ID

41653

Description

ICHOM Overall Adult Health data collection Version 1.0.0 Date (downloaded on 1st April 2020) International Consortium for Health Outcomes Measurement (ICHOM) Source: http://www.ichom.org/ Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. For Overall Adult Health, the following conditions and treatment approaches (or interventions) are covered by our Standard Set. Population: An adult (≥ 18 years) who is healthy, has well-controlled disease, or has poorly-controlled disease Excluded populations: Pediatrics (< 18 years) This document contains the Baseline and Annual Clinical/Provider form. If the adult patient has any medical condition, the timepoints should be aligned with the timepoints of the respective condition standard set. (In the reference guide timeline, additional 6-monthly assessments are mentioned, but not defined further (yet)). Collecting Patient-Reported Outcome Measures: WHO (Five) Wellbeing Index (WHO5). The WHO-5 is free of charge and does not require permission to use. The scoring guide is only available upon a license agreement being made. PROMIS Scale V1.2 Global Health: As there is an official distribution site, this questionnaire will not be included in this version of the standard set. For more information see: http://www.healthmeasures.net/exploremeasurement-systems/promis/obtain-administer-measures WHO Disability Assessment Schedule 2.0 (WHO-DAS 12): As there is a license needed for use of this questionnaire, only the total score will be included in this version of the standard set. For more information see: https://www.who.int/classifications/icf/whodasii/en/ ICHOM was supported for this standard set by NSW Agency for Clinical Innovation, HCF Research Foundation, Providence St. Joseph Health and NHS Wales. For this version of the standard set, semantic annotation with UMLS CUIs has been added.

Link

http://www.ichom.org/

Keywords

Versions (2)
  1. 9/9/20 9/9/20 -
  2. 12/4/20 12/4/20 - Sarah Riepenhausen
Copyright Holder

ICHOM

Uploaded on

December 4, 2020

DOI

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License

Creative Commons BY-NC 4.0
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ICHOM Overall Adult Health Data Collection

English

Baseline and Annual Clinical/Provider form

1 forms  
Administrative documentation
Description

Administrative documentation

Alias
UMLS CUI-1
C1320722
Patient ID
Description

Patient ID

Data type

text

Alias
UMLS CUI [1]
C2348585
Time Relative to Baseline (e.g. Baseline, 6 months follow-up, 1 year follow-up, ...)
Description

This Item does not exist in the original standard set, instead it is asked to do the following: Please timestamp all variables. Some Standard Set variables are collected at multiple timepoints, and we will ask you to submit these variables in a concatenated VARIABLEID_TIMESTAMP form for future analyses. For example, VARIABLEID_BASE (baseline); VARIABLEID_6MO (6 month follow-up); VARIABLEID_1YR (1 year follow-up), etc.

Data type

text

Alias
UMLS CUI [1,1]
C0439564
UMLS CUI [1,2]
C1442488
Clinical Factors
Description

Clinical Factors

Alias
UMLS CUI-1
C0449440
What is the patient’s most recent systolic blood pressure from the past 12 months?
Description

Inclusion: All patients Timing: Health individuals: Baseline/Annually Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Clinician/Admin Type: Numerical In order to allow the input of multiple variables this item was split up. The original OID of this item was BLOODPRESSURE.

Data type

integer

Measurement units
  • mmHg
Alias
UMLS CUI [1,1]
C1513491
UMLS CUI [1,2]
C0871470
UMLS CUI [1,3]
C4086728
mmHg
What are the patients most recent diastolic blood pressure from the past 12 months?
Description

Inclusion: All patients Timing: Health individuals: Baseline/Annually Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Clinician/Admin Type: Numerical In order to allow the input of multiple variables this item was split up. The original OID of this item was BLOODPRESSURE.

Data type

integer

Measurement units
  • mmHg
Alias
UMLS CUI [1,1]
C1513491
UMLS CUI [1,2]
C0428883
UMLS CUI [1,3]
C4086728
mmHg
Body mass index ranges
Description

Supporting definition: BMI = kg/m2 or BMI = 0.45x weight in pounds / (0.025x height in inches)2 Inclusion: All patients Timing: Health individuals: Baseline/Annually Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Clinician/Admin Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C1305855
Sex, age, smoking status, blood pressure cholesterol, diabetes status: Total Cholesterol
Description

Inclusion: All patients Timing: Health individuals: Baseline/Annually Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Clinician/Admin Type: Numerical value (changed to text for this version, as it is not completely clear, what kind of numerical values should be entered and at least for total and HDL cholesterol a unit would be necessary). In order to allow the input of multiple variables in this version of the standard set the cardiovascular risk item was split into the following: Total Cholesterol, HDL, Diabetes status, sex, age and smoking status. The original OID of this item was CARDIOVASCULAR.

Data type

text

Alias
UMLS CUI [1]
C1445957
UMLS CUI [2]
C0850624
Sex, age, smoking status, blood pressure cholesterol, diabetes status: HDL
Description

Inclusion: All patients Timing: Health individuals: Baseline/Annually Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Clinician/Admin Type: Numerical value (changed to text for this version, as it is not completely clear, what kind of numerical values should be entered and at least for total and HDL cholesterol a unit would be necessary). In order to allow the input of multiple variables in this version of the standard set the cardiovascular risk item was split into the following: Total Cholesterol, HDL, Diabetes status, sex, age and smoking status. The original OID of this item was CARDIOVASCULAR.

Data type

text

Alias
UMLS CUI [1]
C0428472
UMLS CUI [2]
C0850624
Sex, age, smoking status, blood pressure cholesterol, diabetes status: Diabetes status
Description

Inclusion: All patients Timing: Health individuals: Baseline/Annually Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Clinician/Admin Type: Numerical value (changed to text for this version, as it is not completely clear, what kind of numerical values should be entered and at least for total and HDL cholesterol a unit would be necessary). In order to allow the input of multiple variables in this version of the standard set the cardiovascular risk item was split into the following: Total Cholesterol, HDL, Diabetes status, sex, age and smoking status. The original OID of this item was CARDIOVASCULAR.

Data type

text

Alias
UMLS CUI [1]
C0011849
UMLS CUI [2]
C0850624
Sex, age, smoking status, blood pressure, cholesterol, diabetes status: Sex
Description

Inclusion: All patients Timing: Health individuals: Baseline/Annually Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Clinician/Admin Type: Numerical value (changed to text for this version, as it is not completely clear, what kind of numerical values should be entered and at least for total and HDL cholesterol a unit would be necessary). In order to allow the input of multiple variables in this version of the standard set the cardiovascular risk item was split into the following: Total Cholesterol, HDL, Diabetes status, sex, age and smoking status. The original OID of this item was CARDIOVASCULAR.

Data type

text

Alias
UMLS CUI [1]
C0079399
UMLS CUI [2]
C0850624
Sex, age, smoking status, blood pressure cholesterol, diabetes status: Age
Description

Inclusion: All patients Timing: Health individuals: Baseline/Annually Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Clinician/Admin Type: Numerical value In order to allow the input of multiple variables in this version of the standard set the cardiovascular risk item was split into the following: Total Cholesterol, HDL, Diabetes status, sex, age and smoking status. The original OID of this item was CARDIOVASCULAR.

Data type

integer

Alias
UMLS CUI [1]
C0001779
UMLS CUI [2]
C0850624
Sex, age, smoking status, blood pressure cholesterol, diabetes status: Smoking status
Description

Inclusion: All patients Timing: Health individuals: Baseline/Annually Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Clinician/Admin Type: Numerical value (changed to text for this version, as it is not completely clear, what kind of numerical values should be entered and at least for total and HDL cholesterol a unit would be necessary). In order to allow the input of multiple variables in this version of the standard set the cardiovascular risk item was split into the following: Total Cholesterol, HDL, Diabetes status, sex, age and smoking status. The original OID of this item was CARDIOVASCULAR.

Data type

text

Alias
UMLS CUI [1]
C1519386
UMLS CUI [2]
C0850624
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Similar models

Baseline and Annual Clinical/Provider form

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Administrative documentation
C1320722 (UMLS CUI-1)
Patient ID
Item
Patient ID
text
C2348585 (UMLS CUI [1])
Time Relative to Baseline
Item
Time Relative to Baseline (e.g. Baseline, 6 months follow-up, 1 year follow-up, ...)
text
C0439564 (UMLS CUI [1,1])
C1442488 (UMLS CUI [1,2])
Item Group
Clinical Factors
C0449440 (UMLS CUI-1)
Blood Pressure - systolic
Item
What is the patient’s most recent systolic blood pressure from the past 12 months?
integer
C1513491 (UMLS CUI [1,1])
C0871470 (UMLS CUI [1,2])
C4086728 (UMLS CUI [1,3])
Blood Pressure - diastolic
Item
What are the patients most recent diastolic blood pressure from the past 12 months?
integer
C1513491 (UMLS CUI [1,1])
C0428883 (UMLS CUI [1,2])
C4086728 (UMLS CUI [1,3])
Item
Body mass index ranges
integer
C1305855 (UMLS CUI [1])
BMI
Code List
Body mass index ranges
CL Item
<18.5 Underweight  (1)
C0041667 (UMLS CUI-1)
C1305855 (UMLS CUI-2)
(Comment:en)
CL Item
18.5 – 24.9 Normal weight  (2)
C2712185 (UMLS CUI-1)
C1305855 (UMLS CUI-2)
(Comment:en)
CL Item
25-29.9 Pre-obesity  (3)
C1305855 (UMLS CUI-1)
C0028754 (UMLS CUI-2)
(Comment:en)
CL Item
>30.0 Obesity (4)
C0028754 (UMLS CUI-1)
C1305855 (UMLS CUI-2)
(Comment:en)
Cardiovascular Risk: total cholesterol
Item
Sex, age, smoking status, blood pressure cholesterol, diabetes status: Total Cholesterol
text
C1445957 (UMLS CUI [1])
C0850624 (UMLS CUI [2])
Cardiovascular Risk: HDL
Item
Sex, age, smoking status, blood pressure cholesterol, diabetes status: HDL
text
C0428472 (UMLS CUI [1])
C0850624 (UMLS CUI [2])
Cardiovascular Risk: Diabetes Status
Item
Sex, age, smoking status, blood pressure cholesterol, diabetes status: Diabetes status
text
C0011849 (UMLS CUI [1])
C0850624 (UMLS CUI [2])
Cardiovascular Risk: Sex
Item
Sex, age, smoking status, blood pressure, cholesterol, diabetes status: Sex
text
C0079399 (UMLS CUI [1])
C0850624 (UMLS CUI [2])
Cardiovascular Risk: Age
Item
Sex, age, smoking status, blood pressure cholesterol, diabetes status: Age
integer
C0001779 (UMLS CUI [1])
C0850624 (UMLS CUI [2])
Cardiovascular Risk: Smoking status
Item
Sex, age, smoking status, blood pressure cholesterol, diabetes status: Smoking status
text
C1519386 (UMLS CUI [1])
C0850624 (UMLS CUI [2])
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