Search results - Portal of Medical Data Models (MDM-Portal)

Itemgroups: General Info, Current health limitations, Physical Health related problems during past 4 weeks, Emotional problems during past 4 weeks, Past 4 weeks, Emotions in past 4 weeks, General statements

This document contains the 36-Item Short Form Survey Instrument Version 1 (SF-36) form, developed at RAND as part of the Medical Outcomes Study. RAND owns the copyright. All of the surveys and tools from RAND Health are public documents, available without charge. For more information - e.g. on terms and conditions for use or scoring instructions: https://www.rand.org/health-care/surveys_tools/mos/36-item-short-form.html Changes made to the questionnaire should be made clearly identifiable.

HADS - Hospital Anxiety and Depression Scale (HADS)

- 11/16/18 - 1 form, 1 itemgroup, 14 items, 1 language

Itemgroup: In the past week

Hospital Anxiety and Depression Scale (HADS) was originally developed by [Zigmond, AS; Snaith, RP (1983). "The hospital anxiety and depression scale". Acta Psychiatrica Scandinavica 67 (6): 361–370] and is commonly used by doctors to determine the levels of anxiety and depression that a patient is experiencing. Also used for routine documentation at the University Hospital Muenster (UKM) see http://en.wikipedia.org/wiki/Hospital_Anxiety_and_Depression_Scale

DLQI - Dermatology Life Quality Index (DLQI)

- 9/7/16 - 1 form, 1 itemgroup, 12 items, 17 languages

Itemgroup: Skin problems past week

Details and Conditions of Use see: Finlay A.Y., Khan G.K. Dermatology Life Quality Index (DLQI) - A simple practical measure for routine clinical use. Clinical and Experimental Derm 1994; 19:210-16 Used as routine documentation at the University Hospital in Muenster (UKM).

Lamotrigine as add-on therapy in patients with a clinical diagnosis of a Lennox-Gastaut syndrome (105-123) - Visit 7 / Final Assessment - Vital Signs; Physical Examination; Compliance; Quality of Life; Global Evaluation

- 9/23/19 - 1 form, 12 itemgroups, 67 items, 1 language

Itemgroups: Administrative, Vital Signs, Physical Examination, Physical Examination - Changes, Neurological Examination, Neurological Examination, Haematology , Clinical Chemistry , Plasma Concentrations of AEDs , Compliance Record, Quality of Life, Global Evaluation

Study ID: 105-123 Clinical Study ID: 105-123 Study Title: Lamotrigine as add-on therapy in patients with clinical diagnosis of a Lennox-Gastaut syndrome (severe generalised epilepsy of childhood onset.) A multicentre, double-blind, placebo controlled parallel group study Patient Level Data: Study Listed on ClinicalStudyDataRequest.com Sponsor: GlaxoSmithKline Phase: Phase 3 Study Recruitment Status: Completed Generic Name: Lamotrigine Study Indication: Seizures

Topotecan (HycamtinTM) with Carboplatin as First-Line Chemotherapy in Patients with Ovarian Cancer; 104864/612 - Prior to Seventh Cycle

- 8/13/19 - 1 form, 4 itemgroups, 7 items, 1 language

Itemgroups: Administrative documentation, Serious Adverse Event, Questionnaires, Quality of life, Clinical Trials, Status

Study ID: 104864/612 Clinical Study ID: 104864/612 Study Title: A Prospective, Open Label Phase II Study to Evaluate the Efficacy and Safety of Topotecan (HycamtinTM) in Combination with Carboplatin as First-line Chemotherapy in Patients with Ovarian Cancer Patient Level Data: Study Listed on ClinicalStudyDataRequest.com Clinicaltrials.gov Identifier: N/A Sponsor: GlaxoSmithKline Collaborators: N/A Phase: Phase 2 Study Recruitment Status: Completed Generic Name: Topotecan Trade Name: HycamtinTM Study Indication: Ovarian Cancer

Patient reported outcome measures in ATTR amyloidosis (short version) - PROMs ATTR short

- 7/26/19 - 1 form, 4 itemgroups, 32 items, 1 language

Itemgroups: Introduction, Demographic Factors, Patient reported outcomes: Quality of life, Patient reported outcomes: Disability

Patient reported outcome measures (PROMS) in patients with ATTR amyloidosis (short version) Version 1.0.0 Revised July 20th, 2019 Dr. med. Fabian Johannes Bolte Klinik für Gastroenterologie und Hepatologie Universitätsklinikum Münster Conditions: ATTR Amyloidosis Study Population: 2nd European Meeting for ATTR amyloidosis in Berlin This form is used for patient reported outcome measures (PROMS) in patients with ATTR amyloidosis to understand patients challenges and needs. Use of the following Scores for this standard set: (1) Patient Reported Outcomes Measurement Information System Short Form version 1.1 Global Health (PROMIS-10) (2) World Health Organization Disability Assessment Schedule 2.0 (WHODAS 2.0)- 12-item Instrument

Patient reported outcome measures in ATTR amyloidosis - PROMs in ATTR amyloidosis

- 7/26/19 - 1 form, 9 itemgroups, 77 items, 1 language

Itemgroups: Introduction, Demographic Factors, Comorbidities, Patient reported outcomes: ATTR Diagnosis, First organ system involved, Patient reported outcomes: Quality of life, Patient reported outcomes: Disability, Patient reported Outcomes: ATTR Management, ATTR Therapy

Patient reported outcome measures (PROMS) in patients with ATTR amyloidosis Version 1.0.0 Revised July 20th, 2019 Dr. med. Fabian Johannes Bolte Klinik für Gastroenterologie und Hepatologie Universitätsklinikum Münster Conditions: ATTR Amyloidosis Study Population: 2nd European Meeting for ATTR amyloidosis in Berlin This form is used for patient reported outcome measures (PROMS) in patients with ATTR amyloidosis to understand patients challenges and needs. Use of the following Scores for this standard set: (1) Patient Reported Outcomes Measurement Information System Short Form version 1.1 Global Health (PROMIS-10) (2) World Health Organization Disability Assessment Schedule 2.0 (WHODAS 2.0)- 12-item Instrument

Lebensqualität bei Urtikaria - Lebensqualität

- 6/26/19 - 1 form, 4 itemgroups, 24 items, 1 language

Itemgroups: Symptome, Einschränkung, Probleme, Beurteilung durch den Patienten

Routine-Dokumentation Prof. Randolf Brehler, Hautklinik, UK Münster

BMLSS Brief Multidimensional Life Satisfaction Scale (generic)

- 6/25/19 - 1 form, 1 itemgroup, 11 items, 6 languages

Itemgroup: life satisfaction

Questionnaires on the quality of life and spirituality. A project of the Faculty of Health at University Witten/Herdecke. Publication granted by Prof. Dr. Büssing. Source: https://spneeds.uni-wh.de/ Spanish translation: Stefano Vinaccia. Polish translation: Janusz Surzykiewicz. Arabic translation: Dr. Fawwaz Ayoub Momani.

Cisplatin and Topotecan Recurrent or Persistent Carcinoma of the Cervix - 103369 - Quality of Life

- 3/15/19 - 1 form, 9 itemgroups, 62 items, 1 language

Itemgroups: Administrative data, Physical well-being, Social/Family Well-Being, Emotional Well-Being, Functional Well-Being, Additional Concerns, Brief Pain Inventory, BRIEF PAIN INVENTORY, Pain Interference

Study ID: 103369 Clinical Study ID: 103369 Study Title: A Randomized Phase III Study of Cisplatin Versus Cisplatin plus Topotecan Versus MVAC in Stage IVB, Recurrent or Persistent Squamous Cell Carcinoma of the Cervix Patient Level Data: Study Listed on ClinicalStudyDataRequest.com Clinicaltrials.gov Identifier: N/A Sponsor: GlaxoSmithKline Collaborators: N/A Phase: Phase 3 Study Recruitment Status: Completed Generic Name: Topotecan Trade Name: Topotecan Study Indication: Cancer

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