ID

41224

Description

Levene, J. E., Lancee, W. J., Seeman, M. V. (1996). The Perceived Family Burden Scale (PFBS). Measurement Instrument Database for the Social Science. Retrieved 20.07.2020, from www.midss.ie Key references: Levene, J. E., Lancee, W. J., Seeman, M. V. (1996). The perceived family burden scale: measurement and validation. Schizophrenia Research, 22(2), 151–157. Primary use / Purpose: The Perceived Family Burden Scale (PFBS) is a 24-item questionnaire rated on a 5 point Likert type scale. It contains an additional choice for each of the items where the user can also identify that the particular symptom is not present. The purpose of the scale is to measure the burden of schizophrenia on the family of a patient. Background: Many scales have been developed for the classification of, and quality of life associated with, mental illness. However, less attention has been paid to the families of mentally ill patients who can also experience difficulty. Many family members in this situation have to take on fulltime roles as caregivers, or at the very least experience they a heightened concern for the well-being of the patient and themselves. To measure this possible burden in relation to schizophrenia, in particular, the Perceived Family Burden Scale (PFBS) was developed. Psychometrics: The psychometric properties of the Perceived Family Burden Scale (PFBS) are discussed in Levene, Lancee, & Seeman, (1996). Digital Object Identifier (DOI): http://dx.doi.org/10.13072/midss.399 INSTRUCTIONS FOR RATERS The Perceived Family Burden Scale is rated on a five point scale, with a range from 0 to 5. Ratings: 0 = the behaviour isn’t present and doesn’t bother the relative 1 = the behaviour is present and doesn’t bother the relative 2 = the behaviour is present and bothers the relative “a little”. 3 = the behaviour is present and bothers the relative “considerably”. 4 = the behaviour is present and bothers the relative “a great deal”. In our study, we derived three variables which were used in the validation study: 1) the total score 2) an “objective score” (the number of problem behaviours identified by the informant). 3) a “subjective score” (the extent to which the behaviour “bothers” the relative).

Link

www.midss.ie

Keywords

  1. 7/20/20 7/20/20 -
Copyright Holder

Levene, J. E., Lancee, W. J., Seeman, M. V.

Uploaded on

July 20, 2020

DOI

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License

Creative Commons BY-NC 4.0

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Measurement Instrument Database for the Social Science (MIDSS)

The Perceived Family Burden Scale (PFBS)

Instruction: Please rate the following: 1) Indicate if the behavior is displayed by your relative who suffers from schizophrenia; 2) Indicate the extent to which the behavior bothers you. (The time period considered is the past month).
Description

Instruction: Please rate the following: 1) Indicate if the behavior is displayed by your relative who suffers from schizophrenia; 2) Indicate the extent to which the behavior bothers you. (The time period considered is the past month).

Alias
UMLS CUI-1
C0015576
UMLS CUI-2
C2828008
UMLS CUI-3
C0681889
Looks fearful: behavior is present
Description

Looks fearful

Data type

boolean

Alias
UMLS CUI [1,1]
C0700364
UMLS CUI [1,2]
C1288289
Indicate degree to which behavior bothered you
Description

Indicate degree to which behavior bothered you

Data type

text

Alias
UMLS CUI [1]
C3829612
Looks sad: behavior is present
Description

Looks sad

Data type

boolean

Alias
UMLS CUI [1,1]
C0700364
UMLS CUI [1,2]
C3536794
Indicate degree to which behavior bothered you
Description

Indicate degree to which behavior bothered you

Data type

text

Alias
UMLS CUI [1]
C3829612
Mopes: behavior is present
Description

Mopes

Data type

boolean

Alias
UMLS CUI [1]
C1550006
Indicate degree to which behavior bothered you
Description

Indicate degree to which behavior bothered you

Data type

text

Alias
UMLS CUI [1]
C3829612
Refuses meds: behavior is present
Description

Refuses meds

Data type

boolean

Alias
UMLS CUI [1,1]
C0013227
UMLS CUI [1,2]
C1705116
Indicate degree to which behavior bothered you
Description

Indicate degree to which behavior bothered you

Data type

text

Alias
UMLS CUI [1]
C3829612
Refuses help: behavior is present
Description

Refuses help

Data type

boolean

Alias
UMLS CUI [1,1]
C1705116
UMLS CUI [1,2]
C1521721
Indicate degree to which behavior bothered you
Description

Indicate degree to which behavior bothered you

Data type

text

Alias
UMLS CUI [1]
C3829612
Refuses food: behavior is present
Description

Refuses food

Data type

boolean

Alias
UMLS CUI [1,1]
C1705116
UMLS CUI [1,2]
C0016452
Indicate degree to which behavior bothered you
Description

Indicate degree to which behavior bothered you

Data type

text

Alias
UMLS CUI [1]
C3829612
Talk loudly: behavior is present
Description

Talk loudly

Data type

boolean

Alias
UMLS CUI [1,1]
C0037817
UMLS CUI [1,2]
C0178733
Indicate degree to which behavior bothered you
Description

Indicate degree to which behavior bothered you

Data type

text

Alias
UMLS CUI [1]
C3829612
Yells: behavior is present
Description

Yells

Data type

boolean

Alias
UMLS CUI [1]
C2128834
Indicate degree to which behavior bothered you
Description

Indicate degree to which behavior bothered you

Data type

text

Alias
UMLS CUI [1]
C3829612
Stays in bed: behavior is present
Description

Stays in bed

Data type

boolean

Alias
UMLS CUI [1]
C0004916
Indicate degree to which behavior bothered you
Description

Indicate degree to which behavior bothered you

Data type

text

Alias
UMLS CUI [1]
C3829612
Hardly talks: behavior is present
Description

Hardly talks

Data type

boolean

Alias
UMLS CUI [1,1]
C3275031
UMLS CUI [1,2]
C0234856
Indicate degree to which behavior bothered you
Description

Indicate degree to which behavior bothered you

Data type

text

Alias
UMLS CUI [1]
C3829612
Looks messy: behavior is present
Description

Looks messy

Data type

boolean

Alias
UMLS CUI [1]
C0233429
Indicate degree to which behavior bothered you
Description

Indicate degree to which behavior bothered you

Data type

text

Alias
UMLS CUI [1]
C3829612
Talks nonsense: behavior is present
Description

Talks nonsense

Data type

boolean

Alias
UMLS CUI [1,1]
C0234856
UMLS CUI [1,2]
C0746939
Indicate degree to which behavior bothered you
Description

Indicate degree to which behavior bothered you

Data type

text

Alias
UMLS CUI [1]
C3829612
Threatens suicide: behavior is present
Description

Threatens suicide

Data type

boolean

Alias
UMLS CUI [1]
C4087166
Indicate degree to which behavior bothered you
Description

Indicate degree to which behavior bothered you

Data type

text

Alias
UMLS CUI [1]
C3829612
Acts suspicious: behavior is present
Description

Acts suspicious

Data type

boolean

Alias
UMLS CUI [1,1]
C0233514
UMLS CUI [1,2]
C0750493
Indicate degree to which behavior bothered you
Description

Indicate degree to which behavior bothered you

Data type

text

Alias
UMLS CUI [1]
C3829612
Uses abusive language: behavior is present
Description

Uses abusive language

Data type

boolean

Alias
UMLS CUI [1]
C0558089
Indicate degree to which behavior bothered you
Description

Indicate degree to which behavior bothered you

Data type

text

Alias
UMLS CUI [1]
C3829612
Threatens violence: behavior is present
Description

Threatens violence

Data type

boolean

Alias
UMLS CUI [1,1]
C0749385
UMLS CUI [1,2]
C0042693
Indicate degree to which behavior bothered you
Description

Indicate degree to which behavior bothered you

Data type

text

Alias
UMLS CUI [1]
C3829612
Throws things: behavior is present
Description

Throws things

Data type

boolean

Alias
UMLS CUI [1]
C0565696
Indicate degree to which behavior bothered you
Description

Indicate degree to which behavior bothered you

Data type

text

Alias
UMLS CUI [1]
C3829612
Harasses others: behavior is present
Description

Harasses others

Data type

boolean

Alias
UMLS CUI [1]
C2077893
Indicate degree to which behavior bothered you
Description

Indicate degree to which behavior bothered you

Data type

text

Alias
UMLS CUI [1]
C3829612
Blames others: behavior is present
Description

Blames others

Data type

boolean

Alias
UMLS CUI [1]
C0870209
Indicate degree to which behavior bothered you
Description

Indicate degree to which behavior bothered you

Data type

text

Alias
UMLS CUI [1]
C3829612
Harms self: behavior is present
Description

Harms self

Data type

boolean

Alias
UMLS CUI [1]
C0178360
Indicate degree to which behavior bothered you
Description

Indicate degree to which behavior bothered you

Data type

text

Alias
UMLS CUI [1]
C3829612
Laughs frequently: behavior is present
Description

Laughs frequently

Data type

boolean

Alias
UMLS CUI [1]
C0023133
Indicate degree to which behavior bothered you
Description

Indicate degree to which behavior bothered you

Data type

text

Alias
UMLS CUI [1]
C3829612
Abuses drugs: behavior is present
Description

Abuses drugs

Data type

boolean

Alias
UMLS CUI [1]
C0038586
Indicate degree to which behavior bothered you
Description

Indicate degree to which behavior bothered you

Data type

text

Alias
UMLS CUI [1]
C3829612
Paces: behavior is present
Description

Paces

Data type

boolean

Alias
UMLS CUI [1]
C0562458
Indicate degree to which behavior bothered you
Description

Indicate degree to which behavior bothered you

Data type

text

Alias
UMLS CUI [1]
C3829612
Smokes too much: behavior is present
Description

Smokes too much

Data type

boolean

Alias
UMLS CUI [1,1]
C3843660
UMLS CUI [1,2]
C0543414
Indicate degree to which behavior bothered you
Description

Indicate degree to which behavior bothered you

Data type

text

Alias
UMLS CUI [1]
C3829612
Other behaviors/comments:
Description

Other behaviors/comments

Data type

text

Alias
UMLS CUI [1]
C0947611

Similar models

The Perceived Family Burden Scale (PFBS)

Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Instruction: Please rate the following: 1) Indicate if the behavior is displayed by your relative who suffers from schizophrenia; 2) Indicate the extent to which the behavior bothers you. (The time period considered is the past month).
C0015576 (UMLS CUI-1)
C2828008 (UMLS CUI-2)
C0681889 (UMLS CUI-3)
Looks fearful
Item
Looks fearful: behavior is present
boolean
C0700364 (UMLS CUI [1,1])
C1288289 (UMLS CUI [1,2])
Item
Indicate degree to which behavior bothered you
text
C3829612 (UMLS CUI [1])
Code List
Indicate degree to which behavior bothered you
CL Item
Not at all (Not at all)
CL Item
A little (A little)
CL Item
Considerably (Considerably)
CL Item
A great deal (A great deal)
Looks sad
Item
Looks sad: behavior is present
boolean
C0700364 (UMLS CUI [1,1])
C3536794 (UMLS CUI [1,2])
Item
Indicate degree to which behavior bothered you
text
C3829612 (UMLS CUI [1])
Code List
Indicate degree to which behavior bothered you
CL Item
Not at all (Not at all)
CL Item
A little (A little)
CL Item
Considerably (Considerably)
CL Item
A great deal (A great deal)
Mopes
Item
Mopes: behavior is present
boolean
C1550006 (UMLS CUI [1])
Item
Indicate degree to which behavior bothered you
text
C3829612 (UMLS CUI [1])
Code List
Indicate degree to which behavior bothered you
CL Item
Not at all (Not at all)
CL Item
A little (A little)
CL Item
Considerably (Considerably)
CL Item
A great deal (A great deal)
Refuses meds
Item
Refuses meds: behavior is present
boolean
C0013227 (UMLS CUI [1,1])
C1705116 (UMLS CUI [1,2])
Item
Indicate degree to which behavior bothered you
text
C3829612 (UMLS CUI [1])
Code List
Indicate degree to which behavior bothered you
CL Item
Not at all (Not at all)
CL Item
A little (A little)
CL Item
Considerably (Considerably)
CL Item
A great deal (A great deal)
Refuses help
Item
Refuses help: behavior is present
boolean
C1705116 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
Item
Indicate degree to which behavior bothered you
text
C3829612 (UMLS CUI [1])
Code List
Indicate degree to which behavior bothered you
CL Item
Not at all (Not at all)
CL Item
A little (A little)
CL Item
Considerably (Considerably)
CL Item
A great deal (A great deal)
Refuses food
Item
Refuses food: behavior is present
boolean
C1705116 (UMLS CUI [1,1])
C0016452 (UMLS CUI [1,2])
Item
Indicate degree to which behavior bothered you
text
C3829612 (UMLS CUI [1])
Code List
Indicate degree to which behavior bothered you
CL Item
Not at all (Not at all)
CL Item
A little (A little)
CL Item
Considerably (Considerably)
CL Item
A great deal (A great deal)
Talk loudly
Item
Talk loudly: behavior is present
boolean
C0037817 (UMLS CUI [1,1])
C0178733 (UMLS CUI [1,2])
Item
Indicate degree to which behavior bothered you
text
C3829612 (UMLS CUI [1])
Code List
Indicate degree to which behavior bothered you
CL Item
Not at all (Not at all)
CL Item
A little (A little)
CL Item
Considerably (Considerably)
CL Item
A great deal (A great deal)
Yells
Item
Yells: behavior is present
boolean
C2128834 (UMLS CUI [1])
Item
Indicate degree to which behavior bothered you
text
C3829612 (UMLS CUI [1])
Code List
Indicate degree to which behavior bothered you
CL Item
Not at all (Not at all)
CL Item
A little (A little)
CL Item
Considerably (Considerably)
CL Item
A great deal (A great deal)
Stays in bed
Item
Stays in bed: behavior is present
boolean
C0004916 (UMLS CUI [1])
Item
Indicate degree to which behavior bothered you
text
C3829612 (UMLS CUI [1])
Code List
Indicate degree to which behavior bothered you
CL Item
Not at all (Not at all)
CL Item
A little (A little)
CL Item
Considerably (Considerably)
CL Item
A great deal (A great deal)
Hardly talks
Item
Hardly talks: behavior is present
boolean
C3275031 (UMLS CUI [1,1])
C0234856 (UMLS CUI [1,2])
Item
Indicate degree to which behavior bothered you
text
C3829612 (UMLS CUI [1])
Code List
Indicate degree to which behavior bothered you
CL Item
Not at all (Not at all)
CL Item
A little (A little)
CL Item
Considerably (Considerably)
CL Item
A great deal (A great deal)
Looks messy
Item
Looks messy: behavior is present
boolean
C0233429 (UMLS CUI [1])
Item
Indicate degree to which behavior bothered you
text
C3829612 (UMLS CUI [1])
Code List
Indicate degree to which behavior bothered you
CL Item
Not at all (Not at all)
CL Item
A little (A little)
CL Item
Considerably (Considerably)
CL Item
A great deal (A great deal)
Talks nonsense
Item
Talks nonsense: behavior is present
boolean
C0234856 (UMLS CUI [1,1])
C0746939 (UMLS CUI [1,2])
Item
Indicate degree to which behavior bothered you
text
C3829612 (UMLS CUI [1])
Code List
Indicate degree to which behavior bothered you
CL Item
Not at all (Not at all)
CL Item
A little (A little)
CL Item
Considerably (Considerably)
CL Item
A great deal (A great deal)
Threatens suicide
Item
Threatens suicide: behavior is present
boolean
C4087166 (UMLS CUI [1])
Item
Indicate degree to which behavior bothered you
text
C3829612 (UMLS CUI [1])
Code List
Indicate degree to which behavior bothered you
CL Item
Not at all (Not at all)
CL Item
A little (A little)
CL Item
Considerably (Considerably)
CL Item
A great deal (A great deal)
Acts suspicious
Item
Acts suspicious: behavior is present
boolean
C0233514 (UMLS CUI [1,1])
C0750493 (UMLS CUI [1,2])
Item
Indicate degree to which behavior bothered you
text
C3829612 (UMLS CUI [1])
Code List
Indicate degree to which behavior bothered you
CL Item
Not at all (Not at all)
CL Item
A little (A little)
CL Item
Considerably (Considerably)
CL Item
A great deal (A great deal)
Uses abusive language
Item
Uses abusive language: behavior is present
boolean
C0558089 (UMLS CUI [1])
Item
Indicate degree to which behavior bothered you
text
C3829612 (UMLS CUI [1])
Code List
Indicate degree to which behavior bothered you
CL Item
Not at all (Not at all)
CL Item
A little (A little)
CL Item
Considerably (Considerably)
CL Item
A great deal (A great deal)
Threatens violence
Item
Threatens violence: behavior is present
boolean
C0749385 (UMLS CUI [1,1])
C0042693 (UMLS CUI [1,2])
Item
Indicate degree to which behavior bothered you
text
C3829612 (UMLS CUI [1])
Code List
Indicate degree to which behavior bothered you
CL Item
Not at all (Not at all)
CL Item
A little (A little)
CL Item
Considerably (Considerably)
CL Item
A great deal (A great deal)
Throws things
Item
Throws things: behavior is present
boolean
C0565696 (UMLS CUI [1])
Item
Indicate degree to which behavior bothered you
text
C3829612 (UMLS CUI [1])
Code List
Indicate degree to which behavior bothered you
CL Item
Not at all (Not at all)
CL Item
A little (A little)
CL Item
Considerably (Considerably)
CL Item
A great deal (A great deal)
Harasses others
Item
Harasses others: behavior is present
boolean
C2077893 (UMLS CUI [1])
Item
Indicate degree to which behavior bothered you
text
C3829612 (UMLS CUI [1])
Code List
Indicate degree to which behavior bothered you
CL Item
Not at all (Not at all)
CL Item
A little (A little)
CL Item
Considerably (Considerably)
CL Item
A great deal (A great deal)
Blames others
Item
Blames others: behavior is present
boolean
C0870209 (UMLS CUI [1])
Item
Indicate degree to which behavior bothered you
text
C3829612 (UMLS CUI [1])
Code List
Indicate degree to which behavior bothered you
CL Item
Not at all (Not at all)
CL Item
A little (A little)
CL Item
Considerably (Considerably)
CL Item
A great deal (A great deal)
Harms self
Item
Harms self: behavior is present
boolean
C0178360 (UMLS CUI [1])
Item
Indicate degree to which behavior bothered you
text
C3829612 (UMLS CUI [1])
Code List
Indicate degree to which behavior bothered you
CL Item
Not at all (Not at all)
CL Item
A little (A little)
CL Item
Considerably (Considerably)
CL Item
A great deal (A great deal)
Laughs frequently
Item
Laughs frequently: behavior is present
boolean
C0023133 (UMLS CUI [1])
Item
Indicate degree to which behavior bothered you
text
C3829612 (UMLS CUI [1])
Code List
Indicate degree to which behavior bothered you
CL Item
Not at all (Not at all)
CL Item
A little (A little)
CL Item
Considerably (Considerably)
CL Item
A great deal (A great deal)
Abuses drugs
Item
Abuses drugs: behavior is present
boolean
C0038586 (UMLS CUI [1])
Item
Indicate degree to which behavior bothered you
text
C3829612 (UMLS CUI [1])
Code List
Indicate degree to which behavior bothered you
CL Item
Not at all (Not at all)
CL Item
A little (A little)
CL Item
Considerably (Considerably)
CL Item
A great deal (A great deal)
Paces
Item
Paces: behavior is present
boolean
C0562458 (UMLS CUI [1])
Item
Indicate degree to which behavior bothered you
text
C3829612 (UMLS CUI [1])
Code List
Indicate degree to which behavior bothered you
CL Item
Not at all (Not at all)
CL Item
A little (A little)
CL Item
Considerably (Considerably)
CL Item
A great deal (A great deal)
Smokes too much
Item
Smokes too much: behavior is present
boolean
C3843660 (UMLS CUI [1,1])
C0543414 (UMLS CUI [1,2])
Item
Indicate degree to which behavior bothered you
text
C3829612 (UMLS CUI [1])
Code List
Indicate degree to which behavior bothered you
CL Item
Not at all (Not at all)
CL Item
A little (A little)
CL Item
Considerably (Considerably)
CL Item
A great deal (A great deal)
Other behaviors/comments
Item
Other behaviors/comments:
text
C0947611 (UMLS CUI [1])

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