0 Ratings
ID

41224

Description

Levene, J. E., Lancee, W. J., Seeman, M. V. (1996). The Perceived Family Burden Scale (PFBS). Measurement Instrument Database for the Social Science. Retrieved 20.07.2020, from www.midss.ie Key references: Levene, J. E., Lancee, W. J., Seeman, M. V. (1996). The perceived family burden scale: measurement and validation. Schizophrenia Research, 22(2), 151–157. Primary use / Purpose: The Perceived Family Burden Scale (PFBS) is a 24-item questionnaire rated on a 5 point Likert type scale. It contains an additional choice for each of the items where the user can also identify that the particular symptom is not present. The purpose of the scale is to measure the burden of schizophrenia on the family of a patient. Background: Many scales have been developed for the classification of, and quality of life associated with, mental illness. However, less attention has been paid to the families of mentally ill patients who can also experience difficulty. Many family members in this situation have to take on fulltime roles as caregivers, or at the very least experience they a heightened concern for the well-being of the patient and themselves. To measure this possible burden in relation to schizophrenia, in particular, the Perceived Family Burden Scale (PFBS) was developed. Psychometrics: The psychometric properties of the Perceived Family Burden Scale (PFBS) are discussed in Levene, Lancee, & Seeman, (1996). Digital Object Identifier (DOI): http://dx.doi.org/10.13072/midss.399 INSTRUCTIONS FOR RATERS The Perceived Family Burden Scale is rated on a five point scale, with a range from 0 to 5. Ratings: 0 = the behaviour isn’t present and doesn’t bother the relative 1 = the behaviour is present and doesn’t bother the relative 2 = the behaviour is present and bothers the relative “a little”. 3 = the behaviour is present and bothers the relative “considerably”. 4 = the behaviour is present and bothers the relative “a great deal”. In our study, we derived three variables which were used in the validation study: 1) the total score 2) an “objective score” (the number of problem behaviours identified by the informant). 3) a “subjective score” (the extent to which the behaviour “bothers” the relative).

Link

www.midss.ie

Keywords

Versions (1)
  1. 7/20/20 7/20/20 -
Copyright Holder

Levene, J. E., Lancee, W. J., Seeman, M. V.

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July 20, 2020

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Creative Commons BY-NC 4.0
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    Measurement Instrument Database for the Social Science (MIDSS)

    English

    The Perceived Family Burden Scale (PFBS)

    1 forms  
    Instruction: Please rate the following: 1) Indicate if the behavior is displayed by your relative who suffers from schizophrenia; 2) Indicate the extent to which the behavior bothers you. (The time period considered is the past month).
    Description

    Instruction: Please rate the following: 1) Indicate if the behavior is displayed by your relative who suffers from schizophrenia; 2) Indicate the extent to which the behavior bothers you. (The time period considered is the past month).

    Alias
    UMLS CUI-1
    C0015576
    UMLS CUI-2
    C2828008
    UMLS CUI-3
    C0681889
    Looks fearful: behavior is present
    Description

    Looks fearful

    Data type

    boolean

    Alias
    UMLS CUI [1,1]
    C0700364
    UMLS CUI [1,2]
    C1288289
    Indicate degree to which behavior bothered you
    Description

    Indicate degree to which behavior bothered you

    Data type

    text

    Alias
    UMLS CUI [1]
    C3829612
    Looks sad: behavior is present
    Description

    Looks sad

    Data type

    boolean

    Alias
    UMLS CUI [1,1]
    C0700364
    UMLS CUI [1,2]
    C3536794
    Indicate degree to which behavior bothered you
    Description

    Indicate degree to which behavior bothered you

    Data type

    text

    Alias
    UMLS CUI [1]
    C3829612
    Mopes: behavior is present
    Description

    Mopes

    Data type

    boolean

    Alias
    UMLS CUI [1]
    C1550006
    Indicate degree to which behavior bothered you
    Description

    Indicate degree to which behavior bothered you

    Data type

    text

    Alias
    UMLS CUI [1]
    C3829612
    Refuses meds: behavior is present
    Description

    Refuses meds

    Data type

    boolean

    Alias
    UMLS CUI [1,1]
    C0013227
    UMLS CUI [1,2]
    C1705116
    Indicate degree to which behavior bothered you
    Description

    Indicate degree to which behavior bothered you

    Data type

    text

    Alias
    UMLS CUI [1]
    C3829612
    Refuses help: behavior is present
    Description

    Refuses help

    Data type

    boolean

    Alias
    UMLS CUI [1,1]
    C1705116
    UMLS CUI [1,2]
    C1521721
    Indicate degree to which behavior bothered you
    Description

    Indicate degree to which behavior bothered you

    Data type

    text

    Alias
    UMLS CUI [1]
    C3829612
    Refuses food: behavior is present
    Description

    Refuses food

    Data type

    boolean

    Alias
    UMLS CUI [1,1]
    C1705116
    UMLS CUI [1,2]
    C0016452
    Indicate degree to which behavior bothered you
    Description

    Indicate degree to which behavior bothered you

    Data type

    text

    Alias
    UMLS CUI [1]
    C3829612
    Talk loudly: behavior is present
    Description

    Talk loudly

    Data type

    boolean

    Alias
    UMLS CUI [1,1]
    C0037817
    UMLS CUI [1,2]
    C0178733
    Indicate degree to which behavior bothered you
    Description

    Indicate degree to which behavior bothered you

    Data type

    text

    Alias
    UMLS CUI [1]
    C3829612
    Yells: behavior is present
    Description

    Yells

    Data type

    boolean

    Alias
    UMLS CUI [1]
    C2128834
    Indicate degree to which behavior bothered you
    Description

    Indicate degree to which behavior bothered you

    Data type

    text

    Alias
    UMLS CUI [1]
    C3829612
    Stays in bed: behavior is present
    Description

    Stays in bed

    Data type

    boolean

    Alias
    UMLS CUI [1]
    C0004916
    Indicate degree to which behavior bothered you
    Description

    Indicate degree to which behavior bothered you

    Data type

    text

    Alias
    UMLS CUI [1]
    C3829612
    Hardly talks: behavior is present
    Description

    Hardly talks

    Data type

    boolean

    Alias
    UMLS CUI [1,1]
    C3275031
    UMLS CUI [1,2]
    C0234856
    Indicate degree to which behavior bothered you
    Description

    Indicate degree to which behavior bothered you

    Data type

    text

    Alias
    UMLS CUI [1]
    C3829612
    Looks messy: behavior is present
    Description

    Looks messy

    Data type

    boolean

    Alias
    UMLS CUI [1]
    C0233429
    Indicate degree to which behavior bothered you
    Description

    Indicate degree to which behavior bothered you

    Data type

    text

    Alias
    UMLS CUI [1]
    C3829612
    Talks nonsense: behavior is present
    Description

    Talks nonsense

    Data type

    boolean

    Alias
    UMLS CUI [1,1]
    C0234856
    UMLS CUI [1,2]
    C0746939
    Indicate degree to which behavior bothered you
    Description

    Indicate degree to which behavior bothered you

    Data type

    text

    Alias
    UMLS CUI [1]
    C3829612
    Threatens suicide: behavior is present
    Description

    Threatens suicide

    Data type

    boolean

    Alias
    UMLS CUI [1]
    C4087166
    Indicate degree to which behavior bothered you
    Description

    Indicate degree to which behavior bothered you

    Data type

    text

    Alias
    UMLS CUI [1]
    C3829612
    Acts suspicious: behavior is present
    Description

    Acts suspicious

    Data type

    boolean

    Alias
    UMLS CUI [1,1]
    C0233514
    UMLS CUI [1,2]
    C0750493
    Indicate degree to which behavior bothered you
    Description

    Indicate degree to which behavior bothered you

    Data type

    text

    Alias
    UMLS CUI [1]
    C3829612
    Uses abusive language: behavior is present
    Description

    Uses abusive language

    Data type

    boolean

    Alias
    UMLS CUI [1]
    C0558089
    Indicate degree to which behavior bothered you
    Description

    Indicate degree to which behavior bothered you

    Data type

    text

    Alias
    UMLS CUI [1]
    C3829612
    Threatens violence: behavior is present
    Description

    Threatens violence

    Data type

    boolean

    Alias
    UMLS CUI [1,1]
    C0749385
    UMLS CUI [1,2]
    C0042693
    Indicate degree to which behavior bothered you
    Description

    Indicate degree to which behavior bothered you

    Data type

    text

    Alias
    UMLS CUI [1]
    C3829612
    Throws things: behavior is present
    Description

    Throws things

    Data type

    boolean

    Alias
    UMLS CUI [1]
    C0565696
    Indicate degree to which behavior bothered you
    Description

    Indicate degree to which behavior bothered you

    Data type

    text

    Alias
    UMLS CUI [1]
    C3829612
    Harasses others: behavior is present
    Description

    Harasses others

    Data type

    boolean

    Alias
    UMLS CUI [1]
    C2077893
    Indicate degree to which behavior bothered you
    Description

    Indicate degree to which behavior bothered you

    Data type

    text

    Alias
    UMLS CUI [1]
    C3829612
    Blames others: behavior is present
    Description

    Blames others

    Data type

    boolean

    Alias
    UMLS CUI [1]
    C0870209
    Indicate degree to which behavior bothered you
    Description

    Indicate degree to which behavior bothered you

    Data type

    text

    Alias
    UMLS CUI [1]
    C3829612
    Harms self: behavior is present
    Description

    Harms self

    Data type

    boolean

    Alias
    UMLS CUI [1]
    C0178360
    Indicate degree to which behavior bothered you
    Description

    Indicate degree to which behavior bothered you

    Data type

    text

    Alias
    UMLS CUI [1]
    C3829612
    Laughs frequently: behavior is present
    Description

    Laughs frequently

    Data type

    boolean

    Alias
    UMLS CUI [1]
    C0023133
    Indicate degree to which behavior bothered you
    Description

    Indicate degree to which behavior bothered you

    Data type

    text

    Alias
    UMLS CUI [1]
    C3829612
    Abuses drugs: behavior is present
    Description

    Abuses drugs

    Data type

    boolean

    Alias
    UMLS CUI [1]
    C0038586
    Indicate degree to which behavior bothered you
    Description

    Indicate degree to which behavior bothered you

    Data type

    text

    Alias
    UMLS CUI [1]
    C3829612
    Paces: behavior is present
    Description

    Paces

    Data type

    boolean

    Alias
    UMLS CUI [1]
    C0562458
    Indicate degree to which behavior bothered you
    Description

    Indicate degree to which behavior bothered you

    Data type

    text

    Alias
    UMLS CUI [1]
    C3829612
    Smokes too much: behavior is present
    Description

    Smokes too much

    Data type

    boolean

    Alias
    UMLS CUI [1,1]
    C3843660
    UMLS CUI [1,2]
    C0543414
    Indicate degree to which behavior bothered you
    Description

    Indicate degree to which behavior bothered you

    Data type

    text

    Alias
    UMLS CUI [1]
    C3829612
    Other behaviors/comments:
    Description

    Other behaviors/comments

    Data type

    text

    Alias
    UMLS CUI [1]
    C0947611
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    Similar models

    The Perceived Family Burden Scale (PFBS)

    1 forms
    Name
    Type
    Description | Question | Decode (Coded Value)
    Data type
    Alias
    Item Group
    Instruction: Please rate the following: 1) Indicate if the behavior is displayed by your relative who suffers from schizophrenia; 2) Indicate the extent to which the behavior bothers you. (The time period considered is the past month).
    C0015576 (UMLS CUI-1)
    C2828008 (UMLS CUI-2)
    C0681889 (UMLS CUI-3)
    Looks fearful
    Item
    Looks fearful: behavior is present
    boolean
    C0700364 (UMLS CUI [1,1])
    C1288289 (UMLS CUI [1,2])
    Item
    Indicate degree to which behavior bothered you
    text
    C3829612 (UMLS CUI [1])
    Indicate degree to which behavior bothered you
    Code List
    Indicate degree to which behavior bothered you
    CL Item
    Not at all (Not at all)
    CL Item
    A little (A little)
    CL Item
    Considerably (Considerably)
    CL Item
    A great deal (A great deal)
    Looks sad
    Item
    Looks sad: behavior is present
    boolean
    C0700364 (UMLS CUI [1,1])
    C3536794 (UMLS CUI [1,2])
    Item
    Indicate degree to which behavior bothered you
    text
    C3829612 (UMLS CUI [1])
    Indicate degree to which behavior bothered you
    Code List
    Indicate degree to which behavior bothered you
    CL Item
    Not at all (Not at all)
    CL Item
    A little (A little)
    CL Item
    Considerably (Considerably)
    CL Item
    A great deal (A great deal)
    Mopes
    Item
    Mopes: behavior is present
    boolean
    C1550006 (UMLS CUI [1])
    Item
    Indicate degree to which behavior bothered you
    text
    C3829612 (UMLS CUI [1])
    Indicate degree to which behavior bothered you
    Code List
    Indicate degree to which behavior bothered you
    CL Item
    Not at all (Not at all)
    CL Item
    A little (A little)
    CL Item
    Considerably (Considerably)
    CL Item
    A great deal (A great deal)
    Refuses meds
    Item
    Refuses meds: behavior is present
    boolean
    C0013227 (UMLS CUI [1,1])
    C1705116 (UMLS CUI [1,2])
    Item
    Indicate degree to which behavior bothered you
    text
    C3829612 (UMLS CUI [1])
    Indicate degree to which behavior bothered you
    Code List
    Indicate degree to which behavior bothered you
    CL Item
    Not at all (Not at all)
    CL Item
    A little (A little)
    CL Item
    Considerably (Considerably)
    CL Item
    A great deal (A great deal)
    Refuses help
    Item
    Refuses help: behavior is present
    boolean
    C1705116 (UMLS CUI [1,1])
    C1521721 (UMLS CUI [1,2])
    Item
    Indicate degree to which behavior bothered you
    text
    C3829612 (UMLS CUI [1])
    Indicate degree to which behavior bothered you
    Code List
    Indicate degree to which behavior bothered you
    CL Item
    Not at all (Not at all)
    CL Item
    A little (A little)
    CL Item
    Considerably (Considerably)
    CL Item
    A great deal (A great deal)
    Refuses food
    Item
    Refuses food: behavior is present
    boolean
    C1705116 (UMLS CUI [1,1])
    C0016452 (UMLS CUI [1,2])
    Item
    Indicate degree to which behavior bothered you
    text
    C3829612 (UMLS CUI [1])
    Indicate degree to which behavior bothered you
    Code List
    Indicate degree to which behavior bothered you
    CL Item
    Not at all (Not at all)
    CL Item
    A little (A little)
    CL Item
    Considerably (Considerably)
    CL Item
    A great deal (A great deal)
    Talk loudly
    Item
    Talk loudly: behavior is present
    boolean
    C0037817 (UMLS CUI [1,1])
    C0178733 (UMLS CUI [1,2])
    Item
    Indicate degree to which behavior bothered you
    text
    C3829612 (UMLS CUI [1])
    Indicate degree to which behavior bothered you
    Code List
    Indicate degree to which behavior bothered you
    CL Item
    Not at all (Not at all)
    CL Item
    A little (A little)
    CL Item
    Considerably (Considerably)
    CL Item
    A great deal (A great deal)
    Yells
    Item
    Yells: behavior is present
    boolean
    C2128834 (UMLS CUI [1])
    Item
    Indicate degree to which behavior bothered you
    text
    C3829612 (UMLS CUI [1])
    Indicate degree to which behavior bothered you
    Code List
    Indicate degree to which behavior bothered you
    CL Item
    Not at all (Not at all)
    CL Item
    A little (A little)
    CL Item
    Considerably (Considerably)
    CL Item
    A great deal (A great deal)
    Stays in bed
    Item
    Stays in bed: behavior is present
    boolean
    C0004916 (UMLS CUI [1])
    Item
    Indicate degree to which behavior bothered you
    text
    C3829612 (UMLS CUI [1])
    Indicate degree to which behavior bothered you
    Code List
    Indicate degree to which behavior bothered you
    CL Item
    Not at all (Not at all)
    CL Item
    A little (A little)
    CL Item
    Considerably (Considerably)
    CL Item
    A great deal (A great deal)
    Hardly talks
    Item
    Hardly talks: behavior is present
    boolean
    C3275031 (UMLS CUI [1,1])
    C0234856 (UMLS CUI [1,2])
    Item
    Indicate degree to which behavior bothered you
    text
    C3829612 (UMLS CUI [1])
    Indicate degree to which behavior bothered you
    Code List
    Indicate degree to which behavior bothered you
    CL Item
    Not at all (Not at all)
    CL Item
    A little (A little)
    CL Item
    Considerably (Considerably)
    CL Item
    A great deal (A great deal)
    Looks messy
    Item
    Looks messy: behavior is present
    boolean
    C0233429 (UMLS CUI [1])
    Item
    Indicate degree to which behavior bothered you
    text
    C3829612 (UMLS CUI [1])
    Indicate degree to which behavior bothered you
    Code List
    Indicate degree to which behavior bothered you
    CL Item
    Not at all (Not at all)
    CL Item
    A little (A little)
    CL Item
    Considerably (Considerably)
    CL Item
    A great deal (A great deal)
    Talks nonsense
    Item
    Talks nonsense: behavior is present
    boolean
    C0234856 (UMLS CUI [1,1])
    C0746939 (UMLS CUI [1,2])
    Item
    Indicate degree to which behavior bothered you
    text
    C3829612 (UMLS CUI [1])
    Indicate degree to which behavior bothered you
    Code List
    Indicate degree to which behavior bothered you
    CL Item
    Not at all (Not at all)
    CL Item
    A little (A little)
    CL Item
    Considerably (Considerably)
    CL Item
    A great deal (A great deal)
    Threatens suicide
    Item
    Threatens suicide: behavior is present
    boolean
    C4087166 (UMLS CUI [1])
    Item
    Indicate degree to which behavior bothered you
    text
    C3829612 (UMLS CUI [1])
    Indicate degree to which behavior bothered you
    Code List
    Indicate degree to which behavior bothered you
    CL Item
    Not at all (Not at all)
    CL Item
    A little (A little)
    CL Item
    Considerably (Considerably)
    CL Item
    A great deal (A great deal)
    Acts suspicious
    Item
    Acts suspicious: behavior is present
    boolean
    C0233514 (UMLS CUI [1,1])
    C0750493 (UMLS CUI [1,2])
    Item
    Indicate degree to which behavior bothered you
    text
    C3829612 (UMLS CUI [1])
    Indicate degree to which behavior bothered you
    Code List
    Indicate degree to which behavior bothered you
    CL Item
    Not at all (Not at all)
    CL Item
    A little (A little)
    CL Item
    Considerably (Considerably)
    CL Item
    A great deal (A great deal)
    Uses abusive language
    Item
    Uses abusive language: behavior is present
    boolean
    C0558089 (UMLS CUI [1])
    Item
    Indicate degree to which behavior bothered you
    text
    C3829612 (UMLS CUI [1])
    Indicate degree to which behavior bothered you
    Code List
    Indicate degree to which behavior bothered you
    CL Item
    Not at all (Not at all)
    CL Item
    A little (A little)
    CL Item
    Considerably (Considerably)
    CL Item
    A great deal (A great deal)
    Threatens violence
    Item
    Threatens violence: behavior is present
    boolean
    C0749385 (UMLS CUI [1,1])
    C0042693 (UMLS CUI [1,2])
    Item
    Indicate degree to which behavior bothered you
    text
    C3829612 (UMLS CUI [1])
    Indicate degree to which behavior bothered you
    Code List
    Indicate degree to which behavior bothered you
    CL Item
    Not at all (Not at all)
    CL Item
    A little (A little)
    CL Item
    Considerably (Considerably)
    CL Item
    A great deal (A great deal)
    Throws things
    Item
    Throws things: behavior is present
    boolean
    C0565696 (UMLS CUI [1])
    Item
    Indicate degree to which behavior bothered you
    text
    C3829612 (UMLS CUI [1])
    Indicate degree to which behavior bothered you
    Code List
    Indicate degree to which behavior bothered you
    CL Item
    Not at all (Not at all)
    CL Item
    A little (A little)
    CL Item
    Considerably (Considerably)
    CL Item
    A great deal (A great deal)
    Harasses others
    Item
    Harasses others: behavior is present
    boolean
    C2077893 (UMLS CUI [1])
    Item
    Indicate degree to which behavior bothered you
    text
    C3829612 (UMLS CUI [1])
    Indicate degree to which behavior bothered you
    Code List
    Indicate degree to which behavior bothered you
    CL Item
    Not at all (Not at all)
    CL Item
    A little (A little)
    CL Item
    Considerably (Considerably)
    CL Item
    A great deal (A great deal)
    Blames others
    Item
    Blames others: behavior is present
    boolean
    C0870209 (UMLS CUI [1])
    Item
    Indicate degree to which behavior bothered you
    text
    C3829612 (UMLS CUI [1])
    Indicate degree to which behavior bothered you
    Code List
    Indicate degree to which behavior bothered you
    CL Item
    Not at all (Not at all)
    CL Item
    A little (A little)
    CL Item
    Considerably (Considerably)
    CL Item
    A great deal (A great deal)
    Harms self
    Item
    Harms self: behavior is present
    boolean
    C0178360 (UMLS CUI [1])
    Item
    Indicate degree to which behavior bothered you
    text
    C3829612 (UMLS CUI [1])
    Indicate degree to which behavior bothered you
    Code List
    Indicate degree to which behavior bothered you
    CL Item
    Not at all (Not at all)
    CL Item
    A little (A little)
    CL Item
    Considerably (Considerably)
    CL Item
    A great deal (A great deal)
    Laughs frequently
    Item
    Laughs frequently: behavior is present
    boolean
    C0023133 (UMLS CUI [1])
    Item
    Indicate degree to which behavior bothered you
    text
    C3829612 (UMLS CUI [1])
    Indicate degree to which behavior bothered you
    Code List
    Indicate degree to which behavior bothered you
    CL Item
    Not at all (Not at all)
    CL Item
    A little (A little)
    CL Item
    Considerably (Considerably)
    CL Item
    A great deal (A great deal)
    Abuses drugs
    Item
    Abuses drugs: behavior is present
    boolean
    C0038586 (UMLS CUI [1])
    Item
    Indicate degree to which behavior bothered you
    text
    C3829612 (UMLS CUI [1])
    Indicate degree to which behavior bothered you
    Code List
    Indicate degree to which behavior bothered you
    CL Item
    Not at all (Not at all)
    CL Item
    A little (A little)
    CL Item
    Considerably (Considerably)
    CL Item
    A great deal (A great deal)
    Paces
    Item
    Paces: behavior is present
    boolean
    C0562458 (UMLS CUI [1])
    Item
    Indicate degree to which behavior bothered you
    text
    C3829612 (UMLS CUI [1])
    Indicate degree to which behavior bothered you
    Code List
    Indicate degree to which behavior bothered you
    CL Item
    Not at all (Not at all)
    CL Item
    A little (A little)
    CL Item
    Considerably (Considerably)
    CL Item
    A great deal (A great deal)
    Smokes too much
    Item
    Smokes too much: behavior is present
    boolean
    C3843660 (UMLS CUI [1,1])
    C0543414 (UMLS CUI [1,2])
    Item
    Indicate degree to which behavior bothered you
    text
    C3829612 (UMLS CUI [1])
    Indicate degree to which behavior bothered you
    Code List
    Indicate degree to which behavior bothered you
    CL Item
    Not at all (Not at all)
    CL Item
    A little (A little)
    CL Item
    Considerably (Considerably)
    CL Item
    A great deal (A great deal)
    Other behaviors/comments
    Item
    Other behaviors/comments:
    text
    C0947611 (UMLS CUI [1])
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