ID
40551
Beskrivning
CHRONIC KIDNEY DISEASE DATA COLLECTION Version 1.0.0 Revised October 25th, 2017 www.ichom.org Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. Conditions: Chronic Kidney Disease Stage G3a/A3 | Chronic Kidney Disease StageG 3b/A2/A3 | Chronic Kidney Disease Stage G4 | Chronic Kidney Disease Stage G5 (KDIGO 2012 Stages) Treatment Approaches: Pre-RRT = Pre-Renal Replacement Therapy | HD = Haemodialysis | PD = Peritoneal Dialysis | Tx = Renal Transplantation | CC = Conservative Care This ODM-file contains patient reported outcome variables, to be collected at baseline and 6-monthly (HD, PD and CC) or annually (Pre-RRT and Tx) after that, from the following surveys: PROMIS-Global Health and PROMIS-29: Free for use in clinical practice. As http://www.nihpromis.org/ is the official distribution site for PROMIS questionnaires and translations, only the total score will be included in this version of the standard set. RAND-36: The RAND 36-Item Short Form Survey (SF-36) was developed at RAND as part of the Medical Outcomes Study: https://www.rand.org/health/surveys_tools/mos/36-item-short-form.html . Publication: Verberne WR, Das-Gupta Z, Allegretti AS, et al. Development of an International Standard Set of Value-Based Outcome Measures for Patients With Chronic Kidney Disease: A Report of the International Consortium for Health Outcomes Measurement (ICHOM) CKD Working Group. American Journal of Kidney Diseases. Volume 73, Issue 3, 2019, Pages 372-384, ISSN 0272-6386, https://doi.org/10.1053/j.ajkd.2018.10.007 ICHOM was supported for the Chronic Kidney Disease Standard Set by NSW Agency for Clinical Innovation, Providence Health and Services, ERCPA, santeon and Dutch Kidney Foundation. For this version of the standard set, semantic annotation with UMLS CUIs has been added.
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Nyckelord
Versioner (2)
- 2018-09-12 2018-09-12 - Sarah Riepenhausen
- 2020-04-30 2020-04-30 - Sarah Riepenhausen
Rättsinnehavare
ICHOM
Uppladdad den
30 april 2020
DOI
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Licens
Creative Commons BY-NC 4.0
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ICHOM Chronic Kidney Disease
Patient-reported Outcome
- StudyEvent: ODM
Beskrivning
Patient-Reported Health and Wellbeing
Alias
- UMLS CUI-1
- C2987124
Beskrivning
INCLUSION CRITERIA: All patients TIMING: HD, PD & CC= Baseline and 6-monthly, Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C2987124
- UMLS CUI [1,2]
- C2911685
Beskrivning
The original standard set contains all questions of PROMIS-29 with IDs from PROMIS-29_Q01 to PROMIS-29_Q29, the order may however not be identical. Please see ICHOMs reference guide. INCLUSION CRITERIA: If "1 = PROMIS-Global Health & PROMIS-29" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: (original: Single answer)
Datatyp
text
Alias
- UMLS CUI [1]
- C4330926
Beskrivning
The original standard set contains all questions of PROMIS-Global health with IDs from PROMIS-G_Q01 to PROMIS-G_Q10, in the following order: 1-5, 9, 6, 10, 8, 7. INCLUSION CRITERIA: If "1 = PROMIS-Global Health & PROMIS-29" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: (original: Single answer)
Datatyp
text
Alias
- UMLS CUI [1]
- C3836333
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly, Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3828376
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3828376
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3828387
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3828388
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3828389
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3828390
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3828391
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3828392
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3828386
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3828385
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3827288
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3828393
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3828381
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3828382
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3828379
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3828380
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3828405
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3828406
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3828404
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3828402
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3828407
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3828383
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3828401
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3828408
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3828396
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3828398
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3828394
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3828397
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3828399
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3828409
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3828400
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3828375
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3828395
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3828410
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3828403
Beskrivning
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3828384
Similar models
Patient-reported Outcome
- StudyEvent: ODM
C1442488 (UMLS CUI [1,2])
C2911685 (UMLS CUI [1,2])
C4330926 (UMLS CUI-2)
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