ID
40548
Beschrijving
INFLAMMATORY ARTHRITIS DATA COLLECTION Version 1.0.0 Revised: April 27 th, 2018 www.ichom.org Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. Conditions: Rheumatoid Arthritis | Psoriatic Arthritis | Ankylosing Spondylitis | Juvenile Idiopathic Arthritis This ODM-file contains Patient-reported Variables to be administered at baseline visit and annually. The following scores are the ones that are integrated into the standard set. There are alternatives for each category: see questionnaire or data collection guide. PAIN: - Numerical Rating Scale (Adult/Paediatric) FATIGUE - Numerical rating Scale (Adult/Paediatric) ACTIVITY LIMITATION: - HAQ-II* (Adult): copyright FORWARD-The National Data Bank for Rheumatic Diseases, arthritis-research.org ; http://bit.ly/HAQIIIA ; Wolfe F, Michaud K, Pincus T. Development and validation of the health assessment questionnaire II: a revised version of the health assessment questionnaire. Arthritis & Rheumatism. 2004;50(10):3296-305. OVERALL EMOTIONAL AND PHYSICAL HEALTH IMPACT - Numerical rating scale (Adult/Paediatric) WORK/SCHOOL/HOUSEWORK ABILITY AND PRODUCTIVITY: - WPAI (Adult): reillyassociates.net/WPAI_General.html, they ask to inform them about publication or presentation of WPAI-data ICHOM was supported for the Inflammatory Arthritis Standard Set by Santeon, Arthritis Research UK, TiH Transparency in Healthcare, Maasstad Ziekenhuis, Karolinska Universitetssjukhuset and Sheba Academic Medical Center Hospital. Publication: Oude Voshaar MAH, Das Gupta Z, Bijlsma JWJ, et al. International Consortium for Health Outcome Measurement Set of Outcomes That Matter to People Living With Inflammatory Arthritis: Consensus From an International Working Group. Arthritis Care Res (Hoboken). 2019;71(12):1556‐1565. doi:10.1002/acr.23799 For this version of the standard set, semantic annotation with UMLS CUIs has been added.
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- 21-09-18 21-09-18 - Sarah Riepenhausen
- 30-04-20 30-04-20 - Sarah Riepenhausen
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ICHOM Inflammatory Arthritis
Patient-reported Form
- StudyEvent: ODM
Beschrijving
Patient-Reported Health and Wellbeing
Alias
- UMLS CUI-1
- C2987124
- UMLS CUI-2
- C0018759
- UMLS CUI-3
- C2939150
Beschrijving
Choose one from: Numerical Rating Scale Visual Analogue Scale SF-36 Bodily Pain PROMIS Pain Interference PedsQL Pain and Hurt INCLUSION CRITERIA: All patients TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0030193
- UMLS CUI [1,2]
- C4277735
Beschrijving
0 = None 10 = Extreme INCLUSION CRITERIA: If "1 = NRS" to PROMCHOICE_PAIN TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Numerical
Datatype
integer
Alias
- UMLS CUI [1]
- C1518471
Beschrijving
Choose one from: Numerical Rating Scale Visual Analogue Scale FACIT-F BRAF PROMIS Fatigue PedsQL4.0 Fatigue Total Score INCLUSION CRITERIA: All patients TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0015672
- UMLS CUI [1,2]
- C4277735
Beschrijving
0 = No fatigue 10 = Totally exhausted INCLUSION CRITERIA: If "1 = NRS" to PROMCHOICE_FAT TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Numerical
Datatype
integer
Alias
- UMLS CUI [1,1]
- C4050142
- UMLS CUI [1,2]
- C0015672
Beschrijving
Choose one from: HAQ-II HAQ-DI MHAQ MD-HAQ PROMIS Physical Function BASFI C-HAQ JAMAR INCLUSION CRITERIA: All patients TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0026606
- UMLS CUI [1,2]
- C4277735
Beschrijving
INCLUSION CRITERIA: If "1 = HAQ-II" to PROMCHOICE_ACT TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C2697568
- UMLS CUI [1,2]
- C4329245
Beschrijving
INCLUSION CRITERIA: If "1 = HAQ-II" to PROMCHOICE_ACT TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C2697568
- UMLS CUI [1,2]
- C4055526
Beschrijving
INCLUSION CRITERIA: If "1 = HAQ-II" to PROMCHOICE_ACT TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C2697568
- UMLS CUI [1,2]
- C0578228
Beschrijving
INCLUSION CRITERIA: If "1 = HAQ-II" to PROMCHOICE_ACT TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C2697568
- UMLS CUI [1,2]
- C4329244
Beschrijving
INCLUSION CRITERIA: If "1 = HAQ-II" to PROMCHOICE_ACT TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C2697568
- UMLS CUI [1,2]
- C4329242
Beschrijving
INCLUSION CRITERIA: If "1 = HAQ-II" to PROMCHOICE_ACT TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C2697568
- UMLS CUI [1,2]
- C3869579
Beschrijving
INCLUSION CRITERIA: If "1 = HAQ-II" to PROMCHOICE_ACT TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C2697568
- UMLS CUI [1,2]
- C3869578
Beschrijving
INCLUSION CRITERIA: If "1 = HAQ-II" to PROMCHOICE_ACT TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C2697568
- UMLS CUI [1,2]
- C3869577
Beschrijving
INCLUSION CRITERIA: If "1 = HAQ-II" to PROMCHOICE_ACT TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C2697568
- UMLS CUI [1,2]
- C3869576
Beschrijving
INCLUSION CRITERIA: If "1 = HAQ-II" to PROMCHOICE_ACT TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C2697568
- UMLS CUI [1,2]
- C3869575
Beschrijving
Choose one from: Numerical Rating Scale (Patient Global Assessment) Visual Analogue Scale (Patient Global Assessment) PROMIS Global Health EQ-5D-5L SF-6D Raid Psaid PedsQL3.0 PedsQL4.0 PROMIS Global Health Paediatric EQ-5D-Y INCLUSION CRITERIA: All patients TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C4277735
- UMLS CUI [1,2]
- C3641833
- UMLS CUI [1,3]
- C0517226
Beschrijving
0 = No impact 10 = Extreme impact INCLUSION CRITERIA: If "1 = NRS (Patient Global Assessment)" to PROMCHOICE_OEPHI TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C4050142
- UMLS CUI [1,2]
- C3641833
- UMLS CUI [1,3]
- C0517226
Beschrijving
Choose one from: WPAI PedsQL4.0 - School Function INCLUSION CRITERIA: All patients TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C4329245
- UMLS CUI [1,2]
- C0563673
- UMLS CUI [1,3]
- C0518076
Beschrijving
INCLUSION CRITERIA: If "1 = WPAI" to PROMCHOICE_WSHAP TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C4053845
- UMLS CUI [1,2]
- C0242271
Beschrijving
INCLUSION CRITERIA: If "1 = Yes" to WPAI_GH_Q01 TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Numerical value
Datatype
integer
Alias
- UMLS CUI [1,1]
- C4053845
- UMLS CUI [1,2]
- C4054768
Beschrijving
INCLUSION CRITERIA: If "1 = Yes" to WPAI_GH_Q01 TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Numerical value
Datatype
integer
Alias
- UMLS CUI [1,1]
- C4053845
- UMLS CUI [1,2]
- C4054769
Beschrijving
INCLUSION CRITERIA: If "1 = Yes" to WPAI_GH_Q01 TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Numerical value
Datatype
integer
Alias
- UMLS CUI [1,1]
- C4053845
- UMLS CUI [1,2]
- C4054767
Beschrijving
Scale: 0 = Health problems had no effect on my work 10 = Health problems completely prevented me from working INCLUSION CRITERIA: If ">0" to WPAI_GH_Q04 TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Numerical value
Datatype
integer
Alias
- UMLS CUI [1,1]
- C4053845
- UMLS CUI [1,2]
- C4054828
Beschrijving
Scale: 0 = Health problems had no effect on my daily activities 10 = Health problems completely prevented me from doing my daily activities INCLUSION CRITERIA: If "1 = WPAI" to PROMCHOICE_WSHAP TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Numerical value
Datatype
integer
Alias
- UMLS CUI [1,1]
- C4053845
- UMLS CUI [1,2]
- C4054829
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C0034394 (UMLS CUI-3)
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C0030755 (UMLS CUI-2)
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C3641833 (UMLS CUI [1,2])
C0517226 (UMLS CUI [1,3])
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