ID

41143

Description

M. A. Weitzner, P. B. Jacobsen, H. Wagner Jr., J. Friedland, C. Cox. (1996). The Caregiver Quality of Life Index-Cancer (CQOLC) scale. Measurement Instrument Database for the Social Science. Retrieved 30.06.2020, from www.midss.ie Key references: McMillan, S. C. (1996). Quality of life of primary caregivers of hospice patients with cancer. Cancer Pract;4:191-8. Weitzner, M. A., Jacobsen, P. B., Wagner, H., Friedland, J., & Cox, C. (1999). The Caregiver Quality of Life Index–Cancer (CQOLC) Scale: development and validation of an instrument to measure quality of life of the family caregiver of patients with cancer. Quality of Life Research, 8, 55–63. Zarit, S. H., Reever, K. E., Bach-Peterson, J. (1980). Relatives of the impaired elderly: correlates of feeling of burden. Gerontologist;20:649 -55. Primary use / Purpose: The Caregiver Quality of Life Index- Cancer (CQOLC) scale is a 35-item cancer-specific instrument that assesses the carer of a cancer patient's quality of life, that is, some of the physical, social, emotional, and financial aspects of well-being, and functioning. Background: A panoply of instruments measuring caregiver burden have been developed since Zarit, Reever, and Bach-Peterson's (1980) pioneering study investigating carer strain using the Zarit Burden interview. Yet, a dearth of studies exist for parsing the physical, emotional, social and financial well-being of the carer. McMillan (1996) designed a valid and reliable caregiver quality of life index to study such constructs in the partner of the patient. Later, Weitzner and colleagues (1999) modified this scale to serve as a well-being outcome measure specifically for carers of cancer patients. Psychometrics: The CQOLC possesses acceptable validity, test-retest reliability and internal consistency (see Weitzner, Jacobsen, Wagner, Friedland, & Cox, 1999). Other Information: Scoring instructions: items 4, 10, 12, 16, 22, 27, 28 and 34 on questionnaire should be reversed scored. Digital Object Identifier (DOI): http://dx.doi.org/10.13072/midss.388

Link

www.midss.ie

Keywords

Versions (1)
  1. 6/30/20 6/30/20 -
Copyright Holder

M. A. Weitzner, P. B. Jacobsen, H. Wagner Jr., J. Friedland, C. Cox

Uploaded on

June 30, 2020

DOI

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License

Creative Commons BY-NC 4.0
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Measurement Instrument Database for the Social Science (MIDSS)

English

The Caregiver Quality of Life Index-Cancer (CQOLC) scale

1 forms  
Administrative data
Description

Administrative data

Alias
UMLS CUI-1
C1320722
ID#
Description

ID#

Data type

text

Day
Description

Day

Data type

text

Alias
UMLS CUI [1]
C1320303
Below is a list of statements that other people caring for loved ones with cancer have said are important. By choosing one number per line, please indicate how true each statement has been for you during the past 7 days. During the past 7 days:
Description

Below is a list of statements that other people caring for loved ones with cancer have said are important. By choosing one number per line, please indicate how true each statement has been for you during the past 7 days. During the past 7 days:

Alias
UMLS CUI-1
C0034380
UMLS CUI-2
C0085537
UMLS CUI-3
C0006826
1. It bothers me that my daily routine is altered.
Description

It bothers me that my daily routine is altered.

Data type

integer

Alias
UMLS CUI [1]
C2372028
2. My sleep is less restful.
Description

My sleep is less restful.

Data type

integer

Alias
UMLS CUI [1]
C0037317
3. My daily life is imposed upon.
Description

My daily life is imposed upon.

Data type

integer

Alias
UMLS CUI [1]
C0740765
4. I am satisfied with my sex life.
Description

I am satisfied with my sex life.

Data type

integer

Alias
UMLS CUI [1]
C2984060
5. It is a challenge to maintain my outside interests.
Description

It is a challenge to maintain my outside interests.

Data type

integer

Alias
UMLS CUI [1]
C0019826
6. I am under a financial strain.
Description

I am under a financial strain.

Data type

integer

Alias
UMLS CUI [1]
C0549106
7. I am concerned about our insurance coverage.
Description

I am concerned about our insurance coverage.

Data type

integer

Alias
UMLS CUI [1,1]
C2699424
UMLS CUI [1,2]
C0376629
8. My economic future is uncertain.
Description

My economic future is uncertain.

Data type

integer

Alias
UMLS CUI [1,1]
C0087130
UMLS CUI [1,2]
C0337781
9. I fear my loved one will die.
Description

I fear my loved one will die.

Data type

integer

Alias
UMLS CUI [1,1]
C0015726
UMLS CUI [1,2]
C0011065
UMLS CUI [1,3]
C0021797
10. I have more of a positive outlook on life since my loved one's illness.
Description

I have more of a positive outlook on life since my loved one's illness.

Data type

integer

Alias
UMLS CUI [1,1]
C0237428
UMLS CUI [1,2]
C0021797
UMLS CUI [1,3]
C0221423
11. My level of stress and worries has increased.
Description

My level of stress and worries has increased.

Data type

integer

Alias
UMLS CUI [1]
C4062658
12. My sense of spirituality has increased.
Description

My sense of spirituality has increased.

Data type

integer

Alias
UMLS CUI [1]
C0237104
13. It bothers me, limiting my focus to day-to-day.
Description

It bothers me, limiting my focus to day-to-day.

Data type

integer

Alias
UMLS CUI [1]
C0740765
14. I feel sad.
Description

I feel sad.

Data type

integer

Alias
UMLS CUI [1]
C3536794
15. I feel under increased mental strain.
Description

I feel under increased mental strain.

Data type

integer

Alias
UMLS CUI [1]
C0038443
16. I get support from my friends and neighbors.
Description

I get support from my friends and neighbors.

Data type

integer

Alias
UMLS CUI [1]
C0037438
17. I feel guilty.
Description

I feel guilty.

Data type

integer

Alias
UMLS CUI [1]
C0018379
18. I feel frustrated.
Description

I feel frustrated.

Data type

integer

Alias
UMLS CUI [1]
C0016770
19. I feel nervous.
Description

I feel nervous.

Data type

integer

Alias
UMLS CUI [1]
C0849963
20. I worry about the impact my loved one's illness has had on my children or other family members.
Description

I worry about the impact my loved one's illness has had on my children or other family members.

Data type

integer

Alias
UMLS CUI [1,1]
C0162468
UMLS CUI [1,2]
C0021797
UMLS CUI [1,3]
C0221423
21. I have difficulty dealing with my loved one's changing eating habits.
Description

I have difficulty dealing with my loved one's changing eating habits.

Data type

integer

Alias
UMLS CUI [1,1]
C0582154
UMLS CUI [1,2]
C1266864
UMLS CUI [1,3]
C0021797
22. I have developed a closer relationship with my loved one.
Description

I have developed a closer relationship with my loved one.

Data type

integer

Alias
UMLS CUI [1]
C0021797
23. I feel adequately informed about my loved one's illness.
Description

I feel adequately informed about my loved one's illness.

Data type

integer

Alias
UMLS CUI [1,1]
C1998726
UMLS CUI [1,2]
C0021797
UMLS CUI [1,3]
C0221423
24. It bothers me that I need to be available to chauffeur my loved one to appointments.
Description

It bothers me that I need to be available to chauffeur my loved one to appointments.

Data type

integer

Alias
UMLS CUI [1,1]
C0018896
UMLS CUI [1,2]
C0022107
UMLS CUI [1,3]
C0021797
25. I fear the adverse effects of treatment on my loved one.
Description

I fear the adverse effects of treatment on my loved one.

Data type

integer

Alias
UMLS CUI [1,1]
C0879626
UMLS CUI [1,2]
C0015726
26. The responsibility I have for my loved one's care at home is overwhelming.
Description

The responsibility I have for my loved one's care at home is overwhelming.

Data type

integer

Alias
UMLS CUI [1,1]
C0678341
UMLS CUI [1,2]
C3843660
UMLS CUI [1,3]
C0021797
27. I am glad that my focus is on getting my loved one well.
Description

I am glad that my focus is on getting my loved one well.

Data type

integer

Alias
UMLS CUI [1,1]
C0242428
UMLS CUI [1,2]
C0004268
UMLS CUI [1,3]
C0018896
UMLS CUI [1,4]
C0021797
28. Family communication has increased.
Description

Family communication has increased.

Data type

integer

Alias
UMLS CUI [1,1]
C0015576
UMLS CUI [1,2]
C0009452
29. It bothers me that my priorities have changed.
Description

It bothers me that my priorities have changed.

Data type

integer

Alias
UMLS CUI [1,1]
C0439607
UMLS CUI [1,2]
C0392747
30. The need to protect my loved one bothers me.
Description

The need to protect my loved one bothers me.

Data type

integer

Alias
UMLS CUI [1,1]
C1545588
UMLS CUI [1,2]
C0021797
31. It upsets me to see my loved one deteriorate.
Description

It upsets me to see my loved one deteriorate.

Data type

integer

Alias
UMLS CUI [1,1]
C3887804
UMLS CUI [1,2]
C1457868
UMLS CUI [1,3]
C0021797
32. The need to manage my loved one's pain is overwhelming.
Description

The need to manage my loved one's pain is overwhelming.

Data type

integer

Alias
UMLS CUI [1]
C0002766
33. I am discouraged about the future.
Description

I am discouraged about the future.

Data type

integer

Alias
UMLS CUI [1]
C0150041
34. I am satisfied with the support I get from my family.
Description

I am satisfied with the support I get from my family.

Data type

integer

Alias
UMLS CUI [1,1]
C0037438
UMLS CUI [1,2]
C0242428
35. It bothers me that other family members have not shown interest in taking care of my loved one.
Description

It bothers me that other family members have not shown interest in taking care of my loved one.

Data type

integer

Alias
UMLS CUI [1,1]
C0037438
UMLS CUI [1,2]
C0016770
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Similar models

The Caregiver Quality of Life Index-Cancer (CQOLC) scale

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Administrative data
C1320722 (UMLS CUI-1)
ID#
Item
ID#
text
Item
Day
text
C1320303 (UMLS CUI [1])
Day
Code List
Day
CL Item
Day 01 (Day 01)
CL Item
Day 16 (Day 16)
CL Item
Day 30 (Day 30)
Item Group
Below is a list of statements that other people caring for loved ones with cancer have said are important. By choosing one number per line, please indicate how true each statement has been for you during the past 7 days. During the past 7 days:
C0034380 (UMLS CUI-1)
C0085537 (UMLS CUI-2)
C0006826 (UMLS CUI-3)
Item
1. It bothers me that my daily routine is altered.
integer
C2372028 (UMLS CUI [1])
It bothers me that my daily routine is altered.
Code List
1. It bothers me that my daily routine is altered.
CL Item
Not at all (0)
CL Item
A little bit (1)
CL Item
Somewhat (2)
CL Item
Quite a bit (3)
CL Item
Very much (4)
Item
2. My sleep is less restful.
integer
C0037317 (UMLS CUI [1])
It bothers me that my daily routine is altered.
Code List
2. My sleep is less restful.
CL Item
Not at all (0)
CL Item
A little bit (1)
CL Item
Somewhat (2)
CL Item
Quite a bit (3)
CL Item
Very much (4)
Item
3. My daily life is imposed upon.
integer
C0740765 (UMLS CUI [1])
It bothers me that my daily routine is altered.
Code List
3. My daily life is imposed upon.
CL Item
Not at all (0)
CL Item
A little bit (1)
CL Item
Somewhat (2)
CL Item
Quite a bit (3)
CL Item
Very much (4)
Item
4. I am satisfied with my sex life.
integer
C2984060 (UMLS CUI [1])
It bothers me that my daily routine is altered.
Code List
4. I am satisfied with my sex life.
CL Item
Not at all (0)
CL Item
A little bit (1)
CL Item
Somewhat (2)
CL Item
Quite a bit (3)
CL Item
Very much (4)
Item
5. It is a challenge to maintain my outside interests.
integer
C0019826 (UMLS CUI [1])
It bothers me that my daily routine is altered.
Code List
5. It is a challenge to maintain my outside interests.
CL Item
Not at all (0)
CL Item
A little bit (1)
CL Item
Somewhat (2)
CL Item
Quite a bit (3)
CL Item
Very much (4)
Item
6. I am under a financial strain.
integer
C0549106 (UMLS CUI [1])
It bothers me that my daily routine is altered.
Code List
6. I am under a financial strain.
CL Item
Not at all (0)
CL Item
A little bit (1)
CL Item
Somewhat (2)
CL Item
Quite a bit (3)
CL Item
Very much (4)
Item
7. I am concerned about our insurance coverage.
integer
C2699424 (UMLS CUI [1,1])
C0376629 (UMLS CUI [1,2])
It bothers me that my daily routine is altered.
Code List
7. I am concerned about our insurance coverage.
CL Item
Not at all (0)
CL Item
A little bit (1)
CL Item
Somewhat (2)
CL Item
Quite a bit (3)
CL Item
Very much (4)
Item
8. My economic future is uncertain.
integer
C0087130 (UMLS CUI [1,1])
C0337781 (UMLS CUI [1,2])
It bothers me that my daily routine is altered.
Code List
8. My economic future is uncertain.
CL Item
Not at all (0)
CL Item
A little bit (1)
CL Item
Somewhat (2)
CL Item
Quite a bit (3)
CL Item
Very much (4)
Item
9. I fear my loved one will die.
integer
C0015726 (UMLS CUI [1,1])
C0011065 (UMLS CUI [1,2])
C0021797 (UMLS CUI [1,3])
It bothers me that my daily routine is altered.
Code List
9. I fear my loved one will die.
CL Item
Not at all (0)
CL Item
A little bit (1)
CL Item
Somewhat (2)
CL Item
Quite a bit (3)
CL Item
Very much (4)
Item
10. I have more of a positive outlook on life since my loved one's illness.
integer
C0237428 (UMLS CUI [1,1])
C0021797 (UMLS CUI [1,2])
C0221423 (UMLS CUI [1,3])
It bothers me that my daily routine is altered.
Code List
10. I have more of a positive outlook on life since my loved one's illness.
CL Item
Not at all (0)
CL Item
A little bit (1)
CL Item
Somewhat (2)
CL Item
Quite a bit (3)
CL Item
Very much (4)
Item
11. My level of stress and worries has increased.
integer
C4062658 (UMLS CUI [1])
It bothers me that my daily routine is altered.
Code List
11. My level of stress and worries has increased.
CL Item
Not at all (0)
CL Item
A little bit (1)
CL Item
Somewhat (2)
CL Item
Quite a bit (3)
CL Item
Very much (4)
Item
12. My sense of spirituality has increased.
integer
C0237104 (UMLS CUI [1])
It bothers me that my daily routine is altered.
Code List
12. My sense of spirituality has increased.
CL Item
Not at all (0)
CL Item
A little bit (1)
CL Item
Somewhat (2)
CL Item
Quite a bit (3)
CL Item
Very much (4)
Item
13. It bothers me, limiting my focus to day-to-day.
integer
C0740765 (UMLS CUI [1])
It bothers me that my daily routine is altered.
Code List
13. It bothers me, limiting my focus to day-to-day.
CL Item
Not at all (0)
CL Item
A little bit (1)
CL Item
Somewhat (2)
CL Item
Quite a bit (3)
CL Item
Very much (4)
Item
14. I feel sad.
integer
C3536794 (UMLS CUI [1])
It bothers me that my daily routine is altered.
Code List
14. I feel sad.
CL Item
Not at all (0)
CL Item
A little bit (1)
CL Item
Somewhat (2)
CL Item
Quite a bit (3)
CL Item
Very much (4)
Item
15. I feel under increased mental strain.
integer
C0038443 (UMLS CUI [1])
It bothers me that my daily routine is altered.
Code List
15. I feel under increased mental strain.
CL Item
Not at all (0)
CL Item
A little bit (1)
CL Item
Somewhat (2)
CL Item
Quite a bit (3)
CL Item
Very much (4)
Item
16. I get support from my friends and neighbors.
integer
C0037438 (UMLS CUI [1])
It bothers me that my daily routine is altered.
Code List
16. I get support from my friends and neighbors.
CL Item
Not at all (0)
CL Item
A little bit (1)
CL Item
Somewhat (2)
CL Item
Quite a bit (3)
CL Item
Very much (4)
Item
17. I feel guilty.
integer
C0018379 (UMLS CUI [1])
It bothers me that my daily routine is altered.
Code List
17. I feel guilty.
CL Item
Not at all (0)
CL Item
A little bit (1)
CL Item
Somewhat (2)
CL Item
Quite a bit (3)
CL Item
Very much (4)
Item
18. I feel frustrated.
integer
C0016770 (UMLS CUI [1])
It bothers me that my daily routine is altered.
Code List
18. I feel frustrated.
CL Item
Not at all (0)
CL Item
A little bit (1)
CL Item
Somewhat (2)
CL Item
Quite a bit (3)
CL Item
Very much (4)
Item
19. I feel nervous.
integer
C0849963 (UMLS CUI [1])
It bothers me that my daily routine is altered.
Code List
19. I feel nervous.
CL Item
Not at all (0)
CL Item
A little bit (1)
CL Item
Somewhat (2)
CL Item
Quite a bit (3)
CL Item
Very much (4)
Item
20. I worry about the impact my loved one's illness has had on my children or other family members.
integer
C0162468 (UMLS CUI [1,1])
C0021797 (UMLS CUI [1,2])
C0221423 (UMLS CUI [1,3])
It bothers me that my daily routine is altered.
Code List
20. I worry about the impact my loved one's illness has had on my children or other family members.
CL Item
Not at all (0)
CL Item
A little bit (1)
CL Item
Somewhat (2)
CL Item
Quite a bit (3)
CL Item
Very much (4)
Item
21. I have difficulty dealing with my loved one's changing eating habits.
integer
C0582154 (UMLS CUI [1,1])
C1266864 (UMLS CUI [1,2])
C0021797 (UMLS CUI [1,3])
It bothers me that my daily routine is altered.
Code List
21. I have difficulty dealing with my loved one's changing eating habits.
CL Item
Not at all (0)
CL Item
A little bit (1)
CL Item
Somewhat (2)
CL Item
Quite a bit (3)
CL Item
Very much (4)
Item
22. I have developed a closer relationship with my loved one.
integer
C0021797 (UMLS CUI [1])
It bothers me that my daily routine is altered.
Code List
22. I have developed a closer relationship with my loved one.
CL Item
Not at all (0)
CL Item
A little bit (1)
CL Item
Somewhat (2)
CL Item
Quite a bit (3)
CL Item
Very much (4)
Item
23. I feel adequately informed about my loved one's illness.
integer
C1998726 (UMLS CUI [1,1])
C0021797 (UMLS CUI [1,2])
C0221423 (UMLS CUI [1,3])
It bothers me that my daily routine is altered.
Code List
23. I feel adequately informed about my loved one's illness.
CL Item
Not at all (0)
CL Item
A little bit (1)
CL Item
Somewhat (2)
CL Item
Quite a bit (3)
CL Item
Very much (4)
Item
24. It bothers me that I need to be available to chauffeur my loved one to appointments.
integer
C0018896 (UMLS CUI [1,1])
C0022107 (UMLS CUI [1,2])
C0021797 (UMLS CUI [1,3])
It bothers me that my daily routine is altered.
Code List
24. It bothers me that I need to be available to chauffeur my loved one to appointments.
CL Item
Not at all (0)
CL Item
A little bit (1)
CL Item
Somewhat (2)
CL Item
Quite a bit (3)
CL Item
Very much (4)
Item
25. I fear the adverse effects of treatment on my loved one.
integer
C0879626 (UMLS CUI [1,1])
C0015726 (UMLS CUI [1,2])
It bothers me that my daily routine is altered.
Code List
25. I fear the adverse effects of treatment on my loved one.
CL Item
Not at all (0)
CL Item
A little bit (1)
CL Item
Somewhat (2)
CL Item
Quite a bit (3)
CL Item
Very much (4)
Item
26. The responsibility I have for my loved one's care at home is overwhelming.
integer
C0678341 (UMLS CUI [1,1])
C3843660 (UMLS CUI [1,2])
C0021797 (UMLS CUI [1,3])
It bothers me that my daily routine is altered.
Code List
26. The responsibility I have for my loved one's care at home is overwhelming.
CL Item
Not at all (0)
CL Item
A little bit (1)
CL Item
Somewhat (2)
CL Item
Quite a bit (3)
CL Item
Very much (4)
Item
27. I am glad that my focus is on getting my loved one well.
integer
C0242428 (UMLS CUI [1,1])
C0004268 (UMLS CUI [1,2])
C0018896 (UMLS CUI [1,3])
C0021797 (UMLS CUI [1,4])
It bothers me that my daily routine is altered.
Code List
27. I am glad that my focus is on getting my loved one well.
CL Item
Not at all (0)
CL Item
A little bit (1)
CL Item
Somewhat (2)
CL Item
Quite a bit (3)
CL Item
Very much (4)
Item
28. Family communication has increased.
integer
C0015576 (UMLS CUI [1,1])
C0009452 (UMLS CUI [1,2])
It bothers me that my daily routine is altered.
Code List
28. Family communication has increased.
CL Item
Not at all (0)
CL Item
A little bit (1)
CL Item
Somewhat (2)
CL Item
Quite a bit (3)
CL Item
Very much (4)
Item
29. It bothers me that my priorities have changed.
integer
C0439607 (UMLS CUI [1,1])
C0392747 (UMLS CUI [1,2])
It bothers me that my daily routine is altered.
Code List
29. It bothers me that my priorities have changed.
CL Item
Not at all (0)
CL Item
A little bit (1)
CL Item
Somewhat (2)
CL Item
Quite a bit (3)
CL Item
Very much (4)
Item
30. The need to protect my loved one bothers me.
integer
C1545588 (UMLS CUI [1,1])
C0021797 (UMLS CUI [1,2])
It bothers me that my daily routine is altered.
Code List
30. The need to protect my loved one bothers me.
CL Item
Not at all (0)
CL Item
A little bit (1)
CL Item
Somewhat (2)
CL Item
Quite a bit (3)
CL Item
Very much (4)
Item
31. It upsets me to see my loved one deteriorate.
integer
C3887804 (UMLS CUI [1,1])
C1457868 (UMLS CUI [1,2])
C0021797 (UMLS CUI [1,3])
It bothers me that my daily routine is altered.
Code List
31. It upsets me to see my loved one deteriorate.
CL Item
Not at all (0)
CL Item
A little bit (1)
CL Item
Somewhat (2)
CL Item
Quite a bit (3)
CL Item
Very much (4)
Item
32. The need to manage my loved one's pain is overwhelming.
integer
C0002766 (UMLS CUI [1])
It bothers me that my daily routine is altered.
Code List
32. The need to manage my loved one's pain is overwhelming.
CL Item
Not at all (0)
CL Item
A little bit (1)
CL Item
Somewhat (2)
CL Item
Quite a bit (3)
CL Item
Very much (4)
Item
33. I am discouraged about the future.
integer
C0150041 (UMLS CUI [1])
It bothers me that my daily routine is altered.
Code List
33. I am discouraged about the future.
CL Item
Not at all (0)
CL Item
A little bit (1)
CL Item
Somewhat (2)
CL Item
Quite a bit (3)
CL Item
Very much (4)
Item
34. I am satisfied with the support I get from my family.
integer
C0037438 (UMLS CUI [1,1])
C0242428 (UMLS CUI [1,2])
It bothers me that my daily routine is altered.
Code List
34. I am satisfied with the support I get from my family.
CL Item
Not at all (0)
CL Item
A little bit (1)
CL Item
Somewhat (2)
CL Item
Quite a bit (3)
CL Item
Very much (4)
Item
35. It bothers me that other family members have not shown interest in taking care of my loved one.
integer
C0037438 (UMLS CUI [1,1])
C0016770 (UMLS CUI [1,2])
It bothers me that my daily routine is altered.
Code List
35. It bothers me that other family members have not shown interest in taking care of my loved one.
CL Item
Not at all (0)
CL Item
A little bit (1)
CL Item
Somewhat (2)
CL Item
Quite a bit (3)
CL Item
Very much (4)
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