ID
40551
Descrizione
CHRONIC KIDNEY DISEASE DATA COLLECTION Version 1.0.0 Revised October 25th, 2017 www.ichom.org Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. Conditions: Chronic Kidney Disease Stage G3a/A3 | Chronic Kidney Disease StageG 3b/A2/A3 | Chronic Kidney Disease Stage G4 | Chronic Kidney Disease Stage G5 (KDIGO 2012 Stages) Treatment Approaches: Pre-RRT = Pre-Renal Replacement Therapy | HD = Haemodialysis | PD = Peritoneal Dialysis | Tx = Renal Transplantation | CC = Conservative Care This ODM-file contains patient reported outcome variables, to be collected at baseline and 6-monthly (HD, PD and CC) or annually (Pre-RRT and Tx) after that, from the following surveys: PROMIS-Global Health and PROMIS-29: Free for use in clinical practice. As http://www.nihpromis.org/ is the official distribution site for PROMIS questionnaires and translations, only the total score will be included in this version of the standard set. RAND-36: The RAND 36-Item Short Form Survey (SF-36) was developed at RAND as part of the Medical Outcomes Study: https://www.rand.org/health/surveys_tools/mos/36-item-short-form.html . Publication: Verberne WR, Das-Gupta Z, Allegretti AS, et al. Development of an International Standard Set of Value-Based Outcome Measures for Patients With Chronic Kidney Disease: A Report of the International Consortium for Health Outcomes Measurement (ICHOM) CKD Working Group. American Journal of Kidney Diseases. Volume 73, Issue 3, 2019, Pages 372-384, ISSN 0272-6386, https://doi.org/10.1053/j.ajkd.2018.10.007 ICHOM was supported for the Chronic Kidney Disease Standard Set by NSW Agency for Clinical Innovation, Providence Health and Services, ERCPA, santeon and Dutch Kidney Foundation. For this version of the standard set, semantic annotation with UMLS CUIs has been added.
collegamento
Keywords
versioni (2)
- 12/09/18 12/09/18 - Sarah Riepenhausen
- 30/04/20 30/04/20 - Sarah Riepenhausen
Titolare del copyright
ICHOM
Caricato su
30 aprile 2020
DOI
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Licenza
Creative Commons BY-NC 4.0
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ICHOM Chronic Kidney Disease
Patient-reported Outcome
- StudyEvent: ODM
Descrizione
Patient-Reported Health and Wellbeing
Alias
- UMLS CUI-1
- C2987124
Descrizione
INCLUSION CRITERIA: All patients TIMING: HD, PD & CC= Baseline and 6-monthly, Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1,1]
- C2987124
- UMLS CUI [1,2]
- C2911685
Descrizione
The original standard set contains all questions of PROMIS-29 with IDs from PROMIS-29_Q01 to PROMIS-29_Q29, the order may however not be identical. Please see ICHOMs reference guide. INCLUSION CRITERIA: If "1 = PROMIS-Global Health & PROMIS-29" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: (original: Single answer)
Tipo di dati
text
Alias
- UMLS CUI [1]
- C4330926
Descrizione
The original standard set contains all questions of PROMIS-Global health with IDs from PROMIS-G_Q01 to PROMIS-G_Q10, in the following order: 1-5, 9, 6, 10, 8, 7. INCLUSION CRITERIA: If "1 = PROMIS-Global Health & PROMIS-29" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: (original: Single answer)
Tipo di dati
text
Alias
- UMLS CUI [1]
- C3836333
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly, Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3828376
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3828376
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3828387
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3828388
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3828389
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3828390
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3828391
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3828392
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3828386
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3828385
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3827288
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3828393
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3828381
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3828382
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3828379
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3828380
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3828405
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3828406
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3828404
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3828402
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3828407
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3828383
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3828401
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3828408
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3828396
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3828398
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3828394
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3828397
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3828399
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3828409
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3828400
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3828375
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3828395
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3828410
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3828403
Descrizione
INCLUSION CRITERIA: If "2 = RAND-36" to PROMCHOICE TIMING: HD, PD & CC= Baseline and 6-monthly Pre-RRT & Tx = Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Tipo di dati
integer
Alias
- UMLS CUI [1]
- C3828384
Similar models
Patient-reported Outcome
- StudyEvent: ODM
C1442488 (UMLS CUI [1,2])
C2911685 (UMLS CUI [1,2])
C4330926 (UMLS CUI-2)
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