Keywords
Quality of Life ×
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Table of contents
  1. 1. Clinical Trial
  2. 2. Routine Documentation
  3. 3. Registry/Cohort Study
  4. 4. Quality Assurance
  5. 5. Data Standard
  6. 6. Patient-Reported Outcome
  7. 7. Medical Specialty
Selected data models

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- 9/30/20 - 1 form, 2 itemgroups, 19 items, 1 language
Itemgroups: Instructions, Extent
Stiggelbout, A. M., de Haes, J. C., Vree, R. van de Velde, C. J., Bruijninckx, C. M., van Groningen, K., Kievit, J. (1997). Attitude Follow-Up Scale (AFS). Measurement Instrument Database for the Social Science. Retrieved 30.09.2020, from www.midss.ie Key references: Stiggelbout, A. M., de Haes, J. C., Vree, R. van de Velde, C. J., Bruijninckx, C. M., van Groningen, K., and Kievit, J. (1997). Follow-up of colorectal cancer patients: quality of life and attitudes towards follow-up. Br J Cancer, 75(6), 914–920. Kiebert, G. M., Welvaart, K., Kievit, J. (1993). Psychological effects of routine follow up on cancer patients after surgery. Eur J Surg, 159(11–12), 601–607 Thewes, B., Butow, P., Zachariae, R., Christensen, S., Simard, S & Gotay, C. (2012). Fear of cancer recurrence: a systematic literature review of self-report measures. Psycho-Oncology, 21, 571–587 Primary use / Purpose: The Attitude Follow-Up Scale (AFS) is a 19-item inventory rated on a 4 point Likert-type scale. Its purpose is to measure the attitudes of cancer patients towards follow-up. Patients’ attitudes are measured under four dimensions: communication (with a physician), reassurance, nervous anticipation, and perceived disadvantages of the follow-up process. Background: A substantial amount of research exists on the well-being and quality of life associated with clinical samples, especially those diagnosed with cancer. However, little research has specifically studied the physical and psychological outcomes associated with follow-up procedures between patient and physician. To address this, Stiggelbout, de Haes, & Vree et al. (1997) tweaked an existing scale developed by Kiebert, Welvaart, Kievit (1993) and ended up with the Attitude Follow-Up Scale (AFS). Psychometrics: The psychometric properties of the Attitude Follow-Up Scale (AFS) are discussed in Stiggelbout, de Haes, & Vree et al. (1997). Digital Object Identifier (DOI): http://dx.doi.org/10.13072/midss.324
- 7/23/20 - 1 form, 2 itemgroups, 41 items, 1 language
Itemgroups: General Information, The Silver Lining Questionnaire
Sodergren, S. C., Hyland, M. E.. (1997). The Silver Lining Questionnaire. Measurement Instrument Database for the Social Science. Retrieved 22.07.2020, from www.midss.ie Key references: 1. Sodergren, S. C. & Hyland, M. E. (1997). Qualitative phase in the development of the Silver Lining Questionnaire. Quality of Life Research, 6, (7-8), 365. 2. Sodergren, S. C., & Hyland, M. E. (2000). What are the positive consequences of illness? Psychology and Health, 15, 85-97. 3. Sodergren, S. C., Hyland, M. E., Singh, S. J., & Sewell, L. (2002). The effect of rehabilitation on positive interpretations of illness. Psychology and Health; 17, 753-760. 4. Sodergren, S. C., Hyland, M. E., Crawford, A., Partridge, M. R. (2004). Positivitiy in illness: self-delusion or existential growth? British Journal of Health Psychology, 9, 163-174. 5. Hyland, M. E., Sodergren, S. C., & Lewith, G. T. (in press). The role of positivity in chronic fatigue syndrome (CFS). Journal of Health Psychology. Primary use / Purpose: The Silver Lining Questionnaire measures the extent to which people believe their illness has had a positive benefit despite the negative consequences of being ill. Research suggests that this positive interpretation is not due to a form of self-delusion but instead reflects personal growth and that it can be enhanced by the context. Its role in recovery from illness is complex. Web link to tool: The Silver Lining Questionnaire Digital Object Identifier (DOI): http://dx.doi.org/10.13072/midss.78
- 6/30/20 - 1 form, 2 itemgroups, 37 items, 1 language
Itemgroups: Administrative documentation, CAREGIVER QUALITY OF LIFE- CANCER
M. A. Weitzner, P. B. Jacobsen, H. Wagner Jr., J. Friedland, C. Cox. (1996). The Caregiver Quality of Life Index-Cancer (CQOLC) scale. Measurement Instrument Database for the Social Science. Retrieved 30.06.2020, from www.midss.ie Key references: McMillan, S. C. (1996). Quality of life of primary caregivers of hospice patients with cancer. Cancer Pract;4:191-8. Weitzner, M. A., Jacobsen, P. B., Wagner, H., Friedland, J., & Cox, C. (1999). The Caregiver Quality of Life Index–Cancer (CQOLC) Scale: development and validation of an instrument to measure quality of life of the family caregiver of patients with cancer. Quality of Life Research, 8, 55–63. Zarit, S. H., Reever, K. E., Bach-Peterson, J. (1980). Relatives of the impaired elderly: correlates of feeling of burden. Gerontologist;20:649 -55. Primary use / Purpose: The Caregiver Quality of Life Index- Cancer (CQOLC) scale is a 35-item cancer-specific instrument that assesses the carer of a cancer patient's quality of life, that is, some of the physical, social, emotional, and financial aspects of well-being, and functioning. Background: A panoply of instruments measuring caregiver burden have been developed since Zarit, Reever, and Bach-Peterson's (1980) pioneering study investigating carer strain using the Zarit Burden interview. Yet, a dearth of studies exist for parsing the physical, emotional, social and financial well-being of the carer. McMillan (1996) designed a valid and reliable caregiver quality of life index to study such constructs in the partner of the patient. Later, Weitzner and colleagues (1999) modified this scale to serve as a well-being outcome measure specifically for carers of cancer patients. Psychometrics: The CQOLC possesses acceptable validity, test-retest reliability and internal consistency (see Weitzner, Jacobsen, Wagner, Friedland, & Cox, 1999). Other Information: Scoring instructions: items 4, 10, 12, 16, 22, 27, 28 and 34 on questionnaire should be reversed scored. Digital Object Identifier (DOI): http://dx.doi.org/10.13072/midss.388
- 6/25/20 - 1 form, 1 itemgroup, 5 items, 1 language
Itemgroup: Satisfaction With Life Scale-Child (SWLS-C)
Gadermann, A. M., Schonert-Reichl, K. A., & Zumbo, B. D. (2010). Satisfaction With Life Scale-Child (SWLS-C). Measurement Instrument Database for the Social Science. Retrieved 25.06.2020, from www.midss.ie Key references: Gadermann, A. M., Schonert-Reichl, K. A., & Zumbo, B. D. (2010). Investigating validity evidence of the Satisfaction with Life Scale adapted for Children. Social Indicators Research, 96, 229-247. Diener, E., Emmons, R. A., Larsen, R. J., & Griffin, S. (1985). The Satisfaction with Life Scale. Journal of Personality Assessment, 49, 71-75. Primary use / Purpose: The Satisfacation with Life Scale- Child (SWLS-C) is designed to measure children's judgements of their satisfaction with their life. Background: Gadermann et al. (2010) highlight several reasons why the study of children's life satisfaction is important. These include the development of a greater understanding of children's subjective well-being and its correlates, the monitoring of children's subjective well-being, and for the development of interventions to improve the well-being of children. Gadermann and colleagues (2010) adapted The Satisfaction with Life Scale (Diener, Emmons, Larsen, & Griffin, 1985), one of the most commonly used measures of life satisfaction in adults, for use with children between the ages of 9 and 14. The wording of the items and the response format was changed to make the scale more understandable for children. The resulting scale contains 5 items, each rated on a five-point likert scale from disagree a lot to agree a lot. Psychometrics: Gadermann et al. (2010) presents support for the psychometric properties of the instrument. SCORING: SWLS-C items are scored on a 5-point scale ranging from 1 (“disagree a lot”) to 5 (“agree a lot”) then added together yielding a total score ranging from 5 to 25. Digital Object Identifier (DOI): http://dx.doi.org/10.13072/midss.270