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41653

Description

ICHOM Overall Adult Health data collection Version 1.0.0 Date (downloaded on 1st April 2020) International Consortium for Health Outcomes Measurement (ICHOM) Source: http://www.ichom.org/ Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. For Overall Adult Health, the following conditions and treatment approaches (or interventions) are covered by our Standard Set. Population: An adult (≥ 18 years) who is healthy, has well-controlled disease, or has poorly-controlled disease Excluded populations: Pediatrics (< 18 years) This document contains the Baseline and Annual Clinical/Provider form. If the adult patient has any medical condition, the timepoints should be aligned with the timepoints of the respective condition standard set. (In the reference guide timeline, additional 6-monthly assessments are mentioned, but not defined further (yet)). Collecting Patient-Reported Outcome Measures: WHO (Five) Wellbeing Index (WHO5). The WHO-5 is free of charge and does not require permission to use. The scoring guide is only available upon a license agreement being made. PROMIS Scale V1.2 Global Health: As there is an official distribution site, this questionnaire will not be included in this version of the standard set. For more information see: http://www.healthmeasures.net/exploremeasurement-systems/promis/obtain-administer-measures WHO Disability Assessment Schedule 2.0 (WHO-DAS 12): As there is a license needed for use of this questionnaire, only the total score will be included in this version of the standard set. For more information see: https://www.who.int/classifications/icf/whodasii/en/ ICHOM was supported for this standard set by NSW Agency for Clinical Innovation, HCF Research Foundation, Providence St. Joseph Health and NHS Wales. For this version of the standard set, semantic annotation with UMLS CUIs has been added.

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http://www.ichom.org/

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Versions (2)
  1. 9/9/20 9/9/20 -
  2. 12/4/20 12/4/20 - Sarah Riepenhausen
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ICHOM

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December 4, 2020

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Creative Commons BY-NC 4.0
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    ICHOM Overall Adult Health Data Collection

    English

    Baseline and Annual Clinical/Provider form

    1 forms  
    Administrative documentation
    Description

    Administrative documentation

    Alias
    UMLS CUI-1
    C1320722
    Patient ID
    Description

    Patient ID

    Data type

    text

    Alias
    UMLS CUI [1]
    C2348585
    Time Relative to Baseline (e.g. Baseline, 6 months follow-up, 1 year follow-up, ...)
    Description

    This Item does not exist in the original standard set, instead it is asked to do the following: Please timestamp all variables. Some Standard Set variables are collected at multiple timepoints, and we will ask you to submit these variables in a concatenated VARIABLEID_TIMESTAMP form for future analyses. For example, VARIABLEID_BASE (baseline); VARIABLEID_6MO (6 month follow-up); VARIABLEID_1YR (1 year follow-up), etc.

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C0439564
    UMLS CUI [1,2]
    C1442488
    Clinical Factors
    Description

    Clinical Factors

    Alias
    UMLS CUI-1
    C0449440
    What is the patient’s most recent systolic blood pressure from the past 12 months?
    Description

    Inclusion: All patients Timing: Health individuals: Baseline/Annually Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Clinician/Admin Type: Numerical In order to allow the input of multiple variables this item was split up. The original OID of this item was BLOODPRESSURE.

    Data type

    integer

    Measurement units
    • mmHg
    Alias
    UMLS CUI [1,1]
    C1513491
    UMLS CUI [1,2]
    C0871470
    UMLS CUI [1,3]
    C4086728
    mmHg
    What are the patients most recent diastolic blood pressure from the past 12 months?
    Description

    Inclusion: All patients Timing: Health individuals: Baseline/Annually Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Clinician/Admin Type: Numerical In order to allow the input of multiple variables this item was split up. The original OID of this item was BLOODPRESSURE.

    Data type

    integer

    Measurement units
    • mmHg
    Alias
    UMLS CUI [1,1]
    C1513491
    UMLS CUI [1,2]
    C0428883
    UMLS CUI [1,3]
    C4086728
    mmHg
    Body mass index ranges
    Description

    Supporting definition: BMI = kg/m2 or BMI = 0.45x weight in pounds / (0.025x height in inches)2 Inclusion: All patients Timing: Health individuals: Baseline/Annually Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Clinician/Admin Type: Single answer

    Data type

    integer

    Alias
    UMLS CUI [1]
    C1305855
    Sex, age, smoking status, blood pressure cholesterol, diabetes status: Total Cholesterol
    Description

    Inclusion: All patients Timing: Health individuals: Baseline/Annually Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Clinician/Admin Type: Numerical value (changed to text for this version, as it is not completely clear, what kind of numerical values should be entered and at least for total and HDL cholesterol a unit would be necessary). In order to allow the input of multiple variables in this version of the standard set the cardiovascular risk item was split into the following: Total Cholesterol, HDL, Diabetes status, sex, age and smoking status. The original OID of this item was CARDIOVASCULAR.

    Data type

    text

    Alias
    UMLS CUI [1]
    C1445957
    UMLS CUI [2]
    C0850624
    Sex, age, smoking status, blood pressure cholesterol, diabetes status: HDL
    Description

    Inclusion: All patients Timing: Health individuals: Baseline/Annually Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Clinician/Admin Type: Numerical value (changed to text for this version, as it is not completely clear, what kind of numerical values should be entered and at least for total and HDL cholesterol a unit would be necessary). In order to allow the input of multiple variables in this version of the standard set the cardiovascular risk item was split into the following: Total Cholesterol, HDL, Diabetes status, sex, age and smoking status. The original OID of this item was CARDIOVASCULAR.

    Data type

    text

    Alias
    UMLS CUI [1]
    C0428472
    UMLS CUI [2]
    C0850624
    Sex, age, smoking status, blood pressure cholesterol, diabetes status: Diabetes status
    Description

    Inclusion: All patients Timing: Health individuals: Baseline/Annually Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Clinician/Admin Type: Numerical value (changed to text for this version, as it is not completely clear, what kind of numerical values should be entered and at least for total and HDL cholesterol a unit would be necessary). In order to allow the input of multiple variables in this version of the standard set the cardiovascular risk item was split into the following: Total Cholesterol, HDL, Diabetes status, sex, age and smoking status. The original OID of this item was CARDIOVASCULAR.

    Data type

    text

    Alias
    UMLS CUI [1]
    C0011849
    UMLS CUI [2]
    C0850624
    Sex, age, smoking status, blood pressure, cholesterol, diabetes status: Sex
    Description

    Inclusion: All patients Timing: Health individuals: Baseline/Annually Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Clinician/Admin Type: Numerical value (changed to text for this version, as it is not completely clear, what kind of numerical values should be entered and at least for total and HDL cholesterol a unit would be necessary). In order to allow the input of multiple variables in this version of the standard set the cardiovascular risk item was split into the following: Total Cholesterol, HDL, Diabetes status, sex, age and smoking status. The original OID of this item was CARDIOVASCULAR.

    Data type

    text

    Alias
    UMLS CUI [1]
    C0079399
    UMLS CUI [2]
    C0850624
    Sex, age, smoking status, blood pressure cholesterol, diabetes status: Age
    Description

    Inclusion: All patients Timing: Health individuals: Baseline/Annually Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Clinician/Admin Type: Numerical value In order to allow the input of multiple variables in this version of the standard set the cardiovascular risk item was split into the following: Total Cholesterol, HDL, Diabetes status, sex, age and smoking status. The original OID of this item was CARDIOVASCULAR.

    Data type

    integer

    Alias
    UMLS CUI [1]
    C0001779
    UMLS CUI [2]
    C0850624
    Sex, age, smoking status, blood pressure cholesterol, diabetes status: Smoking status
    Description

    Inclusion: All patients Timing: Health individuals: Baseline/Annually Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Clinician/Admin Type: Numerical value (changed to text for this version, as it is not completely clear, what kind of numerical values should be entered and at least for total and HDL cholesterol a unit would be necessary). In order to allow the input of multiple variables in this version of the standard set the cardiovascular risk item was split into the following: Total Cholesterol, HDL, Diabetes status, sex, age and smoking status. The original OID of this item was CARDIOVASCULAR.

    Data type

    text

    Alias
    UMLS CUI [1]
    C1519386
    UMLS CUI [2]
    C0850624
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    Similar models

    Baseline and Annual Clinical/Provider form

    1 forms
    Name
    Type
    Description | Question | Decode (Coded Value)
    Data type
    Alias
    Item Group
    Administrative documentation
    C1320722 (UMLS CUI-1)
    Patient ID
    Item
    Patient ID
    text
    C2348585 (UMLS CUI [1])
    Time Relative to Baseline
    Item
    Time Relative to Baseline (e.g. Baseline, 6 months follow-up, 1 year follow-up, ...)
    text
    C0439564 (UMLS CUI [1,1])
    C1442488 (UMLS CUI [1,2])
    Item Group
    Clinical Factors
    C0449440 (UMLS CUI-1)
    Blood Pressure - systolic
    Item
    What is the patient’s most recent systolic blood pressure from the past 12 months?
    integer
    C1513491 (UMLS CUI [1,1])
    C0871470 (UMLS CUI [1,2])
    C4086728 (UMLS CUI [1,3])
    Blood Pressure - diastolic
    Item
    What are the patients most recent diastolic blood pressure from the past 12 months?
    integer
    C1513491 (UMLS CUI [1,1])
    C0428883 (UMLS CUI [1,2])
    C4086728 (UMLS CUI [1,3])
    Item
    Body mass index ranges
    integer
    C1305855 (UMLS CUI [1])
    BMI
    Code List
    Body mass index ranges
    CL Item
    <18.5 Underweight  (1)
    C0041667 (UMLS CUI-1)
    C1305855 (UMLS CUI-2)
    (Comment:en)
    CL Item
    18.5 – 24.9 Normal weight  (2)
    C2712185 (UMLS CUI-1)
    C1305855 (UMLS CUI-2)
    (Comment:en)
    CL Item
    25-29.9 Pre-obesity  (3)
    C1305855 (UMLS CUI-1)
    C0028754 (UMLS CUI-2)
    (Comment:en)
    CL Item
    >30.0 Obesity (4)
    C0028754 (UMLS CUI-1)
    C1305855 (UMLS CUI-2)
    (Comment:en)
    Cardiovascular Risk: total cholesterol
    Item
    Sex, age, smoking status, blood pressure cholesterol, diabetes status: Total Cholesterol
    text
    C1445957 (UMLS CUI [1])
    C0850624 (UMLS CUI [2])
    Cardiovascular Risk: HDL
    Item
    Sex, age, smoking status, blood pressure cholesterol, diabetes status: HDL
    text
    C0428472 (UMLS CUI [1])
    C0850624 (UMLS CUI [2])
    Cardiovascular Risk: Diabetes Status
    Item
    Sex, age, smoking status, blood pressure cholesterol, diabetes status: Diabetes status
    text
    C0011849 (UMLS CUI [1])
    C0850624 (UMLS CUI [2])
    Cardiovascular Risk: Sex
    Item
    Sex, age, smoking status, blood pressure, cholesterol, diabetes status: Sex
    text
    C0079399 (UMLS CUI [1])
    C0850624 (UMLS CUI [2])
    Cardiovascular Risk: Age
    Item
    Sex, age, smoking status, blood pressure cholesterol, diabetes status: Age
    integer
    C0001779 (UMLS CUI [1])
    C0850624 (UMLS CUI [2])
    Cardiovascular Risk: Smoking status
    Item
    Sex, age, smoking status, blood pressure cholesterol, diabetes status: Smoking status
    text
    C1519386 (UMLS CUI [1])
    C0850624 (UMLS CUI [2])
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