ID

31684

Description

INFLAMMATORY ARTHRITIS DATA COLLECTION Version 1.0.0 Revised: April 27 th, 2018 www.ichom.org Conditions: Rheumatoid Arthritis | Psoriatic Arthritis | Ankylosing Spondylitis | Juvenile Idiopathic Arthritis This ODM-file contains Patient-reported Variables to be administered at baseline visit and annually. Please timestamp all variables. Some Standard Set variables are collected at multiple timepoints, and we will ask you to submit these variables in a concatenated VARIABLEID_TIMESTAMP form for future analyses. TEST StudyFor example, VARIABLEID_BASE (baseline); VARIABLEID_6MO (6 month follow-up); VARIABLEID_1YR (1 year follow-up), etc. The following scores are the ones that are integrated into the standard set. There are alternatives for each category: see questionnaire or data collection guide. PAIN: - Numerical Rating Scale (Adult/Paediatric) FATIGUE - Numerical rating Scale (Adult/Paediatric) ACTIVITY LIMITATION: - HAQ-II* (Adult): copyright FORWARD-The National Data Bank for Rheumatic Diseases, arthritis-research.org ; http://bit.ly/HAQIIIA ; Wolfe F, Michaud K, Pincus T. Development and validation of the health assessment questionnaire II: a revised version of the health assessment questionnaire. Arthritis & Rheumatism. 2004;50(10):3296-305. OVERALL EMOTIONAL AND PHYSICAL HEALTH IMPACT - Numerical rating scale (Adult/Paediatric) WORK/SCHOOL/HOUSEWORK ABILITY AND PRODUCTIVITY: - WPAI (Adult): reillyassociates.net/WPAI_General.html, they ask to inform them about publication or presentation of WPAI-data ICHOM was supported by Santeon, Arthritis Research UK, TiH Transparency in Healthcare, Maasstad Ziekenhuis, Karolinska Universitetssjukhuset, Sheba Academic Medical Center Hospital

Link

www.ichom.org

Keywords

  1. 9/21/18 9/21/18 - Sarah Riepenhausen
  2. 4/30/20 4/30/20 - Sarah Riepenhausen
Copyright Holder

ICHOM

Uploaded on

September 21, 2018

DOI

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License

Creative Commons BY-NC 3.0

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ICHOM Inflammatory Arthritis

Patient-reported Form

  1. StudyEvent: ODM
    1. Patient-reported Form
Administrative Data
Description

Administrative Data

Alias
UMLS CUI-1
C1320722
Indicate the patient's medical record number
Description

This number will not be shared with ICHOM. In the case patient-level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution INCLUSION CRITERIA: All patients TIMING: On all forms REPORTING SOURCE: Administrative or clinical TYPE: Numerical RESPONSE OPTIONS: According to institution

Data type

integer

Alias
UMLS CUI [1]
C1269815
Time Relative to Baseline (e.g. 3 months follow-up, 6 months follow-up, 1 year follow-up, ...)
Description

This Item does not exist in the original standard set, instead it is asked to do the following: Please timestamp all variables. Some Standard Set variables are collected at multiple timepoints, and we will ask you to submit these variables in a concatenated VARIABLEID_TIMESTAMP form for future analyses. For example, VARIABLEID_BASE (baseline); VARIABLEID_6MO (6 month follow-up); VARIABLEID_1YR (1 year follow-up), etc. In this case 6 months, 1, and 2 years should be done, 3 months and 5 years follow-up are recommended, but not essential.

Data type

text

Alias
UMLS CUI [1,1]
C0439564
UMLS CUI [1,2]
C1442488
Patient-Reported Health and Wellbeing
Description

Patient-Reported Health and Wellbeing

Alias
UMLS CUI-1
C2987124
UMLS CUI-2
C0018759
UMLS CUI-3
C2939150
Which Patient-Reported Outcome Measure are you using to measure pain?
Description

Choose one from: Numerical Rating Scale Visual Analogue Scale SF-36 Bodily Pain PROMIS Pain Interference PedsQL Pain and Hurt INCLUSION CRITERIA: All patients TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0030193
UMLS CUI [1,2]
C4277735
Circle the number that best describes the pain you felt due to your arthritis during the last week.
Description

0 = None 10 = Extreme INCLUSION CRITERIA: If "1 = NRS" to PROMCHOICE_PAIN TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Numerical

Data type

integer

Alias
UMLS CUI [1]
C1518471
Which Patient-Reported Outcome Measure are you using to measure fatigue?
Description

Choose one from: Numerical Rating Scale Visual Analogue Scale FACIT-F BRAF PROMIS Fatigue PedsQL4.0 Fatigue Total Score INCLUSION CRITERIA: All patients TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0015672
UMLS CUI [1,2]
C4277735
Circle the number that best describes how much fatigue you felt due to your arthritis during the last week.
Description

0 = No fatigue 10 = Totally exhausted INCLUSION CRITERIA: If "1 = NRS" to PROMCHOICE_FAT TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Numerical

Data type

integer

Alias
UMLS CUI [1,1]
C4050142
UMLS CUI [1,2]
C0015672
Which Patient-Reported Outcome Measure are you using to measure activity limitations?
Description

Choose one from: HAQ-II HAQ-DI MHAQ MD-HAQ PROMIS Physical Function BASFI C-HAQ JAMAR INCLUSION CRITERIA: All patients TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0026606
UMLS CUI [1,2]
C4277735
We are interested in learning how your illness affects your ability to function in daily life. Place an X in the box which best describes your usual abilities OVER THE PAST WEEK: Are you able to:…Stand up from a straight chair?
Description

INCLUSION CRITERIA: If "1 = HAQ-II" to PROMCHOICE_ACT TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C2697568
UMLS CUI [1,2]
C4329245
Are you able to:… Walk outdoors on flat ground?
Description

INCLUSION CRITERIA: If "1 = HAQ-II" to PROMCHOICE_ACT TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C2697568
UMLS CUI [1,2]
C4055526
Are you able to:… Get on/off toilet?
Description

INCLUSION CRITERIA: If "1 = HAQ-II" to PROMCHOICE_ACT TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C2697568
UMLS CUI [1,2]
C0578228
Are you able to:… Reach and get down a 5 pound object (such as a bag of sugar) from just above your head?
Description

INCLUSION CRITERIA: If "1 = HAQ-II" to PROMCHOICE_ACT TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C2697568
UMLS CUI [1,2]
C4329244
Are you able to:… Open car doors?
Description

INCLUSION CRITERIA: If "1 = HAQ-II" to PROMCHOICE_ACT TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C2697568
UMLS CUI [1,2]
C4329242
Are you able to:… Do outside work (such as yard work)?
Description

INCLUSION CRITERIA: If "1 = HAQ-II" to PROMCHOICE_ACT TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C2697568
UMLS CUI [1,2]
C3869579
Are you able to:… Wait in line for 15 minutes?
Description

INCLUSION CRITERIA: If "1 = HAQ-II" to PROMCHOICE_ACT TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C2697568
UMLS CUI [1,2]
C3869578
Are you able to:… Lift heavy objects?
Description

INCLUSION CRITERIA: If "1 = HAQ-II" to PROMCHOICE_ACT TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C2697568
UMLS CUI [1,2]
C3869577
Are you able to:… Move heavy objects?
Description

INCLUSION CRITERIA: If "1 = HAQ-II" to PROMCHOICE_ACT TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C2697568
UMLS CUI [1,2]
C3869576
Are you able to:… Go up two or more flights of stairs?
Description

INCLUSION CRITERIA: If "1 = HAQ-II" to PROMCHOICE_ACT TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C2697568
UMLS CUI [1,2]
C3869575
Which Patient-Reported Outcome Measure are you using to measure overall emotional and physical health impact?
Description

Choose one from: Numerical Rating Scale (Patient Global Assessment) Visual Analogue Scale (Patient Global Assessment) PROMIS Global Health EQ-5D-5L SF-6D Raid Psaid PedsQL3.0 PedsQL4.0 PROMIS Global Health Paediatric EQ-5D-Y INCLUSION CRITERIA: All patients TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C4277735
UMLS CUI [1,2]
C3641833
UMLS CUI [1,3]
C0517226
Circle the number that best describes how your arthritis has affected you overall during the last week.
Description

0 = No impact 10 = Extreme impact INCLUSION CRITERIA: If "1 = NRS (Patient Global Assessment)" to PROMCHOICE_OEPHI TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C4050142
UMLS CUI [1,2]
C3641833
UMLS CUI [1,3]
C0517226
Which Patient-Reported Outcome Measure are you using to measure work/school/housework ability and productivity?
Description

Choose one from: WPAI PedsQL4.0 - School Function INCLUSION CRITERIA: All patients TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C4329245
UMLS CUI [1,2]
C0563673
UMLS CUI [1,3]
C0518076
Are you currently employed (working for pay)?
Description

INCLUSION CRITERIA: If "1 = WPAI" to PROMCHOICE_WSHAP TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C4053845
UMLS CUI [1,2]
C0242271
The next questions are about the past seven days, not including today. During the past seven days, how many hours did you miss from work because of your health problems? Include hours you missed on sick days, times you went in late, left early, etc., because of your health problems. Do not include time you missed to participate in this study.
Description

INCLUSION CRITERIA: If "1 = Yes" to WPAI_GH_Q01 TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Numerical value

Data type

integer

Alias
UMLS CUI [1,1]
C4053845
UMLS CUI [1,2]
C4054768
During the past seven days, how many hours did you miss from work because of any other reason, such as vacation, holidays, time off to participate in this study?
Description

INCLUSION CRITERIA: If "1 = Yes" to WPAI_GH_Q01 TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Numerical value

Data type

integer

Alias
UMLS CUI [1,1]
C4053845
UMLS CUI [1,2]
C4054769
During the past seven days, how many hours did you actually work?
Description

INCLUSION CRITERIA: If "1 = Yes" to WPAI_GH_Q01 TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Numerical value

Data type

integer

Alias
UMLS CUI [1,1]
C4053845
UMLS CUI [1,2]
C4054767
During the past seven days, how much did your health problems affect your productivity while you were working? Think about days you were limited in the amount or kind of work you could do, days you accomplished less than you would like, or days you could not do your work as carefully as usual. If health problems affected your work only a little, choose a low number. Choose a high number if health problems affected your work a great deal. Consider only how much health problems affected productivity while you were working
Description

Scale: 0 = Health problems had no effect on my work 10 = Health problems completely prevented me from working INCLUSION CRITERIA: If ">0" to WPAI_GH_Q04 TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Numerical value

Data type

integer

Alias
UMLS CUI [1,1]
C4053845
UMLS CUI [1,2]
C4054828
During the past seven days, how much did your health problems affect your ability to do your regular daily activities, other than work at a job? By regular activities, we mean the usual activities you do, such as work around the house, shopping, childcare, exercising, studying, etc. Think about times you were limited in the amount or kind of activities you could do and times you accomplished less than you would like. If health problems affected your activities only a little, choose a low number. Choose a high number if health problems affected your activities a great deal Consider only how much health problems affected your ability to do your regular daily activities, other than work at a job.
Description

Scale: 0 = Health problems had no effect on my daily activities 10 = Health problems completely prevented me from doing my daily activities INCLUSION CRITERIA: If "1 = WPAI" to PROMCHOICE_WSHAP TIMING: Baseline and annually REPORTING SOURCE: Patient-reported TYPE: Numerical value

Data type

integer

Alias
UMLS CUI [1,1]
C4053845
UMLS CUI [1,2]
C4054829

Similar models

Patient-reported Form

  1. StudyEvent: ODM
    1. Patient-reported Form
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Administrative Data
C1320722 (UMLS CUI-1)
Patient ID
Item
Indicate the patient's medical record number
integer
C1269815 (UMLS CUI [1])
Time Relative to Baseline
Item
Time Relative to Baseline (e.g. 3 months follow-up, 6 months follow-up, 1 year follow-up, ...)
text
C0439564 (UMLS CUI [1,1])
C1442488 (UMLS CUI [1,2])
Item Group
Patient-Reported Health and Wellbeing
C2987124 (UMLS CUI-1)
C0018759 (UMLS CUI-2)
C2939150 (UMLS CUI-3)
Item
Which Patient-Reported Outcome Measure are you using to measure pain?
integer
C0030193 (UMLS CUI [1,1])
C4277735 (UMLS CUI [1,2])
Code List
Which Patient-Reported Outcome Measure are you using to measure pain?
CL Item
Numerical Rating Scale (1)
C1518471 (UMLS CUI-1)
(Comment:en)
CL Item
Visual Analogue Scale (2)
C0042815 (UMLS CUI-1)
(Comment:en)
CL Item
SF-36 Bodily Pain (3)
C0451287 (UMLS CUI-1)
C3890602 (UMLS CUI-2)
Alternative code: C3828407 RAND-36 Bodily Pain (Comment:en)
CL Item
PROMIS Pain Interference (4)
C3836323 (UMLS CUI-1)
(Comment:en)
CL Item
PedsQL Pain and Hurt (5)
C2698752 (UMLS CUI-1)
C0030193 (UMLS CUI-2)
(Comment:en)
Pain Numerical Rating Scale
Item
Circle the number that best describes the pain you felt due to your arthritis during the last week.
integer
C1518471 (UMLS CUI [1])
Item
Which Patient-Reported Outcome Measure are you using to measure fatigue?
integer
C0015672 (UMLS CUI [1,1])
C4277735 (UMLS CUI [1,2])
Code List
Which Patient-Reported Outcome Measure are you using to measure fatigue?
CL Item
Numerical Rating Scale (1)
C4050142 (UMLS CUI-1)
C0015672 (UMLS CUI-2)
(Comment:en)
CL Item
Visual Analogue Scale (2)
C3826867 (UMLS CUI-1)
(Comment:en)
CL Item
FACIT-F (3)
C3272505 (UMLS CUI-1)
(Comment:en)
CL Item
BRAF (4)
C0003873 (UMLS CUI-1)
C0015672 (UMLS CUI-2)
C0681889 (UMLS CUI-3)
(Comment:en)
CL Item
PROMIS Fatigue (5)
C3836324 (UMLS CUI-1)
(Comment:en)
CL Item
PedsQL4.0 Fatigue Total Score (6)
C4331931 (UMLS CUI-1)
(Comment:en)
Fatigue Numerical Rating Scale
Item
Circle the number that best describes how much fatigue you felt due to your arthritis during the last week.
integer
C4050142 (UMLS CUI [1,1])
C0015672 (UMLS CUI [1,2])
Item
Which Patient-Reported Outcome Measure are you using to measure activity limitations?
integer
C0026606 (UMLS CUI [1,1])
C4277735 (UMLS CUI [1,2])
Code List
Which Patient-Reported Outcome Measure are you using to measure activity limitations?
CL Item
HAQ-II (1)
C2697568 (UMLS CUI-1)
(Comment:en)
CL Item
HAQ-DI (2)
C4321476 (UMLS CUI-1)
(Comment:en)
CL Item
MHAQ (3)
C0451209 (UMLS CUI-1)
(Comment:en)
CL Item
MD-HAQ (4)
C0451208 (UMLS CUI-1)
C2347299 (UMLS CUI-2)
(Comment:en)
CL Item
PROMIS Physical Function (5)
C3836322 (UMLS CUI-1)
(Comment:en)
CL Item
BASFI (6)
C2711260 (UMLS CUI-1)
(Comment:en)
CL Item
C-HAQ (7)
C2732494 (UMLS CUI-1)
(Comment:en)
CL Item
JAMAR (8)
C3495559 (UMLS CUI-1)
C0450973 (UMLS CUI-2)
C2347299 (UMLS CUI-3)
(Comment:en)
Item
We are interested in learning how your illness affects your ability to function in daily life. Place an X in the box which best describes your usual abilities OVER THE PAST WEEK: Are you able to:…Stand up from a straight chair?
integer
C2697568 (UMLS CUI [1,1])
C4329245 (UMLS CUI [1,2])
Code List
We are interested in learning how your illness affects your ability to function in daily life. Place an X in the box which best describes your usual abilities OVER THE PAST WEEK: Are you able to:…Stand up from a straight chair?
CL Item
Without Any Difficulty (0)
C3842554 (UMLS CUI-1)
(Comment:en)
CL Item
With Some Difficulty (1)
C3844120 (UMLS CUI-1)
(Comment:en)
CL Item
With Much Difficulty (2)
C3842553 (UMLS CUI-1)
(Comment:en)
CL Item
Unable To Do (3)
C1299582 (UMLS CUI-1)
(Comment:en)
Item
Are you able to:… Walk outdoors on flat ground?
integer
C2697568 (UMLS CUI [1,1])
C4055526 (UMLS CUI [1,2])
Code List
Are you able to:… Walk outdoors on flat ground?
CL Item
Without Any Difficulty (0)
C3842554 (UMLS CUI-1)
(Comment:en)
CL Item
With Some Difficulty (1)
C3844120 (UMLS CUI-1)
(Comment:en)
CL Item
With Much Difficulty (2)
C3842553 (UMLS CUI-1)
(Comment:en)
CL Item
Unable To Do (3)
C1299582 (UMLS CUI-1)
(Comment:en)
Item
Are you able to:… Get on/off toilet?
integer
C2697568 (UMLS CUI [1,1])
C0578228 (UMLS CUI [1,2])
Code List
Are you able to:… Get on/off toilet?
CL Item
Without Any Difficulty (0)
C3842554 (UMLS CUI-1)
(Comment:en)
CL Item
With Some Difficulty (1)
C3844120 (UMLS CUI-1)
(Comment:en)
CL Item
With Much Difficulty (2)
C3842553 (UMLS CUI-1)
(Comment:en)
CL Item
Unable To Do (3)
C1299582 (UMLS CUI-1)
(Comment:en)
Item
Are you able to:… Reach and get down a 5 pound object (such as a bag of sugar) from just above your head?
integer
C2697568 (UMLS CUI [1,1])
C4329244 (UMLS CUI [1,2])
Code List
Are you able to:… Reach and get down a 5 pound object (such as a bag of sugar) from just above your head?
CL Item
Without Any Difficulty (0)
C3842554 (UMLS CUI-1)
(Comment:en)
CL Item
With Some Difficulty (1)
C3844120 (UMLS CUI-1)
(Comment:en)
CL Item
With Much Difficulty (2)
C3842553 (UMLS CUI-1)
(Comment:en)
CL Item
Unable To Do (3)
C1299582 (UMLS CUI-1)
(Comment:en)
Item
Are you able to:… Open car doors?
integer
C2697568 (UMLS CUI [1,1])
C4329242 (UMLS CUI [1,2])
Code List
Are you able to:… Open car doors?
CL Item
Without Any Difficulty (0)
C3842554 (UMLS CUI-1)
(Comment:en)
CL Item
With Some Difficulty (1)
C3844120 (UMLS CUI-1)
(Comment:en)
CL Item
With Much Difficulty (2)
C3842553 (UMLS CUI-1)
(Comment:en)
CL Item
Unable To Do (3)
C1299582 (UMLS CUI-1)
(Comment:en)
Item
Are you able to:… Do outside work (such as yard work)?
integer
C2697568 (UMLS CUI [1,1])
C3869579 (UMLS CUI [1,2])
Code List
Are you able to:… Do outside work (such as yard work)?
CL Item
Without Any Difficulty (0)
C3842554 (UMLS CUI-1)
(Comment:en)
CL Item
With Some Difficulty (1)
C3844120 (UMLS CUI-1)
(Comment:en)
CL Item
With Much Difficulty (2)
C3842553 (UMLS CUI-1)
(Comment:en)
CL Item
Unable To Do (3)
C1299582 (UMLS CUI-1)
(Comment:en)
Item
Are you able to:… Wait in line for 15 minutes?
integer
C2697568 (UMLS CUI [1,1])
C3869578 (UMLS CUI [1,2])
Code List
Are you able to:… Wait in line for 15 minutes?
CL Item
Without Any Difficulty (0)
C3842554 (UMLS CUI-1)
(Comment:en)
CL Item
With Some Difficulty (1)
C3844120 (UMLS CUI-1)
(Comment:en)
CL Item
With Much Difficulty (2)
C3842553 (UMLS CUI-1)
(Comment:en)
CL Item
Unable To Do (3)
C1299582 (UMLS CUI-1)
(Comment:en)
Item
Are you able to:… Lift heavy objects?
integer
C2697568 (UMLS CUI [1,1])
C3869577 (UMLS CUI [1,2])
Code List
Are you able to:… Lift heavy objects?
CL Item
Without Any Difficulty (0)
C3842554 (UMLS CUI-1)
(Comment:en)
CL Item
With Some Difficulty (1)
C3844120 (UMLS CUI-1)
(Comment:en)
CL Item
With Much Difficulty (2)
C3842553 (UMLS CUI-1)
(Comment:en)
CL Item
Unable To Do (3)
C1299582 (UMLS CUI-1)
(Comment:en)
Item
Are you able to:… Move heavy objects?
integer
C2697568 (UMLS CUI [1,1])
C3869576 (UMLS CUI [1,2])
Code List
Are you able to:… Move heavy objects?
CL Item
Without Any Difficulty (0)
C3842554 (UMLS CUI-1)
(Comment:en)
CL Item
With Some Difficulty (1)
C3844120 (UMLS CUI-1)
(Comment:en)
CL Item
With Much Difficulty (2)
C3842553 (UMLS CUI-1)
(Comment:en)
CL Item
Unable To Do (3)
C1299582 (UMLS CUI-1)
(Comment:en)
Item
Are you able to:… Go up two or more flights of stairs?
integer
C2697568 (UMLS CUI [1,1])
C3869575 (UMLS CUI [1,2])
Code List
Are you able to:… Go up two or more flights of stairs?
CL Item
Without Any Difficulty (0)
C3842554 (UMLS CUI-1)
(Comment:en)
CL Item
With Some Difficulty (1)
C3844120 (UMLS CUI-1)
(Comment:en)
CL Item
With Much Difficulty (2)
C3842553 (UMLS CUI-1)
(Comment:en)
CL Item
Unable To Do (3)
C1299582 (UMLS CUI-1)
(Comment:en)
Item
Which Patient-Reported Outcome Measure are you using to measure overall emotional and physical health impact?
integer
C4277735 (UMLS CUI [1,1])
C3641833 (UMLS CUI [1,2])
C0517226 (UMLS CUI [1,3])
Code List
Which Patient-Reported Outcome Measure are you using to measure overall emotional and physical health impact?
CL Item
Numerical Rating Scale (Patient Global Assessment) (1)
C4054229 (UMLS CUI-1)
C4050142 (UMLS CUI-2)
(Comment:en)
CL Item
Visual Analogue Scale (Patient Global Assessment) (2)
C4054229 (UMLS CUI-1)
C3536884 (UMLS CUI-2)
(Comment:en)
CL Item
PROMIS Global Health (3)
C3836333 (UMLS CUI-1)
(Comment:en)
CL Item
EQ-5D-5L (4)
C3640517 (UMLS CUI-1)
(Comment:en)
CL Item
SF-6D (5)
C3846158 (UMLS CUI-1)
(Comment:en)
CL Item
Raid (6)
C0003873 (UMLS CUI-1)
C4049986 (UMLS CUI-2)
C0034394 (UMLS CUI-3)
(Comment:en)
CL Item
Psaid (7)
C0003872 (UMLS CUI-1)
C4049986 (UMLS CUI-2)
C0034394 (UMLS CUI-3)
(Comment:en)
CL Item
PedsQL3.0 (8)
C2698752 (UMLS CUI-1)
(Comment:en)
CL Item
PedsQL4.0 (9)
C4054219 (UMLS CUI-1)
(Comment:en)
CL Item
PROMIS Global Health Paediatric (10)
C3836333 (UMLS CUI-1)
C0030755 (UMLS CUI-2)
(Comment:en)
CL Item
EQ-5D-Y (11)
C3896676 (UMLS CUI-1)
(Comment:en)
Overall Emotional and Physical Health Impact Numerical Rating Scale
Item
Circle the number that best describes how your arthritis has affected you overall during the last week.
integer
C4050142 (UMLS CUI [1,1])
C3641833 (UMLS CUI [1,2])
C0517226 (UMLS CUI [1,3])
Item
Which Patient-Reported Outcome Measure are you using to measure work/school/housework ability and productivity?
integer
C4329245 (UMLS CUI [1,1])
C0563673 (UMLS CUI [1,2])
C0518076 (UMLS CUI [1,3])
Code List
Which Patient-Reported Outcome Measure are you using to measure work/school/housework ability and productivity?
CL Item
WPAI (1)
C4053845 (UMLS CUI-1)
(Comment:en)
CL Item
PedsQL4.0 - School Function (2)
C4054212 (UMLS CUI-1)
(Comment:en)
Item
Are you currently employed (working for pay)?
integer
C4053845 (UMLS CUI [1,1])
C0242271 (UMLS CUI [1,2])
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
Work Productivity and Activity Impairment Questionnaire: General Health V2.0 (WPAI:GH) Question 2
Item
The next questions are about the past seven days, not including today. During the past seven days, how many hours did you miss from work because of your health problems? Include hours you missed on sick days, times you went in late, left early, etc., because of your health problems. Do not include time you missed to participate in this study.
integer
C4053845 (UMLS CUI [1,1])
C4054768 (UMLS CUI [1,2])
Work Productivity and Activity Impairment Questionnaire: General Health V2.0 (WPAI:GH) Question 3
Item
During the past seven days, how many hours did you miss from work because of any other reason, such as vacation, holidays, time off to participate in this study?
integer
C4053845 (UMLS CUI [1,1])
C4054769 (UMLS CUI [1,2])
Work Productivity and Activity Impairment Questionnaire: General Health V2.0 (WPAI:GH) Question 4
Item
During the past seven days, how many hours did you actually work?
integer
C4053845 (UMLS CUI [1,1])
C4054767 (UMLS CUI [1,2])
Work Productivity and Activity Impairment Questionnaire: General Health V2.0 (WPAI:GH) Question 5
Item
During the past seven days, how much did your health problems affect your productivity while you were working? Think about days you were limited in the amount or kind of work you could do, days you accomplished less than you would like, or days you could not do your work as carefully as usual. If health problems affected your work only a little, choose a low number. Choose a high number if health problems affected your work a great deal. Consider only how much health problems affected productivity while you were working
integer
C4053845 (UMLS CUI [1,1])
C4054828 (UMLS CUI [1,2])
Work Productivity and Activity Impairment Questionnaire: General Health V2.0 (WPAI:GH) Question 6
Item
During the past seven days, how much did your health problems affect your ability to do your regular daily activities, other than work at a job? By regular activities, we mean the usual activities you do, such as work around the house, shopping, childcare, exercising, studying, etc. Think about times you were limited in the amount or kind of activities you could do and times you accomplished less than you would like. If health problems affected your activities only a little, choose a low number. Choose a high number if health problems affected your activities a great deal Consider only how much health problems affected your ability to do your regular daily activities, other than work at a job.
integer
C4053845 (UMLS CUI [1,1])
C4054829 (UMLS CUI [1,2])

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