ID

40573

Descrição

ICHOM Lung cancer data collection Version 2.3.1 Revised: April 10th, 2017 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. For Lung Cancer, the following conditions and treatment approaches (or interventions) are covered by our Standard Set. Conditions: Small Cell and Non-Small Cell Lung Cancer Treatment Approaches: Surgery | Radiotherapy | Chemotherapy | Targeted Therapy | Immunotherapy | Other This document contains Begin of treatment - Clinical Form. Collecting Patient-Reported Outcome Measures: European Organization for Research and Treatment of Cancer Quality of Life Questionnaire (EORTC QLQ-C30). European Organization for Research and Treatment of Cancer Quality of Life Lung Cancer-Specific Questionnaire (EORTC QLQ-LC13). Both are free for all health care organizations, but a license is needed for use. http:// groups.eortc.be/qol/eortc-qlq-c30 is the official distribution site for EORTC QLQ-C30 and EORTC QLQ-LC13 questionnaires. Therefore only the total score will be included in this version of the standard set. Publication: Mak KS, van Bommel AC, Stowell C, et al. Defining a standard set of patient-centred outcomes for lung cancer. Eur Respir J. 2016;48(3):852–860. doi:10.1183/13993003.02049-2015 For this standard set ICHOM was supported by the Alliance of Dedicated Cancer Centers. For this version of the standard set, semantic annotation with UMLS CUIs has been added.

Link

http://www.ichom.org/

Palavras-chave

Versões (3)
  1. 14.05.19 14.05.19 -
  2. 20.05.19 20.05.19 -
  3. 30.04.20 30.04.20 - Sarah Riepenhausen
Titular dos direitos

ICHOM

Transferido a

30. April 2020

DOI

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Licença

Creative Commons BY-NC 4.0
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ICHOM Lung Cancer

Inglês

Begin of treatment - Clinical Form

1 Formulários  
Administrative data
Descrição

Administrative data

Alias
UMLS CUI-1
C1320722
Indicate the patient's medical record number
Descrição

Supporting Definition: This number will not be shared with ICHOM. In the case patient-­‐level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-­‐linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution Inclusion Criteria: All patients Timing: On all forms Data Source: Administrative or clinical Type: Numerical Response Options: According to institution

Tipo de dados

integer

Alias
UMLS CUI [1]
C2348585
Other
Descrição

Other

Alias
UMLS CUI-1
C0205394
Indicate when patient was diagnosed by pathology
Descrição

Inclusion Criteria: All patients Timing: When treatment begins Data Source: Clinical Type: Date by DD/MM/YYYY

Tipo de dados

date

Unidades de medida
  • DD/MM/YYYY
Alias
UMLS CUI [1,1]
C2316983
UMLS CUI [1,2]
C1317598
UMLS CUI [2,1]
C2316983
UMLS CUI [2,2]
C0332140
DD/MM/YYYY
Indicate how pathologic or clinical diagnosis was made
Descrição

Inclusion Criteria: All patients Timing: When treatment begins Data Source: Clinical Type: Single answer Response Options: Pathologic (preferred if available, indicated earliest recorded method) 1 = Date specimen taken 2 = Date specimen received 3 = Date of pathology report Clinical diagnosis (if pathologic diagnosis unavailable) 4 = Date of admission to hospital because of this malignancy 5 = Date of first consultation at the outpatient clinic because of this malignancy (if only outpatient data available) 888 = Other

Tipo de dados

integer

Alias
UMLS CUI [1,1]
C2911685
UMLS CUI [1,2]
C0011900
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Similar models

Begin of treatment - Clinical Form

1 Formulários
Name
Tipo
Description | Question | Decode (Coded Value)
Tipo de dados
Alias
Item Group
Administrative data
C1320722 (UMLS CUI-1)
Patient ID
Item
Indicate the patient's medical record number
integer
C2348585 (UMLS CUI [1])
Item Group
Other
C0205394 (UMLS CUI-1)
Date of pathologic or clinical diagnosis
Item
Indicate when patient was diagnosed by pathology
date
C2316983 (UMLS CUI [1,1])
C1317598 (UMLS CUI [1,2])
C2316983 (UMLS CUI [2,1])
C0332140 (UMLS CUI [2,2])
Item
Indicate how pathologic or clinical diagnosis was made
integer
C2911685 (UMLS CUI [1,1])
C0011900 (UMLS CUI [1,2])
Method
Code List
Indicate how pathologic or clinical diagnosis was made
CL Item
Date specimen taken (1)
C1302413 (UMLS CUI-1)
(Comment:en)
CL Item
Date specimen received (2)
C0011008 (UMLS CUI-1)
C2585542 (UMLS CUI-2)
(Comment:en)
CL Item
Date of pathology report (3)
C1302659 (UMLS CUI-1)
(Comment:en)
CL Item
Date of admission to hospital because of this malignancy (4)
C0806429 (UMLS CUI-1)
(Comment:en)
CL Item
Date of first consultation at the outpatient clinic because of this malignancy (if only outpatient data available) (5)
C0011008 (UMLS CUI-1)
C0029921 (UMLS CUI-2)
C0009818 (UMLS CUI-3)
C0033131 (UMLS CUI-4)
(Comment:en)
CL Item
Other (888)
C0205394 (UMLS CUI-1)
(Comment:en)
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