ID
40620
Description
ICHOM Older Person data collection Version 1.0.4 Revised: July 12, 2017 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. For Older Persons, the following treatment approaches are covered by our Standard Set. Treatment approaches: These have not been defined due to the wide range of management options and interventions for an older population. A number of potentially inappropriate medications have been listed as ‘medication variables’. This document contains the Baseline and Follow-up Caregiver-reported Form. It has to be filled in at patient's entry into the set (Baseline). For Follow-up: fill in at least annually, but may be filled in more often (annually for a 69 year old person not admitted to hospital within 1 year, but 6-monthly for a 84 year old person). Collecting Patient-Reported Outcome Measures: Medical Outcomes Study: 36-Item Short Form Survey Instrument Version 1 (SF-36). RAND owns the copyright. All of the surveys and tools from RAND Health are public documents, available without charge. No further written permission is needed for use of this Health Survey. For more information see http://www. rand.org/health/surveys_tools/mos/mos_ core_36item_survey.html UCLA 3-Item Loneliness Scale. Hughes ME, Waite LJ, Hawkley LC, Cacioppo JT (2004) A short scale for measuring loneliness in large surveys: Results from two population-based studies. Res Aging 26(6):655–672. Barthel Index. The Maryland State Medical Society holds the copyright for the Barthel Index. It may be used freely for non- commercial purposes with the following citation: Mahoney FI, Barthel D. “Functional evaluation: the Barthel Index.” Maryland State Med Journal 1965;14:56-61. Permission is required to modify the Barthel Index or to use it for commercial purposes. ASCOT Toolkit. As a license agreement is needed for use of this questionnaire, the used question will not be included in this version of the standard set word-for-word. Canadian Study on Health & Aging Clinical Frailty Scale. As a permission is needed for use, the scale will not be included in this version of the standard set word-for-word. Zarit Burden Interview. A license agreement might be neccessary for use of the long version of this questionnaire, for more information see https://eprovide.mapi-trust.org/instruments/zarit-burden-interview . For the used 4-item version (Questions 2, 3, 9, 19) see: Michel Bédard, D. William Molloy, Larry Squire, Sacha Dubois, Judith A. Lever, Martin O'Donnell, The Zarit Burden Interview: A New Short Version and Screening Version, The Gerontologist, Volume 41, Issue 5, 1 October 2001, Pages 652–657, https://doi.org/10.1093/geront/41.5.652. As license for use of this questionaire is not certain at the moment, only the total score will be included in this version of the standard set. Reference: Akpan A, Roberts C, Bandeen-Roche K, et al. Standard set of health outcome measures for older persons. BMC Geriatr. 2018;18(1):36. Published 2018 Feb 2. doi:10.1186/s12877-017-0701-3 (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5797357/) The Standard set of ICHOM was supported by NHS England. For this version of the standard set, semantic annotation with UMLS CUIs has been added.
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Versions (5)
- 6/27/19 6/27/19 -
- 6/27/19 6/27/19 -
- 7/24/19 7/24/19 -
- 7/26/19 7/26/19 - Sarah Riepenhausen
- 4/30/20 4/30/20 - Sarah Riepenhausen
Copyright Holder
ICHOM
Uploaded on
April 30, 2020
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Creative Commons BY-NC 4.0
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ICHOM Older Person
Baseline and Follow-up - Caregiver-reported
- StudyEvent: ODM
Description
Carer burden
Alias
- UMLS CUI-1
- C2828008 (Burden)
- UMLS CUI-2
- C0085537 (Caregiver)
- SNOMED
- 133932002
- LOINC
- LP76010-5
Description
As license for use of this questionaire is not certain at the moment, the question will not be given word for word. Inclusion Criteria: All patients Timing: Baseline and annually Reporting Source: Caregiver-reported Type: Single answer
Data type
integer
Alias
- UMLS CUI [1,1]
- C2828008 (Burden)
- UMLS CUI [1,2]
- C0085537 (Caregiver)
- SNOMED
- 133932002
- LOINC
- LP76010-5
- UMLS CUI [1,3]
- C0021822 (Interview)
- LOINC
- LA4601-6
Description
As license for use of this questionaire is not certain at the moment, the question will not be given word for word. Inclusion Criteria: All patients Timing: Baseline and annually Reporting Source: Caregiver-reported Type: Single answer
Data type
integer
Alias
- UMLS CUI [1,1]
- C2828008 (Burden)
- UMLS CUI [1,2]
- C0085537 (Caregiver)
- SNOMED
- 133932002
- LOINC
- LP76010-5
- UMLS CUI [1,3]
- C0021822 (Interview)
- LOINC
- LA4601-6
Description
As license for use of this questionaire is not certain at the moment, the question will not be given word for word. Inclusion Criteria: All patients Timing: Baseline and annually Reporting Source: Caregiver-reported Type: Single answer
Data type
integer
Alias
- UMLS CUI [1,1]
- C2828008 (Burden)
- UMLS CUI [1,2]
- C0085537 (Caregiver)
- SNOMED
- 133932002
- LOINC
- LP76010-5
- UMLS CUI [1,3]
- C0021822 (Interview)
- LOINC
- LA4601-6
Description
By creating this item the "sample questionnaire" of ICHOM has been taken as basis (in the originial standard set this item is scheduled for the Patient form). As license for use of this questionaire is not certain at the moment, the question will not be given word for word. Inclusion Criteria: All patients Timing: Baseline and annually Reporting Source: Patient-reported Type: Single answer
Data type
integer
Alias
- UMLS CUI [1,1]
- C2828008 (Burden)
- UMLS CUI [1,2]
- C0085537 (Caregiver)
- SNOMED
- 133932002
- LOINC
- LP76010-5
- UMLS CUI [1,3]
- C0021822 (Interview)
- LOINC
- LA4601-6
Description
Place of death
Alias
- UMLS CUI-1
- C0421611 (Place of death)
- SNOMED
- 313384009
Description
By creating this item the "sample questionnaire" of ICHOM has been taken as basis (in the originial standard set this item is scheduled for the Clinical form). Inclusion Criteria: Carers whose patient has died Timing: Baseline, Annually Reporting Source: Clinical Type: Single answer
Data type
integer
Alias
- UMLS CUI [1,1]
- C0011065 (Cessation of life)
- SNOMED
- 419620001
- UMLS CUI [1,2]
- C0421611 (Place of death)
- SNOMED
- 313384009
- UMLS CUI [1,3]
- C0558295 (preference)
- SNOMED
- 225773000
- UMLS CUI [1,4]
- C0680844 (estimation <subjective>)
- UMLS CUI [1,5]
- C0080103 (Relative (related person))
- SNOMED
- 125677006
Similar models
Baseline and Follow-up - Caregiver-reported
- StudyEvent: ODM
C1442488 (UMLS CUI [1,2])
C0085537 (UMLS CUI [1,2])
C0021822 (UMLS CUI [1,3])
C0085537 (UMLS CUI [1,2])
C0021822 (UMLS CUI [1,3])
C0085537 (UMLS CUI [1,2])
C0021822 (UMLS CUI [1,3])
C0085537 (UMLS CUI [1,2])
C0021822 (UMLS CUI [1,3])
C0421611 (UMLS CUI [1,2])
C0558295 (UMLS CUI [1,3])
C0680844 (UMLS CUI [1,4])
C0080103 (UMLS CUI [1,5])
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