ID

40620

Descrição

ICHOM Older Person data collection Version 1.0.4 Revised: July 12, 2017 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. For Older Persons, the following treatment approaches are covered by our Standard Set. Treatment approaches: These have not been defined due to the wide range of management options and interventions for an older population. A number of potentially inappropriate medications have been listed as ‘medication variables’. This document contains the Baseline and Follow-up Caregiver-reported Form. It has to be filled in at patient's entry into the set (Baseline). For Follow-up: fill in at least annually, but may be filled in more often (annually for a 69 year old person not admitted to hospital within 1 year, but 6-monthly for a 84 year old person). Collecting Patient-Reported Outcome Measures: Medical Outcomes Study: 36-Item Short Form Survey Instrument Version 1 (SF-36). RAND owns the copyright. All of the surveys and tools from RAND Health are public documents, available without charge. No further written permission is needed for use of this Health Survey. For more information see http://www. rand.org/health/surveys_tools/mos/mos_ core_36item_survey.html UCLA 3-Item Loneliness Scale. Hughes ME, Waite LJ, Hawkley LC, Cacioppo JT (2004) A short scale for measuring loneliness in large surveys: Results from two population-based studies. Res Aging 26(6):655–672. Barthel Index. The Maryland State Medical Society holds the copyright for the Barthel Index. It may be used freely for non- commercial purposes with the following citation: Mahoney FI, Barthel D. “Functional evaluation: the Barthel Index.” Maryland State Med Journal 1965;14:56-61. Permission is required to modify the Barthel Index or to use it for commercial purposes. ASCOT Toolkit. As a license agreement is needed for use of this questionnaire, the used question will not be included in this version of the standard set word-for-word. Canadian Study on Health & Aging Clinical Frailty Scale. As a permission is needed for use, the scale will not be included in this version of the standard set word-for-word. Zarit Burden Interview. A license agreement might be neccessary for use of the long version of this questionnaire, for more information see https://eprovide.mapi-trust.org/instruments/zarit-burden-interview . For the used 4-item version (Questions 2, 3, 9, 19) see: Michel Bédard, D. William Molloy, Larry Squire, Sacha Dubois, Judith A. Lever, Martin O'Donnell, The Zarit Burden Interview: A New Short Version and Screening Version, The Gerontologist, Volume 41, Issue 5, 1 October 2001, Pages 652–657, https://doi.org/10.1093/geront/41.5.652. As license for use of this questionaire is not certain at the moment, only the total score will be included in this version of the standard set. Reference: Akpan A, Roberts C, Bandeen-Roche K, et al. Standard set of health outcome measures for older persons. BMC Geriatr. 2018;18(1):36. Published 2018 Feb 2. doi:10.1186/s12877-017-0701-3 (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5797357/) The Standard set of ICHOM was supported by NHS England. For this version of the standard set, semantic annotation with UMLS CUIs has been added.

Link

http://www.ichom.org/

Palavras-chave

  1. 27/06/2019 27/06/2019 -
  2. 27/06/2019 27/06/2019 -
  3. 24/07/2019 24/07/2019 -
  4. 26/07/2019 26/07/2019 - Sarah Riepenhausen
  5. 30/04/2020 30/04/2020 - Sarah Riepenhausen
Titular dos direitos

ICHOM

Transferido a

30 de abril de 2020

DOI

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Licença

Creative Commons BY-NC 4.0

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ICHOM Older Person

Baseline and Follow-up - Caregiver-reported

Administrative Data
Descrição

Administrative Data

Alias
UMLS CUI-1
C1320722
Patient ID
Descrição

Supporting definition: This number will not be shared with ICHOM. In the case patient-level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution Inclusion criteria: All patients Timing: On all forms Reporting Source: Administrative or clinical Type: Numerical Response options: According to institution

Tipo de dados

integer

Alias
UMLS CUI [1]
C2348585
Time Relative to Baseline
Descrição

This Item does not exist in the original standard set, instead it is asked to do the following: Please timestamp all variables. Some Standard Set variables are collected at multiple timepoints, and we will ask you to submit these variables in a concatenated VARIABLEID_TIMESTAMP form for future analyses. For example, VARIABLEID_AT (After treatment); VARIABLEID_AS (After surgery); VARIABLEID_UPDATE (Update at least annually), etc.

Tipo de dados

text

Alias
UMLS CUI [1,1]
C0439564
UMLS CUI [1,2]
C1442488
Carer burden
Descrição

Carer burden

Alias
UMLS CUI-1
C2828008
UMLS CUI-2
C0085537
Question 1 of the 4-item Zarit Burden Interview
Descrição

As license for use of this questionaire is not certain at the moment, the question will not be given word for word. Inclusion Criteria: All patients Timing: Baseline and annually Reporting Source: Caregiver-reported Type: Single answer

Tipo de dados

integer

Alias
UMLS CUI [1,1]
C2828008
UMLS CUI [1,2]
C0085537
UMLS CUI [1,3]
C0021822
Question 2 of the 4-item Zarit Burden Interview
Descrição

As license for use of this questionaire is not certain at the moment, the question will not be given word for word. Inclusion Criteria: All patients Timing: Baseline and annually Reporting Source: Caregiver-reported Type: Single answer

Tipo de dados

integer

Alias
UMLS CUI [1,1]
C2828008
UMLS CUI [1,2]
C0085537
UMLS CUI [1,3]
C0021822
Question 3 of the 4-item Zarit Burden Interview
Descrição

As license for use of this questionaire is not certain at the moment, the question will not be given word for word. Inclusion Criteria: All patients Timing: Baseline and annually Reporting Source: Caregiver-reported Type: Single answer

Tipo de dados

integer

Alias
UMLS CUI [1,1]
C2828008
UMLS CUI [1,2]
C0085537
UMLS CUI [1,3]
C0021822
Question 4 of the 4-item Zarit Burden Interview
Descrição

By creating this item the "sample questionnaire" of ICHOM has been taken as basis (in the originial standard set this item is scheduled for the Patient form). As license for use of this questionaire is not certain at the moment, the question will not be given word for word. Inclusion Criteria: All patients Timing: Baseline and annually Reporting Source: Patient-reported Type: Single answer

Tipo de dados

integer

Alias
UMLS CUI [1,1]
C2828008
UMLS CUI [1,2]
C0085537
UMLS CUI [1,3]
C0021822
Place of death
Descrição

Place of death

Alias
UMLS CUI-1
C0421611
Please indicate whether you believe your relative died in their place of preference?
Descrição

By creating this item the "sample questionnaire" of ICHOM has been taken as basis (in the originial standard set this item is scheduled for the Clinical form). Inclusion Criteria: Carers whose patient has died Timing: Baseline, Annually Reporting Source: Clinical Type: Single answer

Tipo de dados

integer

Alias
UMLS CUI [1,1]
C0011065
UMLS CUI [1,2]
C0421611
UMLS CUI [1,3]
C0558295
UMLS CUI [1,4]
C0680844
UMLS CUI [1,5]
C0080103

Similar models

Baseline and Follow-up - Caregiver-reported

Name
Tipo
Description | Question | Decode (Coded Value)
Tipo de dados
Alias
Item Group
Administrative Data
C1320722 (UMLS CUI-1)
Patient ID
Item
Patient ID
integer
C2348585 (UMLS CUI [1])
Time Relative to Baseline
Item
Time Relative to Baseline
text
C0439564 (UMLS CUI [1,1])
C1442488 (UMLS CUI [1,2])
Item Group
Carer burden
C2828008 (UMLS CUI-1)
C0085537 (UMLS CUI-2)
Question 1 of the 4-item Zarit Burden Interview
Item
Question 1 of the 4-item Zarit Burden Interview
integer
C2828008 (UMLS CUI [1,1])
C0085537 (UMLS CUI [1,2])
C0021822 (UMLS CUI [1,3])
Question 2 of the 4-item Zarit Burden Interview
Item
Question 2 of the 4-item Zarit Burden Interview
integer
C2828008 (UMLS CUI [1,1])
C0085537 (UMLS CUI [1,2])
C0021822 (UMLS CUI [1,3])
Question 3 of the 4-item Zarit Burden Interview
Item
Question 3 of the 4-item Zarit Burden Interview
integer
C2828008 (UMLS CUI [1,1])
C0085537 (UMLS CUI [1,2])
C0021822 (UMLS CUI [1,3])
Question 4 of the 4-item Zarit Burden Interview
Item
Question 4 of the 4-item Zarit Burden Interview
integer
C2828008 (UMLS CUI [1,1])
C0085537 (UMLS CUI [1,2])
C0021822 (UMLS CUI [1,3])
Item Group
Place of death
C0421611 (UMLS CUI-1)
Item
Please indicate whether you believe your relative died in their place of preference?
integer
C0011065 (UMLS CUI [1,1])
C0421611 (UMLS CUI [1,2])
C0558295 (UMLS CUI [1,3])
C0680844 (UMLS CUI [1,4])
C0080103 (UMLS CUI [1,5])
Code List
Please indicate whether you believe your relative died in their place of preference?
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
No (2)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Unknown (3)
C0439673 (UMLS CUI-1)
(Comment:en)

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