Keywords
Schizophrenia ×
Table of contents
  1. 1. Clinical Trial
  2. 2. Routine Documentation
  3. 3. Registry/Cohort Study
  4. 4. Quality Assurance
  5. 5. Data Standard
  6. 6. Patient-Reported Outcome
  7. 7. Medical Specialty
Selected data models

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- 7/20/20 - 1 form, 1 itemgroup, 49 items, 1 language
Itemgroup: THE PERCEIVED FAMILY BURDEN SCALE
Levene, J. E., Lancee, W. J., Seeman, M. V. (1996). The Perceived Family Burden Scale (PFBS). Measurement Instrument Database for the Social Science. Retrieved 20.07.2020, from www.midss.ie Key references: Levene, J. E., Lancee, W. J., Seeman, M. V. (1996). The perceived family burden scale: measurement and validation. Schizophrenia Research, 22(2), 151–157. Primary use / Purpose: The Perceived Family Burden Scale (PFBS) is a 24-item questionnaire rated on a 5 point Likert type scale. It contains an additional choice for each of the items where the user can also identify that the particular symptom is not present. The purpose of the scale is to measure the burden of schizophrenia on the family of a patient. Background: Many scales have been developed for the classification of, and quality of life associated with, mental illness. However, less attention has been paid to the families of mentally ill patients who can also experience difficulty. Many family members in this situation have to take on fulltime roles as caregivers, or at the very least experience they a heightened concern for the well-being of the patient and themselves. To measure this possible burden in relation to schizophrenia, in particular, the Perceived Family Burden Scale (PFBS) was developed. Psychometrics: The psychometric properties of the Perceived Family Burden Scale (PFBS) are discussed in Levene, Lancee, & Seeman, (1996). Digital Object Identifier (DOI): http://dx.doi.org/10.13072/midss.399 INSTRUCTIONS FOR RATERS The Perceived Family Burden Scale is rated on a five point scale, with a range from 0 to 5. Ratings: 0 = the behaviour isn’t present and doesn’t bother the relative 1 = the behaviour is present and doesn’t bother the relative 2 = the behaviour is present and bothers the relative “a little”. 3 = the behaviour is present and bothers the relative “considerably”. 4 = the behaviour is present and bothers the relative “a great deal”. In our study, we derived three variables which were used in the validation study: 1) the total score 2) an “objective score” (the number of problem behaviours identified by the informant). 3) a “subjective score” (the extent to which the behaviour “bothers” the relative).
- 12/18/19 - 1 form, 18 itemgroups, 81 items, 1 language
Itemgroups: Administrative documentation, Allen test, Vital signs, Pulmonary function tests, 12 lead ECG, Holter Electrocardiography, Positron-Emission Tomography, Pre-dose, Pharmacokinetic aspects - Blood, Randomization, Numbers, Therapeutic procedure, Confirmation, Experimental drug, Positron-Emission Tomography, Post-dose, Physical Examination, Post-dose, Vital signs, Post-dose, Laboratory Procedures, Post-dose, Hematology finding, Laboratory Procedures, Post-dose, Chemistry, Clinical, Urinalysis, Post-dose, Laboratory Procedures, Post-dose, Renal function
- 12/18/19 - 1 form, 13 itemgroups, 44 items, 1 language
Itemgroups: Administrative documentation, Serious Adverse Event, Serious Adverse Event, Seriousness of Adverse Event, Serious Adverse Event, Demography, Serious Adverse Event, Relationships, Experimental drug, Serious Adverse Event, Etiology aspects, Serious Adverse Event, Disease, Serious Adverse Event, Risk factors, Serious Adverse Event, Concomitant Agent, Serious Adverse Event, Experimental drug, Details, Serious Adverse Event, Diagnostic Procedure, Serious Adverse Event, Comment, Serious Adverse Event, Investigator Signature