Code List
    Which disease has been diagnosed?
    CL Item
    Epileptic seizures (41)
    C0036572 (UMLS CUI-1)
    CL Item
    Depression (42)
    C0011581 (UMLS CUI-1)
    CL Item
    Angsstörungen, panic attacks (43)
    C0497330 (UMLS CUI-1)
    CL Item
    Migraine / headache (44)
    C0149931 (UMLS CUI-1)
    CL Item
    Anorexia (45)
    C0003123 (UMLS CUI-1)
    Neuro: Monat/Jahr
    Item
    Month/year
    date
    C0027765 (UMLS CUI [1,1])
    C0011008 (UMLS CUI [1,2])
    C0004936 (UMLS CUI [2,1])
    C0011008 (UMLS CUI [2,2])
    Item
    Date unknown
    integer
    C0027765 (UMLS CUI [1,1])
    C0011008 (UMLS CUI [1,2])
    C0439673 (UMLS CUI [1,3])
    C0004936 (UMLS CUI [2,1])
    C0011008 (UMLS CUI [2,2])
    C0439673 (UMLS CUI [2,3])
    Unbekannt Ja
    Code List
    Date unknown
    CL Item
    Yes (1)
    Item
    Current drug treatment
    integer
    C0027765 (UMLS CUI [1,1])
    C2827774 (UMLS CUI [1,2])
    C0004936 (UMLS CUI [2,1])
    C2827774 (UMLS CUI [2,2])
    Yes / No
    Code List
    Current drug treatment
    CL Item
    Yes (1)
    CL Item
    No (0)
    Item Group
    Allergies
    C0020517 (UMLS CUI-1)
    Item
    Allergies
    integer
    C0020517 (UMLS CUI [1])
    Unbekannt Ja ohne Überschrift
    Code List
    Allergies
    CL Item
    NA (1)
    Item
    Which disease has been diagnosed?
    integer
    C0020517 (UMLS CUI [1,1])
    C0457464 (UMLS CUI [1,2])
    Allergien
    Code List
    Which disease has been diagnosed?
    CL Item
    Drug allergy (51)
    C0013182 (UMLS CUI-1)
    CL Item
    House dust / pollen (52)
    C0339808 (UMLS CUI-1)
    C1548336 (UMLS CUI-3)
    CL Item
    Food (53)
    C0016470 (UMLS CUI-1)
    CL Item
    Nickel / fragrances (54)
    C1690547 (UMLS CUI-1)
    C0577618 (UMLS CUI-3)
    CL Item
    Insect bites (55)
    C0854051 (UMLS CUI-1)
    Medikamentenallergien
    Item
    Which drug?
    text
    C0013182 (UMLS CUI [1,1])
    C2360065 (UMLS CUI [1,2])
    Allergien: Monat/Jahr
    Item
    Month/year
    date
    C0020517 (UMLS CUI [1,1])
    C0011008 (UMLS CUI [1,2])
    Item
    Date unknown
    integer
    C0020517 (UMLS CUI [1,1])
    C0011008 (UMLS CUI [1,2])
    C0439673 (UMLS CUI [1,3])
    Unbekannt Ja
    Code List
    Date unknown
    CL Item
    Yes (1)
    Item
    Current drug treatment
    integer
    C0020517 (UMLS CUI [1,1])
    C2827774 (UMLS CUI [1,2])
    Yes / No
    Code List
    Current drug treatment
    CL Item
    Yes (1)
    CL Item
    No (0)
    Item Group
    Genitourinary Disorders
    C0080276 (UMLS CUI-1)
    Item
    Genitourinary Disorders
    integer
    C0080276 (UMLS CUI [1])
    Unbekannt Ja ohne Überschrift
    Code List
    Genitourinary Disorders
    CL Item
    NA (1)
    Item
    Which disease has been diagnosed?
    integer
    C0080276 (UMLS CUI [1,1])
    C0457464 (UMLS CUI [1,2])
    AndereUro
    Code List
    Which disease has been diagnosed?
    CL Item
    Recurrent urinary tract infections (61)
    C0262655 (UMLS CUI-1)
    CL Item
    Renal impairment (62)
    C0151746 (UMLS CUI-1)
    CL Item
    Other urological diseases (63)
    C0080276 (UMLS CUI-1)
    Uro: Monat/Jahr
    Item
    Month/year
    date
    C0080276 (UMLS CUI [1,1])
    C0011008 (UMLS CUI [1,2])
    Item
    Date unknown
    integer
    C0080276 (UMLS CUI [1,1])
    C0011008 (UMLS CUI [1,2])
    C0439673 (UMLS CUI [1,3])
    Unbekannt Ja
    Code List
    Date unknown
    CL Item
    Yes (1)
    Item
    Current drug treatment
    integer
    C0080276 (UMLS CUI [1,1])
    C2827774 (UMLS CUI [1,2])
    Yes / No
    Code List
    Current drug treatment
    CL Item
    Yes (1)
    CL Item
    No (0)
    Item Group
    Auto-immune diseases
    C0004364 (UMLS CUI-1)
    Item
    Auto-immune diseases
    integer
    C0004364 (UMLS CUI [1])
    Unbekannt Ja ohne Überschrift
    Code List
    Auto-immune diseases
    CL Item
    NA (1)
    Item
    Which disease has been diagnosed?
    integer
    C0004364 (UMLS CUI [1,1])
    C0457464 (UMLS CUI [1,2])
    Autoimmun
    Code List
    Which disease has been diagnosed?
    CL Item
    Myasthenia gravis (71)
    C0026896 (UMLS CUI-1)
    CL Item
    Autoimmune thyroid disease (72)
    C0178468 (UMLS CUI-1)
    CL Item
    Systemic Lupus Erythematosus (73)
    C0024141 (UMLS CUI-1)
    CL Item
    Psoriasis (74)
    C0033860 (UMLS CUI-1)
    Autoimmun: Monat/Jahr
    Item
    Month/year
    date
    C0004364 (UMLS CUI [1,1])
    C0011008 (UMLS CUI [1,2])
    Item
    Date unknown
    integer
    C0004364 (UMLS CUI [1,1])
    C0011008 (UMLS CUI [1,2])
    C0439673 (UMLS CUI [1,3])
    Unbekannt Ja
    Code List
    Date unknown
    CL Item
    Yes (1)
    Item
    Current drug treatment
    integer
    C0004364 (UMLS CUI [1,1])
    C2827774 (UMLS CUI [1,2])
    Yes / No
    Code List
    Current drug treatment
    CL Item
    Yes (1)
    CL Item
    No (0)
    Item Group
    Blood Count / laboratory
    C0018939 (UMLS CUI-1)
    Item
    Blood Count / laboratory
    integer
    C0018939 (UMLS CUI [1])
    Unbekannt Ja ohne Überschrift
    Code List
    Blood Count / laboratory
    CL Item
    NA (1)
    Item
    Which disease has been diagnosed?
    integer
    C0018939 (UMLS CUI [1,1])
    C0457464 (UMLS CUI [1,2])
    BlutLabVer
    Code List
    Which disease has been diagnosed?
    CL Item
    Anemia (81)
    C0002871 (UMLS CUI-1)
    CL Item
    Lymphopenia (82)
    C0024312 (UMLS CUI-1)
    CL Item
    Leukopenia (83)
    C0023530 (UMLS CUI-1)
    CL Item
    Neutropenia (84)
    C0027947 (UMLS CUI-1)
    CL Item
    Coagulation disorders (85)
    C0005779 (UMLS CUI-1)
    CL Item
    Myelodysplastic syndrome (86)
    C3463824 (UMLS CUI-1)
    CL Item
    Saliency in Lebertest(s) (87)
    C0438237 (UMLS CUI-1)
    CL Item
    Saliency in Nierentest(s) (88)
    C0236151 (UMLS CUI-1)
    BlutLab: Monat/Jahr
    Item
    Month/year
    date
    C0018939 (UMLS CUI [1,1])
    C0011008 (UMLS CUI [1,2])
    Item
    Date unknown
    integer
    C0018939 (UMLS CUI [1,1])
    C0011008 (UMLS CUI [1,2])
    C0439673 (UMLS CUI [1,3])
    Unbekannt Ja
    Code List
    Date unknown
    CL Item
    Yes (1)
    Item
    Current drug treatment
    integer
    C0018939 (UMLS CUI [1,1])
    C2827774 (UMLS CUI [1,2])
    Yes / No
    Code List
    Current drug treatment
    CL Item
    Yes (1)
    CL Item
    No (0)
    Item Group
    General Symptoms
    C0159028 (UMLS CUI-1)
    Item
    General symptoms
    integer
    C0159028 (UMLS CUI [1])
    Unbekannt Ja ohne Überschrift
    Code List
    General symptoms
    CL Item
    NA (1)
    Item
    Which symptom was diagnosed?
    integer
    C0159028 (UMLS CUI [1,1])
    C0457464 (UMLS CUI [1,2])
    AllgemSympt
    Code List
    Which symptom was diagnosed?
    CL Item
    Hair loss (91)
    C0002170 (UMLS CUI-1)
    CL Item
    Skin rash (92)
    C0015230 (UMLS CUI-1)
    CL Item
    local symptoms with medications (93)
    C0853813 (UMLS CUI-1)
    C0877248 (UMLS CUI-2)
    CL Item
    Retinopathy, macular edema (94)
    C0035309 (UMLS CUI-1)
    C0271051 (UMLS CUI-3)
    CL Item
    Joint pain (95)
    C0003862 (UMLS CUI-1)
    CL Item
    Weight loss or gain (96)
    C0005911 (UMLS CUI-1)
    AllgemSympt: Monat/Jahr
    Item
    Month/year
    date
    C0159028 (UMLS CUI [1,1])
    C0011008 (UMLS CUI [1,2])
    Item
    Date unknown
    integer
    C0159028 (UMLS CUI [1,1])
    C0011008 (UMLS CUI [1,2])
    C0439673 (UMLS CUI [1,3])
    Unbekannt Ja
    Code List
    Date unknown
    CL Item
    Yes (1)
    Item
    Current drug treatment
    integer
    C0159028 (UMLS CUI [1,1])
    C2827774 (UMLS CUI [1,2])
    Yes / No
    Code List
    Current drug treatment
    CL Item
    Yes (1)
    CL Item
    No (0)
    Item Group
    Operation
    C0543467 (UMLS CUI-1)
    Item
    Operation
    integer
    C0543467 (UMLS CUI [1])
    Unbekannt Ja ohne Überschrift
    Code List
    Operation
    CL Item
    NA (1)
    Operation
    Item
    Which operations?
    text
    C0679638 (UMLS CUI [1])
    Operation: Monat/Jahr
    Item
    Month/year
    date
    C0543467 (UMLS CUI [1,1])
    C0011008 (UMLS CUI [1,2])
    Item
    Date unknown
    integer
    C0543467 (UMLS CUI [1,1])
    C0011008 (UMLS CUI [1,2])
    C0439673 (UMLS CUI [1,3])
    Unbekannt Ja
    Code List
    Date unknown
    CL Item
    Yes (1)
    Item
    Current drug treatment
    integer
    C0543467 (UMLS CUI [1,1])
    C2827774 (UMLS CUI [1,2])
    Yes / No
    Code List
    Current drug treatment
    CL Item
    Yes (1)
    CL Item
    No (0)
    Item Group
    Cancer
    C0006826 (UMLS CUI-1)
    Item
    Cancer
    integer
    C0006826 (UMLS CUI [1])
    Unbekannt Ja ohne Überschrift
    Code List
    Cancer
    CL Item
    NA (1)
    Art von Krebs
    Item
    What kind of cancer
    text
    C0006826 (UMLS CUI [1,1])
    C0457464 (UMLS CUI [1,2])
    Krebs: Monat/Jahr
    Item
    Month/year
    date
    C0006826 (UMLS CUI [1,1])
    C0011008 (UMLS CUI [1,2])
    Item Group
    Cancer Treatment?
    C0920425 (UMLS CUI-1)
    Item
    Operation
    integer
    C0543467 (UMLS CUI [1,1])
    C0920425 (UMLS CUI [1,2])
    Yes / No
    Code List
    Operation
    CL Item
    Yes (1)
    CL Item
    No (0)
    Item
    Radiation
    integer
    C1522449 (UMLS CUI [1,1])
    C0920425 (UMLS CUI [1,2])
    Yes / No
    Code List
    Radiation
    CL Item
    Yes (1)
    CL Item
    No (0)
    Item
    Chemotherapy
    integer
    C3665472 (UMLS CUI [1,1])
    C0920425 (UMLS CUI [1,2])
    Yes / No
    Code List
    Chemotherapy
    CL Item
    Yes (1)
    CL Item
    No (0)
    Substanzen
    Item
    If yes, please specify substances chemotherapy
    text
    C0729502 (UMLS CUI [1,1])
    C0920425 (UMLS CUI [1,2])
    Item
    not known
    integer
    C0729502 (UMLS CUI [1,1])
    C0439673 (UMLS CUI [1,2])
    C0920425 (UMLS CUI [1,3])
    Unbekannt Ja
    Code List
    not known
    CL Item
    Yes (1)
    Item Group
    Other diseases?
    C0332138 (UMLS CUI-1)
    C0205394 (UMLS CUI-2)
    Item
    Other diseases
    integer
    C0332138 (UMLS CUI [1,1])
    C0205394 (UMLS CUI [1,2])
    Unbekannt Ja ohne Überschrift
    Code List
    Other diseases
    CL Item
    NA (1)
    Andere
    Item
    What other disease?
    text
    C0332138 (UMLS CUI [1,1])
    C0205394 (UMLS CUI [1,2])
    C0457464 (UMLS CUI [1,3])
    Andere: Monat/Jahr
    Item
    Month/year
    date
    C0332138 (UMLS CUI [1,1])
    C0205394 (UMLS CUI [1,2])
    C0011008 (UMLS CUI [1,3])
    Item
    Date unknown
    integer
    C0332138 (UMLS CUI [1,1])
    C0205394 (UMLS CUI [1,2])
    C0011008 (UMLS CUI [1,3])
    C0439673 (UMLS CUI [1,4])
    Unbekannt Ja
    Code List
    Date unknown
    CL Item
    Yes (1)
    Item
    Current drug treatment
    integer
    C0332138 (UMLS CUI [1,1])
    C0205394 (UMLS CUI [1,2])
    C2827774 (UMLS CUI [1,3])
    Yes / No
    Code List
    Current drug treatment
    CL Item
    Yes (1)
    CL Item
    No (0)
    Item Group
    None of the mentioned secondary diagnoses known
    Item
    Applicable
    integer
    C0549184 (UMLS CUI [1])
    Unbekannt Ja
    Code List
    Applicable
    CL Item
    Yes (1)
    Item Group
    Pregnancy
    C0032961 (UMLS CUI-1)
    Item
    Currently pregnant?
    integer
    C0549206 (UMLS CUI [1])
    No Yes
    Code List
    Currently pregnant?
    CL Item
    No (0)
    CL Item
    Yes (1)
    Item Group
    Biologic Material (for example blood)
    C0370003 (UMLS CUI-1)
    Probennummer
    Item
    Sample No.
    text
    C0370003 (UMLS CUI [1,1])
    C1300638 (UMLS CUI [1,2])
    Zusatz
    Item
    Additional (currently disabled)
    text
    C0947611 (UMLS CUI [1])
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