ID

36519

Description

ICHOM Lung cancer data collection Version 2.3.1 Revised: April 10th, 2017 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ For Lung Cancer, the following conditions and treatment approaches (or interventions) are covered by our Standard Set. Conditions: Small Cell and Non-Small Cell Lung Cancer Treatment Approaches: Surgery | Radiotherapy | Chemotherapy | Targeted Therapy | Immunotherapy | Other This document contains Begin of treatment - Clinical Form. Collecting Patient-Reported Outcome Measures: European Organization for Research and Treatment of Cancer Quality of Life Questionnaire (EORTC QLQ-C30). European Organization for Research and Treatment of Cancer Quality of Life Lung Cancer-Specific Questionnaire (EORTC QLQ-LC13). Both are free for all health care organizations, but a license is needed for use. http:// groups.eortc.be/qol/eortc-qlq-c30 is the official distribution site for EORTC QLQ-C30 and EORTC QLQ-LC13 questionnaires. Therefore only the total score will be included in this version of the standard set. Publication: Mak KS, van Bommel AC, Stowell C, et al. Defining a standard set of patient-centred outcomes for lung cancer. Eur Respir J. 2016;48(3):852–860. doi:10.1183/13993003.02049-2015 For this standard set ICHOM was supported by the Alliance of Dedicated Cancer Centers.

Link

http://www.ichom.org/

Keywords

Versions (3)
  1. 5/14/19 5/14/19 -
  2. 5/20/19 5/20/19 -
  3. 4/30/20 4/30/20 - Sarah Riepenhausen
Copyright Holder

ICHOM

Uploaded on

May 20, 2019

DOI

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License

Creative Commons BY-NC 3.0
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ICHOM Lung Cancer

English

Begin of treatment - Clinical Form

1 forms  
Administrative data
Description

Administrative data

Alias
UMLS CUI-1
C1320722
Indicate the patient's medical record number
Description

Supporting Definition: This number will not be shared with ICHOM. In the case patient-­‐level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-­‐linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution Inclusion Criteria: All patients Timing: On all forms Data Source: Administrative or clinical Type: Numerical Response Options: According to institution

Data type

integer

Alias
UMLS CUI [1]
C2348585
Other
Description

Other

Alias
UMLS CUI-1
C0205394
Indicate when patient was diagnosed by pathology
Description

Inclusion Criteria: All patients Timing: When treatment begins Data Source: Clinical Type: Date by DD/MM/YYYY

Data type

date

Measurement units
  • DD/MM/YYYY
Alias
UMLS CUI [1,1]
C2316983
UMLS CUI [1,2]
C1317598
UMLS CUI [2,1]
C2316983
UMLS CUI [2,2]
C0332140
DD/MM/YYYY
Indicate how pathologic or clinical diagnosis was made
Description

Inclusion Criteria: All patients Timing: When treatment begins Data Source: Clinical Type: Single answer Response Options: Pathologic (preferred if available, indicated earliest recorded method) 1 = Date specimen taken 2 = Date specimen received 3 = Date of pathology report Clinical diagnosis (if pathologic diagnosis unavailable) 4 = Date of admission to hospital because of this malignancy 5 = Date of first consultation at the outpatient clinic because of this malignancy (if only outpatient data available) 888 = Other

Data type

integer

Alias
UMLS CUI [1,1]
C2911685
UMLS CUI [1,2]
C0011900
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Similar models

Begin of treatment - Clinical Form

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Administrative data
C1320722 (UMLS CUI-1)
Patient ID
Item
Indicate the patient's medical record number
integer
C2348585 (UMLS CUI [1])
Item Group
Other
C0205394 (UMLS CUI-1)
Date of pathologic or clinical diagnosis
Item
Indicate when patient was diagnosed by pathology
date
C2316983 (UMLS CUI [1,1])
C1317598 (UMLS CUI [1,2])
C2316983 (UMLS CUI [2,1])
C0332140 (UMLS CUI [2,2])
Item
Indicate how pathologic or clinical diagnosis was made
integer
C2911685 (UMLS CUI [1,1])
C0011900 (UMLS CUI [1,2])
Method
Code List
Indicate how pathologic or clinical diagnosis was made
CL Item
Date specimen taken (1)
C1302413 (UMLS CUI-1)
(Comment:en)
CL Item
Date specimen received (2)
C0011008 (UMLS CUI-1)
C2585542 (UMLS CUI-2)
(Comment:en)
CL Item
Date of pathology report (3)
C1302659 (UMLS CUI-1)
(Comment:en)
CL Item
Date of admission to hospital because of this malignancy (4)
C0806429 (UMLS CUI-1)
(Comment:en)
CL Item
Date of first consultation at the outpatient clinic because of this malignancy (if only outpatient data available) (5)
C0011008 (UMLS CUI-1)
C0029921 (UMLS CUI-2)
C0009818 (UMLS CUI-3)
C0033131 (UMLS CUI-4)
(Comment:en)
CL Item
Other (888)
C0205394 (UMLS CUI-1)
(Comment:en)
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