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Table of contents
  1. 1. Clinical Trial
  2. 2. Routine Documentation
  3. 3. Registry/Cohort Study
  4. 4. Quality Assurance
  5. 5. Data Standard
  6. 6. Patient-Reported Outcome
  7. 7. Medical Specialty
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253 Search results.

WHO-5 - WHO (Five) Well-Being Index

- 4/22/18 - 1 form, 1 itemgroup, 5 items, 30 languages
Itemgroup: Over the last two weeks
WHO (Five) Well-Being Index (1998 version) http://www.who-5.org Also called : WHO Five, WHO 5

Pancreatic Cancer NCT00058149 Quality of Life - Brief Pain Inventory - 2031356v3.0 - Brief Pain Inventory

- 1/9/15 - 1 form, 2 itemgroups, 23 items, 1 language
Itemgroups: Header, CCRR MODULE
Brief Pain Inventory A Phase III, Randomized Study of Gemcitabine (Fixed-Dose Rate Infusion) and Oxaliplatin (NSC 266046) Versus Gemcitabine (Fixed-Dose Rate Infusion) Versus Gemcitabine (30-Minute Infusion) in Pancreatic Carcinoma Source Form: NCI FormBuilder: https://formbuilder.nci.nih.gov/FormBuilder/formDetailsAction.do?method=getFormDetails&formIdSeq=AE65F8E1-704E-30A0-E034-0003BA12F5E7

SF-36 (RAND)

- 7/3/19 - 1 form, 7 itemgroups, 36 items, 1 language
Itemgroups: General Info, Current health limitations, Physical Health related problems during past 4 weeks, Emotional problems during past 4 weeks, Past 4 weeks, Emotions in past 4 weeks, General statements
This document contains the 36-Item Short Form Survey Instrument Version 1 (SF-36) form, developed at RAND as part of the Medical Outcomes Study. RAND owns the copyright. All of the surveys and tools from RAND Health are public documents, available without charge. For more information - e.g. on terms and conditions for use or scoring instructions: https://www.rand.org/health-care/surveys_tools/mos/36-item-short-form.html Changes made to the questionnaire should be made clearly identifiable.

HADS - Hospital Anxiety and Depression Scale (HADS)

- 11/16/18 - 1 form, 1 itemgroup, 14 items, 1 language
Itemgroup: In the past week
Hospital Anxiety and Depression Scale (HADS) was originally developed by [Zigmond, AS; Snaith, RP (1983). "The hospital anxiety and depression scale". Acta Psychiatrica Scandinavica 67 (6): 361–370] and is commonly used by doctors to determine the levels of anxiety and depression that a patient is experiencing. Also used for routine documentation at the University Hospital Muenster (UKM) see http://en.wikipedia.org/wiki/Hospital_Anxiety_and_Depression_Scale

DLQI - Dermatology Life Quality Index (DLQI)

- 9/7/16 - 1 form, 1 itemgroup, 12 items, 17 languages
Itemgroup: Skin problems past week
Details and Conditions of Use see: Finlay A.Y., Khan G.K. Dermatology Life Quality Index (DLQI) - A simple practical measure for routine clinical use. Clinical and Experimental Derm 1994; 19:210-16 Used as routine documentation at the University Hospital in Muenster (UKM).

Topotecan (HycamtinTM) with Carboplatin as First-Line Chemotherapy in Patients with Ovarian Cancer; 104864/612 - Prior to Seventh Cycle

- 8/13/19 - 1 form, 4 itemgroups, 7 items, 1 language
Itemgroups: Administrative documentation, Serious Adverse Event, Questionnaires, Quality of life, Clinical Trials, Status
Study ID: 104864/612 Clinical Study ID: 104864/612 Study Title: A Prospective, Open Label Phase II Study to Evaluate the Efficacy and Safety of Topotecan (HycamtinTM) in Combination with Carboplatin as First-line Chemotherapy in Patients with Ovarian Cancer Patient Level Data: Study Listed on ClinicalStudyDataRequest.com Clinicaltrials.gov Identifier: N/A Sponsor: GlaxoSmithKline Collaborators: N/A Phase: Phase 2 Study Recruitment Status: Completed Generic Name: Topotecan Trade Name: HycamtinTM Study Indication: Ovarian Cancer

Patient reported outcome measures in ATTR amyloidosis (short version) - PROMs ATTR short

- 7/26/19 - 1 form, 4 itemgroups, 32 items, 1 language
Itemgroups: Introduction, Demographic Factors, Patient reported outcomes: Quality of life, Patient reported outcomes: Disability
Patient reported outcome measures (PROMS) in patients with ATTR amyloidosis (short version) Version 1.0.0 Revised July 20th, 2019 Dr. med. Fabian Johannes Bolte Klinik für Gastroenterologie und Hepatologie Universitätsklinikum Münster Conditions: ATTR Amyloidosis Study Population: 2nd European Meeting for ATTR amyloidosis in Berlin This form is used for patient reported outcome measures (PROMS) in patients with ATTR amyloidosis to understand patients challenges and needs. Use of the following Scores for this standard set: (1) Patient Reported Outcomes Measurement Information System Short Form version 1.1 Global Health (PROMIS-10) (2) World Health Organization Disability Assessment Schedule 2.0 (WHODAS 2.0)- 12-item Instrument

Patient reported outcome measures in ATTR amyloidosis - PROMs in ATTR amyloidosis

- 7/26/19 - 1 form, 9 itemgroups, 77 items, 1 language
Itemgroups: Introduction, Demographic Factors, Comorbidities, Patient reported outcomes: ATTR Diagnosis, First organ system involved, Patient reported outcomes: Quality of life, Patient reported outcomes: Disability, Patient reported Outcomes: ATTR Management, ATTR Therapy
Patient reported outcome measures (PROMS) in patients with ATTR amyloidosis Version 1.0.0 Revised July 20th, 2019 Dr. med. Fabian Johannes Bolte Klinik für Gastroenterologie und Hepatologie Universitätsklinikum Münster Conditions: ATTR Amyloidosis Study Population: 2nd European Meeting for ATTR amyloidosis in Berlin This form is used for patient reported outcome measures (PROMS) in patients with ATTR amyloidosis to understand patients challenges and needs. Use of the following Scores for this standard set: (1) Patient Reported Outcomes Measurement Information System Short Form version 1.1 Global Health (PROMIS-10) (2) World Health Organization Disability Assessment Schedule 2.0 (WHODAS 2.0)- 12-item Instrument

Lebensqualität bei Urtikaria - Lebensqualität

- 6/26/19 - 1 form, 4 itemgroups, 24 items, 1 language
Itemgroups: Symptome, Einschränkung, Probleme, Beurteilung durch den Patienten
Routine-Dokumentation Prof. Randolf Brehler, Hautklinik, UK Münster

BMLSS Brief Multidimensional Life Satisfaction Scale (generic)

- 6/25/19 - 1 form, 1 itemgroup, 11 items, 6 languages
Itemgroup: life satisfaction
Questionnaires on the quality of life and spirituality. A project of the Faculty of Health at University Witten/Herdecke. Publication granted by Prof. Dr. Büssing. Source: https://spneeds.uni-wh.de/ Spanish translation: Stefano Vinaccia. Polish translation: Janusz Surzykiewicz. Arabic translation: Dr. Fawwaz Ayoub Momani.

Cisplatin and Topotecan Recurrent or Persistent Carcinoma of the Cervix - 103369 - Quality of Life

- 3/15/19 - 1 form, 9 itemgroups, 62 items, 1 language
Itemgroups: Administrative data, Physical well-being, Social/Family Well-Being, Emotional Well-Being, Functional Well-Being, Additional Concerns, Brief Pain Inventory, BRIEF PAIN INVENTORY, Pain Interference
Study ID: 103369 Clinical Study ID: 103369 Study Title: A Randomized Phase III Study of Cisplatin Versus Cisplatin plus Topotecan Versus MVAC in Stage IVB, Recurrent or Persistent Squamous Cell Carcinoma of the Cervix Patient Level Data: Study Listed on ClinicalStudyDataRequest.com Clinicaltrials.gov Identifier: N/A Sponsor: GlaxoSmithKline Collaborators: N/A Phase: Phase 3 Study Recruitment Status: Completed Generic Name: Topotecan Trade Name: Topotecan Study Indication: Cancer 

Cisplatin and Topotecan Recurrent or Persistent Carcinoma of the Cervix - 103369 - GOG Toxicity Case Summary

- 3/15/19 - 1 form, 12 itemgroups, 55 items, 2 languages
Itemgroups: Administrative data, Demographics, Description, Protocol Treatment, Drugs and Doses for this Course, Cumulative Totals to Date, Serious Adverse Event, Pretreatment Counts for this Course, Nadir Counts, GOG #, Quality of Life Cover Sheet (Investigator's details), Time of Today's Assessment
Study ID: 103369 Clinical Study ID: 103369 Study Title: A Randomized Phase III Study of Cisplatin Versus Cisplatin plus Topotecan Versus MVAC in Stage IVB, Recurrent or Persistent Squamous Cell Carcinoma of the Cervix Patient Level Data: Study Listed on ClinicalStudyDataRequest.com Clinicaltrials.gov Identifier: N/A Sponsor: GlaxoSmithKline Collaborators: N/A Phase: Phase 3 Study Recruitment Status: Completed Generic Name: Topotecan Trade Name: Topotecan Study Indication: Cancer